My brothers on Ecmo right now after going through cardiac arrest and was on cpr for 45m. They had to use Ecmo to save his life and after due an emergency stent procedure. It’s day 3 and my family are praying every day for his recovery and as of now everyday the nurses tell us good news that he’s getting better. He’s starting to open his eyes and squeezing they’re hand following commands so we’re all very hopeful. Thank you so much for this video it gives me and my family hope for the future.

@tracyr2842

2 жыл бұрын

How is your brother doing? I hope he’s made a good recovery. The exact same thing happened to me October 21. I had a heart attack which brought on cardiac arrest. I was down for 43 minutes, CPR and 10 zaps of the defibrillator. I was in a coma for 4 weeks. Hospital for 10. I only learned today what ECMO is as I was wondering and googling what these scars on both sides of my neck and both sides of my groin were actually caused from. Fascinating.

I was on the ECMO in October 2020 due to Covid. It saved my life.

@StayCurious247

2 жыл бұрын

oh bless. same here. how are you doing now? hows your lungs recovering. any lungs abnormalities still show on scans?

@kathywilliamson3946

2 жыл бұрын

The majority of people have never heard of it; I am now reading everything I can find on the internet. So very happy for you Mireya Willems🙏🏻❤️🌹

@groebestie5594

2 жыл бұрын

Hey, do you mind if I ask some questions. As I understood it ECMO is used as a last resort very intensive treatment that basically temporarily replaces the most important organs of our body. So your illness must have been very severe. I hope you are doing great now but do you still have lasting effects from Covid? I want to find out how hard the treatment of Covid is because there are some people that still underestimate the severity of the disease with claims that if it comes to the worst there is still very invasive treatment options like intubation and ECMO. I wish you the best.

@marjoriealupay4380

2 жыл бұрын

Hi Mereya how long did spent on ECMO?

@mireyawillems1231

2 жыл бұрын

@@StayCurious247 I still get exhausted while making the bed or going up the stairs ect.. No pulmonary fibrosis so far.

ECMO saved my husband’s life 3 years ago and his quality of life is one of the success stories. His treatment was due to a mitral valve rupture in his heart. He did have issues with ICU psychosis when in hospital, which is common when time is spent in an induced coma. Today he is physically recovered even though he does have some permanent heart damage, he is very physically active. ICU psychosis is another matter, it can have lingering effects, but my husband has also dealt with that successfully as well, but it takes time. Overall we are both very thankful that ECMO treatment exists.

@63angel

3 жыл бұрын

I also had ICU psychosis. While I recovered from the organ failure, mentally to this day and my hospitalization was almost 4 years ago. I would in a drug-induced coma for 6-8 weeks. The psychosis is a whole other issue that I had then. I still have those memories of what I was seeing and hearing. As I was coming out of things, my imagination was running wild. I'm glad I wasn't able to say what I was seeing or hearing. I live in Utah and I'm not of the Mormon faith. I was terrified that I had Mormon demons all around me and I was planning my escape from what I thought was an evil den of evil demons. When I could speak, a friend from church came to visit me and I had to ask her many times to verify where I was. I have other horrible dreamlike things I was experiencing. But, when I go to bed to this date, I still remember those times. It's only when I'm looking forward like I was in the hospital, but I don't when I lay on my side. I'm glad that I never shared these things I was seeing and hearing. When the psychologist came to evaluate me, I must have mentioned the Mormon demons lol. My doctors are all Mormons, so, my guess is that I must have called them evil Mormon demons lol. In a way, I think it may have been a good thing to talk to someone. I would be more than happy to get rid of these weekly things going on in my brain and a repeat of what I was seeing in the ICU.

I was on the ecmo in July 2019 for 2 weeks. I had heart surgery and shortly after I developed pneumonia. My lungs failed. I don't remember much just very bad nightmares. I still have them often but I'm still grateful. Emory hospital was great.

As a fellow ECMO survivor I can so relate to everything on this clip and being only 8 weeks since it happened this has helped me so much

My son 42 years is awakening from a coma . So happy that his eyes are open and now still on the ECMO and just did a tracheotomy on him so he can’t speak but now he knows he is not alone. I’m glad I was able to read all these successful experiences now that gives me hope that he will sometime soon be telling his experience too.

My husband just got off ECMO today 6/18/24 , he was on it for 4 days. His chance of survival without it was slim. We will take out chances on the future outcome , vs not having one at all.

ECMO is truly a WONDERFUL piece of equipment, consisting of several pieces of equipment. The Pump, the Heater/Cooler, the Oxygenator, the CDI Monitor, the Pressure and Flow Monitors, and of course the Hand Crank, which everybody hopes they NEVER have to use! I thank you to the Pioneers, that have gotten us where we are today in Extra-Corporeal Membrane Oxygenation!

you sure are in kick ass shape now! Congratulations!

In March of 2021 I spent 6months on ecmo due to covid pneumonia I was also on a ventilator and dialysis machine and suffered internal bleeding. Ecmo saved my life but now I'm disabled I'm on oxygen 24/7 and was left with severe nerve damage to my right leg a foot.

What a wonderful survival story !! She’s inspiring ❤

Good to see u healthy God bless u

I was on ecmo dur to Covid ARDS, now back to life. had a near death experience. i was in induced coma. had terrible dreams vividly. I am not sure if after ECMO if life is same after that. I am improving very well but somewhere in my deep thoughts i am not the same, I always think that i am gonna a low quality of health related life. I was a very lively career oriented, persuading my dream life with PHD lectureship etc etc. and then this happened. now i dont feel as lively as i used to be. i just wish there is one day when i know i am absolutely fine nothing wrong with me and i am not going to have anymore pains triggered by this critical illness.

@McChrister

3 жыл бұрын

May I ask why you ended up on the ECMO machine? I wish you all the best with your health and future “self”.....Stay strong and no negativity in your life, NO stress!!😊🍀💪🏼 Blessings send from Canada.🙏🏼👋🏼🇨🇦 .

@StayCurious247

3 жыл бұрын

@@McChrister thank you so much for your kind wishes. Because of COVID19 i ended up on ECMO, when my lungs were fully destroyed to keep me alive. Ecmo was the last option even then my family was told that please be prepared for the worse. Because Covid did a drastic damage to my lungs. I was on ECMO for 19 days and God sent me back with bonus life. They call me a miracle in hospital. I can never thank enough to God. I pray for all to be safe and sound.

@groebestie5594

2 жыл бұрын

Wow, you are powerful! How are you doing now?

@StayCurious247

2 жыл бұрын

@@groebestie5594 doing OK. having some lasting damages and facing health related surprises.

@jennybrooks9881

2 жыл бұрын

💖🙏🙏🙏💖

So inspiring❤❤❤

I swear i would like to meet you and share what i felt while in coma.

i was on ecmo march 2019, three weeks time, like her. i had pneunomia and sepsis like her too.

Praise the Lord❤

A lot of people never knew what ecmo was until covid hit

My 34 week old baby was put on ECMO for 3 weeks she was born with pulmonary hypertension she's 2 months now still in the hospital but doing better

Hi I was ecmo from December 2020..to February 2021 from covid pneumonia..and temperature of over 46c Fahrenheit goin into hospital and rising to over 60c..140 Fahrenheit..I lost over 50 kg while induced coma..I Ave ptsd now I Ave and Ave delirium nightmares..ive long covid now

Very nice

My dad was on ecmo for a very long time weeks. And now hes out and went to see a physician and she said its something wrong with his brain, she didnt explain she just said he needs to go see a neuro doctor

@OliverFlower

3 жыл бұрын

The long term effects of surviving severe critical illness are diverse and complex. The more we follow up patients after critical illness, the more this is appreciated. I hope your father is improving.

I was in hospital from thanksgiving till day before Christmas had flu and ended up on ecmo have been home couple weeks for the past couple weeks my feet ankles and legs have been bad swollen I’m scared what’s wrong????

Lady, who are you to decide if you should save somebody’s life, depending on their quality of life?

I was on ECMO because of Covid last year that save my life

@ArabellaVictoria

2 жыл бұрын

How are feeling today any long term symptoms?

@lorettalefthand8851

2 жыл бұрын

Yes it has affected my lungs and I have to go get a pulmonary test for every two months and it causes blood clot on my inner thigh I had a surgery because the blood clot almost damaged my nerves

How many ECMO patients have actually got lungs scarring

@mireyawillems1231

2 жыл бұрын

So far my last CT scan showed no scarring but I still had some inflammation. Should be getting another x-ray in December. It is one year this month.

I was on ecmo six months ago .. I'm not good at all now mentally I can't handle things, I can't sleep and I'm very scares of people

@Jammin-Jamie

2 жыл бұрын

I'm curious to know how long you were on ecmo?

@christinajones3904

2 жыл бұрын

@@Jammin-Jamie a month

@StayCurious247

2 жыл бұрын

bless you. were you on ecmo because of Covid? what is the prognosis now? how are you and hows health related quality of life?

@revbmetal

2 жыл бұрын

I was on ECMO in the fall of 2018. I was completely miserable for the 18 months after it. I still have mental issues to this day, but they are less than half, versus more than half of the time. Almost daily I slip into a day dreaming type state and relive the nightmares I had the entire time I was on it. I was severely depressed and basically gave up on life. It did eventually get better. If you ever want to discuss or ask questions, I’m happy to talk.

@mireyawillems1231

2 жыл бұрын

First time I went in a restaurant, I had a small panic attack. I wished I had a security blanket or bubble to protect me.

do you feel that it has at all reduced your life expectancy?

@yosefleontyev356

2 жыл бұрын

Hi Eve. You are strong if you recovered from this disease. I'm really happy to hear it. My wife after covid and 3 weeks of ventilator was put on ECMO. Eve, Can I ask you few questions about being on ecmo here or privately? Thanks

@StayCurious247

2 жыл бұрын

@@yosefleontyev356 yes please. This would not let me leave an email address here. If you get my email address please feel free to email me.

@mireyawillems1231

2 жыл бұрын

I am extremely thankful to God for a second chance but yes you feel fragile.

@ArabellaVictoria

2 жыл бұрын

@@yosefleontyev356 can I message you privately however I don’t know how to do that. My brother was put on Ecmo today.

@StayCurious247

Жыл бұрын

@@ArabellaVictoria i hope your brother is OK

I had bacterial phnenonia and my kidneys shut down

@StayCurious247

2 жыл бұрын

bless! hope you are OK