i need this guy on my team😭 I just moved to New city. 5 hours from home and can not find a knowledgeable eds docs. I have had the rougher end of the eds stick . our medical system let me down so bad watching me deteriorate away with no intervention and prevention. I need help.

@ethandax8900

3 жыл бұрын

Sorry to be so offtopic but does any of you know of a method to get back into an instagram account?? I stupidly lost the password. I love any tricks you can offer me!

@SpectrumOfChange

4 ай бұрын

I'm sorry, this is terrible. I hope you've found better support.

I had flat feet, a weak left side, a femur that was out of place, jaw out of place, a shoulder, two ankles, etc and I didn't know this until recently as I started self-massaging ang trigger point. All of a sudden, a bone would go click. My right ass cheek felt like fire for like 2 days after being popped back into place. As a child my injuries did not hurt so the muscles just tightened around my joints. Sitting on my knees would hurt bc my muscles were so tight. I only now experience daily pain after popping my joints back into place. IT makes me wonder, did I really need to do that? I liked pretending I wasn't in pain and chronically tired.

@professionalcommenter

Жыл бұрын

Yes, because body mechanics are very important for long term care. I'm 38 and wished I would have known about body mechanics sooner. I need a knee replacement and I have a whole host of other things wrong with me.

☹️ my PT refused to treat multiple joints or areas at once. I couldn't walk because of a knee dislocation but I had to forgo knee treatment to do neck first to try and hold my head up long enough and be less dizzy...PT eventually basically was like "your knee seems more flexible so go away you don't need anymore treatment" .....but I can't walk or stand for any real length of time and I'm still super dizzy and my knee/back/everything hurts so much?? Chronic thing be chronic pt lady!

@kiraleighhh

4 жыл бұрын

you should go to a new one :( one who specializes in EDS

@kdelka81

2 жыл бұрын

@@kiraleighhh You know how rare they are, right? There is 1 PT in my area who works with EDS and she does concierge PT. Most of us don't have it like that. 🤑

@kiraleighhh

2 жыл бұрын

@@kdelka81 there are a lot of at home treatments you can learn to do over time properly

Can you Referral a doctor in Tampa Florida? I need a doctor and physical therapist thank you

Pongan traductor para en español

This protocol he speaks of where can I find it

@amyessex428

3 жыл бұрын

www.amazon.com/Living-Life-Fullest-Ehlers-Danlos-Syndrome/dp/1478758880

@amyessex428

3 жыл бұрын

kzread.info/dash/bejne/iZZ62MlrgLi9c7Q.html

He refers to it as a “disease”. It’s not a disease, it’s the way the body is built. Poor terminology

@Ann-dm7lj

3 жыл бұрын

Sorry, yes it is considered a disease. I had a hard time with that at first, but it is what it is.

@kdelka81

2 жыл бұрын

A disease is a disorder of a structure/s in the body, and/or a disorder of function in the body. Eds is a disorder of both structure and function. It is a disease. A disorder of HOW the body is built and HOW the body functions.

@professionalcommenter

Жыл бұрын

It's a genetic syndrome. It's not something that we developed, sure the symptoms develop as we age but it's always been present.