The atypical journey of Primary Progressive Aphasia (PPA)
Ғылым және технология
Primary Progressive Aphasia (PPA) is a neurological condition that results from deterioration of brain cells, important for speech and language. It's frequently related to different types of Dementia, such as Alzheimer’s disease or Frontotemporal Dementia.
This talk will provide a brief overview of how to recognize and what to expect from the three main variants of primary progressive aphasia. Resources to help patients and families better understanding and living with the disease will also be introduced.
Our Speakers:
Dr. Robert Jr Laforce - Chair holder
Robert Jr Laforce is a neurologist and clinical neuropsychologist at CHU de Québec - Université Laval since 2011. He is also Professor of Neurology at Université Laval. He specializes in behavioral neurology, more specifically atypical neurodegenerative disorders. He has published over a hundred scientific papers in prestigious international journals including JAMA and Lancet Neurology, one book and several recent book chapters on the topic. Dr. Laforce is also involved in several national and international research groups dedicated to the study of neurocognitive disorders such as GENFI and DIAN.
Dr. Monica Lavoie - Scientific coordinator
Monica Lavoie is a speech-language pathologist and she works as a scientific coordinator for the Chair since 2019. Dre Lavoie has specialized in primary progressive aphasia (PPA) during her doctoral and postdoctoral studies. She is particularly interested in knowledge transfer to other health professionals as well as improving care for people with PPA and theirs families.
Host: German Chique-Alfonzo, Education and Program Coordinator for the Dementia Society of Ottawa and Renfrew County.
Learn more about the PPA platform/Plateforme APP:
app-ffl.ulaval.ca/en/index.html
app-ffl.ulaval.ca/index.html
*Disclaimer*
The video has been made available for informational and educational purposes only. This presentation is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other local qualified health provider.
Пікірлер: 9
Thanks for posting this video and also the links to the U Laval site. My father-in-law has PPA non-fluent/agrammatical type and there is really very little information out there, specifically as to what we should expect as this disease progresses.
@kimgloria6094
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Deborah, Hi, do you remember what was your father in law's first symptom was ? Also, how long from his first symptom until his he was diagnosed ? I think I may have this. I'm so scared. I have an appointment for a neurologist who specializes in PPA But the first appointment isn't until next year.
@deborahrose9568
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@@kimgloria6094 my father-in-law is now almost 92; he was diagnosed about 4 years ago and the symptom was slow, effortful speech. He's always been a quiet man, so I don't think it was noticed right away, but at some point it became very obvious to the family. Good luck to you, and if I may say, don't rush to self-diagnose, and wait for your neurologist appointment. Best of luck!
@kimgloria6094
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@@deborahrose9568 Thank you so much Deborah for your reply. I appreciate you taking time out to respond to my question. You are also correct in saying I should not self diagnose. My symptoms are mostly when I'm exhausted... ( my words coming out of my mouth all wrong ) It all started under a lot of stress talking care of a dying mother and siblings yelling at me for not doing more. My mother has passed just last week. My brain is depressed, exhausted and I have brain fog from the constant pressure. But you are right... I should just wait until my appointment. I pray I'm OK Thanks again
@deborahrose9568
Жыл бұрын
@@kimgloria6094 Oh Kim, I’m sorry to hear all of that! I too lost my Mom recently (last December). So remember to be gentle with yourself at this time and realize that stress can cause all sorts of things to happen to your body/brain. Take care!
Maybe a stupid question but can someone with PPA still sing fluently? I known people who stutter but sing fluently.
This video is greatly appreciated, however the questions and answers that were in French would have been useful for English only speaker if a translation was provided. Secondly, I find the Ottawa Dementia Society sooo far ahead of other provinces! So thank you for sharing this information with everyone! And lastly, does the Society have connections to or lists of specialists that deal specifically with assessing new patients with dementia (s)? We have a BC Alzheimer’s Society, but they do not have these connections. Their focus is on offering support to patients and caregivers after a diagnosis, but unfortunately most GP’s do Not have adequate training to spot early signs, nor do they know what specialists to send them too (not all neurologists are versed in latest dementia signs). This seems like a huge failing in our healthcare system here in Western Canada!
Im kellie, I was diagnosed with Logopenic PPA. Im 58 years old. Im wondering how many years do people live?
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