Selective Dorsal Rhizotomy Procedure - Cerebral Palsy | FAQ with Dr. Shenandoah Robinson

Ғылым және технология

Shenandoah Robinson, a Johns Hopkins Children’s Center neurosurgeon, discusses the opportunities for selective dorsal rhizotomy (SDR) in cerebral palsy patients.
Learn more at: www.hopkinsmedicine.org/johns...
FAQ's
0:01 In a nutshell, what is the Selective Dorsal Rhizotomy procedure?
0:52 Which patients should I consider for an SDR referral?
2:04 What outcomes can a family anticipate if their child undergoes the SDR procedure?
2:45 What are the options for severe spasticity if a child is not a candidate for SDR?
3:32 What are the surgical options for dystonia?
4:40 What is the difference between primary dystonia and secondary dystonia?
5:34 What is the unique benefit of treatment for spasticity, dystonia and other movement disorders at Johns Hopkins Children's Center?

Пікірлер: 5

  • @karenmariecarsamaniego4894
    @karenmariecarsamaniego48944 жыл бұрын

    Hi! I am very much interested with the SDR program. My daughter has spastic diplegia. she is 7 years old. She underwent abductor release and hamstring lengthening last july 2019. She has her AFO and can walk. However, she still has the spasticity and is walking tip toe with her left foot. I am wondering if it ADR program would work for her. Is SDR the best treatment for her case? How much does it usually cost? And do you help children internationally?

  • @shiningstar1608

    @shiningstar1608

    2 жыл бұрын

    Karen Marie are Samaniego what about your daughter now?

  • @lloydshaw6534
    @lloydshaw65344 жыл бұрын

    In regards to Vibration Therapy for Children with CP. And the people who pray on desperate parents. This unfortunately is a global issue and they are quite organized. Here in New Zealand we have had to spend a fair bit of time and effort to protect parents who would do anything to help their children, with some salespeople are all too aware of . They will often state they are unbiased and only want to help, when in reality they have a long history of being a sales rep for one particular brand of product. They get away with it by saying there are only two choices of products they endorse, with one being extremely over-priced, so the logical choice is ( whatever they are selling ) when in reality dozens of options may be available. But they rely on parents being too stressed to do any due diligence. Eg........Here in New Zealand a free service was available,( free for life ) but was hidden from the parents because they knew it would be the end of their business model.The Prof who ran the program was actually the sole distributor, how cheeky is that. Parents completely in the dark. So.....this is to a particular rep in Canada. Targeting Children right now. Dear Deb Pelletier Et al ..... I still have no idea why you chose to go along with a plan to "decimate" any company using Lineal Vibration. But life has taught me to not be surprised anymore. You have been part of that bigger lesson. So thank-you I suppose. Anyway, your unethical adverting and plans did not "decimate" the target company. And despite your best efforts they have expanded and are helping more people than ever. Even though I will say those terrible lies spread far and wide ( as they were designed to do ) and I can genuinely say there are plenty of people who will never try VT because of that material. As my word is my bond, I did say one day you would regret your part in all of this. It would only be a matter of time. So you know this has to happen. It is part of cleaning up the industry we are always trying to do. Because imagine if there was no-one doing it. As you know I give full disclosure material to my consumer protection work, so the podcasts I will be doing will at first be very CP orientated, seeing as I have so many contacts and and people who respect my work globally in that area. From beginning to end, including all our correspondence over the years, because it actually makes for a very good story. A very Human story. Good Vs Evil etc.... Fee work by people who truly care VS Pure Greed. It is quite interesting to see you now claim you never agreed with the plan to wipe out 50% of the industry. Because you made plenty of comments on a industry website after the fact defending it, when Di Heap asked you about it all . Lucky for me the shear amount of consumer protection work we do means I have the habit of saving everything. I do not believe it is going to be easy as you think to get anyone to believe your claim of innocence now. This is not 2009 anymore. Anyway, it will be interesting to see what kind of reaction the podcast and letter/ petition receives when people really grasp the big picture. Of not just about you guys trying to chase more sales, ( which I think most people will understand ) but a structured plan to actually destroy / stopping all the work that is done for free. Which includes ALL life threatening or Independence taking conditions. . I will release the story in platforms ....... (1) A small podcasts series. Because from beginning to end the story is longer than you think. (2) A letter almost identical to the one I originally did for other individuals and companies in the past. That was quite effective. But with some specific changes to match your situation.Combined with a long list of individuals names and details and opinions of those who work with CP research, caregivers and those with CP who use our Lineal devices along with Pivotal in 7 countries. Just like the original protest letter they will be signing a petition stating they do not agree with what you did / supported . ( and yes they will be made to read everything first, so it is a genuine opinion, not just someone parroting my obviously negative opinion. Because a lot do not know this story at all ) Please note : I will not allow anonymous opinions, because I believe that would be unethical.So some may not sign, but that is a privacy issue I must respect. And this point will be made VERY loud and clear, and often...... It goes without saying, If the plan had worked, if we had indeed been "decimated" our group would simply not exist to help anyone. EVER. None of the work we had done over the last decade for people with CP would simply never have happened. But I suppose that is what you were counting on right, our complete collapse and my reputation destroyed so you would never have to deal with the scenario you now face. I know Murray wanted to make us bankrupt, so I suppose you though that would be that. Sometimes evil wins. But not this time I guess. Lloyd Shaw P.S. It would seem you are working with others that also attached themselves to the marketing you now say you disagreed with. So they are now part of the story. This is going to touch a few people, I hope they are ready to see their name attached to this horrible part of our history. You may want to warn them.

  • @KyleYoung-t4p
    @KyleYoung-t4p26 күн бұрын

    Damn I would’ve qualified

  • @user-qr6nb6wh7z
    @user-qr6nb6wh7z5 жыл бұрын

    😔😔

Келесі