I'm a paratoid cancer survivor as well. Was diagnosed on my birthday March 6th of 2020. Had my surgery in April of 2020. For my Bday this year I'm gonna tell my story. God bless

@mariomessiah8862

3 жыл бұрын

Hope all is well 💜

@ookipuki

2 жыл бұрын

Are you ok? I love you friend. You are brave

@carlstroter3805

2 жыл бұрын

I'm great thanks for asking.

@preminaidoo8229

Жыл бұрын

Did you have radiation My son had the tumour removed...however his facial nerve was cut and has impacted his face severely. He is now preparing for removal.of teeth and radiation

@Anita20PeAce

7 ай бұрын

Can you tell me please the symptoms? Thank you

My brother got diagnosed today. He is very scared. I am gutted for him. My ❤breaks

Just had a biopsy yesterday of a pair of lumps in my left parotid gland. I’m hopeful that the results are benign.

@KrysDlite

5 жыл бұрын

David Marciniak What ever came of the biopsy result? Would love to know and hope you’re doing well. 💜

@drekavacx5673

4 жыл бұрын

KrysDlite these comments with no followups kill me

@unitor699industries

4 жыл бұрын

@@drekavacx5673 guys are you oke?

@KitchenTime322

4 ай бұрын

Can biopsies only be done if the lump has a liquid or also if it is a hard bump

@MrDmarciniak

4 ай бұрын

@@KrysDlite the tumors were a pleomorphic adenoma, benign, had them removed surgically along with about half of my pareticd glands and all is well!

much success to him.

My oldest child had Acinic Cell Carcinoma, of the salivary gland, much like what this guy had it sounds like. She was diagnosed with stage III 3 years ago. Had radical surgery, with multiple lymph node removal, not to mention tissue and muscle removed from her left jaw/neck area. She then had 30 days of radiation treatment, which the doctors admitted would not decrease her chance of re-occurrence by even 1%. She opted for the radiation because she has 2 babies to raise, and wanted as much in her corner as she could get. Even after that, she has been given an 85% chance of re-occurrence within 5 years. We called all over the country trying to find a place that had done any trials/treatment of this cancer. We could not find any, we were informed that it is a fairly rare cancer, especially in a woman in her 30's.

@normadodd4821

6 жыл бұрын

L. M 7

@collinkennemore5788

6 жыл бұрын

Hi after reading ur story abut ur daughter having staged 3 & made me think abut my mom she's been dealing with this pain along from the ear, jaw line & in2 part of her neck for quite some time now & also has a hard lump & she couldn't get much help through a oral surgeon & wasn't treated right & they just blown her off without any concerns. she's now planning to see ENT abut this because she has this thickness drainage & some swelling noise & has some pain in the throat & fuild in the ears along with the other symptoms. idk if these are the same symptoms ur daughter has had but if you could help by giving some intell on this sgc i would be so thankful!

@sudeeptalapatra3982

6 ай бұрын

​@@collinkennemore5788 hi Collin, it would be great help for me if you provide some details regarding her diagnosis and if possible a brief note on your story....😊

I just wanted everyone to know that I had my parotid gland removed almost a year ago and while it was of course scary (first time I had ever had surgery), and recovery is still ongoing, it was worth getting done because it will not go away....I waited a year after finding it and it more than doubled in size in that time. Perhaps it would not have been as large a scar otherwise. Pluck up the courage and just get it done. The post-operative pain was not that bad (3-4 out of 10) and controllable with drugs.

@agf1700

5 жыл бұрын

@Mark Kesler Just diagnosed with a parotid tumour and scheduled to have the complete gland removed. Can you tell me did you have facial nerve paralysis for a time after the surgery? My specialist has told me to expect that for a time after surgery.

@markkesler6278

5 жыл бұрын

No I did not have any facial nerve damage although I still don’t have any feeling in my lower ear. The surgeons are quite aware that the facial nerve runs through the gland and will do everything possible to minimize injuring it. Best wishes...you are doing the right thing by getting it taken care of

@mochipeachie6902

2 жыл бұрын

Hi i hope you're doing well...i just got diagnosed with parotid tumor...I'm so scare of the thoughts of surgery... because of the facial nerves are included ,I'm contemplating with the decision of getting the surgery or not...i hope you're doing well..your comments really give me hopes and make me feel at ease..

@radityasuarditanjung7680

2 жыл бұрын

@@mochipeachie6902 how did you discovered that you have it?? i have a hard lump on my submandibular gland and im really scared right now

@mochipeachie6902

2 жыл бұрын

@@radityasuarditanjung7680 i went to the clinic,and tell the doctor that I have a hard lump under ear..they get through your symptoms first then the doctor refer me to an ENT doctor.. then the doctor schedule an appointment for me with ENT specialists...the first thing they did to me is taking a sample ,FNAC test (a fine needle inserted into the lump to take the inside of it...it's not that hurts don't worry..u should get yourself checked too the early the better

I am 60 years old male and had been diagnosed having “Low Grade Mucoepidermoid Carcinoma in my left Parotid Gland. The very first thing I did to find a surgeon who is expert in Parotid Gland Surgery and can safe my facial nerves if possible. Luckily I found one and surgery went very well. Hospitalised for only 2 days and recovery was made in 10 days. Tumour was removed completely but due to tight margins the surgeon advised for Radio Therapy to avoid reoccurrence. I have gone through 33 sessions (5 sessions per week) of Radio Therapy (RT). This period of 2 months was Most difficult time of my life while having a severe after affects like reduction of Saliva, loss of taste buds, swelling of throat , gums and tongue, loss beard’s hair and head’s hairs, swelling of ear and inflammation inside the ear. Part of the face and neck skin become like first degree burnt. The worst part was that slowly I had to switch to liquid diet which resulted weight loss. I am recovering now from the after affects and my taste buds have slightly improved even after 4 weeks from RT. I hope it may take further 2 more weeks for normal recovery.

@unitor699industries

4 жыл бұрын

are you oke now?

@bulandsiddiqi5569

4 жыл бұрын

@@unitor699industries Yes. I am well and recovered but still have some permanent issues.

@unitor699industries

4 жыл бұрын

​@@bulandsiddiqi5569 i am shaking i am really scared i have not slept for 2 days because the side of my neck is burns when i touch it and it is hard when you touch it

@bulandsiddiqi5569

4 жыл бұрын

@@unitor699industries I believe your skin is burning after radiation? Is your radiation completed and what kind of cream you are applying?

@unitor699industries

4 жыл бұрын

Buland Siddiqi no did not go to doctor at all i am scared to go i have a little swollen below ear but it doesn’t hurt, can it be bacterial infection?

My 15 year old daughter had this same diagnosis last year. Pleased to say surgery removed the entire cancer.

@subudas937

5 жыл бұрын

It happens in teenager??

@backcountrytundra

3 жыл бұрын

Natalie , great news. How long was it between detection and surgery ? Thank you. My cat scan revealed a mass on my left parotid. Heading for biopsy next week.

@natalielear4902

3 жыл бұрын

@@backcountrytundra once they determined it was cancer and not benign, it was literally about 10 days til surgery to remove it. Had regular checks every six months since and no signs of it coming back.

@ty8473

3 жыл бұрын

@@natalielear4902 did ur daughter have tinnitus in the affected ear near the gland? i am worried i have this problem :( im only 21 and nervous about it i cant figure out what else would be causing the tinnitus, it gets worse when flexing jaw area only ringing in the one ear with some popping noises when moving my head like clicking in the ear almost...

@natalielear4902

3 жыл бұрын

@@ty8473 not at all, she was completely symptom free. The cancer was only discovered because she had a CT scan for sinusitis. At first they thought it was a pleomorphic adenoma, but the biopsy came back as an acinic cell carcinoma. 99.99% of these come back benign, she was just unlucky.

My surgery was done on 25 November 2020. I'm on recovery process.. THERE is numbness on surgery side....But It's improving

I had my first CT and have the lump for 4 months, nervous about the upcoming appointment with my ENT day after tomorrow. I also have swollen cheek, temple and head pain .. worried if it is close to facial nerves 😞

@user-fq2rj1kg8r

2 жыл бұрын

How are u now?? I hope its not tumor :(

Courage a ce Monsieur Bisous

Bonne vidéo intéressante merci Docteur Salutations distinguées Respects🎉❤❤

How is he doing now

Osborne Head and Neck Institute in California. Look them up!

I had an ultrasound two days ago and was suggested by my ENT to do a needle aspiration after the ultrasound was read. Then was suggested today to do a contrast MRI..which I am hesitant about due to the dye danger. I'm feeling the needle aspiration could tell if it's cancer or not. The MRI seems much more invasive with the contrast. Anyone here have a MRI with contrast after finding the lump? Mine is 1cm right in front of my left ear lobe.

@MyNomDePlume

9 ай бұрын

What was the outcome Patty?

Oh man I know who this guy is, firefighter in a town next to mine. 😳👋

I don't want to lose my nerves💔 i have a lump in same spot and i didn't get checked yet.

@compassion333

3 жыл бұрын

Did you get it checked?

@ookipuki

2 жыл бұрын

@@compassion333 i got it x-rayed almost right away... they said it was a "bony mass" ... it's not bone. .. year later I'm having strange symptoms and its hurting me. I'm getting it checked again on the 22nd September...

@user-fq2rj1kg8r

2 жыл бұрын

@@ookipuki how are you now😞

@rd0303.

2 ай бұрын

@@ookipukihow are you now

Wow i never realized how many other people have had or have the same tumor as I did. This guy is in Conn. And i'm in Mass. Iif you ever want to chat let me know. Respond here and i will be notified. I'm south of Worcester.

@Liveforhealthq

Жыл бұрын

Hi am In Worcester mass too I have the. Same mass on left no cancer but I have recommendations for surgery, where did you get your removed and if you could recommend Dr. thnx

@lisasheppard5317

Жыл бұрын

@@Liveforhealthq Dr. Kim did my surgery. He is at UMass. He is an ent doctor (ears,nose, and throut). He is the best. No complaints from me. Good luck!!

guys i have had a lump aswell and it grew a bit since last year, i did the scans the doctor said it is a 'benign lymphoepithelial cyst of parotid gland'. Multiple doctors said it was not cancer, but still said need operation. But they want to wait a couple months to see the evolution in size. What do you guys think about it? i'm freaking out about it since i discovered the diagnosis.

@pattimercer9357

2 жыл бұрын

Call Osborne Head and Neck Institute in California!!! The best of the best!!

@user-fq2rj1kg8r

2 жыл бұрын

How are u now? I have the same issue and doctor made ultrasound and blood tests and said that its not cancer ! But its getting bigger ! Im very worried

@NKofman

2 жыл бұрын

@@user-fq2rj1kg8r hello, a doctor did a comparison 6 month after and said that it didn't grow in size, and need to do a new scan one year later. he said as long as it stays the same size its not dangerous

@roxannepearls901

Жыл бұрын

Have it out now! I waited a year for every excuse I could come up with. All I accomplished was to need an extra two hours under the knife to get it out, now have a very noticeable divot on one side of my face, and an ear that is totally numb up to the very top. Lab work indicated that it was not going to be long before it went malignant. Do not wait until it gets bigger because they always do.

@NKofman

Жыл бұрын

@@roxannepearls901 after one year they re did the scan and said it didn't move at all, still not cancer and that is has nothing to do with cancer... I have to check every year to see if it's growing. Did your doctor say that if you had it removed before it would of not turned malignant?

thank god......nothing happened.....

Its probably my fault for using glues and sprays known to cause cancer. I really hope it isn't cancer 💔 ..... but i love this video. 💖

@user-fq2rj1kg8r

2 жыл бұрын

I hope it isnt cancer 🥺.. its not your fault

I have a lump on my parotid gland my lymph nodes are swollen in my neck as well. I'm going to go see a a dr this weekend. I'm nervous...

@sscott504

5 жыл бұрын

Believe in the power of prayer...I have the same issue going on...MRI scheduled the day after Christmas...but by HIS stripes we are healed!

@bulandsiddiqi5569

5 жыл бұрын

Mr Latnemis Don’t be nervous and first get it investigated without wasting time. Earlier detection may reduce complication.

@samwd5039

5 жыл бұрын

@@sscott504 What sort of MRI you were suggested? in my case they have suggested me for Brain MRI, is that the right MRI for parotid?

@LaZeREclipZ

5 жыл бұрын

Mr Latnemis got my tumor taken out about 5 months ago. If it does happen to be ACC the odds of it spreading are extremely low. It will generally all be taken out with surgery and your survival rate is through the roof. Don’t worry if it is something like ACC.

@samwd5039

5 жыл бұрын

@@LaZeREclipZ What sort of MRI or CT scan you were suggested?

I'm 20years old girl .. already got diagnosed with parotid tumor..the diagnosis said it most likely to be benign but they'll can't get ahead of anything because they will know the results after removing the tumor,I'm gonna have the surgery in August...im scared because the tumor is very near to my facial nerves....i don't know if I should do the surgery or not...

@Its_about_that_time

Жыл бұрын

how did it go. I just had my tumor removed 2 weeks ago and the right side of my face is still numb and so is my ear. still need to hear back if it's cancerous or not. we shall see

@Shubham_68276

4 ай бұрын

how r u doing now buddy@@Its_about_that_time

@Shubham_68276

4 ай бұрын

how r u doing ? was ur tumor cancerous?

@mochipeachie6902

4 ай бұрын

​@@Its_about_that_time thank god it was benign im recovering well from the surgery except i got frey syndrome which is completely fine because i would rather having freys syndrome rather than having to fight cancer

@Shubham_68276

3 ай бұрын

@@mochipeachie6902 whats ur initial symptoms?

Im worried cause i dont just have one lump in 1 paritod gland but both

@unitor699industries

4 жыл бұрын

are you oke?

@genu1nemonsta640

4 жыл бұрын

@@unitor699industries I am ok he say they didn't any bigger so he don't think it's cancerous but later this year will do another CT with dye so they can see if any chsnges

@unitor699industries

4 жыл бұрын

@@genu1nemonsta640 omg i am very scared i have a little swollen on my right below ear but with no pain i have not slept this week and i am shaking

@genu1nemonsta640

4 жыл бұрын

@@unitor699industries how long it was there ?

@unitor699industries

4 жыл бұрын

@@genu1nemonsta640 more then a year but it stay same size i don't feel sick can it be infection from bacteria??

"As soon as I felt it, i had no doubt in my mind that he had cancer." ????????? 9.5 times outta 10 its gonna be a benign thing... Shes a medical professional?

I have adenoid cystic carcinoma

@mamacass9557

2 ай бұрын

I hope you're okay!

@Rockstar69000

2 ай бұрын

I fight every day. I am a musician with guitar videos on my KZread channel. Thank you.

@Rockstar69000

2 ай бұрын

@@mamacass9557 thanks I have videos of me on my KZread channel. I am fighting now.

I have a lump in that exact spot...now I'm scared...

@MrMacadam777

4 жыл бұрын

Me too

@dusahneastman6218

4 жыл бұрын

Same here

@dusahneastman6218

4 жыл бұрын

And I'm only 21

@leviosa523

4 жыл бұрын

@@dusahneastman6218 me too...but I think mine is getting smaller, so I think that's a good sign that it might just be a swollen gland...I hope

@dusahneastman6218

4 жыл бұрын

You should make sure with a doctor I have to get an ultrasound on my cheek soon and I'm hoping it's not bad I have a son to raise and the last thing I want is to hear I have a tumor