I have never been diagnosed with POTS but your description is eerily similar to my "oh I just get really light headed sometimes. Don't worry. I haven't fainted recently. It's not a big deal but sometimes I just really need to sit down. My body doesn't regulate blood pressure very well" that I tell people. I just thought it was "one of those things" I didn't know my symptoms could be indicative of an actual medical issue. I'm going to talk to my doctor.

@lalaarsch6850

3 жыл бұрын

Same. I don't faint often but I can't stand up fast and sometimes my heart rate is just not normal. After I first fainted I actually talked with a doctor but he just said it's normal for me to faint because I'm tall and thin.

@lotrhpnmask

Жыл бұрын

@@lalaarsch6850 that’s not even normal. Did your dr even go to medical school or fake his degree yikes

@terri2111

Жыл бұрын

I have had fainting spells but have not had them recently. I am on no medicine for my condition. The doctors I had told me for years I was fine. So I went to another doctor. They did the tilt table test and diagnosed me. I then transfered to a doctor that specializes in pots patience. I had went to a cardio rehabilitation center as well due to a vaccine I received that flaired my symptoms even worse. But as my body adjusted to it the flair ups subsided with fluids...rest and many er visits. Pots has a mind if it's own. One day your feeling on top of the world. The next thing you know you can't get out of bed. The fainting spells come from when my heart rate goes so high and my blood pressure drops. I have headaches and sometimes I'll have nothing but shortness of breath. It's not the worst thing you can have...but it is so easily miss diagnosed for anxiety and other conditions. Best way to rule out postural orthostatic tachycardia syndrome is to request a tilt table test. I did not personally request mine but the ones I was seeing had no idea what they were dealing with. So I went to another. When he seen the monitors I was wearing and their readings that's when he decided to go with a tilt table test. There are other diagnoses that mimic pots....distomnia is one and it's sort of the same. I did my research as a young mother. And found out many suffer from pots

Some people really don’t understand that having our dogs with us makes us feel safe! I have a service dog who is still learning how to work with me I was diagnosed with vasovagal syncope but I have a feeling I might have high functioning pots but I’m so scared of doing a table test as it scares me when I faint and my anxiety makes me faint most of the time.😩

@MommingwithMigraine

3 жыл бұрын

Isn't it incredible! They're a lot of work but such huge reward. The tilt table test was a little triggering but not too bad for me. I think I'm on the higher functioning side unless I'm also having a migraine. You can do a poor man's test at home or in the Dr's office and in my eyes it works almost as well (kzread.info/dash/bejne/l4xrvLmQhrm2iNI.html). Best of luck with your diagnosis and recovery!

@karialyson

2 жыл бұрын

Girl same!!! But I don’t have a service dog… my apartment won’t allow any dogs over 50lbs and idk what dog to get.

@beautysdit3547

2 жыл бұрын

Can you tell me more about your experience with vasovagal syncope if you don't mind? I've been having trouble regulating my heart rate( it's either too high or too low) and I'm on the road to getting a diagnosis. It doesn't happen everything I stand up but it happens when I stand for too long or do even the slightest amount of exercise like walking my sd. I've fainted twice so far but only for a few seconds. I'm trying to reach out to others that struggle with fainting and heart rate spikes to get a better idea of what it might be because to my understanding things like this can take years to get diagnosed. I'm hoping to bring some ideas of what my condition might be to potentially get diagnosed sooner

@jamilaorellana526

2 жыл бұрын

Hey, I was told I had vasovagal syncope too! I went five years before finding out it was POTS!

@carriehollyland3596

Жыл бұрын

@@karialyson ur apartment policies have no barring on what service dog size u r allowed to get. Landlords r not legally allowed to do that when it comes to service dogs.

KZreadr Jessica Kellgren-Fozard has POTS (as well as EDS). If you haven't watched her videos, you should; she's delightful.

@abbigailcarr2725

2 жыл бұрын

Ahhhh I love Jessica!

@cindyweaver8693

2 жыл бұрын

Nifty factoid: a large majority of us with EDS also have POTS :P

Im 20 and going to be getting my first apartment by myself but I really would feel so much more safe with a service dog

I do not have POTS, but cardiomyopathy. I do have syncope and BP drops in conjunction with my tachycardia events. Love and light!♡

I have the exact thing you do. It helps me a lot to see you and how you can live your daily life. I'm graduating high school in two days, so I've been under a lot of stress and worry. I've been denied by a specialist because they felt they couldnt do anything for me so I'm still waiting to see a specialist to see if they can help me. Until then I can't get a decent job or my drivers license. My parents have talked about getting me a service dog and that's how I found your videos. I cant be left alone at all and I'm worried to get a service dog because of that extra stress of people harassing me about how it's a dog, but watching your videos (especially this one) honestly made me tear up to know that there is a way I can live normally without feeling afraid all the time. Thank you so much for sharing your story and encouraging young adults who are just coming up to live their life like me to continue to push through and achieve their dreams.🥰

@MommingwithMigraine

4 жыл бұрын

I'm so sorry you're going through this at such a young age! Your message brought a tear to my eye - it means everything to be able to uplift you in such a crucial way. It is NOT an easy battle. There are many aspects, physical and mental, that you'll need to overcome... including specialists brushing you under the rug. It's totally wrong, but it happens all the time. Please know it has NOTHING to do with you and certainly does not mean that your conditions aren't legitimate. Maintain that hope that you will find answers! And trust me when I say it is WORTH it and you absolutely can live a beautiful, uniquely whole life. It won't be the straight line that you expected, but you'll discover beauty, strength, and personal growth on those side roads that nobody else gets to see. =)

@jilliansmith9488

4 жыл бұрын

@@MommingwithMigraine Thank you so so much!!! You're such a kind and encouraging lady!! I'm so glad you made a youtube channel!❤

@lindseycurry4134

3 жыл бұрын

Jullian if a doctor denies you ask them to document their refusal. Makes them more likely to do the test or what you need.

@carrigan7583

2 жыл бұрын

I have pots to twins

@TheMazinoz

Жыл бұрын

Have you tried other measures to help, ie: drink lots of water, salt in diet, bananas [potassium], compression garments, vibration platform to move blood back to heart, lying or sitting down with legs up as much as possible, some exercise if only a little as walking moves blood back to heart as muscles pump the blood vessels. You may be lucky and "grow out of it" as it often affects younger people. Maybe look into vasovagal syncope, and Butcher's Broom to strengthen blood vessels, I use it for lymphoedema.

I suffer from vasovagal episodes. My bp does drop low, example of one was 64/48. It is being investigated, but at this current time we do not fully know the cause of these episodes. Some have been brought on by body stress (like being sick, blowing my nose, after spinal injections, bike rides, etc...). But some we do not know what triggered it (like one that happened shortly after arriving to a store, another being one that happened while just outside of work when I was just standing there chit chatting with a coworker, another happening right after getting home from school, etc...). I recently got a service dog who I am currently training for cardiac alert and response. She had basic obedience training prior to me getting her. So I started on improving that basic obedience training and working it into service training. I was only in to about 4 weeks of owning her, when I had an episode. Now obviously I was not far along enough in her training to teach her alert training yet. So obviously she didn't alert me. However, she definitely knew there was something wrong. As soon as I felt the episode starting, I immediately sat down. She immediately crawled into me lap, and started nudging at me and constantly licking me. Which helped to keep me conscious. I was outside of work at the time it happened. When I regained a little bit of strength I moved to a safer location (a few yards away to sit on a side walk to prop myself up against the wall). She immediately crawled back into my lap and just laid there and occasionally licked me while we waited for an ambulance. When the ambulance arrived she stood up, but stood directly over me and didn't move until I told her when I was ready to get onto stretcher. None of this I had even taught her to do yet at that time, we were still only at the very basics of training. She did it all on her own.

I've had to do the crawling to the bathroom thing too! Glad I'm not alone

@abbigailcarr2725

2 жыл бұрын

Me too!

I've been fainting regularly for over 10 years sometimes faint over 10 times a day. I've been to doctors often but they always told me I'm to thin and I should gain weight. I've put a lot of effort in to gaining weight over the years but I couldn't gain weight at all. So they checked my blood which was perfect. They also thought it was psychological for a while. and after 8 years they checked for gluten sensitivity which was the first test that came back positive. So now I'm finally able to get a sort of normal weight and I'm still fainting a lot. I told my doctor about it and he said I had to eat more salt to rise my blood pressure. After your video it feels like I finally heard someone with similar struggles. Thank you for sharing!

Buddy: *Sniffs leg* Also Buddy: Deserves a lick I recon.

I have the exact same!!! Pots and Orthostatic hypotension. I also have a syncope and they can't figure it out either! I just got approved for my service dog. I'm very excited to start training and hopefully hitting my head alot less!

I’m currently training my dog to task because she naturally alerts me or comes to me when I start having an episode. Thank you for this video! My biggest issue is BP related and my heart rate often acts up when I have an episode.

Omg! KZread algorithm brought me here...i had ALL the POTS symptoms from age 13 to 20 never got a diagnosis but got 3 positive tilt table exams... And my diagnosis was vasovagal syncope... Im so grateful it went away... And so thankful for your videos .. Lots of love from mexico

I was diagnosed with POTS yesterday and today I had my first episode (pretty bad one) where I fully knew that's what was happening. I went soooo many years just feeling crazy and having doctors tell me things were in my head. And I didn't have the right words to describe things. I told people I felt bad a lot and was always sick and having to rest often. But I couldn't say why. I didn't know. I just felt embarrassed and people said I was lazy and dramatic. I had been trying to explain my "exhaustion spells" which nobody understood either. My parents would even tell me "everyone gets tired" which was not helpful at all. I don't usually fully go unconscious but I won't be able to respond or talk or function. I'll be completely limp. I just wish I had had the right words to explain things years earlier. Also never knew what a normal heart rate was. So, I'd see mine on my Fitbit doing things and I assumed everyone's heart rate was like that. My new doctor started noticing my heart rate was super high everytime I'd walk back to the exam room. I wouldn't have known to say that cause I didn't know that was high. And I thought my brain fog was from my other autoimmune conditions and a past head trauma/tbi. I'm starting to realize so many things now. I'm not crazy. It's not all in my head. I'll get this shaking that feels like seizures too and that has been really scary. All these things are so scary when you don't know what is happening and you feel like nobody will ever figure it out. I've been convinced (since I was around 14 or 15) that my heart was just going to give out one day and maybe then someone would believe me but it'd be too late. It's just been a lot. I have so many more questions now about what my life will look like and what I'll be able to do. Will I ever be able to hold down a full-time job? Because I haven't been able to and I've had so much shame surrounding that. Will I be able to be a mom ever? Can I be pregnant with POTS? I'm so grateful for KZread and TikTok cause I need help understanding so many things now. Also, thank you for this channel. This is my first video I've watched but I subscribed and I'll be watching more. Thank you!

@cora_and_dogs

6 ай бұрын

Oh and I've been inhaling glucose tablets for years thinking maybe I had diabetes or something. That was one of the first things I told my new doctor. I was sure I must have diabetes and my blood sugar keeps dropping and I just can't get a handle on it. I don't have access to anything to actually test my blood sugar. My blood work and tests were all completely normal for that and I'm not at risk for diabetes. I literally have been downing glucose and food for 15+ years and thinking that must be what is happening *facepalm* And my dad and grandfather have high blood pressure so I wasn't getting much salt. And as my chest pains kept getting worse and I could feel my pulse all the time... I assumed I needed to cut back on salt even further. No doctors would help me so I've just been trying to figure things out for so long and I've been doing the worst things. I am having to relearn soooooo many things now omg

I get drops in my blood pressure due to my POTS. I have suffered from migraines for years and was recently diagnosed with POTS also. Thanks for sharing your story. I enjoy watching and can relate to your videos. I am now training my own service dog to eventually help me with tasks and hopefully to help alert me as well in the future.

I had a 3 day hospital stay because my blood pressure was shooting UP when I stood up. They kept me in the hospital until I could keep the bottom number below 100 when standing. It was a bit over a year later that I was diagnosed with POTS. The rise in blood pressure is a random POTS occurrence and I thought it was interesting that your BP gets weird with a POTS eposode sometimes too.

@SnowySpiritRuby

2 жыл бұрын

My BP goes up when I stand up, too - not usually super high, but it's highest when I'm standing/doing things and lowest when I'm lying down, and the longer I'm upright, the higher it goes, but the more hydrated I am, it'll still go up but the lower it stays, which seems counterintuitive, but it is what it is. Except that if I've been in a not-standing position for long enough (like sitting), or bent over with my head down (like when cleaning out my horse's feet), I'll usually get a bit of orthostatic hypotension until I've been upright long enough for my BP to go back up. In some ways, I'm glad it's not the reverse (BP dropping more the longer I've been upright), but it does make it difficult to treat/manage sometimes. My guess is that the moderate hypovolemia I have (TTT showed I have it) is just mild enough to cause the tachycardia but not enough to cause a dropping drop in BP (meaning it's usually only for a little while, then it goes back to "normal"), and thus the tachycardia causes the increase in BP. It's probably also the reason I've never actually fainted (though I've come extremely close quite a few times).

Love the video! Great info!

Watching this made me really emotional as i know a service dog would really benefit me I’m in the same boat i feel unsafe when I’m alone and i often have to crawl to the bathroom too and sit to shower i have suffered with what i believe to be pots over a year and a half perhaps even longer. Im dizzy and lightheaded everyday only now have the doctors taken notice in my heart rate as i collapsed 3 times in the past week and couldn’t move my arms or legs. I have been measuring my own heart rate as i stand from laying this morning it was 68bpm at its lowest and immediately upon standing my heart rate elevated to 145bpm at its highest. When it got to this j had to sit back down immediately as i felt i was going to collapse again. Its so so so amazing what buddy can do and does for you it really gives me hope! Im hoping that they will diagnose me soon, they are giving me a 24hr heart monitor and I’m certain they will catch it as my heart rate increases multiple times a day. It seems to be worsening like my body’s saying stop ignoring me theres something not right but i don’t know about you or anyone else but when I’ve mentioned my heart rate to my mum or anyone they immediately say to me you’re alright you’re just having a panic attack when I’m really not I’m completely calm I’ve never had a panic attack in my life up until the first time this happened to me severely and I recognised that as a panic attack as i could feel it was but my symptoms induced a panic attack they were not the panic attack if that makes sense - i was panicking because of my symptoms because i was alone and in the street my vision blurred i was incredibly lightheaded and my heart was racing. I never measured my heart rate that day but imagine it would have been higher than it ever had been as it was hot and i just had a coffee and i could feel it all over me. I cant believe its taken this long for someone to actually recognise that it could be my heart causing my symptoms!! And even then i had to collapse and hurt myself for it to have been seen! My heart rate increased that day when standing from 86bpm to 144bpm. Thank you for your videos and giving me some hope for an independent life again! I apologise for rambling aha 💚✨

@miricampos3560

3 жыл бұрын

After 1 year, 2 panick attacks caused by me not understanding my sympomts as well (heart raising, blurry vision) many labs, many doctor visits, 1 MR1, being told it was anxiety, seeing a psychologist, and a lot of me pushing doctors to order tests because I knew it was not anxiety, I was finally referred to a cardiologist. They ordered a tilt table test, and dignosed me with neurocardiogenic syncope, but, I think I might have POTS. My blood pressure does drop sometimes and my heart speeds to 130 to 145. But everyday my heart raises from 60s 70s sitting laying, to 110 to 120s standing. Still fighting for answers. So, don't give up and push your doctors. Most of them don't care, it's hard to find Drs who care. Best luck.

I was diagnosed with POST COVID POTS. My SDIT Winnie has saved me a couple times. I was fainting 20 times a day and it was miserable. I’ve gotten to the point it’s about 5 times a day but she was alerting me at 3 months old. We are still figuring out what is an alert and not but before I was scared to be alone at all. Now that I have her I can do things and I know she will tell me. My heart rate will go to dangerous levels and she helps me.

I wish I had a service dog for my pots. I hate being alone and basically can’t drive alone anymore.

Your dryer sounds like a music box.

@MommingwithMigraine

4 жыл бұрын

Haha! A little bit, huh. I loved the tune until it got old... now it's just long =P

@hennessygarciahg

3 жыл бұрын

It sounds more like a toy or something or maybe an ice cream truck I don’t know

@brookiebakerie

3 жыл бұрын

It's the exact same tune my washer plays.

@cherlindreaaurora4075

3 жыл бұрын

It's the melody of LG Products :D

@BickyToya

3 жыл бұрын

I used to have a washer that made that sound and when I heard it I thought "oh laundry is done....wait..I dont have that washer anymore" lol

You are truly amazing, Jen!!! 💗

@MommingwithMigraine

4 жыл бұрын

Thank you for your neverending support!!

Have Orthostatic Hypotension and POTS. Thanks for your videos, they've helped me decide to move forward with bringing a service dog into our life.

I’m so glad I saw this! My husband and I are getting a dog to be my service dog in a few months. I would love to get some tips from you. You described my exact pots and not many people have it glad to find someone who understands. I also have migraines because I have a brain tumor. I also have deaf and blindness on right side and balance issues from it.I also deal with anxiety and depression. I would love to get your tips on training my dog

@TheMazinoz

Жыл бұрын

I'm sure your dog will help, but will need a lot of training especially with deafness and vision issues as well. Good luck. You could maybe get professional help after you do basic training?

I’m getting ready to get my diagnosis for POTS, we’re almost completely certain this is the right diagnosis after having been misdiagnosed with narcolepsy. I have an SDiT and this video helps a lot! Thank you!

I love seeing these kind of vids. Or vids about pots in general. I do not have a diagnosis, but after I passed out last year my mom took me to doctors and they did the same test where I would lay down for a while and they’d measure my BP and HR then sit up then stand. Everytime, my heart rate would go way up but my blood pressure would drop. But I’ve also had many other symptoms that make me question if i have pots. I want to bring it up to my doctor but I don’t know how to do that respectfully without self diagnosing. 🤷🏻‍♀️. Also my parents wouldn’t take me seriously, but now I’m 18 and can go on my own but it’s really scary, especially with going away for college.

@MommingwithMigraine

4 жыл бұрын

Thanks for the feedback! I love hearing what you guys like. I know what you mean with the diagnosing process... it can get hairy. If you do an at-home tilt table test and fit the criteria, you could let your doctor know that the definition matches from the little bit you've read, and just ask whether it would be possible to get tested for it just to tick another box. In my experience, most doctors have been pretty receptive if I went into it with a curious attitude rather than being too sure (even if you are!). If you're not feeling heard, it is OK to get a new doctor! Sometimes you need to try a couple to get to the one that just "clicks." Good luck with your journey and college!

I have had POTS symptoms for 13 years and diagnosed for 3 years. I definitely have BP drops. My highest heart rate has been in the 190's and my lowest BP has been 70's/40's. I've never fully fainted, but frequently have vision blackouts with loss of hearing for around 15-30 seconds. I'm so glad to have found your channel as I've been considering a service dog for a couple years now and it seems like you've got some good training tips!

@PupAndPotsAdventures

3 ай бұрын

Woahhh you're like me!

The start of this video made me go check on my washing machine... That I didn't even set to run. But it's the same tune that my washer makes when it's done!!

Thank you for this! Going to train my dog to do the legs DPT for my blood pressure now that Im starting to have fainting issues

I also have really bad migraines and pots and no doctor has been able to help me and you give me hope so thank you for this

The beginning was funny. My mom has a washer that sings like your dryer does. Maybe a different tune but it’s so cool!

I have the same symptoms as you including the drop in BP and seizure like episodes. My episodes don't include shaking but it's like I am in my body but I can't get it to do anything. I can here conversations but can't reply. Keep posting you gave me hope that I can get help so I can enjoy going out again. Thank you

I have a rather recent POTS diagnosis, and absolutely have a drop in BP when my HR rises quickly with standing/any kind of activity at this point. I am so interested in having a service dog to help and I am so glad I found these videos. I’m hoping to learn about the process

Hey so I just found your vids yesterday and you literally have me LOLing. Your subtle sarcasm and dry humor is right up my alley. Oh. And crazy migraines and dysautonomia. Those too. I'm pretty disabled and haven't worked consistently in 3 years due to the conditions worsening. I'm glad you mentioned how you have POTS but also orthostatic hypotension. When I had my tilt test 2 years ago, I had the orthostatic hypotension episode, but originally was found (and referred because of) a rising heart rate at another episode. Thanks for your videos! I'm admittedly only partway through this one but needed to comment (I also saw your vulnerable 'RAW migraine footage'). I have a new puppy (2yo gsd ) that I once considered owner- training to help me with dysautonomia and also narcolepsy w/cataplexy. Also random question, may be off topic but related to my diagnosis history (and I see commonalities with what you're dealing with)... Have you ever had a sleep study done to rule out narcolepsy/cataplexy? When I 'fall asleep' I stay awake and experience colors, aphasia, and a dreamlike issue. It's hard for me to differentiate between my migraines or narcolepesy now, honestly. Nystagmus is super common because we do that in REM sleep. My symptoms only affect one side of my body, so half of me gets paralyzed. Sometimes I can't talk and can only communicate by squeezing my fiance's hand with my right hand. It's been crazyyy!! I was diagnosed with transformative migraines back in 2013 and narcolepsy/cataplexy in 2018. It might also explain the dysautonomia. I 'collapse' and partly fall asleep (but am conscious). And considering when we fall asleep, our blood pressure and heart rate decreases naturally... it could be a theory! I'm not saying THIS is IT, but It's interesting to see the correlations that's for sure. Anyway. Sorry for the long post. Thanks for your awesome content that lifts my spirits and helps me (and I KNOW others) feel less alone with the weirdness of brain disorders.

@SpyralStormTeacup

3 жыл бұрын

You sound similar to me. I have Ehlers-Danlos and dysautonomia, and have narcolepsy/cataplexy along for the ride with everything. I also broke my pelvis in the army many years back and my joints cause me continued problems, and the battle between muscle weakness/wasting amidst the need to rest yet strengthen muscle tone to stay strong enough. The migraine attacks are all the time/chronic, they just vary in severity. I'm watching this because my cat found a stray dog I've been fostering, and she is already doing some alert dog things since she's been attached and glommed to me not wanting to be alone. I need a disability accessible job because of all my health complications and it was dog boarding recently. If I have an assistive dog help me manage my energy and can get to errands, and work a sit-down job that makes more money keeping this good girl might be a godsend. Thanks for posting, I often feel alone with the EDS/Dysautonomia/narcolepsy/cataplexy explanation to ppl lol

I'm glad I'm not the only one who has gone through this. Recently, I was told I may have Pots, I am still learning about this and going through testing .

I have pots dysautonomia and EDS and we are thinking about getting a service dog for me. This vid was so helpful

You are a Godsend!

@MommingwithMigraine

4 жыл бұрын

Haha gosh, thank you 😊

My blood pressure goes down most of the time as well. I was diagnosed with a poor mans test along with my symptoms of pots. I’m still at the beginning of my journey so I’ll hopefully see some specialist soon!

I’m so glad I’m not the only one dealing with this! My heartbeat will suddenly drop from 130 something to 50 something and it just takes me down so fast I also deal with the normal POTS, with my heartbeat going too fast but I’m so glad I’m not the only one! I thought there was something else wrong with me. My dog gives me the freedom to go out shopping by myself I was afraid to before thank you for sharing!🧂🐾

I have POTs and Ehlers Danlos syndrome and my blood pressure drops like crazy. I have terrible episode of low blood pressure that linger and it makes me SUPER lethargic and gives me horrible headaches. My blood pools really bad in my arms and legs or whichever part of my body is closest to the ground because my veins are too loose to carry the blood back up to my heart and my head. When it gets really bad my brain dosnt get enough blood/oxygen and then I have symptoms ranging anywhere from fainting to zoning out to straight up (usually temporary) memory loss. There’s times where I’ve sat too long while watching movies or even at school without realizing and my blood pools and I pass out. When this happens it’s not uncommon for me to wake up and not know what’s going on, where I am, or not recognize the person sitting right next to me with his arms around me is my boyfriend. It can be pretty scary, especially in public. I’ve had episodes like this in school where I go limp but not totally lose conciseness. I can still hear what’s going on but I can’t move or open my eyes at all and can hardly talk. I’ve had teachers who get annoyed when this happens and they’ll have people poke, touch, or shake me to try to wake me. This scares the hell out of me because I can’t see who’s touching me and on top of all this I have anxiety as one of my symptoms that was amplified by a poor childhood so I freak out. My heart rate shoots up but no blood will follow so my chest and head will hurt like crazy when this happens. I have days where I’ll fall asleep and my boyfriend has a hard time waking me up in the morning. It took him literally three hours to wake me up this morning and I’ve barely been able to leave the couch all say. I stick mostly to one room on one floor of the house because I don’t feel well or my body feels too heavy to stand. I have a bad habit of pushing myself too far to get things done because not getting anything done makes me anxious and overwhelmed and thus triggers my symptoms (as a result of my poor childhood) which turns into a never ending cycle of anxiety induced pots. It’s a nightmare. I also tend to be too much of a people pleaser because you don’t handle confrontation very well and try to avoid it as much as possible. This sucks since I have a manager at work who will keep pushing me to do numerous tasks at a rapid pace whenever I work. I can’t slow down because I get an earful and if I don’t get everything done I can’t go home until I do (I work at an animal shelter and it’s a lot of physical labor). As soon as I get home I shower and I pass out. Sometimes I end up just passing out in my car in the parking lot before I even drive home. It’s insanity. It’s kinda funny how I’ve brought this up to people and they just shrug it off. I’ve been asked how I’m feeling at work and I’ll say I’m doing ok or Answer honestly and say I’m pretty tired or exhausted. It’s infuriating when I’m having a pretty bad pots day and I’ll say I’m not doing to great because I’m exhausted and my manager says “oh I know honey, we’re all tired, now go do [insert physical activity that takes 4 hours to do and requires every muscle in your body] because it’s 8am now and we need it done by 10”. It’s pretty upsetting and it’s so frustrating. I sprained my ankle and everyone’s attitude towards me and my work capacity totally changed while I was in a boot/brace. It was how I should have been treated the entire time I’ve been there and not just for that month or two they could physically see my ailment. POTs is an invisible illness but it’s definitely real and definitely an ailment and should be treated as such. I wish I could tell my manager that Your tired and my tired are two VERY different things and when I say I NEED to leave and don’t ask if there’s anything else I can do or I NEED to slow down and take it easy it’s not because I want to do less, but because I NEED to do less or I’m going to collapse and that’s a lot of f***ing paperwork and medical bills. The hardest thing about POTS for me is not the illness, but the people who don’t, or even refuse to understand or listen.

Been there (with the crawling) it is a really big deal! I have a POTS service dog too! so helpful

I'm really glad I found your channel. I have POTS and migraines too. With my POTS my blood pressure drops both with and without tachycardia.

@MommingwithMigraine

3 жыл бұрын

Thank you 💜

I got diagnosed with POTS after getting COVID and the J and J vaccine in 2021, my senior year of high school. My blood pressure runs high usually, but when I have an episode, it actually drops. When I am about to have an episode, my heart rate jumps from 100-180 and then calms down during the actual episode. It is a crazy syndrome and one that we will continue to have questions about but it is so important to know that there are other people here too. I have a service dog as well. I trained her myself. It is a lot of work but she is my best friend. I am a sophomore in college at JMU and wouldn't be here without her.

Hi. While my disability has nothing to do with POTS, (mobility and migraine for me) A good friend of mine has POTS and Lupus. Your videos have helped me understand more about POTS. Thank yo for that.

I have it too. If I'm going to be standing or walking or just plain moving around I put on compression sox... Seems to help

It 1000% helps to have someone touch me when I passout. When my husband wakes me up he says its pretty quick other times when he didn't notice I passoued out incoukd be out for maybe 5 min.

Thanks for making these awesome videos! I really learn a lot from watching them. I actually am training my dog to be a service dog for PTSD, but now have been experiencing dysautonomia for the past 5 months as a result of a Covid infection. My cardiologist does not want to formally diagnose me with POTS yet until my nuclear stress test results come back and we reach the 6 month time frame. My trainer isn't too sure how to train my SDiT for POTS so I am trying to learn as much as I can to try to do it on my own. In answer to you question about orthostatic hypotension with and without tachycardia. I get both. Sometimes my BP will remain normal and I'll just have tachycardia, Whereas other times my BP will drop and I'll have tachycardia. My cardiologist started me on a medication - Midodrine - which has helped the orthostatic hypotension a lot so I think that is why sometimes my BP remains normal despite being tachycardic. But the medication also helped decrease the tachycardia from just the change in position (lying to standing) to 20-25 bpm. However, as soon as I start to move even a little my HR jumps up depending on the day and what I am doing from 100-130s bpm. Anyways, thanks for all your helpful videos! Take good care!

i don’t have a service dog, but whenever i’m about to faint and/or my breathing gets very quick and heavy my dog will nip at and lick my hands. I’ve found that this action was crazy helpful in keeping me grounded and stopping me from continuing what i was doing. Never trained her for it, she does it on her own which i absolutely adore

I have POTs/EDS and am in the process of getting my service dog for both.

I have EDS and also have both issues with my blood pressure and also have POTs and OA diagnosis.

I’m getting diagnosed with pots, and training a service dog so these videos are so so helpful to me

@carikarratti7029

8 ай бұрын

I wonder if you could recommend a training program for my 2 year old german shepherd. I worry whenever I go out alone that I'm going to have one of my fainting spells. I'd feel more secure having my dog with me.

I'm super late, but cardio diagnosed me with both POTS and OH also. Lots of people say you cant have both, but Cards said that my blood pressure tanking is what causes me to go pale and go down.

Hello, I know I am very late to the party but I very much relate to a lot of this. I recently started a new medication to help with the tachycardia but when I went to the Doctor they noted during testing that my heart rate increase wasn't as bad now but I did have a bit of a drop in blood pressure and now this is something I am worried about and will try to continue monitoring at home etc. I was 27 when I self diagnosed and then was able to get tested and proven by a physician that I do have POTS and SVT so double whammy there. I have always noticed something being off with my heart rate but it was about a year ago, maybe a little longer when doctors finally started noticing it and running tests for me. I hope you are well and thank you so much for this! I am trying to get a service dog for my POTS and it seems like its going to be a long uphill battle but I am gearing up for it!

I have just been diagnosed with POTs, no where near as bad as you. I do get migranes but not a lot. He is such a smart dog! I don't get a drop in blood pressure.

I was diagnosed with POTS, AMPS (Amplified musculoskeletal pain syndrome), and CFS (Chronic fatigue syndrome) three years ago, and I have recently been diagnosed with MCAS (Mast cell activation syndrome) after becoming really ill. I've been to multiple cardiologists and different doctors and some have said I have POTS while others said I don't. I have passed out before because of my POTS and one of the things we noticed is that I pass out when I become anxious. I struggle with social anxiety so I often have to sit down or avoid social encounters but I'm still in school, so I'm trying to get a service dog. So far everything has been a journey and a struggle, especially finding the right doctor, which I have yet to do.

hey there nice to meet someone in same position as me although that part is sad, i am new to your page but have found lots of good info so thank you. I was diagnosed with pots and few other diagnosis that im still learning back in last december, i just got a service dog and am doing the training for the medical side of things myself so any advice is appreciated thank you.

I do have Nearocardio genic Syncope

Newly diagnosed with pots, drip in blood pressure and spike in heart rate! Your videos are so helpful thank you for everything you do !!!

@MommingwithMigraine

9 ай бұрын

Ooooh welcome to our.... not very fun club 😅 have you seen my TIPS FOR NEW POTS PATIENTS video yet??!! It's new!!!

@jamblesrasmussen3466

9 ай бұрын

@@MommingwithMigraine I have not seen that yet but I will definitely be checking it out tomorrow. My friend told me about your videos then just after watching that one today you have helped me immensely

Thank you for sharing a great clip. I am handler training my young dog to hopefully become an AD (we have our first jacket). She isn't being trained as a migraine alert dog as it is a very specific task and I have other primary AD task requirements. Though I do still get the rare migraine my new ajovy injection every 3 months has proven very effective at reducing frequency, length and intensity (it may have another name in different countries like the US or Canada). It is a huge relief. Sharing how Buddy helps and some of your personal challenges is appreciated.

@EpsilonAD

Жыл бұрын

I have no medical qualifications or recommendations. I am just mentioning that I am grateful my medical team provided me with an effective treatment for my migraines (which I was very surprised by) after trying many other options for over a decade.

This is super interesting. That’s great that some of the ways Buddy helps you are things he picked up on his own without you even training it. Do you know if your seizes related to your pots? And does your increase in heart rate when you stand ever make your blood pressure rise instead of drop?

I have POTS and yes my blood pressure can drop randomly when I have an episode. I haven't figured out if anything triggers it but I'm pretty sure it's not related to my blood sugar level, so maybe it's just POTS. I saw somewhere that 99% of people with POTS experience pre-syncope, so maybe it's our dysautonomia. I don't need a service dog at the moment and hopefully never will, but it's really interesting to hear how they have helped people. It also gives me a good idea of what to expect if I do need one in future.

I was diagnosed with POTS at the end of 2019 but have been dealing with it since 2016 after a surgery. Though, from my past medical history, it's believed I may have had underlining issues regarding it since I was small. I have naturally very low blood pressure and what my POTS attacks look like are, if I get up too fast or sit down too fast (sometimes even rolling over or turning around too quickly), my blood pressure plummets and I get incredibly dizzy or pass out. On top of that, especially after one of the dizzy spells but sometimes on its own, I'll be left feeling incredibly week. I've also had seizures in the past, thankfully it's been quite a while, though. We've found multiple things that I can take/eat that give me a boost of electrolytes because my body naturally doesn't hold onto them well, which causes me to get dehydrated and lower my blood pressure as well. I spent years with no one understanding what it was that was going on, including a week long visit in the hospital and walking away with zero answers so it's just such a relief to now know, and to know I'm not alone.

Yess I have pots and I have tachycardia and blood pressure instability

I have to call the cardiologist on Monday to get this exact thing check out. The blood pressure drop is the main bit for me but I do also get the increased heart rate. I’ll update you if that’s the diagnosis I walk away with and maybe we can help each other 😅

I was diagnosed with OH in adolescence and have been fainting since I was 9. In the last few years I’ve fainted a lot less and now I believe my body is responding to my blood pressure issues with POTS symptoms instead. Waiting on that official diagnosis but just measuring my own heart rate and blood pressure at home I meet the criteria. While you can’t be having an OH and POTS response simultaneously, it’s definitely possible to have both issues at different times. I’ve trained my dog to do DPT both on command and spontaneously when I’m on the floor. But would love to hear from you on how you taught the alert.

Hey yes I have pots. I have been diagnosed for about 4 years now. When I had my tilt table test done my blood pressure did drop. Along with the high heart rate. It took years for them to find out what was wrong. So yes it is possible for a pots patient to have low blood pressure. This is when I would pass out when it dropped so low apon standing. My body can not tolerate from sitting to standing or laying to to sitting to standing any of those. If you have any questions I will help you best way I can. I also have other underlying conditions that at this point are minor. Although they are currently having mixed feelings on me having lupus. I have had one clear diagnosis of this upon a biopsy done on my skin from a random rash. But the labs are saying this is not it. I am sorry to hear you go through this because it really is debilitating most days. When I feel well I am happy because I am so unsure when I'll feel well again.

@terri2111

Жыл бұрын

And I meant to say my blood pressure dropped during the tilt table test and my heart rate went higher. Not my blood pressure and heart rate both dropped. They only do that at night.

I’m Kat, I have POTS. I have low pressure drops and then the tachycardia. Then I blackout or I pass out, depending on how low the blood pressure goes. The tachycardia is my body’s response to get blood up to my brain so I won’t pass out, but often I still get blackouts and hang on to my service dog, or pass out. It happens about 10-30 seconds after I stand. My service dog is trained to lean against me “BRACE” is the command. And I grab her harness to steady myself. She has also taken to sitting on my feet when she knows I should wait to stand up, or if I’m on the floor with her she sometimes sits on my lap. This was self taught, I didn’t train her to do this yet.. She does DPT but for severe PTSD. I hadn’t thought of using that command for POTS. I’ll try it. She is learning many more helpful commands. She is a Black Lab/Great Pyrenees mix. Very muscular and also helps “PULL” me up the stairs with her harness and a cross-shoulder leash to make sure I don’t fall backward. She comes home this Saturday after a month of public access service dog training so that I can finally use her in public like my retired dog. I had to retire my other service dog who is about 10, because she started limping after going up the stairs and I didn’t want to hurt her. I’m glad you also have a Dog to depend on. They just know when we don’t feel right before we do…they are wonderful animals!

5:51 😂 I was so confused for a moment

I was recently diagnosed with PoTS. I do have drops in blood pressure usually 92/57 -94/64. It does happen when my h/r increases

i am getting diagnosed still but there really sure it’s POTS and so i’ve been watching videos to try to understand it i’m 14 and my heart rate goes up from 80-120 or 130 and my bloodpressure drops a lot

@autumnberg6700

3 жыл бұрын

Same

@myrtheprakajana160

3 жыл бұрын

I have a question I would appreciate if you answered but I get if you don’t Does your heart rate keep high or does it come down after a few minutes?

@autumnberg6700

3 жыл бұрын

@@myrtheprakajana160 mine is constantly high and comes down when I lay down

@ellasmith8086

3 жыл бұрын

@@myrtheprakajana160 my normal heart rate is anyway from 90-105 which is high when i have a “episode” or whatever you wanna call it my heart rate goes up and usually stays up anywhere for 5-15 minutes then slowly goes down. example it’s 91 bpm then i stand or am walking it goes to 140 i sit or lay down then in 5-10 minutes it goes to like 130-120 for a bit then back to my normal

My blood pressure drops are related to my tachycardia. Usually I only drop WHEN i have tachycardia, but theres times where it gets worse (i'm sick, didnt drink enough that day, etc.) and the blood pressure stays low, even with fluids and salt. at that point i just go into the ER for saline and im mostly good. Luckily i havent been sick recently, because im always hospitalized for fluids when i am. Last time i was sick i had BOTH types of the flu (thankfully with the vaccine) and i was hospitalized for a week. I'm currently training my service dog for my POTS, he's just too social ahah. He's always alerted me for it ever since we fostered him!

I just found your video, I gave both POTS & NCS.

I have POTS and have struggled a lot with it. I'd like to train a service dog to alert me for it because while I haven't fainted before I've gotten scarily close and fallen in unsafe areas before. I also have very bad social anxiety and would like to train the dog for that too. My familys dog probably won't be able to be trained for either. He's already 4, doesn't listen to directions well, and since there's 4 of us all with him he'd be constantly being trained by people besides me and taken off track. I hope to one day save up tho and get my own dog to train. And maybe that dog and my current dog would get along well and play. I feel tho that once I have the money and have the dog to train them my parents will take it more seriously and there won't be the issue of conflicting training bc it wouldn't be their dog to train Edit: ALSO totally forgot to mention. I get extreme highs and lows in blood pressure and high heart rate at the same time. They usually go hand in hand for me one happens and the other already is there or quickly follows.

I have POTS and my BP drops while my heart rate spikes to 150-190. My blood also pulls in the shower and I have learned I can't take a hot shower because I literally feel okay one minute then the next everything is getting blurry and I start seeing spots and I have to jump out the shower and rush to sit down. I swear I don't see how I haven't completely passed out but it scares the living shit out of me for about 20-30 minutes then gradually I start to feel better ( it takes an hour or two to fully recover ) I describe it as it felt like I ran 10 miles just by taking a shower at times. For me it's completely worse when it's the time of the month and I'm also anemic along with low iron so it's definitely not fun. I have learned to manage it pretty well on my own and during the time of the month for 5 days I don't do anything. Get leg compression on Amazon those help a lot. I also get really, really bad sinus headache. ( to the point I want to stab my own eyes out ) 👀

I’ve been diagnosed with Neurally Mediated Hypotension (sister to POTS). It’s the drop in blood pressure instead of heart rate. Just got put on Midodrine and I’m waiting to see if I have results with it. I have other medical issues (chronic migraines, idiopathic intracranial hypotension, seizures/syncope issues) so I feel ya

I have neurocardiogenic syncope and POTS. There have been studies that show that people can have both.

I have been diagnosed with dysautonomia but have not had a tilt test. My blood pressure spikes, drops, and then I am rewarded with a fun and random nose bleed.

Hi Jen! I recently found your channel and was so excited to find someone else who has POTS like me. I would love to talk with you more about your alert dog if that's possible. As far as your question about blood pressure related to POTS, personally, my BP goes through the floor and simultaneously, my heart rate skyrockets causing me to pass out and actually be "out" for hours at a time. Currently, I am passing out an average of 10-15 times a day... again, I would love to talk with you more if or when you are up for it!

@TheMazinoz

Жыл бұрын

Oh my God. Can't you get medication for it, more tests?

While I haven’t been diagnosed with POTS when I stand up my heart rate goes up and a get real dizzy I also get migraines quite often

I have pots, im 16, and im in the middle of training with my service dog. My dog is 1 year and 7 months old, and is an american pitbull and siberian husky mix, and his name is handsome. My pots is completely different than yours. My heart rate sits at 60 bpm. I get random drops in my heart rate which can send it lower than 20 bpm. It is really unsafe. Ive passed out in public so many times and everyone always tries to feel if my hearts beating because they think I died or something. It always freaks people out because they don’t check for long enough to actually feel my heart beat. I can’t run or participate in a lot of activities either just in case my heart rate goes over 100. It is really rare and has only happened maybe 10 times in my life. Each time it has happened ive had really bad seizures and it makes it really hard to breathe and is incredibly painful because im not used to it. Ive also had a heart attack before which the doctor says is not a direct correlation to pots but I could have pots due to a blockage in an artery. Which explains the heart attack. Anyway, your dog is super cute and its really cool learning about how other people have trained their dogs to respond.

I get drops in BP. I also get massively high BP. As to if they’re related to my tachycardia....sometimes. But I have POTS and a mast cell disease, so I think there are multiple reactions going on there. I certainly think it’s possible to have a drop in BP plus tachycardia as a POTS attack (and often the body will respond to the lower BP by increasing the tachycardia even more - thanks body 🙄) even if you mostly just get the high bpm without the BP drop. I also get the weird is-it-a-seizure thing, so it’s interesting to hear you talk about that.

i was just diagnosed with vasovagal syncope and am waiting for a POTS test. nobody believed me when i told them i was passing out and now i’m just trying to find a doctor that takes me seriously.

When I had the pots test my heart stopped for 9 seconds and I actually don't have the tachycardia i go straight into the other side and have bradycardia

I got diagnosed by a neurologist with out a tilt table he just had ne sit and stand in office while monitoring my heart rate and blood pressure and it was a mixture of both but never what it’s supposed to do I was told with pots you can experience a raise or drop in one but not the other the other could stay the same I was told it’s my brain not telling my heart what it’s supposed to do at a given moment or a change in position

My blood pressure drops also, when my pulse shoots up. At point even to 160 close to fainting level for me. Longer I have to stay up with it the worse by goes. I’ve had bp as low as 91/50. It has always dropped with it. And it drops also on its own but come to learn, it’s still part of it. If I put my feet up it will help it.

I liked your dance

I have pots too and my blood pressure does the same thing it drops and rises and I have been diagnosed with epilepsy but have had a dr tell me that I was misdiagnosed but then couldn’t see that dr to get the help I needed because I no longer was able to see pedestrians.

Did you owner train Buddy to respond to the heart rate alerts? I'm not seeing a video about that on your channel, would you ever consider making one?

3:00 I literally see the sweater red somehow when I look at it and then look at the face🤔😮

My doctor recently just referred me to a cardiologist for pots and honestly it explains everything but I feel like I’m not supposed to have it because I don’t faint but at the same time it’s only been a couple months that I’ve had the symptoms

I also have pots and seizures. My diagnosis is nonepileptic seizures but last week my nurologist said they are now calling them FND. I hope that helps you get answers. My best friend also has these and we both have gastroparesis. My pup is only 7 months and she has been alerting me since day one but is finally getting DPT.

My dishwasher sounds the same as your dryer and I thought my dishwasher was going off 😂 I had to pause the video to check

Does your blood pressure drop with your POTS? Let me know here!! Suggested next video: what does fainting FEEL like?! kzread.info/dash/bejne/hndnpa6HYJfTkcY.html

@Mia-vb7kf

4 жыл бұрын

There doesn’t seem to a lot of information anywhere about teaching a service dog to alert to blood pressure... only to blood sugar. Do you have more information on this? I am a self-trainer, but I am wondering if this is something you *need* to bring up with a trainer in order to teach, which isn’t a problem, but would like to know. I appreciate any help.

@casielee18

4 жыл бұрын

Mine goes up. Meds don’t help.

@poppet-rosegoodsher7573

4 жыл бұрын

Lauren: I dont have a much of a drop of bp but my hr goes up

@demusicrox

4 жыл бұрын

My systolic number usually drops, but not a significant amount. But my heart rate definitely goes up.

@In_service_to_the_moon

3 жыл бұрын

I don’t have a drop in blood pressure. But my heart rate drastically increases. My highest heart rate is 203 and I was just standing

My heart rate usually jumps in response to a drop in my blood pressure. And my blood pressure drops every time I stand up. I don’t always faint but I wish I could train my dog to alert me when I will. Do you have any resources that could show me how to train my dog to alert me for this? He’s already very well trained and can pick up on new commands easily. Very smart boy.

You have the same dryer/washer as us!! I paused the video quickly to go check the laundry only to realize it was in the video 😂😂

@MommingwithMigraine

3 жыл бұрын

Hahahhaaha sorry 🤣 hilarious though!

I have POTS and pass out due to super low BP. It exasperates reactive hypoglycemia and if my sugar is too low I will have a seizure. Have you heard of Albumin infusions? It’s been a miracle and really helping me. How did you get your service dog? I am living with a friend as it’s not safe for me to live alone. I want to get back my independence. Would love to hear back on the service animal.

I have OI which is related to my tachycardia

Our washing make that tune 😂

I do get drops in blood pressure when I get the heart rate spikes as I go into a syncope episode, and I am diagnosed with POTS

I'm currently trying to navigate a diagnosis of PNES (for those who don't know, psychogenic non-epileptic seizures). Haven't done a 24 hour video monitored EEG yet to confirm that, but I've had a normal EEG and a normal sleep deprived EEG. I've had an echocardiogram that came back normal too, but recently I've had so many different providers ask if I've been diagnosed with POTS. I've done a poor man's tilt table with my last doctor, but I also felt like she wasn't listening to me sabout what was going on.