Several “aha” moments with this podcast. I’ve instinctively know that my pelvic floor was extremely tight and no amount of “exercise” has helped that. I feel like I’m finally learning how to support myself in a way that allows me to relax, through the gentle TZC movements and mindfulness. Thank you Jeannie!

@JeannieDiBonHypermobility

Жыл бұрын

That’s great to hear.

Hi, thanks guys! So interesting and I can relate to so much of what you are saying, which is weird for me as I have spent 40yrs feeling like maybe I am just a hypochondriac or a freak! The official diagnosis last year helped, but it is great to hear you just talking about this stuff!

@JeannieDiBonHypermobility

3 жыл бұрын

Thank you. So glad you enjoyed this episode.

Just finished up watching and with tears in my eyes and a heart fill of hope and inspiration, I would like to thank you both from the bottom of my heart for sharing your experience and wisdom here. I look forward to going through more of your videos here - and was wondering if you might have an EDS diet/supplement resource you like? Thank You both again!

@JeannieDiBonHypermobility

3 жыл бұрын

So glad you enjoyed this. There’s a nutrition episode coming up soon.

Thank you both so much for sharing all of this. You speak of your medical history and pain so beautifully. I was not diagnosed until age 40, very very similar history and it helps to not feel alone or crazy.

@JeannieDiBonHypermobility

Жыл бұрын

Thank you. I’m so glad to hear. It’s important not to feel isolated.

Dear both, thank you so much for sharing. You speak right from my heart, but I would never have found the words like that. I am always sad, when I hear how much suffering there is also with others and at the same time so glad to feel I am not alone and there is people that understand. Keep up your great work and good faith. All the best!

@JeannieDiBonHypermobility

3 жыл бұрын

Thank you - so glad to hear - you are not alone at all 🦓💪

I have a lot of this same constellation of issues since childhood! I "seized up" about 10 yrs ago and that's when, as an aside, a rheumatologist said I have hypermobility but no one has offered a solution. I've found my way here because I'm seized up again and need help! The gentle lower back exercises are helping.

@JeannieDiBonHypermobility

2 жыл бұрын

Sorry to hear. Glad the gentle movements are helping.

Thank you! Really helpful!

@JeannieDiBonHypermobility

10 ай бұрын

Glad it was helpful!

Great watch and this gives me such confirmation and hope 🙏

@JeannieDiBonHypermobility

3 жыл бұрын

I’m so glad to hear.

Gave up on sending my long typed out story because it kept saying contains invalid arguement, something like that, but I looked through it W/a fine tooth comb & its all just my info, my story. Thanks anyhow for this video.

@JeannieDiBonHypermobility

Жыл бұрын

Sorry to hear that

Wow! Thank you so very much for this! It's so helpful to have these kinds of testimonials explaining other people's journeys... It's really helping me to let go of the anger I feel, and is giving me strength to start advocating for myself again! I had lost hope... But these podcasts are helping me to really understand that I'm not alone... And that I can keep moving forward in a positive way. I cannot thank you enough! Xxx

@JeannieDiBonHypermobility

2 жыл бұрын

That’s wonderful feedback. Thank you. So glad these are helpful.

I’ve been following you for awhile but this video convinced me to join the Zebra Club. Also, if possible, I am also from Tampa and would like to know the name of the neurologist who diagnosed your guest at Mayo Clinic.

@JeannieDiBonHypermobility

9 ай бұрын

I’m so happy you signed up. You can definitely ask that question in The Zebra Club members chat page.

Wow. So insightful.

@JeannieDiBonHypermobility

3 жыл бұрын

Hope it was useful.

@DougKremer

3 жыл бұрын

The narrations of posture, pelvic floor, core, and needs of constant mindful motion are absolutely descriptive of me. All it takes is a fraction of a second of mindless movement and I'll crack my knee, ankle, shoulder, elbow, back, or something else. My Wife constantly asks me "Where did you get that bruise from" I usually have no idea.... I'm 45 and just now am assembling a lifetime of issues, injuries, and 'bodily features' into something starting to make sense. Not that dissimilar to Dana's path.

I've been diagnosed with HMS and definitely experience balder problems, slow movement of food etc. Do you find people with HMS have the exact same symptoms as people with hEDS? Thank you in advance!

@JeannieDiBonHypermobility

3 жыл бұрын

Hard to say, every case is different. Couldn’t say exact same symptoms. Best to look up on EDS Society or HMSA websites to read more.

❤

@JeannieDiBonHypermobility

9 ай бұрын

Thank you 🙏🏻