Systemic JIA: Orla's Journey
A documentary showing a family's journey with Systemic Juvenile Idiopathic Arthritis (SJIA), a serious auto inflammatory condition. We are delighted that Orla and Katy were willing to share their story. Their braveness will to help raise awareness of SJIA and help others who encounter this isolating disease to know they are not alone.
This video was made possible by donations to iCAN.
iCAN Irish Children's Arthritis Network is a 100% volunteer, parent-run children's charity that supports children, teens and parents dealing with Juvenile Arthritis. Our main goals are to support, inform and advocate for best care.
For more information:
www.icanireland.ie
email: icanireland@gmail.com
facebook: icanireland
twitter: @icanireland
Registered Irish Charity No: CHY21298
Пікірлер: 7
I’ve had SJIA for 30 years now and have 2 beautiful children. Stay strong!
Thank you for making this video my son was diagnosed late last year ended up with MAS too we are still getting through the beginning of treatment and many people dont understand what he is going through.
I have it I got diagnosed with it at 16 months old stay strong!
i have the same thing!!!! i’m so glad that i’m not alone:)) i’m in my 8th day at the hospital and i have 1-2 days left!! i have to get 3 shots a day and i was also the child who “never got sick”. i couldn’t get out of my bed alone either!!!! this is crazy. i’m SO glad i’m not alone❤️.
You’re so strong ❤️
My daughter Zelda,she is 11. She has JIA💜🙏 thank you for sharing this story
Immunity plays a big role in it!