The Expert Series: The Awakening: When lupus looks like mental illness

"Groundbreaking stories like this should transform care. And I think that these particular stories will transform care."
[CLOSED CAPTIONS AVAILABLE] In this special bonus episode of our podcast The Expert Series, Dr. Anca Askanase, professor of medicine, the founder and director of Lupus Center and director of Rheumatology Clinical Trials at the Division of Rheumatology of the Columbia University Irving Medical Center in New York City, will be sharing about her role in the successful treatment of a catatonic woman who awakened after 20 years.
Read the famous article on April and Devine's cases in the Washington Post: www.washingtonpost.com/wellne...
* What is inflamation? www.lupus.org/resources/what-...
* Lupus and brain fog: www.lupus.org/resources/lupus...
* How lupus affects the body: www.lupus.org/resources/how-l...

Пікірлер: 32

  • @rachelparker8239
    @rachelparker8239 Жыл бұрын

    Thank you for posting this my sister younger sister and I not to mention several family members have lupus either as a primary or secondary immunological issue it's great to see that lupus isn't something that hasn't been forgotten

  • @Emis_Dad

    @Emis_Dad

    11 ай бұрын

    Absolutely agree!!! And this topic is so timely and important as ever!!!!!!

  • @nancycarlos5695

    @nancycarlos5695

    10 ай бұрын

    I have been suffering from Lupus disease for some year without having a solution to it until i done a research on KZread i come and cross Dr.Auchi on KZread channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...❤️❤️

  • @trinagabriel8712
    @trinagabriel87129 ай бұрын

    I can't express how beneficial this will be. I was recently diagnosed with lupus, and had a history of psychiatric stays for bipolar and panic disorders. Now being on lupus medications, my mental health symptoms are stable. Im the calmest Ive felt since I was 13 years old. Again thank you and I hope there is training for mental health professionals.

  • @TTG1973

    @TTG1973

    6 ай бұрын

    How were you treated? What medications?

  • @annettecochran7916
    @annettecochran7916 Жыл бұрын

    Thanks for posting this. I was misdiagnosed for years as depression and finally a psychiatrist wanted to run tests and got a positive Ana. I began being treated for lupus and the depression dissipated. Although there are still depressive episodes but nothing like before being treated for the correct condition.

  • @nancycarlos5695

    @nancycarlos5695

    10 ай бұрын

    I have been suffering from Lupus disease for some year without having a solution to it until i done a research on KZread i come and cross Dr.Auchi on KZread channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...❤️❤️

  • @TTG1973

    @TTG1973

    7 ай бұрын

    what were you treated with?

  • @annettecochran7916

    @annettecochran7916

    7 ай бұрын

    @@TTG1973 SSRI’s which I got serotonin syndrome and don’t remember anything while taking them, including a suicidal attempt.

  • @TTG1973

    @TTG1973

    6 ай бұрын

    @@annettecochran7916 thank you! No I meant how were you treated for lupus?

  • @annettecochran7916

    @annettecochran7916

    6 ай бұрын

    @@TTG1973 I have been on low dose steroids since my dx , with hydroxychloroquine, then Chloroquine until becoming toxic on anti malarial meds. Then I was on cellcept 2000 mg for several years still on steroids some. They seemed to start not being as effective so I was put on Xeljantz, and cellcept 500 daily . They are not supposed to be taken together, which my doctor and I discussed throughly, but they have been very effective together in treating my lupus symptoms.

  • @cheapskatewithlupus
    @cheapskatewithlupusАй бұрын

    I have lupus and it is so hard to deal with other people and how they deal with me and the lupus.

  • @HopeBetweenTheDreams
    @HopeBetweenTheDreams Жыл бұрын

    💜💜💜💜 This is AMAZING 🎉 Thank you, thank you, thank you!🎉

  • @Richey-mv3sq
    @Richey-mv3sq Жыл бұрын

    My blood work always comes back negative But as I sit here I feel like I been hit like a Mack truck, fever off/on, crying and makes me feel I’m just going to surrender…like I give up

  • @hopeadair6868

    @hopeadair6868

    Жыл бұрын

    Same every evening 7pm

  • @nancycarlos5695

    @nancycarlos5695

    10 ай бұрын

    I have been suffering from Lupus disease for some year without having a solution to it until i done a research on KZread i come and cross Dr.Auchi on KZread channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...❤️❤️

  • @ritah4713

    @ritah4713

    9 ай бұрын

    Have you tried getting an ANA test?

  • @annettecochran7916

    @annettecochran7916

    6 ай бұрын

    My labs are often good, but it doesn’t really show how you feel.

  • @MikeSmith-wr9hg
    @MikeSmith-wr9hg2 ай бұрын

    My wife has Lupus: When she first got Lupus 15 years ago, she still worked (Nurse) even during chemo. Then over 4 years ago Lupus attacked her brain. Causing all kinds of issues and having to start chemo all over again. Worked at one place for over 20 years but lost this job just because of Lupus attaching brain. We are told that she has a rare type of Lupus Psychosis which mimics dementia, she is only 49 now. We have tried to get her back to work but without success, gets very tired/weak/confused/out of breath/saving piles of garbage around the house/refrigerator, I clean it up but she puts it back, gets mad/Very hateful disease to be around hates me for helping her, no communication, when I mention anything there is no response. Fighting SSA for over 3 years has been a nightmare. We have had to go to court in DC in front of a judge. Lawyers think that the judge is going to deny just because they know very little about Lupus Psychosis (only 1%) and that is what happened/tells everyone she is fine including the judge, even every hard for me to tell, all I have to do is to think back on the way she was before, Lawyers want nothing of us now. Life has been a nightmare since this last attack. NIH is helping but they go right along with her when she says: I am fine. The last time I talked to a doctor at NIH they were not aware of what was going on. Thankfully, I have a job that pays the bills. Please any help?

  • @southwestmystic

    @southwestmystic

    Ай бұрын

    I am losing my home right now everything has fallen apart. I am being tested for lupus and I hear and see things and have difficulty with relationships. I have college degrees and now and I’m so much head pain, anxiety and depression I am a blob unless told what to do. Your wife has no idea how grateful she is to have you in her life.

  • @user-uy2uv2gj6s

    @user-uy2uv2gj6s

    7 күн бұрын

    I saw the same problem with a relative. Dr's blew off and they were diagnosed after passing. Get recordings of episodes as proof. There are more people who have it and misdiagnosed

  • @IrmaAttwater
    @IrmaAttwater2 ай бұрын

    in germany lupas is successful treated with enzymes

  • @WinkWonkWonkWonkWonk
    @WinkWonkWonkWonkWonk3 ай бұрын

    What specifically was tested in the spinal tap, and which tests within that battery of tests showed inflammation?

  • @user-kb6ne2op9u
    @user-kb6ne2op9u11 ай бұрын

  • @yasmingaji
    @yasmingaji Жыл бұрын

    Its the meds that you have to take for your treatment, you need a little help for your mentality to be calm

  • @debraashe8557
    @debraashe85576 ай бұрын

    My Life. Lupus