Seeing my cardiologist + mini Q&A

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What is Mitochondrial disease?: • WHAT IS MITOCHONDRIAL ...
How do I treat it?: • How I treat Mitochondr...
All about my other chronic illnesses: • ALL ABOUT MY CHRONIC I...
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Пікірлер: 10

  • @ef7496
    @ef74964 ай бұрын

    The camera quality is amazing

  • @FullTimePatient37
    @FullTimePatient372 ай бұрын

    Wow 10:32 hugs that's rough

  • @alyssawssinging4039
    @alyssawssinging40394 ай бұрын

    Heyy my gastro doctor left the office sadly I have to see new gastro doctor 👩‍⚕️ I have the same surgeon I gotta make sure to call them this coming week set up with a new gastro doctor I was with her since 2017 and it’s good to see you ❤ glad ur appointment went well

  • @TheMitoWarrior

    @TheMitoWarrior

    4 ай бұрын

    Oh no that's such a bummer. I hope you're able to find a good gastro doctor. Thanks for leaving a comment! Hope you are well❤️

  • @stefs3460
    @stefs3460Ай бұрын

    Thank you as always for your helpful posts!😃 I also find that missing Coq10 dose makes fatigue worse, also for me vitamin D vitamin Bs and Folic acid super important since I always seem to be low. My heart is giving me some trouble with tachycardia arrhythmia lately, hopefully can get that settled down soon. May I ask do you also use CPAP? If so has it been helpful? So far I am not finding it helpful.

  • @TheMitoWarrior

    @TheMitoWarrior

    Ай бұрын

    Aww you're so kind! No I don't use CPAP❤️

  • @user-zy2bz7sv8e
    @user-zy2bz7sv8e4 ай бұрын

    Would you mind sharing how your mito diagnosis was confirmed? Like did they find a mutation on a dna test, Did you have a muscle biopsy etc. Thanks for spreading awareness!

  • @TheMitoWarrior

    @TheMitoWarrior

    4 ай бұрын

    I was diagnosed with mito based on symptoms back in 2006 when I was 5. At the time my doctor wanted to wait on doing a muscle biopsy because treatment wouldn't change. ( he put me on the mito cocktail.) And when I was younger, I had more mild symptoms than I do now. In 2013 I had genetic testing done through a spit tube. The results of that genetic testing confirmed my mito diagnosis. And then in 2018 I redid genetic testing through a different company. That was either a spit tube or a swab, I can't clearly remember. But redoing testing gave a lot more information dna/genetics wise. And to clarify yes I have a disease causing variant that was found!

  • @ef7496
    @ef74964 ай бұрын

    I hope everything well . Please can you give us an update about the supplements you are still taking ( brand, amount , changes) thanks

  • @TheMitoWarrior

    @TheMitoWarrior

    4 ай бұрын

    I'm planning on filming that video soon!