Living in the Chicago area, one of the most frustrating things for me is that DePaul is the only Chicago University that does any research on this. The primary research is done on the coasts or in Utah. This leaves thousands without help, without diagnosis. I thank God every day for Dr. Jason and DePaul. But we have Northwestern, University of Chicago, Rush and Loyola mostly doing nothing. I want to participate in studies, but these noble institutions could not be bothered to even stay current on the research. The AMA does so little. It should be a nationwide push to educate the medical professionals.

Thank you Dr. Jason. (Thanks to both of you). This was insightful. I appreciate your 30 years of dedication and experience working with ME. The information was refreshing and validating coming from an expert. Aside, thousands and thousands of women are developing a multitude of symptoms after getting breast implants. It’s a fight to get this medically recognized although there is old scientific research that supports correlation potential. (ASIA, siliconosis, -immune disruption etc). Women are facing blame and claims of hysteria and are being gaslight. The FDA is aware, but change is slow. Advocates(myself and others) must push on in these arenas. As you said, “new frontier,” you are on-point!

Great video, thanks for sharing. I’ve never heard the theory that ME brains are close to going into low-level seizures. That’s really interesting. I’ve been explaining to people for years that I have “seizures” as a way to explain why I can’t just speak at-will. What I feel seems like a seizure-like reaction to minor stimulus.

I’ve had the same thought you articulated, Dr. Jason. It’s not at all surprising that some ME/CFS patients suffer from comorbid depression. It’s amazing that so many of us don’t!

Excellent discussion. Thank you - Lenny's the best!

So validating!! Then the interviewers ADD & Dyslexia, was on point for personal identification! Also having 2 “before my illness”, same illness connection - I have witnessed the history! Thank you 💕

Thank you x

Lenny gets it!

I have fybromyagia over 30yrs and always put down my fatigue to that. What is the difference. I have always said I only have so ,uch energy and once it's gone it takes me days to recover. I love exercise but after a small amount I am in recovery mode again. I am now 62 and doubt I will ever be well again.

Black molds are one of the underestimated leading causes of chronic fatigue syndrome. Mast cells activation syndrome is similar to CFS . Even though my disease onset started following mandate vaccines

@erikjohnson4275

2 жыл бұрын

Dr Jason has been told about toxic mold for 20 years. He never responds.

The CDC did not rename ME. Dr Carlos Lopez, who convened the Holmes committee, explained that the new syndrome was to FIND OUT IF THE LAKE TAHOE OUTBREAK WAS THE SAME AS THE ROYAL FREE DISEASE, ME. There never was a renaming. Did not happen. And Gary Holmes said that fatigue was the outward sign of "a possibly unique medical entity" He DID NOT SAY CFS IS JUST FATIGUE, and the directive was to LOOK FURTHER. The whole medical profession screwed up by freaking out and never bothering to look at how this whole thing came about.

@ryanneilcarr

2 жыл бұрын

I agree with you. I duno why these people spread this, who dont read or know the history. Didnt this guy fall ill due to EBV? If so thats not M.E.. Shepherd fell ill after Zoster. Neither is M.E.. Both are misdiagnosed CFS illnesses. M.E. also is talking about severe end of spectrum related to Enteroviruses and a real genuine acute onset Encephalomyelitis; hence the reason for name. Ones who have actually had Encephalomyelitis. Its a neuromuscular 'motor neuron' illness and nonparalytic poliomyelitis in relationship to enteroviruses. Its not due to a lack of energy. CFS illnesses are lack of energy. The motor neurons attached to muscles have been damaged and destroyed. People who dont have this. Dont have M.E. The lack of energy people aint M.E. patients. End of story. Dont have same injuries. Encephalomyelitis means Encephalomyelitis. If the person hasnt had an Encephalomyelitis. They dont have M.E. Alot of the people who talk about M.E. dont even have it and are totally misdiagnosed.