Wonderful in every way! Thank you both so very much! I agree that our physicians’ hands are tied, and they are being led around by the pharmaceutical companies/governments. I am starting a B1 regimen tomorrow for a whole group of symptoms and am passing this information along to friends and family. God bless you both!

@B1Therapy

Жыл бұрын

Thanks for your comment. Just to let you know that we launched our b1parkinsons.org website on B1 therapy last night.

@jerimow8400

Жыл бұрын

@@B1Therapy Thank you so much! I will check it out!

Terrific! I suggest using the word Parkinson's in the title of the videos to help people find the video easily.

@cathrynp3491

Жыл бұрын

I agree - everyone with PK should know about this.

@B1Therapy

Жыл бұрын

Thanks for your positive comment. We launched our b1parkinsons.org website on B1 therapy last night.

@DebbieUnderfinger

11 ай бұрын

Yes, definitely use the word Parkinson. I didn't know this channel existed.

@ceciliastahllundgren4486

10 ай бұрын

​@@B1Therapy3:37

I use benfotiamine and L-tyrosine with my morning coffee made with cream so the fat helps absorption. So many health issues have improved since. B1 therapy will increase your need for other B group vitamins so I use a good high potency B complex supp. Tyrosine is a major component of dopamine and thyroxin. You need vit B6 for all transamination processes.

@huviba5826

Жыл бұрын

Thanks

@franhar8292

9 ай бұрын

But I have been reading that B6 can be toxic by taking too much.

@B1Therapy

9 ай бұрын

EFSA (The European Food Safety Authority) has just last May lowered the Tolerable Upper Intake Limit from 25 to 12 mg/day. This is the max level below which no adverse effects have been reported or which is unlikely to pose risks to health with chronic use for almost all individuals in the population. Pyridoxine (B6) is a cofactor ("helper") of the peripheral conversion (decarboxylation) of levodopa into dopamine, making in this way less levodopa available to cross the Blood-Brain Barrier (BBB). People taking just levodopa (e.g. Mucuna pruriens) should limit their daily intake of B6 to less than 5 mg. This does not apply to those who take levodopa with carbidopa or benserazide, which inhibit the decarboxylation (peripheral conversion) of levodopa into dopamine.

If she could tell us which Thiamine ( B 1 ) she is taking and the exact dosage, that would be of great help. Benfotiomine is a fat soluable Vit B 1 which gets absorbed quicker.

@Daissweetest

Жыл бұрын

B1 hcl

@franhar8292

9 ай бұрын

​@Daissweetest please share the dosage and brand. Thank you.

Haven’t finished watching so forgive me if this question has been answered. I have Peripheral Neuropathy and am wanting to try B1 but I understand that Benfotiamine is the version which works to resolve neurological issues….is that the one you were on?

@B1Therapy

Жыл бұрын

The studies conducted so far with B1 therapy in Parkinson's have used thiamine HCL.

@CentralVirginian1

Жыл бұрын

I have found that Benfotiamine helps me with neuropathy. However, I am taking several forms of Thiamine because the combination seems to help with multiple health issues.

Why should I check with a doctor if I don't trust todays doctors.

@B1Therapy

Жыл бұрын

Understand your point, as using vitamins at pharmacological doses - like medicines - is a new concept. Medical advice can only be given by health professionals, more so in the presence of other medical conditions and intake of other supplements or medicines.

Thank you. I have Dr Bryan's book and looking forward to starting the B1 therapy. I intend to do the B1 Thiamine HCL. I really hope it helps me and will be patient. I am concerned my parkinson came from a drug I took for a year and a half called Reglan. So I sure hope that the therapy will still work for me. I also have neuropathy in my feet and going up my legs, so that weighs on me too. I would appreciate any info you might be aware of with the B1 therapy and drug induced parkinsons and neuropathy. Thank you very much.

@B1Therapy

5 ай бұрын

You may find additional information on our website b1parkinsons.org and may wish to join facebook.com/groups/parkinsonsb1therapy for more detailed information on b1 in Parkinson's. Neuropathy in Parkinson's is rather a common finding and is often due to vitamin b12 deficiency (see also my presentation on b12 screening in b1 therapy on this youtube channel). Your health care provider has certainly checked about that, as the condition may be reversible if treated promptly. This is provided for information only. Consult with your physician.

vitamin-1 high dose means pl.tell me how much dose should I take

@B1Therapy

11 ай бұрын

The answer is very person-specific. You may have a look at our website www.parkinsons.org

where Can I get the book she wrote

@B1Therapy

Жыл бұрын

Links to buy the book (all editions) English edition - www.hyperurl.co/B1Therapy (This should take you to your region's Amazon) French edition - Parkinson et la thérapie B1 -www.amazon.fr/Parkinson-th%C3.../dp/B09ZZXTBCB German edition - Parkinsons und die B1 Therapie - www.amazon.de/-/en/Daphne-Bryan-PhD/dp/B0BMZBGFFQ Dutch edition - Parkinson en de B1 therapie - www.amazon.nl/dp/B0B92RGWTX... Spanish edition - Parkinson y la terapia con B1 - www.amazon.es/.../B0BFHY5FFD/ref=tmm_pap_swatch_0... Italian edition - Parkinson e la terapia con vitamina B1 -www.amazon.it/dp/B0BFP6DT66/ref=sr_1_1?__mk_it_IT=ÅMÅŽÕÑ&crid=1EH0CN89LI3WI&keywords=parkinson+e+la+terapia+con&qid=1663506197&sprefix=parkinson+e+la+terapia+con%2Caps%2C64&sr=

@PJKallhoney

Жыл бұрын

@@B1Therapy I found it easily on Amazon.

Can I take mononitrate is it just as effective

@B1Therapy

5 ай бұрын

The form of thiamine which has been used orally and in an open study with a relatively long follow-up on b1 in Parkinson's disease is HCL.

I am curious if anyone has a deep brain stimulation(DBS), as does a family member, and has recently starting taking B1...if anyone with DBS are getting similar good results taking B1.

@B1Therapy

5 ай бұрын

You may find information on facebook.com/groups/parkinsonsb1therapy

So how many MG to start¿????!?

@B1Therapy

5 ай бұрын

If you are interested in this type of information, you may wish to join the Facebook group at facebook.com/groups/parkinsonsb1therapy

May I ask how many mg of vitamin B1 she took to become better?

@B1Therapy

Жыл бұрын

B1 therapy is very individualized. The right dose is currently looked for through a trial and error approach. We launched our b1parkinsons.org website on B1 therapy last night.

@cheryllewis7548

5 ай бұрын

How long do you have to take b1

@cheryllewis7548

5 ай бұрын

It's almost 1month I am taking b1 my appointment is march

@cheryllewis7548

5 ай бұрын

Thank you

Neurologist don't want to loose their customers by prescribing vitamin. Dose of vitamin B1, thiamine depends on what you eat and drink, your profession and also your nature. I am civil engineer, require to use memory, tact etc brain releted function. So, I need more B1. Again when was drinking tea thrice a day with refine sugar, B1 requirement increased tremodously. Earlier I was fabricator where, Zinc smoke generated due to welding, which deplete B1. I eat polished rice, means no B1 in it.

Very few Indian Dr prescribe vitamin tablets। So people like me choose self medication, but limit it to ordinary illness and vitamin therapy only, that too food changes as far as possible।

@B1Therapy

5 ай бұрын

The use of b1 (thiamine) in Parkinson's is still rather unknown to many neurologists, as it has been tested and reported only in a few case reports and an open label study, despite pre-clinical and clinical studies have been conducted in thiamine deficiency and other conditions, providing evidence for its effectiveness in those conditions. Nutrition is also an area underrepresented in medical studies in many school curricula, although the number of trials testing B vitamins in Parkinson's with encouraging results has been increasing in recent years. It is utilized especially in Naturopathic Medicine. There is currently a lack of a randomized, double-blinded, placebo control trial (RCT), which is considered the gold standard in research in medicine. The study has been planned but is waiting for fund-raising to reach the needed amount to be conducted.

@mangalchandsingalkar1210

5 ай бұрын

I have a book on vitamin minerals and amino acids. In which in short, but every information about vitamin till 2000 is there. It is very true. I tested it many times. I have skin disease from last 2.5 years, which is now almost cure. I took ayurvedic medicine, Unani medicine and there is certain relief, but not 100%. Due to unavailability of brown rice, I choose to take thiamine tablet. Speed of cure is improved. Reason I found is, if there is thiamine defeciency, then body produces thiamine from sulphur and or silicon. Therefore, there is likely defeciency of these two, which result in skin diseases. It is mentioned in that book.

It is so sad...that doctors have no means to help naturally and via all paths that affrct us metabolically.