What scares me the most about your condition is that someday you might faint for a completely different, more dangerous reason, and no-one would notice because they're so used to your fainting 😕

@Zara_Beth

11 ай бұрын

i’d never thought about that! yeah😅

@BlackPlectrum

11 ай бұрын

@@Zara_Beth Dang, now I'm sorry for bringing it up. It wasn't my intention to make you anxious about a scenario like that

@Zara_Beth

11 ай бұрын

@@BlackPlectrum no it's okay, its another thing to plan for to make it safer for me! good to talk about possible scenarios so things can be put in place to try and prevent the worst case problems from happening :) life with FND is a constant problem solving game haha

@adventurekidswithadriandai7817

11 ай бұрын

Ik but if she prays and keeps her head high she gonna make it

@stellaancimer8505

10 ай бұрын

@@Zara_Beth hey :) can I ask you, did they give you some medicine, or what nevrologist says? I am asking because I also have Fnd., and have similar symptoms

This is really eye-opening to see how seizures can look "normal" "not eye-catching" if a person wasn't focused on them. Now I'm wondering how many students in class and people around me had these kind of seizures without me thinking too much about it.

@MatVeiQaaa

10 ай бұрын

Most likely none, it’s quite rare

@pixelzebra8440

9 ай бұрын

Same that’s exactly what I thought

@ao1fe

9 ай бұрын

i knew a girl who had epilepsy and one time after a science class she told me ”i had a seizure during class but no one noticed :/“ 😭😭

@readingbooks5347

9 ай бұрын

@@ao1fe That is really sad

@Zara_Beth

8 ай бұрын

@@ao1fe it's a common thing for us with seizures to have them when nobody notices!

I always saw seizures as the whole body just vibrating. Instresting to see different types and how you deal with them.

@wishIKnewHowToLove

10 ай бұрын

yes, there are many different types

@beverlyarcher3744

8 ай бұрын

Theres ticks and there sometimes the person doesn't even know I've always known there are different types even though I never been around or no anyone who has them

@phobos.anomaly

8 ай бұрын

Those are known as "generalized tonic-clonic seizures", or "grand mal seizures". They're the best (or only) one known by lots of people, but they're not actually all that common. As far as I understand, absences and tics are far more common.

@Liaz712Artz

7 ай бұрын

@@phobos.anomaly my mom always tells me the grand map ones are the worst ones besides granny seizures, and they can kill you?? 😨

@postystan

6 ай бұрын

same, i also thought that. i didn’t know there were different types! this channel is educating me

I remember having these in school. People made fun a lot especially teachers when I would come out of a complex seizure. They thought I was daydreaming or something even though they knew about my seizures. I want to thank you for sharing. It really educates a lot of people.

@aad7451

11 ай бұрын

Damn that sucks! I’m so sorry to hear that. F@ck those ppl!

@noname4998

11 ай бұрын

Same!

@llynxfyremusic

10 ай бұрын

Kids are horrible in general and will always find something to pick on but those teachers should 100% know better. The way teachers treat disability is a complete travesty.

@LittleMissy1234

9 ай бұрын

Me too!! I had absence seizures and petite mal seizures through high school (my first one ever was on my first day!) I got bullied for it as well. Kids are so cruel. The awareness is so key!! ❤️

@huskychronicles3249

9 ай бұрын

I feel like it would be better if teachers treated these episode as "daydreaming", rather than bringing more attention to your medical conditions in fron of the whole class.

I admire how calm you deal with your seizures and other things, I have had a stroke and suffer FND for 14 years now with seizures and more and it scares the heck out of me. Your a great person ❤

@johnhipp604

11 ай бұрын

Can I ask you something yes or no

@islaberg1289

10 ай бұрын

Yes even though I don't deal with this I still imire how strong you are and positive mindset with this because I know these days are hard but I think you are amazing for getting through it so amazing ❤

The amount of times my teachers would get mad at me for "rolling my eyes" and "falling asleep in class". Little did they know I was experiencing episodes like this. Stay strong honey ❤ I'm glad someone's spreading the word about this.

@g.v.m7935

4 ай бұрын

Some teachers are just rude and want to write off behaviour like this as quickly as possible. So it wont hurt their pretty minds thinking about what someone might be going through and labeling it as bad behaviour or poor discipline. So happy your environment is aware and keeping an eye on you. Your strong willed person, I pray one day by some miracle your condition can be cured.

@CaR1235100

2 ай бұрын

I delt with this a lot too in highschool, I only found out about my epilepsy when I started having Grand Mal seizures in my sleep in College, it's a scary thing for sure

@user-po4sf8uj8t

7 күн бұрын

I have these too girl power through it

I really appreciate the way the people around you deal with your seizures. I have multiple chronic illnesses including pots and it used to give me so much anxiety if people crowded me and asked loads of questions. The fact they let it happen without any panic or acting like its a major emergency is so good. Having that calm environment as youre coming round is so much nicer!! The way my school dealt with it definitely made it 100x worse and i know it comes from people not understanding/being scared but its super annoying. Hope youre doing okay. ❤❤

@linzfae2210

11 ай бұрын

I have a few autoimmune includinG POTS and I agree when my seizures and fainting started 4 years ago I freaked out some, but now the most annoying thing is people freaking out makes it so much worse. My husband learned very quickly just be a calming presence and it’s so much better for me.

@tirvine9102

10 ай бұрын

I can relate to that feeling when I get out of a seizure. Everything seems normal, but everyone's gathered around because something happened that I'm not aware of. I may be on the ground, but I haven't taken note. I just get iritated and defensive. My neurologist told me once she had a patient throw something at her, after emerging from a seizure. I've never gone that far, but I can understand.

@beverlyarcher3744

8 ай бұрын

I don't have a medical issue but the safest place for you when waking me up is at my head my arms are the last thing to react when I wake up my feet are the first and their pretty accurate my brother and sister could tell you it's a defense mechanism against being tickled I'm ticklish all over and its literally why I don't hug if I hug your safe it means I'm not that ticklish at the moment though I think most of it came from dry skin ever since I have switched to sensitive skin I have been less ticklish after a car accident I about almost kicked the paramedic who was checking me over kinda forgot to tell him I was ticklish probably thought when reacted he had found a spot I said it's alright I'm just ticklish the way I reacted body shivering and a little shake like shaking something off is the only warning you get after I tell you not to touch me as the next time it might be a kick the shake and shiver is my way of saying I barely caught that kick reaction don't push it

Man. It's been so long since I had an absence seizure, and I never knew what I looked like when I had them. Thanks for your continued awareness education.

@alexusturner3231

11 ай бұрын

As someone who has Epilepsy and hasn't had a seizure in 30yrs I hope you are able to be seizure free 1 day

@SamanthamusPrimeV28050

11 ай бұрын

@@alexusturner3231 i have a friend who has epilepsy. My friend Catie Bowman has epilepsy and she has her mother who catches her seizures in petite mal seizure types but would help her when a grand mal seizure happens. Catie Bowman has a brother who is also an epileptic person. Just she has the petite mal seizures more than grand mal seizures, but her brother has grand mal seizures more than petite mal seizures.

@chevellmcintosh4525

11 ай бұрын

Your mom

@SamanthamusPrimeV28050

11 ай бұрын

@@chevellmcintosh4525 don't be saying roasts like that towards people with disabilities. How would you feel if I roasted you by saying "your mom" when you suffered a concussion and a fractured leg bone and have to be in a wheelchair for a long time? You'd feel upset, won't you? Don't roast these epileptic people.

I'm a nurse, so it's wonderful for me to see how you handle all of this. Back corner of a room in a safe out of the way space. Also, the fact that you have someone by your side to help if things go really sideways. ❤❤❤ Kudos to you both.🥰

I had a roommate who had epilepsy and everyone in the house knew about it. We learned what to expect. There were a number of times where we had to take her into the emergency room because she wasn’t coming out of her seizures or it was one after the other. It’s scary to watch someone go unconscious no matter who it is but if it’s a friend or loved one, it’s so much worse. Especially when there’s no way to help them.

This is so terrible, I hate how you have to go through that :( I adore how strong and optimistic you are about your condition. We are all here for you, queen. We love ya, keep being you :)💙💙💙

@somerandommh

11 ай бұрын

Zara thanks for hearting :) love ya💙💙

Zara, as someone who has epilepsy, it has been really scary knowing that I could have a seizure at school and no one is going to be there to help me....But your videos have been definitely very helpful... Sincerely, thanks.

@tjfreshboi1577

11 ай бұрын

Its good to know that im not alone in this bc I have seizures and I’ve had them in class before and some people would make fun of me and start rumors about me

@somerandommh

11 ай бұрын

It's so bad when you have them in public, like school or something. I don't have them, but I can imagine how bad it would be to have those in class, especially if you don't have a good relationship with your classmates and they make fun of you or smth. I have tics and when they happen in class, most of my classmates don't know what they are and they start making fun of me or call me crazy. I hope you are doing ok! 💙💙💙

@SamanthamusPrimeV28050

11 ай бұрын

My friend Catie Bowman and her brother Daniel Bowman are both epilepsy sufferers, you're not alone with the epilepsy and seizures too. I also help my friend and her brother whenever either one of them has a grand mal seizure, or a petite mal seizure. On march 29th 2023, Catie Bowman had witnessed her brother have a seizure at valley forge, during her school field trip. Her brother isn't a part of her school (she's in a cyber school called reach), meaning, he's not a learning coach, or a teacher, or a student, he is only 27 years old and he wanted to go on a hike through valley forge, on that day, so he went with her and her sister Michelle Bowman whom is her learning coach and a caretaker in Reach, and went to valley forge, then Daniel had a sudden change in blood sugar and blood pressure at the same time, happened and he asked for a Peanut butter and jelly sandwich from Michelle, but Michelle knew they weren't near a lunch area, then Daniel had a grand mal seizure. Catie tried to help him, and so did Michelle, then a park ranger, and several hikers came by, 1 of the hikers called 911, then daniel was taken to the nearest hospital, then Catie and Michelle told the park ranger that they were on a field trip and the Park ranger gave them a ride to the meeting area for the school, but the school never showed up, then Michelle called the park ranger, and the park ranger came and picked her and catie up and catie said "let's go to the hospital." And the park ranger decided to drive to the hospital, but he let his boss (or whoever he calls on walkie talkie, probably a dispatcher, specifically for park rangers) know he was going to the hospital that Daniel was in, then he got the right away to go to the hospital, then the park ranger drove to the hospital, and Michelle called her mom and dad and told them about the seizure Daniel had, then her dad had to tell his boss about Daniel's seizure, but he had to clarify that he was talking about daniel and not david since Catie's dad's boss only knew David Bowman personally, since both Catie's father and Catie's brother David both worked at SEPTA as traffic checkers, but Catie's brother David noved to Florida and got a job as a security guard at a museum, and Catie's dad became a train modeler, or someone who builds model trains that the transit gift shop sells in the store at SEPTA's transit gift shop. Catie's dad had to cancel his work, Catie's sister had to let the reach Montgomery county community coordinator know that they're not gonna be able to make it to the field trip, then Catie's brother David had to pay an uber for Catie's mom to get to the hospital from home, and Catie's mom had to get woken up and get ready and such, then idk how many hours later, Catie's mother, father, and catie and her sister arrive at the hospital, and went to meet Daniel and then he was discharged, and then Catie and her family went to the bus stop and then took a bus home, well, several buses to get to home. The park ranger went back to valley forge park after dropping Catie Bowman and her sister Michelle off at the hospital's emergency room meeting entrance, and other things happened. Seizures are crazily scary, I can tell. And Catie Bowman is always worried that she wil end up having a seizure and dying, like how Michael Jeter died of an epileptic seizure.

@Ragnar452

9 ай бұрын

@@tjfreshboi1577 What the? There is nothing to make fun of... Sometimes people are strange. Depending on how these things go, they look scary even for the people watching...

@dtbrex08

9 ай бұрын

Fr tho I’ve witnessed them sometimes and it’s scary as heck, sometimes I even try to get up and help if someone doesn’t get there in time, but thankfully I’ve only witnessed 1 seizure and not many, the other time was a faint I think. God bless everyone.

I stumbled upon this by accident. You are a very brave young woman. Best wishes to you and your health! One could only hope there are ways to severely reduce your symptoms..

i’m impressed you could talk so much before the seizure. i usually only have intellect to say something like: “it’s coming” and lie on the ground, then i dissociate (not sure if this is the term in english). and you also seem so calm… for me it is a dreadful experience, i get very anxious…

@lindasmith6072

2 ай бұрын

These are not seizures in the sense you are thinking of. This girl has a functional neurological condition thst is why. If you google functional neurological condition you will get what I'm saying.

I admire how you continue to go to school even after what you going through. You do brave. But I’m incredibly surprised how no teacher sees that you getting seizures and helps you or the person aside from you either

@Newtieee353

11 ай бұрын

they probably know what she has and she would probably have told them not to worry about it etc, or they are in a special school and/or the teachers are trained with this sort of stuff and know how to handle it

@plumdutchess

11 ай бұрын

She clearly tells the girl next to her and the girl tracked how long she was out. If this happens daily, there's no point in fussing over her. She knows what's going on and it's not life threatening.

@fishfingers8441

11 ай бұрын

Of course they see?? There’s nothing to help with.

@jessweaver5713

8 ай бұрын

There’s nothing they can do. Sat there next to her friend, with a teacher who knows what to look for, is the safest place she can be.

It’s amazing how your teacher just keeps teaching knowing this is okay and she doesn’t stop the class bc if she did the whole class would stare at you and u might feel like embarrassed so good job teacher! Edit: bro ik only the annoying people do this but 88 likes? Jeez Edit 2: damn I’m being annoying but like 200+ likes? My most ever

@Sabito_wastaken

9 ай бұрын

@@pey-petZC maybe

@SeraphsWitness

9 ай бұрын

Have greater ambitions than accumulating likes.

In my head I’m saying “sweetheart take your glasses off, please take them off👍” My daughter has EDS, POTS, RAYNAUDS and ADHD. I noticed your hands mottled when you fainted. Love you Zara❤️🌹❤️

@Zara_Beth

11 ай бұрын

well spotted! that’s one of the symptoms i get when the (suspected POTS) fainting symptoms begin ❤

@saimahhernandez5265

11 ай бұрын

I have that too, just not ADHD 👍🏼

@bonemeat3917

11 ай бұрын

If I may ask, what does it mean when your hands mottle? As in what causes it? I get it quite a lot in my hands and feet and and I’m suspecting I might have pots

@dominicpearson

11 ай бұрын

I have adhd and not POTS

@danielsibbel8343

11 ай бұрын

@@Zara_Beth I am interested in hair 😊

This is you, in college, in life, young and happy as it should be. Go ahead proudly knowing we are all here rooting for you ❤

this is a very serious issue. one of my classmates passed away bc she had a seizure problem, like you. she had one while taking a bath, and drowned. it was horrifying to hear. stay safe. RIP Danica❤️

When I was 5 my mom picked up me making noises on the baby monitor. I was shaking obsessively and I actually threw up. We rushed to the hospital and found out it was a seizure, luckily I’m not epileptic, but I have a bigger chance of it coming back. I love how calmly you handle it ❤

This was painful but so enlightening to watch. I apparently have all of these types of seizure activity but I've never seen it myself. I also have tonic clonic seizures and the other seizures are apparently a warning sign but my T/C seizures are so bad I can't remember them. Thank you so much for being so vulnerable. You've passed on a little strength to all the warriors fighting the same battle ❤

I have nothing but pure respect for you Zara. The fact that you can stay calm in an extremely stressful situation is admirable for so many. Stay strong❤

You took that so calm for having seizures and fainting in class. you are an amazing person and so is the person that was sitting next to you.

I admire your strength. I have epilepsy and it started at 16 and I even had to deal with it in school as well. I have the myoclonic and a little bit of atonic seizures that turned into grand mal seizures. I'm still fighting it all this time. Even with my medication I get these weird shakes from time to time but I finally learned to manage it. Now I'm 26 and I finally overcame the fear. Watching this just helped inspire me to not be afraid. Thank you so much ❤

@JessMcNicholl

10 ай бұрын

Do you have any advice to fighting the fear? I've been scared to leave the house for years haha

@shelbymustang1189

Ай бұрын

​@@JessMcNichollhonestly for everyone its different. But the one thing I did learn is to cope with it and not fight it. The more you fight the worse it gets. For a long time I felt broken and useless. I had people that cared for me help me through the process. Sorry that this reply is late.

It’s amazing that you’re raising awareness about FND because I had never even heard of it before. Stay strong and thank you for this 💕

Thank you for being brave enough to put yourself out here to raise awareness. I admire your strength and hope someday a treatment will be found to help yourself and all those who are effected by the same. Hugs and take care of yourself 🐇💙

Thank you so much for posting this and being open with your disability. I have epilepsy and I struggle with some of the seizures you documented. It can be so debilitating at times, especially when a lot of seizures go “unnoticed” or people don’t take them as serious because they don’t actually “see” what’s going on. This made me feel like I can keep fighting and that there’s hope, we got this :)

This one time I fainted and whacked my head SUPER hard into my desk at school, everyone was staring at me and it was very anxiety raising, you are so strong

@janinerusinovich3040

3 ай бұрын

Oh dear I'm sorry

This is EXACTLY how my seizures went. For days on end, I had fainting spells and was misdiagnosed, saying I was "dehydrated" when even after checking me I was clearly NOT dehydrated. Found out later they were symptoms of epilepsy. Juvenile MiClonic. Although I do not suffer from FND, I can relate to this video. People used to accuse me of FAKING, because I didn't have full outburts, I started having full seizure body shaking when I started 8th grade.

Thank you for posting this, I just got diagnosed with FND a month ago and am finally going back to college, but I’m pretty nervous. I’m having a difficult time believing it is possible because, after all the hoops we have to go through to get diagnosed, I’m feeling extremely down trodden. Especially since my doctors keep telling me to “lessen my load” and “take it slow.” And like, that’s just not completely achievable. I’ve got accommodations in place, the disability center at my school have been incredible, but I’m still terrified about having seizures in public alone. So I really appreciate seeing like, honesty, you know? Not encouragement, which is very necessary! But I can’t plan if we avoid reality, and people like doing that. So, thanks for being real.

I’m so impressed that you’re so willing to open your life up in this manner - love how matter of fact you are about it all, as well as your determination to live your life in the best way possible while dealing with serious chronic health issues. I was a little surprised the person seated next to you seems so completely clueless to everything going on, but then wondered if this may be by design to not call unwanted attention? I live with a chronic illness myself, and both my husband and I have gotten really good at hiding or shielding any time I’m experience issues with it. (I’m not ashamed of my issues, merely don’t like unwanted attention when something goes a bit sideways).

It's realy nice to see a supportive friend who understands and is there for you!!! 💛. I am sorry you have to go through all that.

It’s a huge relief that you’re okay and still going to school, this stuff is scary and from the outside looking in, I never would’ve noticed these were seizures. I also really appreciated what you said in the description, I def needed that :> 🌸

thanks for spreading awareness! your amazing and so pretty 💗 stay strong zara x

I really appreciate you documenting this and putting it out there. There have probably been countless people throughout time and history who experience this but the people around them don't know or understand. I'm sorry you have to go through this and wish you the best.

I have epilepsy also, and it’s rlly hard for someone to watch another person having a seizure. It’s scary when you’re in the moment of it. You are an extremely brave and amazing person.

I think the way you handle this is so admirable! I also think that the people around you handle it well too. They are obviously keeping track, because they know how long or about how long you are out, but they don’t make a huge deal of it. ❤️

I get seizures quite often not just in class, but when my parents talk to me sometimes and don't understand why sometimes I reply and sometimes I don't. I admire how you describe your experience on KZread, nice video! ❤

This girl goes through a lot lets give her a round of applause👏👏

I’m so sorry that you have to go through this. Keep doing what you love 🙃

From somebody who is epileptic and has had to deal with very similar incidents in middle of college classes and later on uni lectures I have nothing but respect for you. Most relatable part was coming round and asking for the timings straight away. Best of luck to you !!

This makes me cry 😭 i love that you are comfortable enough to show your symptoms. The amount of energy you must spend dealing with this must be exhausting. 🥺❤️

You poor thing, that looks so terrifying. I think you're incredibly brave and have a lot of respect for you. I'm also glad you have a support structure and that the whole class including teacher is probably aware of your condition and are respectful to let you handle it without nagging you each time. I wish you all the best.

it’s so inspiring seeing you pull through when you have tourette’s and FND so amazing to see how well you cope.

This video is very relatable. I suffered from epilepsy from birth until I was seven and a half. I had, at a minimum, a hundred absence seizures a day until I finally had a life-saving brain surgery in December 2007. It was the greatest Christmas present I could've asked for as it completely saved my life. Now, at 23 years old, I've been seizure-free for almost 16 years. There was a very distinct, indescribable feeling that would dawn on me before a seizure started, and I can't begin to describe how elated I am that it's been nearly 16 years since I last felt that feeling. I hope it never comes back, but considering it's been 16 years, things are looking good for me. Without that surgery, there's zero chance I'd still be here.

Thank you for sharing this. I hope i can recognize the signs better now and be there for someone going through it.

I feel so bad, I can’t imagine how hard this is for your, wishing you the best of luck ❤

Saw this a few weeks ago in my recommended. I didn't realise seizures could look like that. Until today when I was officially diagnosed with FND! I'm fully aware now that I was experiencing seizures too. Thank you for sharing your experience with us ❤

I’ve had seizures my whole life all the way up until I was 20. I’m 30 now. When I was 15, I had one at school and I don’t remember any of it, but other students were saying I stared at the teacher weirdly and kept saying “mom” over and over. Most embarrassing thing ever. Seizures can be absolute hell.

idk but I've watched some of your videos over the past week because I just searched turrets and you've truly been a inspiration. You have such a great and contagious attitude! God bless you and yours!

Wow. I can’t imagine, I went though schools acting like I couldn’t do any of it like it was too difficult for me. I still haven’t graduated high school. To see you still in class trying your hardest while dealing with this seriously makes me question my past. More power to you, all the power to you. I hope you live a long happy life, you’re clearly working for it.

as a person going thru epilepsy, i understand how this feels, stay strong queen!

You are such an amazing strong woman sending u my love and support ❤ stay strong warrior x

You are a beautiful and brave woman. I complement you on not letting these things stop you from living your life, and fulfilling your dreams. You are an inspiration for those who have similar experiences, but struggle. All my love for you today. ❤❤❤

Thank you for sharing those episodes. You are so strong and brave. I like how you handle all this at school

This video was recommended by KZread and I just wanted to say that I really admire your tenacity to push through and control your tics. You got a new sub my friend! ❤

@Zara_Beth

11 ай бұрын

Thank you so much! welcome to the community ❤

@rammingspeed5217

11 ай бұрын

@@Zara_Beth fainting is for the WEAK

Respect! She is sooo strong. Thanks for sharing. Greets from Switzerland.

I’m so sorry you have to go through this, I just really hope ur school is supportive 💓

I have absence seizures too! It’s so nice to have them talked about/showed by someone who isn’t a doctor. I’m glad I found your channel, it’s been a big help for me in dealing with my own health stuff.

I am having an awful flare day and for some reason videos like this make me feel less alone

@Zara_Beth

11 ай бұрын

you are never alone ❤

Everyone is so proud of you ❤

That is emotional & physical resilience! You inspire me in my battle with post CoVid heart issues.

oh my gosh, the way you just preserver through everything is so amazing, it is truly inspirational ✨💕

Hi sweetie. I was diagnosed with epilepsy at age 12. I had grand mals and absences. The best way I could describe my seizures was "blacking out." Or "losing time." Anyways... I see you struggling and you are so brave... but the greatest thing I have ever done for myself was starting to take a medicine called Kepra. I am now 23 years old, I can drive, I am taking 1500 mg when I used to take 3,000 mg at 12 years old. Just the only thing I CANNOT do is the strobe lights lol!! You are strong. So proud of you. ❤️

i remember in 5th grade, we had a new girl join our classroom, us being young children, we didn’t know much about seizures, i’m not sure if beforehand we got told that she suffered with it but it was something very new for all of us. it wasn’t like an everyday thing but she had seizures constantly, at least once a week. i remembered one of her triggers was loud noises. at this point we had gotten used to it, if she was about to have a seizure, we would just know. there was one time where she had a really bad seizure than she usually did and her mom had to be called. i also remember during pe and recess, i think about it again now and walk in her shoes, it must have been so hard, she had to deal with it in public school, that is not easy… she knew she had no choice but to deal with it and especially with a bunch of other kids who could have been judgmental about it. i admit tho, some kids were very mean to her, not because of her struggle but bc she was ig bothersome and annoying to them. i hope she is doing way better now, this video furthered my knowledge on how seizures can be soo different and unawaring, as in we might not be aware that someone near us is having one. keep doing u girl ! 🫶🏼

This is my first time really seeing anything like this, it breaks my heart that you have to go through this, that said I truly admire you and how calm you are through the situation and I thank you for posting this

Very brave to post this. You are very strong and I’m so sorry you have to endure this.

Hey Zara. These seizure and fainting videos are interesting to see what it can look like if things like that happen.👍😊

I like how you just kept trying to do school.And you dealed with them so calmly. Did anybody notice you?

@Nikolai508

11 ай бұрын

They probably all know about it and I’m guessing she’s told everyone just to let her go through it and she’ll be fine. I mean her friend there knew how long it was so she was aware. Well at least of the faint, perhaps not of the seizure parts.

I’m so sorry you go through this girl your strong just know that I’ll be praying for you love 💕

Thank you for sharing your life challenges. I have learned quite a bit from your videos and appreciate you educating people.

I had no idea what these seizures look like until watching this video. I'm glad you have a classmate to sit next to who you can rely on to keep an eye on you while you go through these. Are your instructors aware of your condition? Do they know what. If anything, they can do for you?

When I first had seizures, I started crying because I thought I was going to die soon and I didn't like that at all because no one in my family had ever experienced anything like that. But seeing you today has given me courage, you are very brave and I can't describe how much i want to be like you ❤❤I pray that you get well very soon.

@lelouchvibritannia4028

2 ай бұрын

I hope you are okay. I'm type 1 diabetic, and if my glucose falls too low, I could have a seizure. I've never had one, but I saw a kid in middle school have a grand mal, and it scared me a lot.

@LucyHeartfilia9942

2 ай бұрын

@@lelouchvibritannia4028 i hope you will get better soon, ik it's not easy to live a life with a disease but Dw you will get well soon I'll pray for all of u guy's who suffering from any kind of disease :)

@lelouchvibritannia4028

2 ай бұрын

@@LucyHeartfilia9942 Thank you very much, and same here to you.

Thank you so much for documenting this for us so we can learn more about various conditions like seizures. ❤

This helps me understand that what people suffer with isn’t always how it is in movies. Thank you and I wish people who suffered with this never had to, it looks awful and must feel like that

Obviously the teacher and her classmates are well aware of her condition. Thank God for that.

I have a question how long is ur longest faint

@Zara_Beth

11 ай бұрын

20 minutes 😅

@Joandpriya

11 ай бұрын

Can I just ask can you hear what is going on around you when you faint 🥰

@Zara_Beth

11 ай бұрын

@@Joandpriya nothing! i'm unconscious

@Joandpriya

11 ай бұрын

@@Zara_Beth thank you so much for replying to my message I really appreciate it

@OppPpSIe

11 ай бұрын

@@Zara_Bethhi um how often do you have seizures?

Thank you so much for showing this!! I have the same Thing, but sometimes I start shaking... But to see it from this point of view gives me so much more kindness for myself... Somehow I could finally accept that more people suffer from this and that I'm not weird and most importantly, not alone! Thank you so much for sharing!

I appreciate you :) I know some people who have had seizures and I want to be able to understand so I can be there for them, have a good day!💖

Your classmates are kind ❤

Thank you for sharing this ❤ I hope you'll be fine You're eyes are pretty amazing 😍❤ Love watching your vlog I'm from Philippines 🇵🇭

Hey Zara, I know what you are going through. I have also been diagnosed with FND, and struggle as well with schooling and home life. it's SO difficult!! I am having to drop out of school because of it. am finally glad that i have found someone else with FND. Your videos are really helpful, and have made it clear to me what some of my seizures actually look like. Thanks so much, and please, please continue making videos!!

Wow you are incredible! So strong in the way you handle yourself. I cant even imagine what strength you must have to deal with everything you deal with. Like you say in the description optimistic attitude can get you really far!

this is probably so exhausting having to deal with everyday, you’re so strong and amazing :,((

Hey! I’m a epileptic as well. This was really interesting to see as in the past when I’ve had absence seizures I’ve never really known what it looks like. My family try to explain it to me as well as a full seizure. Thank you for posting this to raise awareness of epilepsy. ☺️ My last seizure was a few years ago while I was driving a car at the time. Haven’t driven since.

@eneedham789

10 ай бұрын

She’s not epileptic, she has FND which causes PNES

@sootyskeeper

10 ай бұрын

@@eneedham789 ah sorry. I saw the word ‘seizure’ and kinda linked it to epilepsy. Sorry I assumed 😬

@eneedham789

10 ай бұрын

@@sootyskeeper that’s ok! I just thought I’d mention it because functional/psychogenic seizures tend to look a lot different to epileptic ones.

I have FND and Fibromyalgia, watching this I could relate to it so much. Watching your video was very comforting to know there are people out there struggling with the same things. It’s nice to know that you’re not alone in the world. Thanks for spreading awareness and comfort. It’s very important to be more aware of others we share spaces with

Hi Zara, can you always feel the indicators prior fainting ? I hope when it happens you can always feel it and have the time to sit down/assume a safe position to faint. I'm 42 and i have never had any history of worrying illness or whatsoever except that i generally have low blood pressure (usually around 90/60) and I started to have accumulated bad cholesterol and uric acid since i was 36 or so. Then one day I suddenly felt unwell after waking up from overslept on the sofa. I walked upstairs into the toilet. I remember I started peeing and then the next thing I knew I was already on the floor. I didn't immediately got up. Was laying there for about 10-15 min trying to piece things together...what I did and how I got there. It was really scarry actually like having a memory skip. When i woke up i felt nauseous cause I had a concussion on my head, which took me almost a week to recover from. I really hope you always faint safely and don't get hit on the head or something like that. The doctor told me that maybe at that time i had very low blood pressure and I woke up too fast, so the heart did not pump enough blood to my head/upper body. Took some brain scans after that thankfully i am ok. Please take exceedingly good care of yourself. You don't want that kind of concussion that I had. Trust me.

Question... What do you do if it's the end of class and you have another class to go to or it's time to leave for home and you're still having symptoms? I definitely get being able to sit somewhere to be more safe.

@Zara_Beth

11 ай бұрын

the teacher will either help me or call learning support staff who would come and get me to a safe room and ring my mum :) or if i'm well enough but still feeling symptomatic i can call my mum myself and ask her to pick me up

@honeybunch_0563

11 ай бұрын

@@Zara_Beth great ❤️👍

It’s really eye opening to see how many types of seizures a person can have. A couple days ago I was sitting in class and I looked over to see a boy in my math class just staring at the ground for about 4 minutes. He started to flinch Alittle so I did tell my teacher and thankfully he was ok. It’s nice to see there are others who understand. You’re so brave and so kind ❤

So much respect for you getting an education despite challenges

I have a question, do you have some sort of sense or knowing what’s going on around you or do you completely forget? My best friend has seizures and for the first time she had one in front of me. I wasn’t sure what the recovery position was then (I do now) so told someone to get a teacher and they did it for me. She ended up hitting her head and fractured her upper eye socket! I think it’s really cool to share this experience with someone who also has seizures because it helps me learn in case it happens again! I think your really cool and sweet bro just thank you for being you ❤

@Zara_Beth

11 ай бұрын

during seizures like absence seizures in this video, i'm completely unaware and it feels like literally waking up when i come around from one - i'm confused and remember nothing so i'm trying to gauge my surroundings and figure out what the heck i was doing before it came on i have had the odd full tonic clonic (convulsive) seizure where i remember snippets but usually i don't and i'm not there ❤

@eloiserose3993

11 ай бұрын

@@Zara_Beth ok thanks you! xx

Literally cried watching this bc I’ve been trying to get some mystery health issues diagnosed and your absence seizures look just like what I do before I have complete numbness in my arms and legs I’m usually very aware and can respond and tell people it’s about to happen just like you did. Up until the numbness I can still move through it, but i can still talk and look around. Can I ask what you feel before they happen or how they feel while it’s happening? It may help me describe at least that part to my doctor if we share some things in common

@yinyang5529

8 ай бұрын

Have you looked up conversion disorders? I personally have functional Neurological Disconnect. Symptoms are differential in intensity. But some for me are limb numbness and weakness. Along with non epileptic seizures and fatigue, which lead to passing out. FND won't shop up in blood work or MRI scans.

@taylorgracexx

7 ай бұрын

@@yinyang5529 i havent but I recently got a preliminary diagnosis of psychosomatic non-epileptic seizures and was told to try cognitive behavioral therapy bc its caused by an overreaction to anxiety and external stressors. I did look up covering disorders though and that matched my symptoms so well so I will be asking my neurologist at my next appointment! Thank you so much for your response! It makes me feel less crazy knowing other people experience the same things 🫶🏼

You are such a brave and strong woman for dealing with this shit. Although I don't suffer from seizures, I understand the fainting because this happened to me at school and I felt out of it, like I could feel the blood in my body rushing through me and dizzy as fuck. The cause is still unknown but they chalked it down to being 'low iron'. These kind of conditions suck big time, and it is not fair people so young and sweet should have to deal with it all. You are like a big sister to me, you're absolutely beautiful, you're sweet and you are caring to help others understand what it is like having all these conditions. I wish your health to improve and get better

You always seem very calm about things. Do you actually faint every day or are some days better than others?

@Zara_Beth

11 ай бұрын

i have at least one symptom usually every day - but days vary so much! some days i faint 5+ times and may have multiple seizures, other times i can go days or a week without fully passing out or having a convulsive seizure ❤

I've been getting tics recently, but im scared to tell my mom bc "there is always sm wrong with me." Also, i don't want anyone thinking im faking...

@gimygaming8655

25 күн бұрын

Same here. I am fortunate enough to have gotten genetic testing (for EDS) and find out I'm not making anything up.. PUSH FOR YOUR HEALTH! you matter the most. Disabled people always feel like everything is messed up with them or feel like an imposter. You got this

Thanks you so much for sharing this and bring awareness in us I will pay more attention if I see someone going through this 💖

im am not fully aware of your condition , but I'm sending prayers and love, you will get through it all. Your gorgeous and u deserve the world!

And here I thought seizures meant violently convulsing... I hope you get well soon(assuming this condition is treatable, hope so)!

Genuinely curious question: what was the process of making your school aware of what’s going on so they don’t think it’s inattentive or disrespectful behavior during classes?

@smolbuny

8 ай бұрын

In the UK you are asked to declare any disabilities or other issues when you apply to colleges etc to discuss them, and then this information is relayed to your teachers in the form of a support plan they can access

Thank you for sharing this! I’ve had FND for around two years now and not many people I’ve talked to know about it, and I’ve never met anyone else who has it so it’s nice to know I’m not alone :)