I’m 65 and had been diagnosed with Acute lymphoblastic leukaemia in November 2021. In having my stem cells transplant next week. It’s not been easy but if you stay focused and positive you will get through it. Whatever they throw at me to get me through this I will meet it head on .I’m never going to let this beat me. I have a wonderful family and they are all behind me so we can all look to the future when I’m cured. One thing I will say to anyone who has been diagnosed with leukaemia never give up .

I am preparing for a bone marrow transplant. I survived severe aplastic anemia twice and I am tired of suffering. I can not complain but thank god and donors for coming forth to save my life after my cancer diagnosis. Thank you for sharing your inspirational stories.

So glad I found this video. I've got MDS (Myelodysplastic Syndromes), & a transplant is the only cure. I did chemo treatments for 5 days each month for nearly 4 years. The chemo helped control my symptoms- I was transfusion dependant when I started, & chemo allowed me over 2 years of being transfusion free, but it doesn't kill off the disease. The chemo became ineffective & was discontinued a little over a year ago, & I'm back to being transfusion dependant again. From the beginning, I've been terrified of having a transplant. Hearing all these people share their stories has really helped me look at things more positively. I'm going to talk to my oncologist about the possibility of transplant when I see him in a few days. Thanks to all the patients who participated in this video. It's been very helpful to hear the transplant story from the people who've actually experienced it, rather than doctors who can only give you the technological info, but not be able to tell you how it actually feels to have a transplant. I wish all fellow cancer patients/survivors the best & brightest future possible.

@phoekman8750

3 жыл бұрын

I hope you're doing well. I too was diagnosed with MDS a year ago. It's still early days for me but I am also thinking down the road of a transplant.

I had my transplant a yr ago. Everyone is different. I did get sick & had a lot of stomach problems. Drink water & keep yourself busy. It was hard for me, I have neuropathy & I'm always in pain 24/7. Just don't get bummed out, everything you love to do at home bring it with you like reading books, sewing, movies etc. I wasn't strong enough to move & get around due to neuropathy. Its very important that you get exercise & during transplant you may need like to snack on something strong because you get this bad taste, York Peppermint Patties may help, the taste is pretty strong, stuff like 3 patties in you mouth just let it melt don't eat it.✌❤☺

@rilaakhanniazi3566

5 жыл бұрын

great...hope u are fine.mayi know some details.bcz my brother is gonna go through this next month

Such wonderful people and experiences!! I'm still waiting for a donor so a transplant can occur. I felt most inline with Jaynes mindset but found everyone's experience extremely helpful. I'm discovering you can prepare as much as possible but only time will tell how well I will be able to cope with something I've never been through! I found this video series an absolute blessing so thank you and my heart goes out to all those who are suffering... we'll pull through it!!

Brilliant brilliant work pulling this together. Well done everyone. A wonderful story of human willpower and positivity.

its february 2019 now and im 11 and5 years ago went through what your about to go though good luck

@Kopie0830

4 жыл бұрын

how did it go bro? you ok?

@Marithza959

4 ай бұрын

How are uuu??

I just uploaded a video about my bone marrow transplant experience. I tried to add all of the detail I could

@MO20024

3 жыл бұрын

How you doing now girl hope you are ok

I'm 11 and it's 2018 and February of 2019 I'm going to a hospital to get a bone marrow transplant

@leedsthnhs

5 жыл бұрын

We hope you found this video helpful, good luck in your treatment journey.

@brookelynpoggensee9341

5 жыл бұрын

@@leedsthnhs thank you and it was helpful because I really dodmt know how it's going to feel or what it's going to be like

@safahaftab1484

5 жыл бұрын

I'm having a bone marrow transplant too but at the end of March

@melw9933

5 жыл бұрын

Mine is next week feb 2019

@safahaftab1484

5 жыл бұрын

I'm praying for you that it all goes well

I'm scheduled to have mine this June. I am slso on dialysis so having to have dialysis treatments while undergoing stem cell transplant is concerning. I currently take a velcade shot every two weeks. I have been doing this for a year. I have a rare blood cancer called Heavy Chain Deposition disease. It attacked my kidneys putting me in end stage kidney failure. I get sick from the velcade shot so Im very concerned about how sick the chemotherapy/stem cell transplant is going to make me feel.

Learning about the process of becoming a donor is a very educational one, I hope that I am able to give someone life myself Honestly, I wish that I became aware of this much younger The biggest misconception I had, that as a donor you are performing a dangerous and invasive surgery I never really understood the importance of my white blood cells until now Now I'm no expert on the topic, but from what I understand on the donor side it's a very simple matter of stimulating your immune system, and making a collection very similar to a plasma collection It's just amazing the medicine we have today, I don't know why more people aren't registered to give

*Does patient who will be receiving bone marrow must do fasting and get anesthesia? What anesthesia do they get* Please let me know. Thanks

How is ur brother?

Has anyone done it for cutaneous t cell lymphoma?

@rilaakhanniazi3566

5 жыл бұрын

my brother has t cell lymphoma.next month he'll go through bonemarrow transplant

Wonderful.

How can they use your own stem cells from your bone marrow if the cancer is in the bone marrow

@KigurumiAlice

2 жыл бұрын

Autogenic transplant isn't to cure the disease, but extends the survival time for a longer remission, as long as you don't have a high risk features with that particular cancer. You own stems cell will be filtered with few cancer cells as possible using apheresis.

im 15 and have my transplant for chronic myeloid leukaemia in july. Im scared.

@KQuinn672

5 жыл бұрын

Katie Watson I’m having it for aml...July 17im scared too😨

@KQuinn672

5 жыл бұрын

Actually Katie...i believe transplant itself is painless through it..it’s the side effects after we have to look for,

@katiewatson6063

5 жыл бұрын

Kelly Dube yes it's infection control and gvhd too look out for

@katiewatson6063

5 жыл бұрын

Kelly Dube I wish you allll the best , we will be fine.

@KQuinn672

5 жыл бұрын

@@katiewatson6063 we will dear girl! 💛

I am from the U.K. down south. And I want to be a donor. Can someone please point me in the right direction?

@rilaakhanniazi3566

5 жыл бұрын

join Be the match

@azeketuran9232

4 жыл бұрын

Why do you want to be a donor?

@stevecam1

4 жыл бұрын

@@azeketuran9232 I became a donor through my blood donation service, they may not know too much about it For me, its been quite educational, and I couldn't believe how safe and practical is, honestly more people should be donors

I’m having mine July of this year,😨

@rilaakhanniazi3566

5 жыл бұрын

how are you bro?????

@KQuinn672

5 жыл бұрын

@@rilaakhanniazi3566 stupid itchy skin...appetite is better but hope those r the worst symptoms ty for asking 😁

@rilaakhanniazi3566

5 жыл бұрын

@@KQuinn672 are you done with your bonemarrow transplant????

@rilaakhanniazi3566

5 жыл бұрын

@@KQuinn672 yes itchy is the main thing in T -cell lymphoma ,ALL.my 28years brother is facing the same

@rilaakhanniazi3566

5 жыл бұрын

@@KQuinn672 may i know your WBC and lymphocyte level????