I'm an adult that was diagnosed yesterday by my brain neurologist. He referred me to a spine neurologist. I also have scoliosis with an L6.

@Chiari_Queen_T

6 ай бұрын

you should be referred to a NEUROSURGEON who specializes in this. A neurologist is useless to you right now. What state are you in?

So my MRI shows I have a tethered cord. I have had all the symptoms as a child the doctors told my parents I have growing pains. I have been in pain all my life. I just thought it was a part of life.😢 I found out through an MRI however doctors have not said anything about it and they wondered what the term meant As it has a different description on the report. So far the doctors ignore that and not sure if I really should bring it up or just leave it as is. I am 47 years old.

Are there any specialist that actually look at this or neurological people who care that are professionals that read this stuff? What insurance should I buy? How much money does it take to get a specialist to listen how much money do I need to save? Thank you

I'm watching the video now and I see that not only is it extremely rare in adults such as I'm 33 years old and I have it but it's really hard to diagnose and mine was extremely easy. The only reason why they found it is cuz I fell in the shower because I didn't have balance and they needed to do an MRI to make sure everything was good... Obviously it wasn't because that's when she found it. It's interesting to me because they said it did not show up for the girl in the video on her MRI but on my MRIS it showed tethered cord. Does that mean it has to already be a problem before they can see it? It makes me wonder how bad my situation really is...

@douglasman100

7 ай бұрын

No, this is just regular tethered cord then. occult is when you cannot see it on MRI

Where do we go to get tested for occult TSCS? A recemmended surgeon?

@styxinator91

Жыл бұрын

Dr. Vicenc Gilete is doing my surgery in a week. An MRI of the back is required, but in my experience not all surgeons/Specialists know what they are looking for. I was lucky. Not many surgeons do this kind of surgery.

@Holypikemanz

Жыл бұрын

@@styxinator91 true. I went the pentoxyffline/vitamin K2 mega dose route. Pentoxyffline for scar disolving, vitamin k2 for calcium removal.

I watched a movie and the guy had a young daughter who got diagnosed with tethered cord. (It wasn’t an important part they just mentioned it) I googled it right away.

@jacerayan4457

3 жыл бұрын

instaBlaster...

So much dilly-dallying and Wordplay in a talk. Just be more germane...so many eh, ahhhh.

@SweetiePieTweety

8 ай бұрын

English is obviously not her native language and she is searching for correct language in a difficult subject matter. Gratitude for the information being brought to light would be beneficial vs criticism of the delivery. How many languages are you proficient in without filler utterances? Curious yet not really. I prefer to focus on the relevant not then irrelevant… but alas here I am commenting on your irrelevant comment. Good day Be kind Be well Be better

@kfskins2

3 ай бұрын

Here’s some wordplay for you. Germane had the same Latin roots ‘germanus’ as the word German, which is her native language. Please share the publically available ground-breaking research, care and guidance you have offered as a top neurosurgeon, so we can compare. Please also choose your favorite learned language to deliver all that in. What a shockingly lazy and dispirited take on this. Dr. Klinge has personally uncovered a major cause of some of the worst symptoms in patients with connective tissue disorders via peer reviewed research, developed a treatment she tirelessly provides to this dreadfully sick and overlooked community, and finds time to educate more providers and the public.

@heenadobhal548

3 ай бұрын

To the both of you , let me start by saying that I am not questioning her medical prowess/knowledge/ work. I also believe she does not need any validation as she is a very determined and obviously very capable professional doing fabulous work. However, as I came to this talk as another neurosurgeon from a country where spina bifida, neural tube defects and tethered cord is far more prevalent than the West, I had hopes of knowing something that's not already known. Well,most of the information she's giving is already in older books , nothing new. Also, in medical profession, there is standard nomenclature system( as in most of science), so no matter your preferred language, the terminology remains the same, hence I disagree that as a senior professional wanting to get her point across on a topic she obviously is well-versed in,, she is dilly-dallying, word-finding. I do stand by that. However, for people who are troubled by this disorder, or the non-medicos, maybe the talk was very educative, no doubt. But as a surgeon, I felt like the news ad was unnecessary, when she went on to talk about the same symptoms for another 10 minutes, albeit faltering with language. That's my take. I felt un-enlightened and difficult to stay on till the end because of the delivery and length of unnecessary word-play. Also,this is not a literature class for people trying to explain the roots of certain words like "germane". I don't care where you are from, English is a basic language and sometimes it is hard to focus on talks where the speaker is not fluent. Had the talk been in German, I would have obviously not watched it. PS. English is not my first language either.