The Childhood Alzheimer’s Disease
Did you know there is a rare disease that acts like alzheimer’s disease, but affect children? Here is how one family is treating their daughter who has Sanfilippo syndrome.
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Пікірлер: 297
This is heartbreaking. I hate that diseases target children too.
@doggariousdraws3104
4 жыл бұрын
I happen to have Alzheimer's... Its tough :( it get worse everyday.. Sometimes I can't even speak, think, or do anything..
@jayani9695
4 жыл бұрын
Doggarious Draws how old are you? :(
@doggariousdraws3104
4 жыл бұрын
@@jayani9695 recently turned 16.. ;(
@wistful_zzz1649
4 жыл бұрын
Doggarious Draws what are the symptoms
@myheartwillstopinjoy8142
3 жыл бұрын
@@doggariousdraws3104 Hey, how you doing, 8 months later?
My son did die before us. And like you we believed we would see him again as a healthily boy not a boy suffering from severe epilepsy. Tragically my husband was killed a few years later in an accident. I’m all alone in this world but… I know they are together and very happy and I will be with them one day. You have to believe you will be with your loved ones or else you can’t make it through this life. Best wishes, I know your life is hard. Just keep your girl singing, she is so beautiful and happy when she’s singing. 💝
@requisitegold1010
2 жыл бұрын
I'm so sorry to hear about this, darling. I'm sorry I'm fine months late, but just know there are also other people out there. Don't allow these tragedies to overtake you. You will meet with your son and husband when the time is right. If you ever get overwhelmed always be sure to reach out for help. Have a good day, or night.
@EggGat
2 жыл бұрын
I’m very late, but I really hope you’ve been doing better. You are so strong ❤️
@Jude13able
2 жыл бұрын
Keep the faith and never stop believing and trusting in God. Sometimes the days will be hard those are the days when you trust and depend even more on God.
@gamesthatmatter9374
Жыл бұрын
no you wont . they are dead and there is nothing after death but the VOID . You will not exist after death and you wont see them anyway . Fairy tales.
@elizabethsorola2201
Жыл бұрын
11/30/2022 I'm so sorry for your loss Losing love one's is hard but I will pray for you because you Are not alone. God bless you! Amen
That poor family going through so much and still finding things to smile about. They're so unlucky in health but so very lucky in love and each other
I feel terrible for this family.
@adventure-mm2du
5 жыл бұрын
Andrea Tuckman I know right.
@kianaosi9986
5 жыл бұрын
Me not
@ahhhhhh124
5 жыл бұрын
@@bibiabi1227 what?
@salma1491
5 жыл бұрын
@@ahhhhhh124 yh what
@ahhhhhh124
5 жыл бұрын
@@bibiabi1227 uhhhhhh.....
These videos make me appreciate every day, I'm aware, physically and mentally OK. That could ebb with age. For this young girl ... I hope the future finds a cure.
I don't have the words to express my feelings ... blessings to you and your family...I am so sorry. Gods Speed
@inukprasad2692
3 жыл бұрын
Any updates? How is she doing now ?
@BeachioSandschannel
2 жыл бұрын
@@inukprasad2692 It’s likely she’s already passed. May her soul rest with god.
As a dementia nurse . This is sad . I hope the gorgeous mum is doing well also love to all their family and hope everyone in the comments is well love from Melbourne Australia xx
@Bellaboo22228
Жыл бұрын
I love this family and their strength
Life is so cruel at times & your daughter so blessed to have you as her parents & family.I wish you all the strength God can give to you all.
This is really sad... 😢 God bless you and your family.
@plucas9324
4 жыл бұрын
But if you're a Christian you believe that "god" HAS ALREADY "blessed" her and her family--you know, the "god has a plan" thing....
I feel the pain my mom has Alzheimer too it is really heart broken.
@stan6065
4 жыл бұрын
@Rosemarie Plant is it
@stan6065
4 жыл бұрын
Roles reverse
@ducc2566
3 жыл бұрын
@Rosemarie Plant they are both still awful so please don't compare this cuz both people are grieving
@kmsc326
2 жыл бұрын
She doesn’t have physical Alzheimer’s ♥️ but the disease she has, causes Alzheimer symptoms
@u4riahsc
5 ай бұрын
My father had Alzheimer’s and it is much harder on the family than the person suffering from it.
jeez this is a really strong group of people
When I realise all I've lost I have to look to these people & think all they are dealing with & still continue with a positive outlook. It's inspiring how they do that considering everything ❤️
Reminds me of a friend from many years ago whose father died of lung cancer and immediately after his lengthy, lingering death, her mother was diagnosed with lung cancer as well.
@Noella65
2 жыл бұрын
Do not understand the comment. What does Alzheimer have to do with cancer?
@hebneh
2 жыл бұрын
@@Noella65 The daughter has a degenerative disease which will kill her, and the mother has cancer. Two health crises in one family at the same time. That is what my comment was about.
@lordroy88
2 жыл бұрын
I’m really sorry for your friend :(
Crying again. God bless this family.
This is so so heartbreaking. I am so sorry to all the families who have to deal with this. May goodness surround all of you always.
May God Bless this Entire Family 🙏🏻
This poor family. Such nice people and so brave. Life can be so unfair. I wish them all the best.
My heart goes out to your family. Wishing you find strength to carry on. 💜
Bless this family, they are amazing people with all this going on.
Imagine how hard this must be for the kids first being able to something and then you can’t I can’t imagine how hard this must be for kids who have to go through this God bless them 💜😭🥰
@smiththomson95
Жыл бұрын
Hello Sara How are you doing today?
I’m so sorry for this family, may God bless them ❤️
Bless this family 😢
When you look at this video we ALL need to count our blessings
Absolutely heartbreaking.
I'm so sorry for the family and for Abby. Life never says it's going to be perfect. I wish this never happened. 🙏💙
This is so heartbreaking 💔
Poor baby... bless you guys... may Yahweh bless you and comfort you...
wow. its so sad, especially because she grew to be so beautiful.
For all we think we know, we really don't know or understand much. Love to you xxxooo
What a terrible decase .I feel so sorry for this family.
Bless you all. My daughter didnt have that but she did at 25 get diagnosed with metastatic breast cancer we had both breast removed an she was in remission for maybe 9 mos then on mothers day 2019 she was diagnosed with stage 4 bone cancer an 2 mos after that it went to her liver an she went toxic an we watched our beautiful 27 yr old daughter slowly die for 3mos. Gut wrenching an then her daddy was killed by a drunk driver 3 mos ago. An like you I wander why us. What did we do so wrong. They are with me guiding me everyday an this all literally turned me into the very best version of myself ever. Bless you all.
@maty240
2 жыл бұрын
I'm so sorry. My prayers are with you
@toophoot2757
5 ай бұрын
❤ Inshallah all will be better
God shower love on this family 👪❤
no words, just love
So sad.
Heartbreaking. Poor girl. It's cruel forvthe elderly no mind a young person.
This is such a terrible disease. God bless her family. I hope she can still have a good life
Good god, she is a warrior.
i....im at a lose for words to desribe the sarrow that fills my heart at this moment.....i've lost many people i've cared about because of alzhemer's and i always brought comfort to myself by remembering that they lived a good life as long as they could....but this disease is takeing the minds and lives of children before they have a chance to live a good long life.
@kmsc326
2 жыл бұрын
It’s not physical Alzheimer’s ♥️ but the disease she has, causes Alzheimer symptoms
So beautiful
God bless you both ma’am. ❤
@dr.escargon
7 ай бұрын
Yes sir.
People need to know that children need assistance for illnesses too. Not only elderly people!!!!
@dr.escargon
7 ай бұрын
Exactly. When I was teenager I was never cared for because I was a child.
@dr.escargon
7 ай бұрын
I’m starting to feel strange at my adult age. I miss being young often acting like child now. It is sad. In reality I am sad unwell man.
Sorry for your troubles it's terrible
God bless. Have you seen the film 'Lorenzo's oil' with Susan Sarandon?
Lesson of the day: never be happy only sad and angry that's the only way to not get a horrific death
Praying
It used to be that only adult children or people around that age watched with horror as their loved ones died from dementia, now parents join the group of people who have to go through that torture. I have to wonder if we put as much money for research of any kind of dementia as we do for sports, politics and other unimportant things if the cure would come earlier? I guess the public really doesn't care unless it strikes their own family.
I didn't know that you can get alzheimers as a child 🙏🏻❤💪🏻
@BeachioSandschannel
2 жыл бұрын
It’s not exactly Alzheimer’s, it’s just an affliction similar to it.
Gpd bless the family
Damn my eyes are sweating
Allah bless their souls❤
I remember having a girl with this condition in my school. Primary school.
Your girl has to relearn everything. Your baby girl just disappeared and has become a shell of a person. I can't imagine the heartache that these parents feel everyday.
igrotum is like a breath of fresh air for Alzheimers patients, ushering in positive changes and improved cognitive function.
This is tragic and so unfair!!!!!! With the daughter with Alzheimer’s and the mom with no lung cancer? Like she said, what have they done to deserve this?!!! For all the messages saying God bless and all other references like that I read...........really?!!!! Thanks God love how you move in such mysterious ways!!!!!
@myheartwillstopinjoy8142
3 жыл бұрын
I hate that you feel the need to bring religious debate. Let us all be humans for a second here regardless of our beliefs.
@BeachioSandschannel
2 жыл бұрын
That’s a lot of exclamation marks.
@BeachioSandschannel
2 жыл бұрын
@@myheartwillstopinjoy8142 Well, Abby’s family believes in Christianity.
@myheartwillstopinjoy8142
2 жыл бұрын
@@BeachioSandschannel Yeah, but this comment is insulting religion. It's inappropriate and rude.
@BeachioSandschannel
2 жыл бұрын
@@myheartwillstopinjoy8142 Ok.
That seriously JACKED UP. Kids aren't supposed to get this.kinda thing only older adults..
God is good and I applaud you and your family for trusting in God. God Bless your family! Sending you warm hugs ❤️🙏🏻
With the discovery of Alzheimer’s being possible transmissible from donor bone marrow, growth hormone, or treatments/injections that contain cells of an Alzheimer’s patient.
Iv no doubt we all go to heaven and yes people do come back and tell us what its like 💕💕💕
Why do Doctor's "guess" when diagnosing? If they don't understand something, just say so, and give the family recommendations for another specialist to look into it!
@lesliehyde
4 ай бұрын
At least the doctor was willing to get the testing done despite him never knowing about it......
Poor Abby!
I've had a loved one with decreased mental state and awareness that didn't eat much & went into catatonia. (Almost like a comatose state, but not fully, you can still hear and move, just not very responsive). They came out of it with est (electric shock therapy), lots of prayers from many people, slowly eating more, & medicine. Drs also found this loved one had heavy metal toxicity, especially mercury. Through careful chelation, got mercury to safe levels. That was definitely related. Dr Mark Hyman's pegan diet helps SO much, including slowing dementia/Alzheimer's symptoms and partially reversing it. There is hope and answers!!
I'm confused, and legitimately curious. They noticed regression around 5, but didn't investigate until she graduated high school? Wouldn't her decline have been obvious enough to investigate earlier?
@BeachioSandschannel
Жыл бұрын
I believe they said something about her being assumed to have autism.
@mvuanyeusii
Жыл бұрын
sanfilippo is INCREDIBLY rare so, if you don’t know about it, you aren’t gonna test for it. even the doctor who tested her said he’d never heard of it until she tested for it.
@merlith4650
Жыл бұрын
Her symptoms were (mis)diagnosed as autism when she was around 5. Which also explains why it took so long for them to investigate it further, as they most likely assumed the symptoms was due to autism. Due to the editing It's not completely clear when the "regressing" became noticable to them. Because the dad says there were "minor" issues when she was 5, and then it cuts to the mother talking about things regressing.
If this happened to me: Mom: *its all from that damn phone*
Doctor said I never heard of it. Wow
@oliviersavard8676
Жыл бұрын
they don't know everything
lets pray that this illness will have a cure
There is a heaven, and yes you will see each other there again
So very sad.
Seeing this kinda makes me fear that I may get dementia. My grandmother had it but I don’t know if my grandpa had it. My dad could have the disease since he’s the son of my grandpa and grandma. I fear it may pass onto me now including my sister.
@kmsc326
2 жыл бұрын
Although a close family member suffering from dementia increases the risk in their relatives, dementia is usually not inherited by the next generation. This shows that Alzheimer’s disease is not a hereditary disease, but possessing certain genes may increase the risk of developing it. There are, however, a small number of cases (less than 5%) where Alzheimer’s disease is hereditary. This familial form of Alzheimer’s disease generally results in early-onset dementia that develops between the ages of 30 to 60 years. Mutations in three genes have been identified as being responsible for early-onset familial Alzheimer’s disease (eFAD). Possessing a single copy of any of those mutated genes is enough to develop this form of familial dementia.
@enderdragon5241
2 жыл бұрын
@@kmsc326 I understand, well It’s safe to say I’m good for now. Thanks!
Are there any updates on Abby?
11/30/2022 HELPING AND UNDERSTANDING EACH OTHER WILL HELP US REMAIN STRONGER, I GUARANTEE THAT BECAUSE I BELIEVE IN GOD'S GOOD DEEDS. AMEN!!
So even children get this disease.I am speechless.I rest case.
@kmsc326
2 жыл бұрын
It’s not physical Alzheimer’s ♥️ but the disease she has, causes Alzheimer symptoms
People think old people only have it but they never been into their shoes it doesn't matter how old you are you still going to have problems it's life
Wow
There was a movie about a boy with ALD-"Lorenzo's Oil". Why can't there be a movie about a girl with this or a similar disease?
@yumikumi2
5 жыл бұрын
Well, Battens disease usually effects both genders at an equal amount, with equal results unfortunately :(
@virginiaconnor8350
5 жыл бұрын
@@yumikumi2 Or Rett's Syndrome? Doesn't that exclusively affect girls? I think Julia Roberts was in or made a movie about it.
Had she been checked for a bacterial infection, or parasite, oxygen levels and so on??? Praying for you all🕊💖🕊🙏🕊💖🕊
❤️❤️❤️🙏🙏🙏
And she’s cute, im 18 that’s js sad man
this harmless great soul and this horrible thing happens its the saddest thing I've seen sorry I cannot believe in a god no way I'm sorry for this family and more than anything I wish I could cure it for all of you im so sorry
Oh no
I am going to college for my doctors degree I don’t expect her to live long and get better because Alzheimer’s can start off with bipolar and this is a very sad disease I hope the best for her
@kmsc326
2 жыл бұрын
It’s not physical Alzheimer’s ♥️ but the disease she has, causes Alzheimer symptoms
I never heard of this. 😔. Does pharmeceuticals have anything to do with it?
Who cursed that family? They do not deserve this.
Oh my goodness what a horrible disease for children
I wonder if anyone knows what happened to this family I hope they are doing ok
Noticing encouraging changes in cognitive abilities.
@christiaanprinsloo8951
2 ай бұрын
Childhood dementia is like all other dementias it just gets worse and nobody has ever been cured of it.
I have a version of dementia.
My Lord,Why?
Whats wrong with these comments? 😒
@potato-phobia85yearsago27
Жыл бұрын
Yeah they all think that have the cure for Alzheimer’s 😒
@MrBet1001
7 ай бұрын
This comment section is full of conspiracy idiots that think this is vaccines
She’s 25 now, is she still here?
@BeachioSandschannel
2 жыл бұрын
Yup. She’s still alive from what I’ve heard.
Life goes on
The one thing I do not understand why this happening to anyone Alzheimer's adults and children.?
😍😍😍
They have found fewer cases of Alzheimer's in Native American populations. Maybe gene therapy is possible for these kids.
Did they wait to long?
Let her be her
Does anybody have an update on her?? Whatever happened, cant find anything on her anywhere
@christiaanprinsloo8951
2 ай бұрын
She died
@Thot_Patrol_USA
2 ай бұрын
@@christiaanprinsloo8951probably. childhood dementia patients live relatively short lives
@trippygypsy4097
Ай бұрын
@@christiaanprinsloo8951no she didn’t, stop spreading misinformation. I found out her family uploads videos of her on tiktok through her journey, she is now 28.
God life is cruel.
I feel like this is happening to me 😭😭😭😭
If you have this diagnosis, please look into using methylene blue. I don’t know how it affects children but We reversed my mom’s Alzheimer’s symptoms using Methylene Blue! This brings hope! There is a show on it posted at The Natural Health Researcher KZread channel.
Please try anything acidic leval goes crazy it's all natural to help her I hope she's OK pray for her