Grateful for this post. I was diagnosed a little while back. My doctor did a biopsy to see what was going on. I had inflammation , sores, bumps that were literally giving me migraines.. she wasn’t AA so she wasn’t sure where to go beyond injections. I wanted a more natural treatment. She told me my hair would never grow back due to the scar tissue. I started doing my own research. Changed to an anti inflammatory diet, mixed up tea tree, rosemary, and castor as the carrier and prayed.. my hair amazingly stared growing back. Now I have started locs very small like rice lol but im grateful

@JoyMorrisBeauty

Жыл бұрын

Hi and thank you so much for sharing your story! I am actually going to be uploading an alopecia update sometime this week, but I have recently started taking my anti Inflammatory diet seriously. Congratulations on your hair regrowth and the success that you've experienced taking a natural approach! That gives me a lot of hope.

Greetings, I can across your channel and the title so I clicked on. I was diagnosed with CCCA at age 46, I’m now 55, it started out the size of a dime in the center of my head and now it’s the size of an orange and the hair around the balding is very thin so I no longer wear my natural hair out anymore more ( personal choice) I wear a lot of protective styles now and wigs ( they’re cute girl). It was hard to come to terms with in the beginning because I had thick past the shoulders length hair. I used to do all the things you’re doing and I stopped but since watching your video I’m motivated to try again. Thank you so much for sharing your story!

@JoyMorrisBeauty

Жыл бұрын

Thank you so much for sharing about your ccca journey with me. I am glad that you found some motivation through this video to fight again. I'm always happy to share and to pay it forward 😊 take care!

Heeeyyyy Joy!! We already know that God is a healer. Alopecia who? Alopecia where? Sending prayers up . And your grey hair is beautiful 😉

@JoyMorrisBeauty

Жыл бұрын

Amen! And thank you! I still haven't dyed it yet, I'm still letting the gray hair hang out for now 😂

Thank you so much for sharing. You're right we only talk about the good things. Sending well wishes for the rest of your loc journey.

@JoyMorrisBeauty

Жыл бұрын

Thank you!

I’m so glad you have a great Loctitian…. This makes me want to switch Loctitians because in not sure if she would notice a difference in my scalp. I’m also so glad you have a BLACK dermatology provider that appreciates and understand our skin and hair! As you know I’m a nurse practitioner with dermatology background, and I just attended a conference in August and one of the topics covered was CCCA!!! I so enjoyed that topic and the information and treatments available. Stay the course with treatment ❤❤❤❤❤❤

@JoyMorrisBeauty

Жыл бұрын

Thank you! I just got a retie a few days ago and I thanked my loctician several times because I don't know if I would ever figured it out on my own. Yes and amen for the black dermatologist! It took me a while to find her and then several months to be seen, but it was worth it because now I'm on a regular rotation with her. What a coincidence about your conference you attended! And God bless you for the work you do, it is really needed. Thank you, I pretty much will be down for whatever my dermatologist subscribes. She was very encouraging, so that helps me feel more open to following her advice.

Thanks for sharing. So glad you caught it early. Truly love your hair and the transparency you’ve always had about your lock journey. Praying that your medical tests are all ok. Just starting this journey and have enjoyed following you.

@JoyMorrisBeauty

Жыл бұрын

Thanks so much Constance! I'm so glad i caught it early too! Yes, I'm hoping that sharing this may possibly help someone else, I'm all about paying it forward. Take care!

I was diagnosed with the same thing about 3 years ago. I did lose hair because of this. I started taking 2 thousand mg of pumpkin seed oil and that got rid of the inflammation. I also started using ayurveda and I haven't had a problem since. Please please 🙏🏾 do some research and look for holistic remedies.

@JoyMorrisBeauty

Жыл бұрын

Thank you so much Stephanie for sharing your advice with me. Yes, I am definitely still continuing to research.

@miaboo29

Жыл бұрын

U take the pills?

@JoyMorrisBeauty

Жыл бұрын

@@miaboo29 hi! I was prescribed some pills and I'll be sharing an update on them soon. I am also taking a natural approach with supplements and I'll be sharing about that also.

@theane23

Жыл бұрын

@stephanie4337 thank you for sharing! Can you advise which the name of the pills you’re talking? I’d like to research them as well. Thank you so much!!

Thanks for sharing💕…I have started my loc journey and my mom has alopecia so I am kinda of worried. I pray all works out for you and your outlook on what is going on with you is so amazing you are a phenomenal woman. I do not think you dream length is necessarily a dream if the alopecia is just in the middle you can do a layered style keeping the back long. Thanks for sharing💕

@JoyMorrisBeauty

Жыл бұрын

Congratulations on starting your loc journey! It's good that you know that your mom has alopecia so that you can be on the lookout for any symptoms as you get older. Thank you for your well wishes! You are very kind ❤️ You know you may have given me a great idea because I didn't even think of layering my locs! I'm going to talk to my dermatologist about it. Thank you again!

I have a small scar/patch on my crown after being burnt by a hairdresser's blow dryer over 8 years ago. Always been a bit tender. you're right only saw what it looked like when I had my installation grid pictures 3 months ago. I feel the tenderness retie of about 2-3 locks in this area. Thank you for sharing, Sending a virtual hug. "All is well "

@JoyMorrisBeauty

Жыл бұрын

Hi Florence, I'm sorry that the hairdresser burned your scalp. Thank you for sharing about your scalp tenderness and thank you for the virtual hug. ❤️

Great Loctician! That’s a stylist / cosmetologist job to alert the customer of changes in their scalp and hair. Make recommendations or treat the problem.

@JoyMorrisBeauty

Жыл бұрын

Yes definitely! I am so grateful that she did.

Sending lots of Love your way!

@JoyMorrisBeauty

Жыл бұрын

Thank you!

So glad that your hair professional found the issue. I didn’t know there was an issue until my scalp started itching and being tender. The hair in the area became brittle and started breaking off. I get injections regularly and use the steroid cream.

@JoyMorrisBeauty

Жыл бұрын

Yes I had no clue that I had an issue either. My crown started thinning a little when I had my son back in 2015 and I had no clue that I had alopecia. I'm glad that you were able to find help. Take care.

Sending lots of love and virtual hugs your way!🫶🏽

@JoyMorrisBeauty

Жыл бұрын

Thanks Lisa!

I have CCCA. I have been diagnosed via biopsy, and also have a Black woman dermatologist. Here is everything I did to grow my hair back, although I am still struggling. 1) Went on doxycycline for three months: This is an antibiotic and can help stop the inflammation. 2) Steroid injections every month for six months. 3) Prescription topical Minoxidil with Tretinoin and a steroid. 4) PRP injections a few times. 5) Started Nutrafol supplement. 6) Spironolactone: Went on and off but this really helped. 7) Nizoral shampoo. This took me from two very large bald areas on the side of my head to having hair again. Although the bald patches are not at long as they used to me. Now I just use the prescription topical and take Nutrafol. I wish I had started the more aggressive treatments sooner before I lost so much hair.

@JoyMorrisBeauty

Ай бұрын

Thank you so much for sharing your treatment plan. That’s amazing that you were able to regrow your hair! We tried the docycycline but I had a really bad allergic reaction to it. The next step in my plan was the shots into the scalp, but between the my topical metformin and clobetasol, as well as everything I’ve done holistically, we were able to stop it from advancing. I am glad you didn’t give up and that you were and to find something that works. Good luck to you!

I will be visiting the dermatologist because I've been dealing with some of the same symptoms you mentioned.

@JoyMorrisBeauty

Жыл бұрын

Ok good luck! Yes it's always better to get checked out so that you know what is going on.

Thanks for your story 😊

@JoyMorrisBeauty

Жыл бұрын

Thank you for watching 😊

@anthonyneely7316

Жыл бұрын

@@JoyMorrisBeauty so you can get locs with scarring alopecia

Just made my 1st year with sisterlocks and was diagnosed with CCCA in Feb....I have been battling this for years and my loctician put me on to a Black female dermatologist...she did a scalp biopsy on the first visit and diagnosed me. I have lost about 15 locks in my crown. I have been doing research and it seems like Pumpkin Seed oil helps with inflammation. Ty so much for sharing!

@JoyMorrisBeauty

Жыл бұрын

Hi! I am so sorry to hear about your diagnosis. It's so frustrating. In addition to what my dermatologist has prescribed, I'm also taking a number of supplements and I've changed my diet to combat the inflammation. I'll be posting another alopecia update video soon where I'll be going into more details. Good luck to you!

I cut my micro locks the same year that you recorded this video because my crown was thinning. After cutting it I fell into that tunnel of uncertainty of what to do with my 4C hair. Perming it was out. I don’t like how fros look on me and wigs are too hot. Lately I’ve been considering getting sisterlocks because there are now more certified consultants in my city and I miss being locked but am afraid to make that investment only to have to cut them again. Thanks for your video! I started taking Nutroful and I’m going to see a dermatologist before scheduling a sisterlock consultation. Thanks again for this video.

@JoyMorrisBeauty

Ай бұрын

I’m so sorry to hear that but I hope my video inspired you in some way! I didn’t know that I’d also have this alopecia journey when I started my Sisterlocks, but having them has been a God send considering what my scalp is going through. Good luck to you! ❤️

Thank you for this video. I was diagnosed with aleopia, but i think it's ccca. It started small but now it's big. Ive been considering traveling to another state to see a black dermatologist. Im on a journey for better health and hair. Im 42 just have a baby 2 years ago, i think my hormones are getting back to their normal. When I have scalp flair ups, i use aloe vera and turmeric paste(i make it). Both are good for inflammation. I am also pre-diabetic, so im changing the way I eat. I live it Az, and its very dry here, so i oil my spot with clove oil and tee tree oil. I also take collegen and d3, i feel like both helped my hair stay healthy. Its just the inflammation. So, im now taking pumpkin seed oil and turmeric with black pepper, and limiting my stress. My hair does grow back, just not as long. I do wear braids, i dont braid the spot where the aleopia is i braid around it and pull the rest up in a loose ponytail. Ive been contempleting on getting microlocs because of the size and the lightness of them.

@JoyMorrisBeauty

15 күн бұрын

Hi! I’m sorry to hear that you have alopecia. Yes having a black female dermatologist has been a game changer for me. I’m glad that you’ve been able to figure out some lifestyle changes to help control your inflammation. Locs have been a great style for me to have with my alopecia, it’s the most gentlest style I can have for my sensitive scalp. Good luck to you!

This February I was diagnosed with CCCA and I also have a blk female dermatologists. My locs were almost down to my butt. I noticed my edges were thinning about 2 yrs ago. Then I lost my eyebrows. I self diagnosed myself with tension alopecia and cut my locs to my chin. It was a relief to loss the weight of my hair, but it continued to get thin. Finally decided to get a biopsy and the results were CCCA. I didnt want to do steroid injections because I am a diabetic so I just cut all my hair off. The balding in the middle and losing my hair line was too much to handle. Emotionally I'm still a mess but want to eventually get myself together to try some holistic approaches. Good luck on your journey!!!

@JoyMorrisBeauty

3 ай бұрын

I am so very sorry to hear of what happened to your locs. I can only imagine that must have been very difficult for you to go through ❤️ I kind of obsessed on the topic of alopecia and I also did an obsessive amount of research when I was first diagnosed, and I feel like I remember reading somewhere that hair follicle transplants may be possible with CCCA patients after the CCCA becomes dormant. I didn’t dig too deeply into it, but that may be an interesting option to research with your dermatologist. There are medical journals published about it on the internet. There is one woman here on KZread who, she doesn’t have CCCA, but she did get follicle transplants and it’s been very interesting to watch her journey. It always intrigued me. Good luck to you as you explore your options. Take care.

Thank you for sharing your journey. I’ve also got locs and CCCA too. It is possible to keep your hair, just don’t retwist so often and leave your hair to do it’s own thing. Also keep your scalp as clean as possible so don’t change your current washing regime. Like one of the other comments mentioned too, changing to an anti-inflammatory diet will really help. One question, did your dermatologist do a biopsy to confirm it was actually CCCA, I can’t remember if you mentioned that.

@JoyMorrisBeauty

Жыл бұрын

Thank you for your advice! I've definitely been working on the anti-inflammatory diet and it is also helping my weight loss journey. No, I did not have a biopsy, but I was examined in the office.

@Wildflower333

Жыл бұрын

@@JoyMorrisBeauty I’m surprised that your dermatologist didn’t do a biopsy because this kind of alopecia is confirmed through a biopsy.

@JoyMorrisBeauty

Жыл бұрын

@@Wildflower333 that's a great point. I've read conflicting information about the need for a biopsy online. Perhaps mine was just very obvious.

I’m interested in micro locs but I have smooth/bald spots in the crown area of my hair from CCCA so I’m afraid my scalp will show if I get locs. I don’t have heavy thick hair so my desire is that if I do get locs, they will be light and airy with little to no tension. Wishing you the best w/ your treatment!

@JoyMorrisBeauty

Жыл бұрын

Hi! Thank you for sharing your story. There are some locticians who are also trichologists. I hope that as you are conducting your research, that you can find someone who is understanding of your needs. Also, I actually found a KZread video where a beautician created a loc'd topper for someone. I will post the link in case that is something that may help you with your research. Thank you so much for your well wishes and take care!

@JoyMorrisBeauty

Жыл бұрын

@soloist72 here is the video I was referring to. kzread.info/dash/bejne/ZYShspmpZszIiso.html

@soloist72

Жыл бұрын

@@JoyMorrisBeauty thank you! 😊

Do you follow @Katscoils? She has self installed micro locs and also has alopecia. It may not be the same as yours but I'm sure she can help you navigate on treatment along with keeping your locs. Your hair looks great and hoping your early catch helps you keep your hair the way you want.

@JoyMorrisBeauty

Жыл бұрын

Hi Michelle, I've seen her posts on Instagram but I was not familiar with her story and I didn't know she had alopecia. Thank you for sharing, I will make sure to check her social media out again. Thank you for your well wishes. Take care.

Your hair is very thick and it is beautiful you can't tell it all if anything is wrong

@JoyMorrisBeauty

10 ай бұрын

Thank you. I'm glad it appears that way. With me being in early stage CCCA it's easy to miss the subtle visible changes. I'm just glad I caught it when I did.

I have an area on my right side of my head where my hair is thinner and I have no locks there. It is easy to hide and it isn't bald, just thinner and shorter. I am hoping to leave it alone that it will grow back and hopefully I can get one or two locks in there. I am a white female with wavy/some natural curl. My hair strands are fine, average thickness overall with density, with a tendency to get really dry. My scalp is also very dry. I am in peri-menopause, turning 50 in February, so I had assumed that was the issue... but now I am wondering. I do have ME (many call it chronic fatigue syndrome and fibromyalgia). My hair has thinned as I have aged (it used to be really think in my 20s) but was told that is very common... but yeah, now I am worried. Do you have any advice for me? Should I look for a Black dermatologist also? Most white people have no clue about locks and automatically assume that it is the locks that are the problem. Thanks in advance for any time you have to answer my questions!!!

@JoyMorrisBeauty

7 ай бұрын

Hi and thank you for your comment! I am so sorry to hear about the issues that you are having. I know that a lot of derms will blame locs, but my derm said my loc style is great and they aren't done too tightly. She did say that i may have to stop growing them somewhere past shoulder length so they don't get too heavy for my scalp...having said all of that, you may want to consider looking for a black derm who should hopefully have more expertise working with locs. There are lots of different types of alopecia and reasons why it may flare up so having a derm weigh in on your situation is very helpful. I know it's not easy finding a good derm and it may take a few consults to find the right fit but for me it was worth it. Hang in there and good luck to you. Take care!

Pls let me know if you can get dreads with scarring alopecia if you have no loss or thin hair or anything

@JoyMorrisBeauty

Жыл бұрын

Hi. I think it possible and it definitely depends on the person. My hair started thinning at the top due to ccca but I'm on medication to help with it. My locs are healthy, and I regularly see a loctician as well as a dermatologist.

Could you please tell me the autoimmune test you took my doctors are lax so i like to be knowing and you your demotligist give you yearly test. THANK YOU YOU LOOK BEAUTIFUL

@JoyMorrisBeauty

Жыл бұрын

Hi! My primary care physician did a full blood workup on me during my annual exam and I've also taken some of the general blood tests for I think lupus and rheumatoid arthritis. My dermatologist is pretty experienced and she has used a dermatoscope to diagnose my ccca. Some derms will do a scalp biopsy. If you consider getting a second opinion, the scarring alopecia foundation maintains a list of derms worldwide who are experienced with scarring alopecia. You may want to consider checking with them too.

I got a diagnosis today and was worried I would need to cut my locs

@JoyMorrisBeauty

Жыл бұрын

I am sorry to hear about your diagnosis. My dermatologist said my locs were fine just as long as I don't grow them too long...so if you find an informed black dermatologist who knows our hair, they should be able to give you good advice about it. Good luck!

@TiffanyIma

Жыл бұрын

@Joy Morris Beauty thats the hard part! Finding a black dermatologist that is knowledgeable and takes my insurance. . Mine told me it should be fine as long as I leave space and don't tighten to my scalp. But he don't know nothing about our hair 😂 it's nice to also be able to find people like you talking about their experience. For now I have topical steroids and minoxidil tablets. And we will see.

I was just diagnosed with mild CCCA few days ago.😪 I've been wearing my locs for 8+ years. I'd hate to see them go. After doing some research.... lifestyle, practices ,nutritional habits must be changed for regrowth. Learn how to heal your temple. Its starts from the inside.🙏

@JoyMorrisBeauty

3 ай бұрын

I am so sorry to hear about your diagnosis. Yes I’ve been on quite a journey since this video. I’ve shared additional updates on my channel and my doc now considers me to be stable.

@charismamitchell6322

3 ай бұрын

@@JoyMorrisBeauty All the best with your wellness and care✨️🕊🙏

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