I am paraplegic since 2 years old. I am 38 nowadays. The worst thing about that isn't walk. The big problems are the bladder and the bowel. Your video deserves congrats!

@sandylim8818

2 жыл бұрын

Need diagram illustration.

@claracharbonneau6827

2 жыл бұрын

Me too

@kellypatterson9456

10 ай бұрын

UTI’s much?

the newly injured person need this kind of information especially those who can't get information from their doctor,like me..thank you for making this video..

@healthbeauty2752

3 жыл бұрын

Seriously.... doctor are no help

@v4v819

3 жыл бұрын

Why won't your doctor give you any information? What are you paying him for?

@cho5972

3 жыл бұрын

@@v4v819 nope..he only did the surgery..no follow up..even i find physioterapist by my own will,not a sugestion from him..

@v4v819

3 жыл бұрын

@@cho5972 That's cold... Hope the surgery went well for you, at least. Good luck and keep working hard on your recovery!

@cho5972

3 жыл бұрын

@@v4v819 yes,i think the surgery went pretty well..but the follow up is so disapointing..thank you,good luck to you too..

Thank you for covering this topic. My 25-year-old son is a recent L1-2 paraplegic (2 months). He’s still struggling with this, but he never wants to talk it. So, I have had no idea what he’s been going through or how or even if I could be of help to him. Thank you for this glimpse into his world. Mom

@blancawinterduncan1360

Жыл бұрын

My 34 years old son is also a recent complete paraplegic with spinal t12 level at the level of the nipple. One's world changes, and it isn't just the one injured but also the family. Especially if the caretaker is the mother. For me sometimes it feels exhausting, but I would not change that for the world unless he is able to walk again. For that we have hope, and I do what I can to keep his spirit up. I am very grateful to have him and thank God every day. When he first came home it was difficult to discern his bowel movements b c he was not eating and lose nearly 40 pounds. So, when he did start to eat it was somewhat unmanageable. I didn't know whether it was going to be soft, loose, or watery, or how often. We finally have it to where it is much more manageable.

@VSthekid391

Жыл бұрын

It’s hard to deal with but be patient he will open up if he wants to get pass it

This is definitely one of those awkward topics. I salute the two of you for the way that you were able to verbally explain the process. Adding the visual was even better. I’ve only known one way to empty my bowels so this was very informative. Thanks for sharing.

@PARALIFE

3 жыл бұрын

We're glad you found it informative 😀

@DevonteM317

Жыл бұрын

My friend can’t walk he got shot he uses a bag and poops from his stomach never knew that was possible he said he ain’t want people to have to wipe his butt for him

Thank you for your videos, as a designer I wanted to understand the implications wheelchair users face while trying to use the toilet, and in a different video you made, you did an excellent job helping me understand the challenges you face. Wishing you nothing but the best.

This was SO interesting and informative, thank you both for being so open.

@PARALIFE

3 жыл бұрын

Glad you enjoyed it!

Thank you for not making my side affects from spinal injury an “only me” syndrome. I broke my back 13 years ago and I have walked with a cane until now. I’ve been slowly getting worse, an increase in the constant pain and les mobility. Something happened a couple months ago in my sleep and I’m degenerating quicker. I can only walk short distance and I’m falling a lot more. My doctor wanted me in a wheelchair a long time ago and I finally accepted his prescription for wheelchairs. I’m stubborn. I’ve had three chairs, carrier behind the car and ramps to get into the SUV as well as other helpful items donated by Veterans Mobility Corp. I’ve already received my manual chair (All of my chairs are powered. I call my manual one “powered by armstrong “), I will receive the smaller electric (for work, home, stores etc.) and a large offroad monster tomorrow or the next day. I haven’t watched your video on urinating. Looks like I’m going to be binge watching. I can no longer use the last part of my bowels. If my poo is long enough, gravity will pull all of it out. If it breaks off or is smaller, I can feel poo just inside the sphincter and I have to manually remove it. Never pleasant. However, better than an accident later. I can feel the end of my penis and the bladder sometimes (difficult to explain) which means by the time I feel that I have to pee, I had better be really close or it’s too late. I do carry extra skivvy shorts with me. I will try to keep my comments shorter in the future.

@PARALIFE

3 жыл бұрын

Glad you found it useful. Sounds like quite a roller coaster, it's crazy how everyone is affected so differently. All the best 😃

@bluesmama3726

Жыл бұрын

Thank-you for giving people insight into daily living. That's strength if ever I've heard it!

Just gotta say how amazing you guys are. Keep being awesome!

Thank you so much for being so informative! I think things like this shouldn’t be something to be awkward at all to talk about.

Thank you for your honesty and information

Great video, very informative.

Thanks for sharing your experience 🙏

L5 fractured vertebrae 26 days ago. I’m 6’5” and I also have a broken right foot. Just getting to the toilet it a challenge enough. Thanks for covering all of the uncomfortable situations of daily life!

brilliant video, im a student OT and spinal injuries have always resonated with me. I really want to do everything in my power for my patients and to help regain some of what they have lost. Thanks guys xx

@PARALIFE

3 жыл бұрын

We're glad you found it useful 😀

Thanks for sharing this information Craig. It was very helpful and I'm amazed at your awesome positive attitude! Your channel is a True blessing! Take care, God bless!!!

thanks for sharing this excellent content.

Thank you guys for the info, I do appreciate it, and for sure it's going to help some ppl around this planet.

VERY INFORMATIVE…GREAT VIDEO GUYS!! THANK YOU FOR THE DEMO 💋

Thank you for all the helpful info. God Bless you both!

Excellent information

Very interesting. This is an aspect of my friend's care his family has been reluctant for personal reasons to share. Respect for sharing we all poop nothing embarrassing here at all.

Thanks for the video absolutely right most people don't like talking about it I've been paralyzed for 32 years and have had pretty good system up until now some things have changed

Thank you guys .

Thank you , this is a very valuable information.. ❤️

You are brave and amazing! God bless you both!

@PARALIFE

3 жыл бұрын

Thank you so much!

I wish I had found u guys 3 years ago... Nice channel.

Gracias por esta información tan valiosa.

Thank you so much for talking about this ; I am slowly losing my movement; my cerebellum is shrinking; it's now almost 2 years since I discovered this about myself and have never considered this but have to recognise its getting harder - I don't know how to prepare it's different from having been in an accident and going through rehab learning these things ; It help me alot to be able to prepare; even if just mentally even though I don't know how it can work or will work ; it's a bit scary and this was empowering to watch; thank. You. 😊

W o w Praise you! I have had this injury for 13 yrs and never heard of this..

Great video. Ive been a quad for 29 years and this is the first time I've heard of this method. I use small enemas every other day now that work pretty well except most times i do feel like there is more high up that i didn't manage to pass. Its probably the easiest and most comfortable method that works well but, like you, i tried alot of different methods before this. But i will be looking into the method you use very soon. And about me "feeling" like i have more that didn't pass. I am a C5 incomplete quadriplegic. For those that dont know...that means i broke the 5th cervical (my neck) but it only damaged my spinal cord instead of severing it in two. And depending on how bad you damage it you can have different levels of paralysis. Mine is pretty bad but not near as bad as it could be. I got sensation back to some degree over my entire body and some motor function but still wheelchair bound with paralysis in all the normal places in slighy varying degrees. Plus feeling hot and cold temperatures are feeling sharp and dull pokes are decreased or are hyper sensitive. Such a great video. Thanks for the information and education.

Thank you!

Bloody brilliant…

Great video! I was born with a tethered spinal cord. I have neurogenic bowel and bladder.

Thank you

Thank you🙏

You are very strong man 👨 👍❤️🙏

Wow its very interesting.. never knew it!👍

this video is great not many people would approach these subjects that system looks great iv never seen it before although i do something similar that i had a medical procedure for

@PARALIFE

4 жыл бұрын

It works perfectly for me, but not for everyone 😃

@gazpen1978

4 жыл бұрын

@@PARALIFE that's the main thing finding something that works that you're comfortable with

What a beautiful beautiful couple!

Great vlog. I'm 12+ years as a T5 para. Enjoyed your straight faces while discussing bowel management. If you ever make it to Australia (who knows in this weird world), stop by. Because wheelies need to spend sooo long in toilets, its a shame the windows are too high and mirrors are generally opposite the loo (who wants to look at themselves on the shitter). Look after your shoulders... mine are stuffed!

@PARALIFE

3 жыл бұрын

Haha thanks, think all taboo of talking about bodily functions goes out the window when you have a SCI. We were supposed to visit Australia last August but that obviously didn't matter, not much hope for this year but we're hoping it might happen next year. Haha yeah looking at yourself on the loo isn't ideal 😂 glad none of the mirrors in our house are in such a position but is does seem to be a thing when we go away!

@trevorrobinson6551

3 жыл бұрын

@@PARALIFE The house I'm building has the toilet, shower & bath with floor to ceiling glass looking out to bushland and a mountain river. If anyone walking past wants to see a 58-year-old para sitting on a commode doing his ablutions, its their nightmare, not mine :-) Construction is being filmed by Grand Designs Australia, so you might see it on the TV.

Very brave and informative

Fruit vegetables prunes water exercise and a mild laxative usually works.

@PARALIFE

4 жыл бұрын

same here, lots of fibre and a low dose of laxative 😃

Craig hit the nail on the head when he said some people with spinal cord injuries can walk, but struggle with bladder and bowel control. That was me a while back, I am a C4 incomplete, and did get a lot of sensation and movement back (including walking well for a few years and not so well another few years...and now in a chair unable to), but the one thing I always struggled with is UTI's & bladder management (making it to the bathroom on time) and bowels (although often loose and embarrassing accidents). I actually can still push...I thought people with spinal cord injuries couldn't...so for years, I thought 'maybe I was never injured and it was all in my imagination' and actually got neck X-Rays so I could kind of come back to reality? Weird, eh? Maybe that was part of the sensation I got back as an incomplete? I have a dislocated vertebrate and needed the annual X-Rays and occasional MRI to make sure it didn't shift the wrong way. Now, I can't always tell when I have to go though...hence the accidents. WOW! Great demonstration guys...great! Thank you very much. I often wondered and even though people explained, I could not really picture it. Not everyone goes to the extent of explaining that you do.

@PARALIFE

4 жыл бұрын

The demonstration was Claire's idea, it worked so much better than I thought it would!

@morgancalvi6675

4 жыл бұрын

@@PARALIFE it really did. I never could really picture how when paras or quads do their 'bowel program'...how things really worked.

I have a toilet chair facing sideways. It has no back and I often do core strengthening exercises (pumping) in addition to digital stimulation. Sorry if that may have been too much info...but others reading this may benefit.

Can I ask what you used for the poop simulation? That was a great visual that would be helpful for teaching.

Thanks very much for this. Do you ever have to go more than once a day? IV been using my finger for more than 5 years now... Lots of accidents as u can imagine. Also my sitting position is such that sometimes, by the time I'm done, I have a headache.

How much water do you pump in every morning and do you measure it when the back is placed on a flat area or hanging up

Hi am Kristoff is there a link to this device ? I have and share the same problem.

Hi,what is the name of the apparatus used to demonstrate.is it available in India

Hi Craig. I have spina bifida and have a neurogenic bowel and bladder im not in a wheelchair but i have problems walking. I use intermittent catheters to empty my bladder and I use macrogol laxative daily. I've tried suppositories and digital stimulation and it doesnt work for me. I don't know if you've tried it but I thought I'd recommend it to you I can't live without it.

Do u have a link to your commode chair to look at maybe purchase

Hey I was wondering how I could get ahold of you to ask a few questions, I’m recently paralyzed (t12 paraplegic) and got turned onto your channel through one of my physical therapists. Didn’t know if you’re still active on this channel?

Your video and many others refer to ‘accident’ in bowel management. Can you elaborate?

I have a question; do you sit while doing this ? Can I lay ? I have balance problems from a shrinking cerebellum and it would be very difficult to sit while doing this and balancing to do the digital/ chemical stimulation - is there no pushing involved? All this is very new to me.

hola gracias por este video disculpa me podrian regalar el enlace para comprar esos implementos en mi pais no se consigen

@PARALIFE

3 жыл бұрын

Hi, I get the peristeen from Coloplast www.coloplast.co.uk/peristeen-anal-irrigation-system-en-gb.aspx Hopefully you can get one of you talk to them 😊

Thank you so much for these videos; I am so glad I found them. My dear husband recently suffered a SCI and will be coming home from rehab soon. My daughter and I will assist him. I understand the procedures for poo, but how can I wipe him? Currently, he is totally immobile and cannot lift himself, we will do so with a Hoya lift. Is wearing a diaper the best option for him now, and my cleaning him. I will do anything I can to help him, I love him so. Any thoughts?

@nezaroobest7139

2 жыл бұрын

You are a wonderful wife if your husband moves his hand he can help himself

Should I release the air immediately after filling in water or should I wait for 20 minutes? How much water has to be filled?

Great video guys, I have to ask, what did you use for the fake poo? Great demonstration 😂

@PARALIFE

4 жыл бұрын

It was some flour and water concoction - basically brown playdough 😂

What is the name of it ?

Product link?

So sena is avilabel as tablet sir so you take at 6pm what is its use sir i.e will it increase contraction or bulk ..if you use sena then why enema sir . Any discomfort with senna ....

How do u deal with bad food poisoning. Its runny dioreah for 2 days it must be uncontrollable

40 yr old paralyzed vet - Good Job

Thank you for the information and insight on difficulties experienced by spinal cord injuries, and this is strongly related to some stroke injuries. Good luck to you, and I sincerely hope that the release of the Med Beds in 2021 really helps you guys and all of humanity. Hospitals are about to undergo a massive shift in how they care for their patients. #MAGA #MEGA #NESARA ##GESARA

Good job, thank you, about the medication that take 12h for bowel, can u tell me it name. Cheers

@PARALIFE

4 жыл бұрын

The medication is called Senna.

I'm a c3 incomplete and seriously considering getting a colonoscopy bag fitted after trying all 3.

Problem i have us my bowel is areflexive and so stimulation just does nothing. Suppositories included . Ive bought persireen but haven't started. Im nervous. Ps completel para L1 L2. My question is, do You deflate the balloon as down as water in or do you u deflate after a while ? I never was regular even before this. Now zero or partial empty but usually accidenrsl

@PARALIFE

3 жыл бұрын

I tend to deflate as soon as I've finished pumping the water in (I add a whole bag of water). Worth trying both to see what works best for you. It can take some time for your body to get used to it, but we hope it works out for you!

Where can i purchase this product? @paralife

How interesting! the usual bowel program is taking medicine, so you can poop the next day but its very invasive and after some time it doesnt work anymore. many complained for sitting on the toilett for a long time. the water thing, we call it thai method here, its really effective but expensive and invasive kind of. some fun things. i drink beer and the next day I have a poo day (or apple juice, sauerkraut, ....) it also helps with bladder infections and pain.^^

Does prolonged use of this irrigation system cause hemorrhoids and bleeding?

@PARALIFE

3 жыл бұрын

We're not sure to be honest

How can I find this in India?

where did you buy this device? and you can translate your videos in Portuguese with subtitles please Portuguese Brasl!

@PARALIFE

4 жыл бұрын

The Peristeen is made by a company called Coloplast (www.coloplast.co.uk/peristeen-anal-irrigation-system-en-gb.aspx). We would love to translate the videos into other languages, unfortunately, we only speak English (and terrible French!). If someone can volunteer to translate them, or if you know how we can get them translated we would happily upload the subtitles 😃

Brother Creams Name plz...

I wish we had this product in Brasil :/

@PARALIFE

3 жыл бұрын

It's annoying that these products aren't everywhere. Coloplast does seem to have a brasillian website, maybe you can contact them through it? www.coloplast.com.br/

My problem is I can feel when I have to fart but at times I end up having a poop so I wear adult daipers and its been hard any advice

@PARALIFE

3 жыл бұрын

Sorry, this is not something that I've ever had to deal with, since I can't feel at all. I do occasionally have accidents but they are rare so I just wear normal clothes and deal with it if/when it happens! Hope it works out for you 👍

I am not crippled but I do have problems with pooping to so I do that procedure to what you're talking about with you're finger and sometimes I do water irrigation to. It also makes me feel so much cleaner to. I have diareah to. I try to be careful about what I eat with my stomach issues on my vacations. But good instructional video about how you poop I so understand you're part of you're life because I live it to with my stomach issues. I always clean up my bathroom with bleach when I am done to.

@PARALIFE

3 жыл бұрын

It's not easy but you do get used to it. It's nice to know you're not alone, feel free to reach out if you have any questions 👍

@moonbeam8487

3 жыл бұрын

@@PARALIFE Yes I will I just sub to you

Do you get help from insurance with the cost of this product. If not, how costly is it.

@PARALIFE

3 жыл бұрын

Here in the UK we have a national health service (NHS) so nobody pays for healthcare, it's all funded through tax

@joannehiiro1111

2 жыл бұрын

@@PARALIFE I am literally crying. My boyfriend is a recovering quadriplegic and the bowel stuff...is a very difficult subject between us. Sadly we live in the US where his government insurance is the barest available. I hope I can find the system you are using here. He is suffering so bad, as he hasn't gotten on the regimented schedule yet (it's been a year). Every 4 days I worry I am going to have to call an ambulance. Thank you for doing such a great job at explaining this subject.

Is it available in India?...I am a paraplagic and getting difficulty in bowel management as i am having anal fissure also...can you suggest anything?

I want to ask you something and sorry to ask what about farting, how do you manage that when you go out?? No disrespect I’m curious and there’s no video out there about this topic.

I hate hate hate using my irrigation system. Meant to use it twice a day but I never do! I mostly use it when I have a blockage. Mine is the qufora one. I personally prefer manual evacuation, but I also hate that term! Disabled toilet life. lol

@PARALIFE

4 жыл бұрын

Hadnt heard of qufora until the other day but I thought it looked alright. What do you hate about it/irrigation? I way prefer irrigation to manual evacuation (know what you mean about that term), but that is partly due to only having to do it every other day, not I'd like it as much if I had to do it twice a day. But I do also like it because it's much more reliable for me than manual evac, I just wouldn't feel confident going out and about if I'd only done manual evac

I always thought that people that are paralysed would have a stoma bag.. as this is easy to empty & you wouldn't have to worry when your bowels decide to move without a person's control..

Do you need to restore your Intestinal flora with probiotics after flushing everything out?

@PARALIFE

4 жыл бұрын

I've never thought about it, and never tried taking probiotics after doing it. I assume it doesn't clear high enough to makes much difference but I don't know for sure.

@ecologist_to_be

4 жыл бұрын

You don't clear out your small intestine.

How did you know how munch water to use? Or do you just used the full bag?

@PARALIFE

3 жыл бұрын

It took a little bit of trial and error, start small and work your way up. I now use a whole bag, but I know some people who use less

@johandewaal

3 жыл бұрын

@@PARALIFE finally received my peristeen system. Ready to try it out. Will be a game changer if it works for me. Question : do you use special water in the system? Or normal tap water?

@PARALIFE

3 жыл бұрын

@@johandewaal just lukewarm tap water 👌it might take a few days / weeks for your body to get used to it, good luck!

@johandewaal

3 жыл бұрын

@@PARALIFE thanks. Tried it and got some good results. But how long do you keep the catheter in, after you pumped the water, before you deflate and remove it? I think i removed it too early and felt like all the water just came rushing out without doing the job properly. Will experiment a bit more ;) thanks for sharing this. Would have never tried this method if it wasn't for your video. My routine takes a lot of time, twice a day, so this will be a game changer if i get it right ;)

Medical assistance in dying for paraplegics

@Matowix

6 ай бұрын

I would want to die if I had to do the bowl programme everyday

Product nema plz

@PARALIFE

3 жыл бұрын

It's called the Peristeen and it's sold by Coloplast 👍

Respect to you both, how did he become paralyzed? if i may ask? Stay strong !

@PARALIFE

3 жыл бұрын

Thanks! This video explains what happened: kzread.info/dash/bejne/i5qNlNt9iLepYrQ.html

What about urining

Does inflating air hurts ?

@PARALIFE

3 жыл бұрын

I can't feel anything below my chest, so I can't feel the air being inflated.

@healthbeauty2752

3 жыл бұрын

@@PARALIFE dude i did some research.... n using tap water isnt safe.

@swj1133

3 жыл бұрын

You might try distilled water instead. Not the most convenient, but nothing about this is really. Unfortunately, you can only do your best

Where l can buy that anal irrigation catheter. Can you please make more videos how it works exactly. I can't understand where to put water in catheter l have seen a lot of videos but still can't understand the process. Thank you

Have you had a colonoscopy yet

How you poop in public

@PARALIFE

3 жыл бұрын

Because I only need to do my bowel routine every 2 days, I just make sure to poop before I leave the house in the morning (so never have to go in public). It's the same if we are away from home, I just go to the toilet before I leave the house. The only difference is I have to transfer onto the toilet to do my bowel care since I won't have my shower chair with me.

Atleast you can poop 💩 There is alot of people that nothing will work on, and personell have to do it for them, I know.. because I have to do it when I'm at work..

“-PARA LIFE-“ Christ are you serious?!? Now there’s “ para life” ?!?

poo

Ik rather die then be paralised

@elishadeal1027

2 жыл бұрын

That’s so rude

@Matowix

6 ай бұрын

Me too

Wow, too much information. Some things are best kept private.