Rest In Peace Amy. You were a brave, positive soul. My heart goes out to Tom and her family during this difficult time. She fought so damn hard

My daughter who is 3y old have Short Bowel Syndrome. 2cm of bowel left.Gtube for a drainage and 18 hours of Tpn,7 days a week. We are watching you every day. I hope one day when she growes up she will be strong and beautiful like you 💪❤ Since I discovered your channel you are my hope and now I know how its possible to be happy and positive no matter what kind of diagnosis you are carrying. A lots of love from Canada 🌹

@kecrn4132

5 жыл бұрын

euphoriamaya - warm thoughts to you and your daughter.

@euphoriamaja

5 жыл бұрын

@@kecrn4132 Thank you Kelly 🌹

@amyslife4457

5 жыл бұрын

Aww thank you so much! ❤️❤️

@euphoriamaja

5 жыл бұрын

@@christinabellamoore Thank you!❤

@sweetgirl7229

5 жыл бұрын

Prayers and love for your daughter to live a long happy life ❤️❤️

i had an ng for 2 months and there’s no way i could’ve managed any longer. you’re an absolute saint for putting up with nasal tubes for as long as you did and im hoping you won’t need one very soon. love you girly

You and your mum make me laugh so much when you were walking up the stairs and “expecto patromo” 😂 x

shout out to Tom, who, as you said Amy, is an incredible man. So supportive, funny and so very good for you. I give you so much kudos Tom for being the man you are!

@hollyross8900

5 жыл бұрын

Totally agree 💗💗

Have a happy Easter and I hope things get squared away with your feeding tube quickly.💜 I loved the glow-in-the-dark attachment! That was so cool!

Few tips I do have for parking at FSH 1. park at the transperth parking (as close as you can to the station if you can) 2. make sure you have a smart rider that's connected to your car redgo 3. catch a bus from the station ton the hospital which is one stop but. ( you have to use the transperth if you going to park in their parking lots. Doing this has saved us so much money throughout the year. $2 for a day for parking transperth and like 80 cents bus fair instead of $3 per hour or $26 for a day for using the hospital parking. I hope this helps xx

You're such an inspiration! What i admire so much about you is that you're trying to stay so so positive about everything even when you where in the hospital for x time. Maybe what im about to say sounds super weird but still wanna say it, i have Emetophobia (Phobia for puking, seeing/hearing others puke or when i have to my self) and everytime you talk about that you fell sick but after puking or so you feel so much better and here im feeling like such a numnuts because im so super scared about it. I wish i could be as strong and easy about it as you are! You're a big inspiration to me and to be honest a massive power women!

I love your vlogs! Always look forward to them. I hope your tube situation gets better soon xx

I have so much admiration for you and how you handle your chronic illness (and everything that comes along with it) with such a positive attitude! Everyday you get up and do it again with a smile on your face! Its really amazing. 💜😊👍👏👏 You're an great role model for a ton of people out there who deal with any kind of chronic illness! Thank you!! 💜💜 btw your laugh is contagious:)

I’m sorry you have to go through all this. But you are so strong and always smiling. Stay positive. HAPPY EASTER. love to watch you both. ❤️

Thank you for spreading the awareness about EDS! I found your channel and thought that I have same symptoms as you [if it comes to EDS] so I went to the doctor and I got diagnosed with It

Huge respect from me that you go through all of this, and I really hope your tube get changed asap

I see the light!! Lol! Sorry that you have to use the tubes again, but like you said, it's not for too long. Thank goodness. Your mom is so sweet! And I love how supportive Tom and your family is to you. I don't have that kind of support so it makes me so happy when those who need it have it in abundance! Love you Amy! Stay strong ❤

Hi Amy. It is currently 17:00 here in South Africa. I only got round to watching your video now. I have had a super diificult day. My mom of 75 just got diagnosed with leukemia. Watching your videos and seeing what you go through, encourages me that we can do this and get through it. Never ever underestimate the contribution your videos make.

I have the AMT G-Jet and the J extension glows, the G does not. That way you can tell them apart in the dark! The J part on my button glows too.

So sorry you had to get another nasal tube....had fun watching you and your Mom! You both have such a great relationship!! Keep pushing through!!

Totally loved your mum in this vlog! So sorry your tube couldn't get fixed. Happy Easter xx

Happy Easter to you both, as always with love from Canada xo

So sorry you have to endore putting a drainage tube in, that has to be miserable. Tom is such a great partner for you, he is very supportive and helpful. Hope you have a happy Easter and take care.

I just saw a video about you from 7 months ago on a channel called barcroft tv and just wanted to tell you it was brilliant 💗 so glad to see your info reaching even further

These are real drainage tubes, also called Salem sump tubes, and the "weird end" is actually a connector for if you were using a suction device to drain. In bowel obstruction patients or active GI hemorrhage we will usually use suction, either continuous or intermittent, to help clear out the GI tract. They usually are double lumen. One being connected to suction for drainage while the other can be used to administer drugs or test gastric residue.

Love your videos!! Sorry you had to get the NG again... Hopefully they'll get your tube fixed soon so you don't have to have the NG that long. I couldn't imagine having to use that and put it in myself. I would be gagging!! Prayers for you!!! I love how strong and positive you are even when bad things happen.... Your such an inspiration to many others in the world today!!! 💜💛💜 happy early easter to you as well!!! 💚💛💚

Hi Amy, gutted for you that they couldn’t fix tube, but thankful it’s only going to be for a short period. I see you went with the tights in the end, were you cold? Have a great Easter 🐣 x

@amyslife4457

5 жыл бұрын

Yes my legs got cold 😅😅

*Expecto Petromo* killed me😂😂

Aww just literally finished watching your last blog. Was hoping they could just fix your tube without having to fit u with a drainage NG. Are u going to keep it in or just place it when u need to drain?. . Going to watch video now. Wanted to comment first. Lots of love missus. Xxxx

I love how you can have jokes about negativity and share it with us ‘nose hose’ 🤣 fingers crossed the booger Boulder isn’t there for long 🥰🤞

Love seeing you with your mom. So cute! Tell mom to be in more videos...the best 😍😊👍

Awe, I'm sorry the nose hose had to come back. Thank God it's only going to be a temporary neccessary evil. Happy Easter to you and your family. Hope you all have a wonderful day!

Hi Amy, I the weird connection at the end of the tube serves as an air vent (smaller tube). If you leave it disconnected it will allow gas to escape naturally

Happy Easter to you both x

Happy Easter to you guys as well. 😁😁

Love you so much! I hope your feeding tube works soon. Your mom is awesome! I hope you have a wonderful Easter weekend. 💖🐰🐇

The parking ticket 😂😂 the accent is back

Love you!!! Your so beautiful no matter what 💗💗

SO disappointing they couldn’t fix your tube!!! Im SO SORRY!!! We are cheering for you!!! I really hope ur throat/nose is going to hold up to the NJs-maybe difflam is going to be your bestie for a couple of weeks!! Just wondering, have you tried Coke down ur tube to try to unblock it? When I worked as a nurse i found it worked quite well-combined with push/pull method with a big 60ml syringe (ie trying to push fluid in, alternating with pulling the plunger back-so you get a bit of a vacuum type affect in the syringe)-I hope u get what I mean-I wish I could show you!!! With all the bits they sent you home with, it looks as if you can’t unblock it trying all the options they gave you, you could probably rest assured that you tried everything...& that it’s probably well & truly buggered!!! Im wondering if it’s kinked again?!? It seems it’s the case absolutely everywhere & in every hospital-Anything food wise, they triple/quadruple the price-I guess they know that people will pay whatever when they have to/stressed/hungry/no other option. Most of the time the food provided by the hospital is garbage-so to avoid it, you have no choice but to buy-& of course, they know that!! I think it’s a bit of a scam to be honest-it would only cost them a tiny proportion, while the profit, I’m 100% sure of-is massive!! Ridiculous!!! I feel ur pain-I hate to think how much money our hospital cafeteria’s have gotten out of my family & I! Hang in there!!! Happy easter guys!!!

I love the video and I LOVE her channel so much

I'm probably the only one never bothered by NG tubes. I had severe anorexia and through the years they intermittently tube fed me 3 times a day in different periods. (I used to count, but when I've had it 300 times I stopped counting) I never found it bothersome when the nurses put it down, I even let trainees try it because I was so calm. The medical part was fine, maybe I have an optimal sinus area, the bad part was psychologically getting nutrients in me because I was anorexic. Now I'm recovered, but it brings bittersweet memories up from my past, seeing intermittent feeding tubes. I'm glad you will have a proper surgery to get your stomach tube fixed. I wish you luck! (sorry bad english)

You are one inspirational gal! All the best 💕

Hi Amy! I'm curious what your Dr plans are for TPN for you... will you be on it forever? And are you gonna get a port or keep the Hickman? I've got EDS too but luckily not really any GI manifestations. Zebra club!

Awwww, you two are just so supercute ♥♥♥

@amberclarke6409

5 жыл бұрын

They really are relationship GOALS!!! lol 💜💛⚘

You guys are couple goals!

You have a great attitude with all you have to put up with. Love ya♥️🤗

Happy Easter!🐰🌷

Meant Tom at the hospital but glad mum was with you!!!

sorry about the nasal tube. i know you don't like it feel better quickly! i'e kept you in my prayers!

Those are the same Extensions my brother uses they are so cool. His tube glows too he finds it so cool that he can glow in the dark

Those stairs are a good excersice right Amy! :D

Hey I just want you to know that I love learning new medical stuff from you that has to do with your condition. And Tom makes me laugh why do vampires always looks so neat and tidy if they cant see themselves in the mirror LOL

Hey Amy, I love your videos. Hope you get better soon ❤️

I'VE BOUGHT YOUR MERCH!! I got a blue hoodie. I'm soooooo excited to get it. Can't wait til they ship out!

@Chelle8847

5 жыл бұрын

oh, also, I really hope you get your tube situation sorted out asap. Must be tough going back to nose hose (!) after so long without them!!

@amyslife4457

5 жыл бұрын

Thank you so much for your support! 💖💖💖🙏🏼

The vampires in Dracula didn't have a reflection. Happy Easter 🐣🐰

I hope it is making you feel better sweetie 💜

you pass your bold spirit to us，thank you and love you.

THE NOSE HOSE 😭😭

Where did you get your boots from they’re so nice 💛 Sorry about the tube hopefully they’ll fix it after Easter 🤞🏻

@amyslife4457

5 жыл бұрын

Emma Gould boohoo.com ❤️

I love your mum she so bloody funny!!!

Laughed at that yeeeaaaah as the camera adjusted to light in the bathroom 😂 favorite part

@amyslife4457

5 жыл бұрын

Chloé West hahaha 😂😂

Amy you're amazing as usual. I wish you didn't have to keep messing with all these tubes. I hope they can get everything working right SOON. Take care of yourself.

I understand exactly what this is like x

lol my friends and i called our nasal tubes nose hoses as well😂😂😂😂

I had those as a kid!

What is your advice for people who have pots and slow digestion and everyone tells you to drink water so the pots symptoms are better but they physically can’t? Do you think IV saline therapy is helpful/ what is your experience? Thanks so much❤️

awwww snogs. sweet.

"Things that make you go hmm" needs to be it's own channel of just 3 to 5 minutes of theorizing these things that make you go "hmm"

You found a good man when you found Tom!💕

Whenever I have to have a nasal tube I get the nurses to use a paediatric size. It’s smaller than the adult size and easier to insert. Have you ever tried the smaller ones? You might find them easier to use. Also I know you struggle with occasional skin breakouts. I do also. I use a brand called la Roche posey. It’s fantastic. You should try it if they have it where you are.

What about the vampires on Buffy? I can't remember 🤔 I hope you get your tube fixed soon so you don't have to deal with the NGs anymore. I would be a gagging and sneezing mess if I had to use one.

Stay strong your beautiful

Your mom is too cute!

My direct family member has these conditions also

I have a brace I wear even tho it dislocates my knee. It rare but some days I need the extra support besides the long hole brace and immobilizer

Tom influenced me ... lemme explain lol. So yesterday I was in the store buying ground beef. I said to the butcher ... "It is not called hamburger till you cook the ground beef, till then you just call it beef right"? Butcher goes ... "I never thought about it ...". THEN I said "Why do we call it "Hamburger" if it is beef not ham"? He was not laughing nor overly impressed. But I felt grand and funny!!! Thank you Amy and Tom for making me laugh. Lmbo

@amyslife4457

5 жыл бұрын

Katie Johnson omg I love this 😂😂😂❤️❤️❤️❤️

You and your mom are too funny!!

Hope they can fix your tube ASAP and that NG isn’t needed for long!

Why do daughters always leave their mothers 20 feet behind when walking. My daughter always does and then laughs at me.😍

@eafj90

5 жыл бұрын

Edna Bart I had no idea this was a thing. I walk alongside my mother when I’m with her, just like I would with a friend or anyone else I’m walking with!

@amyslife4457

5 жыл бұрын

Haha it’s very rare for me usually she’s walking ahead of me 😂😂

Have you got any difflam spray or lidocaine spray that might help your nose and throat.

Tom is so funny !!

You guys should make a compilation of toms “ things that make you go hmmm”

I live in Perth and its so weord sometimes when you vlog or talk about a place i know 😅 one day ill run into you lol

Ahhh, darlin’, your so sweet! You two are the perfect couple! Oh, wait a second...I’m serious, I just heard bells in my ears. Is it possible you two will be getting married one day soon? :) Well, I think you both will be the married couple of the year!! :) You guys are just the sweetest. Amy, hang in there girl, just remember...it’s just temporary. So one the days it’s gets you down...Chin up xo

Hey amy❤️I have a surgery/procedure coming up in 5 days and pretty outfit

@amyslife4457

5 жыл бұрын

Alyssa W's singing good luck! X

Accuse me of mixing Genres if you will here.... But I think some of those Vampires that don't use mirrors use or tap into The Force to help them out in looking fab in their gothic chic.... ☮️⚛️

Really sorry to hear that it is the n tube for now ,was hoping for you sake it wouldn’t be , but it willn’t be for to long xxx

Hopefully it will come out soon

you're starting to sound more Australian!!! :)

@amyslife4457

5 жыл бұрын

Tanwen crosby noooo ahaha 😂😂

Your mum is really pretty Amy 😊 x

Hey Amy sorry you have to have a nasal tube again even if it's short term,just curious how do you do your medications at the moment can you put in your nasal tube or can you still use your tube in your belly for that?? I hope you and Tom have a Happy and safe Easter with your family 😘😘👯‍♀️👯‍♀️🐰🐰

You 2 are so cute 💞💞💞

I love Mickey's channel too! Sorry you're having tube trouble!

Bloody hell 14F my tube is only 8f bless you ❤️❤️

I'm actually allergic to chlorhexidine. Sucks when I'm doing my port access Because I have to do the iodine cleanser instead.

Okay this is a really odd question but I’m having surgery in July and it’s my first ever surgery so I’m low key freaking out. Do you have to take your nose ring out when you go under general anesthetic? I hate having to take mine out as it closes up so quickly. I get lash infills to and I’m worried if they tape my eyes closed while I’m under they’ll rip all my lashes off when they take the tape off hahaha 🤦🏼‍♀️ should be the least of my worries haha but #girlproblems

@eafj90

5 жыл бұрын

heysteph3 you have to remove all jewellery for surgery.

@amyslife4457

5 жыл бұрын

Usually yes you’ll have to remove your jewellery however you can ask them to tape them if you don’t want to take them out and when I went under GA with eyelash extensions they did get a few ripped out! Here’s the link to that vlog: kzread.info/dash/bejne/qoCFzKZxaLnYZ8o.html&app=desktop If you wanted to see the before and after of my eyelashes 😂😂😂

Welcome back to the nose hose club even though I know you aren’t doing it anymore 😂

hahahah nose hose, brilliant

You sound northern... as in Yorkshire under your current accent. Are you from the UK? X

I hope so I will get my own feeding tube when my mom and dad died in the future.

Do u have to drain even if u don’t eat or drink

Good one Tom!

Love you & your videos, girl! You are SOOOO AMAZING & STRONG & EXTREMELY BEAUTIFUL!!!!! Side note- I'm an official creeper lmao! I literally said "bless you" every single time you sneezed 😂😅😂😅😂😅 OOPS!! lol Keep on keepin on!!! 💜💛💜💛⚘⚘⚘⚘