What an incredible story. My sister has been diagnosed with GBS and is having a Traceaostomy today. She is 70 and we know it's going to be a very long road ahead. Your story is inspiring. Keep safe and well xx

I have GBS & i totally felt that when she said sitting up for just 10 seconds and the victory that feels. Gbs is absolute nightmare. Im still recovering but i can walk. My toes are paralyzed but i can walk (funny). Ill take it!

My mom is doing awesome. She has regained the majority of her strength back. The only thing that lingers is the tingling in her feet. Her attitude is what got her through this, if you or someone you know has been diagnosed it can be a slow recovery, but your attitude paves the way. For those curious my mom actually had celiacs but to this day we do not know what was the cause. Let me know if you have any other questions. I learned a lot through this experience

@cashtalks6253

3 жыл бұрын

I just got home 2weeks ago from this myself. It paralyzed me from my head to my feet in 4days I lost my ability to talk it got hard to breathe and swallow.I’m home now but 7 weeks into this and doing a lot better but it’s still affecting the strength in my legs and balance to some degree.is this still affecting your mom??

@ounbong9421

2 жыл бұрын

I think my mom got this after Covid vaccine. Did she take or do anything to get better thanks so much

@AroundTheWayGirl88

2 жыл бұрын

Steff, we hooped together. I remember your mom and Britt. I remember your mom being so cool! I'm glad to know she is doing better. My mom had a heart attack and stroke October 2014. She was at Brooks too! She actually went from from Shands to Kendrid to Brooks. She didn't come home until March 2015. She now has a brain injury. I've been caring for her since. The docs said she would only live 2 years, but it's going on 7! Brooks was amazing! My mom had a feeding tube too and a trachea and had to learn how to do so much all over again. She still has physical, cognitive, and speech impairment. I totally felt what your sister said about having to be the mom for your mom! Blessings to you and your family! ☮️♥️🙂🙏🏾

@themoonisaspacestation

2 жыл бұрын

Never forget this, brings persoective

@RaniaMich

7 ай бұрын

All the therapists who help people especially who encourage them that they will soon be able to be out of their bed in a chair in the early, desparating stages od the attack are truly heroes!

Kuddos to anyone else suffering from nerve damage✋ My wife was clinically diagnosed with GBS. We had no idea about the GBS until we've made a research on it. Its a quite shocking watching videos related to GBS but we never lose hope because of our children. I've witnessed everything my wife had been through.. Its started last January of this year after she gave birth to our child via CS last December 2021.. Her body especially her hands up to her feet and weakened and getting severe everyday and eventually she wasn't able to walk and worst thing was she can't able to get up on bed.. I had to carry her when she needed to go on comfort room.. I had to take her a bath.. Feed her cause she can't able to lift up her hand. She felt numbed, tingling, needle pin feels like, electric shock feeling... Many times she cried.. We thought she would be paralyzed but we didn't lose hope.. The doctor said that she needs to undergo physical therapy and some treatment related to nerve damage but we had no enough money to spend for it.. That's why we take a risk on letting her recover at home eating healthy foods and taking supplement recommended by her doctor... I kept on praying everyday for her healing. My wife thought that she would not have been able to get through what she's been through... And now after 3 months of suffering.. Thank You☝️Now, she's getting better everyday.. She can able to stand, walk with little support.. And praying for her full recovery🙏🙏🙏 To those suffering from GBS, believe me never lose hope.. The process of healing was quite difficult but everything will get back to normal when you have courage, determination, perseverance, and always talk to him🙏☝️With him👆anything is possible... My wife's positive mind set paves the way😊 She's recovering slowly and slowly regaining her strength😍 She's doing awesome fighting for it💪

Thank you! I have this GBS. It’s good to know I can have life back.

@jen6214

3 жыл бұрын

How long have u had it for ?

@jen6214

3 жыл бұрын

What has ur recovery been like?

@saultopaul3981

3 жыл бұрын

Jen O Slow! I went through a little residential rehab but it didn’t help things much. I’ve been exercising and watching these vids for more info. ... Hoping maybe I can learn more about what my future is ...and find exercises and prosthetics that help, etc.

@saultopaul3981

3 жыл бұрын

Jen O Maybe 9 months

@jen6214

3 жыл бұрын

Saul toPaul my dad was diagnosed with GBS 13 months ago , he’s still walking with a cane and doesn’t have too much balance , and his hands are still weak . There has definetly been improvement I think these things require a lot of patience but u will get there

I’m recently diagnosed with GBS it’s an awful disease one minute I was in the gym with my coach training for my fight my feet were numb and quickly spread to my legs etc it didn’t get as far as my lungs etc I’m Already out of the hospital 13 weeks and walking without my crutches etc still Badly damaged in my upper legs I can’t jog or jump etc only 30 Years old I hope we all can make a recovery

Prayers for you

So happy u are ok❤️❤️

my dad has GBS.. he is in intensive care the last 4 weeks.. we visit him twice in a week..i can t imagine what he is thinking and how afraid he is.. i don t know what to tell him to encourage him to fight it.. i cry every time i see him :(

@JujuRoseen

Жыл бұрын

im reading this a year later.. how’s your dad? i hope he’s doing great now

@elenizaman9513

Жыл бұрын

@@JujuRoseen he is great! we are all so happy !! i can t believe that he is alive again !

@JujuRoseen

Жыл бұрын

@@elenizaman9513 I’m glad to hear that hes doing well i wish him a life full of happiness and health :)

@elenizaman9513

Жыл бұрын

@@JujuRoseen 🥰🏵🌹🥀🌺🌼

@tahirsatti8702

Жыл бұрын

How much time it took to recover?

I survived GBS 2019 after h1n1 flu I know yr pain

It's 6 years since my symptoms began. I had been on holiday doing the usual things. My ankles and legs began to feel like I had been sunburned

Hi, my husband is slowly recovering from gbs, we are wondering what wheelchair is the one your mom is using in the video?

I just started looking up others that have had GBS I had It in 1967 at age 6 last 2 days of first grade. I had 2 collapsed lungs and pneumonia with it. I woke up in the morning felt tingle in my whole body and went to school like that we thought stupid like body was kinda sleeping like the tingle, when I'd fall I needed help to get up, I was week, next day couldn't move and that was the start of two months in hospital and 2 months therapy, 17 days in intensive care to start they didn't really know a lot about GBS in those days, and I was one of the youngest To have it, I was at Fairview Southdale Hospital and year later was playing hard like a 7 year old should. that's just a small part of my story and only know 1 person that has had it she was 50ish and seen her 10 months after her getting it she was using a cane at the time and asked her about what was wrong, that's when I found out she had it

@jen6214

3 жыл бұрын

How is she now after 10 months w a cane ? How r u?

I lost my brother in law because of GBS.

It can come back or not

Brooks rehabilitation , tingling and numbing of fingers, guilllian syndrome , processing signals, respiratory drives, breathing difficulty, Britannic, wheeling me, robot movements I guess, Laura Birmingham doctor, gynecology

I wonder if you can get that twice

st Vincent hospital I guess

I developed this in 1997 after a Hep B vaccine. It’s the most awful thing, ever.

My heart goes out to you! Can you please share if this beautiful lady was ever a vegan or vegetarian? I think it's related.

@patriciajohnsonson8639

3 жыл бұрын

1Life. How so?

@sunflowergrl79

3 жыл бұрын

Being vegan or vegetarian has nothing to do with it

@OlMG91

3 жыл бұрын

Guillan barre comes from viruses or eating raw chicken or viral vaccines . I know 2019 I was diagnosed following h1n1 flu

@barbikinkin

2 жыл бұрын

@@OlMG91 I have never heard of the chicken angle

@OlMG91

2 жыл бұрын

@@barbikinkin yeahh sure can get it from It was Neurologist who told me as such Dr Jeff Blackie

Oh for goodness sakes. Tattooing 54 on their wrists. Seems a bit much but I guess they felt they had to do it. I’m so happy this lady is living her normal life again. She has wonderful children, they were very supportive. My cousin’s husband had GBS three times.

@jen6214

3 жыл бұрын

GBS 3 times how is he now ?

@patriciajohnsonson8639

3 жыл бұрын

@@jen6214 He is ok. He has a hard time taking stairs and fatigues easily, I believe. He is overweight though so that might have something to do with the fatigue. He enjoys traveling and has done so extensively. I don’t know how much sight seeing he does unless it’s on a tour bus. That’s something I recall his wife complaining about. Lol. But he’s doing generally well for what he has gone through. Thank you for asking. He just had his 75th birthday in September.

@jen6214

3 жыл бұрын

@@patriciajohnsonson8639 his hands are ok?

@patriciajohnsonson8639

3 жыл бұрын

Y

@patriciajohnsonson8639

3 жыл бұрын

@@jen6214 Yes, his hands are fine. He has ironed a whole bunch of fabric over the past several months for his wife as she has made over 4000 masks. LOL. My cousin says that he needs to urinate every few hours. That seems to be a result of the GBS, as far as they can tell right now.

.