Some babies with ARTHROGRYPOSIS don't make it - My Arthrogryposis DAY 14
DAY 14 Ana explains how 30% of all babies born with Arthrogryposis do not make it past the newborn period and she introduces you to our friends Robert and Michelle, who lost their daughter Olivia when she was just 6 months old due to complications from her Arthrogryposis and the way she was affected.
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Пікірлер: 16
That was a beautiful but sad story, we need to treasure 😢❤every moment in our child's lifè💙
It was hard for me to click the like on this one. I wish KZread had more supportive options like FB for reactions. 😭 Even though it's sad, it is an important part of Arthrogryposis that people should be made aware of.
What beautiful loving parents for their amazing daughter, Olivia! Love and prayers for Robert and Michelle! ❤️🙏
Oh boy that was a hard watch, thank you both for sharing your story. Nana I love you guys
If tears could happen they did so sad how severe AMC can take a baby,child people have to be so strong and loving and brave God bless all the families of AMCers this is why it’s so important to support such condition for all these people . Just reach out and help .
1:30% 2.Arthrogryposis.Multiplex Congentic
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*DAY FOURTEEN - This is the video you will_ comment on for the scavenger hunt/giveaway! Please comment in your own separate comment below (do not hit reply to THIS comment).* Here are the 3 questions for DAY 14 : 1) What percent of babies born with AMC will die in the newborn period? 2) Misha is the adult AMCer who helps raise awareness for Arthrogryposis on social media and she is the one who captured this interview with Robert and Michelle. What is the (exact) name of Misha's KZread channel? 3) Provide the link here where others can go to purchase our LIMITED EDITION "blue for amc" awareness shirt.
Question 1. 30% Question 2. AMCSI AMC Support Question 3. www.amcprincessana.com