Thanks so much for your videos. I hope you are continuing to feel relief from AS. I just found your channel and subscribed. You were super informative. I have AS and have been resistant to biologics because I have had lymphoma in the past, but you're right.... this disease wears you down. It sucks hurting all the time. I am afraid to take the biologics, but I am more afraid of more fusion and more pain.

@asjourney1612

4 жыл бұрын

Hi Jazz, The fusion is scary but that story of lymphoma is also scary! I know while on biologics, my rheumatologist wants blood work (Namely a CBC among other things) to make sure my RBCs, WBC, etc are all in check. He wants these every 6 months. What did your doctor say about possibly starting biologics given your past medical history? Given what i said, maybe he or she requires more frequent blood work if he or she thinks its ok to start given you history? Keep me updated I would like to know what your doctor thinks:)

Wishing you all the best 😊

Hi sir my son is this problam take in enbral injection what side effects this injection

Absolute miracle drug saved my life

I would love to take the medication but it is punitively expensive in my country

Hi my friend, I need to ask you something. How long did it take you to realize your improvement? I've been in actemra (another biologic treatment for 2 weeks, and I see nothing), some people told me, it generally takes time. I feel awful, because my illness is very active and mi medication seems to be a waste of time. I hope you can give me more lights. Thanks a lot for your help

Thank you. I am battling my attitude I have such a poor attitude most times always uncomfortable and I feel like how dare the world add on to it I just want change

My husband has been taking it for 2 months and there’s no noticeable relief in his pain. ?????

Hi, Are you worried about the coronavirus and being in these immune suppressant meds? Thanks

What food take about u pls reply sor

I already have very bad mood swings and I will be starting humira in two weeks. 🤕

@jenniferlee5508

3 ай бұрын

My anxiety and panic attacks got bad!! My arthritis pain went away but the mental health was not okay.

Hi…how are you doing now??

I've got the Spondylitis rheumatoid arthritis fibromyalgia degenerative disc disease it sucks at all sucks and I never even had a suicidal thought until I started having these problems imagine waking up in your mid 20s gradually diving into unexplained pain and you don't know why I wouldn't wish it on my worst enemy

@asjourney1612

Жыл бұрын

Super sorry to hear that rocky. Im fortunate enough to only have AS on my plate and it being responsive to biologics. Waking up to unexplained pain is all too familiar as I had a similar experience in my mid teens. I just want you to know you're not alone Rocky. I hope you are able to find some relief my friend

@rockytucker7480

Жыл бұрын

@@asjourney1612 well I started taking the Humira and I am positively spawning to it and side effects do not seem to be an issue my immune system hasn't even seen the die down and I'm a smoker and I should be getting lung infections constantly but I'm not although the concern is is the higher risk of cancer not just from being a smoker but from being a smoker and taking Humira if I can quit smoking I think I'll be all right but yeah it's working out very well God willing I can go into remission and get my life back but so far so good thank you for your kind words

I’m going to start Humira in a few weeks very scary about sites effects.

@asjourney1612

4 жыл бұрын

I wish you good luck! Have a thorough conversation with you rheumatologist before starting. Everyone's different but from my experience, thankfully, I have not experienced issues with humira as of yet.

I’ve been on it for two months now and it has not help me at all what do you think about that

@asjourney1612

2 жыл бұрын

I am not sure! Were you definitively diagnosed with AS? I know I am a few months late to this but if you were indeed diagnosed with AS and you're still on the same meds with no relief, you should consider talking to your doctor about next steps like switching medications, etc

I started Humira for Ankylosing spondylitis 4 weeks ago. No noticeable improvement. How long did it take for you?

@asjourney1612

8 ай бұрын

I would say I saw an improvement within a month and generally people notice somewhat of a change within 6 weeks. Some rheumatologists will say give it 3 months for the full effect. Would be interested to see how it is working for you down the line or if your rheumatologist makes a change

Thanks for sharing your experience!

Hey, man, you still on Humira? My doc is considering putting me on it for chronic hip pain... I'm really curious in people's real world experiences. Thanks!

@asjourney1612

3 жыл бұрын

No longer on Humira. Im on Simponi now and its been going great. Humira was great for me when it worked but there was a two month period when I had to get off it due to insurance issues and when I got back on, I believe I developed a resistance to it.

@juliewilliams489

2 жыл бұрын

@@asjourney1612 that's so sad. Sorry you had to go through that. How frustrating.

@nanday100

2 ай бұрын

Hi! Just wondering about another update? How did your second med go, and are you still on it?

My anxiety got really bad on humira 🥺

Humira worked great, but gave me really bad mood swings and I had to stop. Went on cosentyx, worked for a while and started to stop. Also gave me bad chest pains. Going on entanercept soon, hopefully this one works

@asjourney1612

4 жыл бұрын

I'm sorry to hear that. I hope this one provides you with greater benefit without the side effects:)

@MCBOY123

11 ай бұрын

Hi, how are you feeling now? I had to Come Off from humira/amgevita and siin gettin etanercept..

@319spain

11 ай бұрын

@@MCBOY123 Hi, I am still on Etanercept now and have had no negative side effects apart from the usual irritation of injection site from time to time. My mobility is great and very few flare ups. Humira caused me many negative side effects. I hope you have the same positive experience as I have with Etanercept :)

@jenniferlee5508

3 ай бұрын

Interesting! As I’ve said above I had bad anxiety panic attacks on humira. Trying a different medication.

Have you gone gluten free? Grain free? Starch free? It works like being on Humira ! Game changer..

@BIGPLAYMAY

2 жыл бұрын

really ?

@Marzbarz62049

Жыл бұрын

Not true.

@biggdub4876

5 ай бұрын

Not for everyone

@cameroninc2086

Ай бұрын

Very false