Second video of today, had to catch up since getting my computer back from the shop! Thanks for being so patient while y'all waited. (:

@superfunlantztime

7 жыл бұрын

Now we're going to feel spoiled!

Harlow's look when you asked her to get the blanket. She was like really mom?!? In front of my friend??

@troublemakersofthefuture4500

7 жыл бұрын

Elizabeth H omg I know! It was so funny!😅😂💗

i love how your english accent comes out when you say vitamins😁 and as always i love seeing yours and Paul and Janiece's friendship, we have such similar senses of humor when it comes to being disabled😂💕

love how she says vitamins!

I want to have a really close female friend. Every time things get tough, my female "best friends" leave. You two are so lucky to have your friendship that is strong though everything 💗

your looking well since the feeding tube placement

Your friend Janiece is so sassy, she's awesome.

@TheRawLife1

7 жыл бұрын

Robin Clinansmith I'm to sassy for my own good😂💚

You and Janiece remind me of my friends and I when we tease each other with unflattering photos on social media. We tell each other to eff off but it's all in good fun and we love each other. I would hope that if I were unable to take care of myself, I would have friends who would be there for me despite their own schedules and struggles! Paul and Janiece obviously care so much for these three and that's what matters! The love and support you all offer each other is amazing, not to mention how hilarious you all are!!

I have the exact same dresser! I love that the top little drawers are perfect for meds. I need you to come over and help me organize my supplies! It looks so good! PS I love Janiece's PJs!

@TheRawLife1

7 жыл бұрын

Christina Doherty Bob's burgers 🍔🙌!! Huge fan

2 videos in one day wow love you

@wildfloweraquatics7102

7 жыл бұрын

13 likes YAS YAS YAS

you look like a whole new person, just brighter 😊

Freezing cold hands are my life!! I could not stop laughing at the poison oreos!😂

I love when Judd is in the vlogs but I miss when he is not in the vlogs but they are still great vlogs when he is not there

Wow you guys have been busy. Such good friends!

You and Janiece are magical together... The perfect combination of personalities!

Haven't watched since the day before your surgery, and wow! You look and sound much better than before. You're smiling a lot! I'm so happy for you and your new fiancé.

yay two vlogs. I was missing you. glad you are able to do more. hope your pain subsides.

I love janice's Bob's Burgers outfit!

These vlogs were a nice ending to my amazing day, love your friends, look forward to seeing them in future vlogs

I haven't even watched this second vlog yet, but I was so happy to see it posted right after I finished the first. Your vlogs have been a little ray of happiness in an otherwise pretty bad day. So I just wanted to say thanks for posting. ❤️

Love you jaquie so glad we got to see your dress shopping and i cant wait for the wedding vlog!!! Im not chronically ill but i enjoy your vlogs because it feels like im checking in on a friend. Hope youre doing well

I feel so spoilt with 2 videos! Wishing you so much luck for your wedding so much love for you both xxxx

In raw batter, it's actually not the eggs that are the danger, it's the flour. A friend of mine makes edible cookie dough, and all she does is heat treat the flour in the microwave in short bursts so it doesn't scorch.

I love the fact that you always seem to film Janiece eating 😂 And how she doesn't mind too much really ;) It's great to see all your interactions, and I'm so glad that things are getting done. Can't wait to see the upcoming videos! :)

Also wanted to let you know, I get my oral vitamins and supplements from Swanson Vitamins online. Their CoQ10 is the cheapest I've found and they have many others that are very cost friendly 😉 might be worth comparing to what you are spending now, I've found it well worth it! Sooo excited for your big day tomorrow. I know you're going to look absolutely stunning!

Hi! I'm also chronically ill and I love watching your daily videos! I relate so much! ❤

You are a great vlogger. Look forward to them every day! Have fun at your wedding.

I read the spoon theory you mentioned. I think it's really good to understand people with chronic illnesses like you. I think you are good in spoon management. :)

"This better taste good or else I'm gonna fucking throw a temper tantrum" -me every day of life hahaha. I love Janice!

So excited to see you eating some meals in addition to your nutrition, you look great! Can't wait to see the wedding vlog!! xo

Judd's faces crack me up

I feel spoiled becouse you uploaded twice also I love your videos makes n feel better when I'm having a bad time with my asthma

Judd needs a set of t-shirts with his various faces on them.

Best wishes and big congratulations to the bride and groom!! I hope you have a wonderful wedding today and enjoy the dinner with all your family!!!

I think you did a great job organizing all your medical supplies

@ChronicallyJaquie

7 жыл бұрын

Thank you so much! Haha I think it is a little bit of an art to organize all this stuff!

I have the infinity pump too and you can turn the light so it only turns on for a few seconds after you press a button then shuts off

I love your relationship with Janice (I hope I spelled her name right). Youre lucky to have such wonderful friends!

You are looking amazing with the feeding tube 😻♥️ love from Scotland xx

I was making that face too. 😂😂 Then Judd's reactions made me laugh.

Yoiu seem so much better! I love how the feeding tube is helping you getting back to your old self. :)

2 videos = a happy day ^^

Jaquie, you made so many jokes in this vlog! You made me laugh.

I have to cover my heart monitor with a tee shirt at night too

Also completely random BUT I found out I'm no good with phenergan either (not an allergy but it causes PVCs for me) and albeit it sucks that an option for nausea management is no longer available knowing I'm not the only person who has issues with it made it so much easier! My doc (I'm in the military so nothing gets approved through insurance) was more than happy to give me more zofran after I tried the phenergan. Go zofran!

It's official, I'm addicted.

Hi!! I was told by my creative living teacher that the creme in oreos is made out of hydrogenated oil and powdered sugar! :)

You two make a good pear. God bless both of you.

Lol you ended up calling your feeds "nutrition" 😂. Anyway I am soo happy you are getting better!!

can't wait for wedding g day vlog.. Janice don't change , funny how Jacquie always gets u when yr eating. I didn't​ realise you are English where r u from Jacquie? can already see u have more colour in your cheeks and bitmore spare energy after the small amount of time on feeds. x

Does it matter if you use the lactated ringers vs sodium chloride for the banana bags? Or do either work? Glad to see you are looking sooooo much better and having fun with Paul and Janiece!!

@ChronicallyJaquie

7 жыл бұрын

Nope, it does not matter either way!

It's so great to see Janiece and Paul in your vlogs again and love how you all interact, Janiece is very funny when you catch her eating, do you do it to her on purpose? Dawn and Boris xxx

@ChronicallyJaquie

7 жыл бұрын

No lol

@MarisolSLM

7 жыл бұрын

Assistance Dog Boris she is always eating hahaha. Even in the videos where Jaquie stayed at their place a couple months ago, Janiece was ALWAYS in the kitchen 😂😂😂

@TwoCrazyCockers

7 жыл бұрын

Marisol Hernandez Yes I saw those too, such wonderful friends

I have ferret hammocks in the exact puzzle pattern fleece, Denise's blanket is made of.. Imagine having something in common with German ferrets :D Much love from us

The oreo cream is just sweetened/flavored vegetable shortening :D

I'm obsessed with Janice's (sp?) Bobs Burgers outfit! Any idea where she got it?

Jaguie, I would like to know where you got the backpack you carry all the time. By the way, I am new but I love your videos. Also, Harlow is adorable.

That stir fry does sound good! Did you forget the link to the recipe or am I just not seeing it? It's great to see you with more energy again now that your body is getting some calories. I'm sure you'll be able to get around even better once you heal from the surgery.

@ChronicallyJaquie

7 жыл бұрын

I totally forgot it, but I just added it (:

@gidgetgetscrafty

7 жыл бұрын

Chronically Jaquie Thanks!!!

10:00 in japan and korea everybody eats raw eggs like it's no-ones business hahaha. The eggs are super clean there but not sure about the US though lol.

Look at you go :) doing great girl!

The filling in Oreos is essentially lard 😂

@ChronicallyJaquie

7 жыл бұрын

Lol I was afraid of that!

@vividdawn913

7 жыл бұрын

Maj-Lis Tuccolo If it's actual lard, then it's not vegan ;)

@TassieM12

7 жыл бұрын

Julia Despain it's pretty much vegetable shortening and icing sugar! Maybe some chemicals too for preservatives 😜lol

@vividdawn913

7 жыл бұрын

Kelsey McGuire Then yes, that would be vegan. Lard is animal fat ;)

What camera do you use to vlog? I'm looking for a new camera.

love your vlogs!.....you are looking great :)

I live so close to you guys I live in Bradenton

keeping up with the Jackie family

Hey! Was looking to see if my Walmart had the Oreos cereal but they don't. They do have Oreo churros!!! Let me know if yours doesn't and I'll send ya some!

you should do a draw my life video! I feel like I don't know anything about your chronic illness story up until a few years ago hehe

@ChronicallyJaquie

7 жыл бұрын

Those seem a little complicated for me lol. Maybe one day when my life is not so crazy.

@ninisrose

7 жыл бұрын

that's definitely fair!!

I made that exact recipe last week! It was good, but i over cooked the chicken, :-/

Eeekkkkk good luck on your big day!!!! 👰🏻💍🤵🏼

Jaquie, every day I wake up with extreme nausea and if I don't take meds (here I had to stop typing because I almost had to puke, it's 7.10 AM here), so if I don't take my meds I get even MORE nauseous... Do you have any tips and/or tricks for this? I have already discussed this with my doctor but he's an A-hole so he doesn't take me seriously and thinks I'm fine... (I'm looking to get a new doctor). So yeah... My nausea just takes a lot out of me, and I don't really have that many spoons a day so this is really unfortunate. But I have your vlogs, which keep me going❤❤

I have same feeding pump you can turn off the light on the pump :)

@ChronicallyJaquie

7 жыл бұрын

I did not know that! I will have to figure out how, I have been draping a shirt over it at night.

@vividdawn913

7 жыл бұрын

Chronically Jaquie Google the Infinity Pump manual... it's a PDF. On page 19 it explains it, and 20 tells you how to change the settings :)

Are you still able to have baths (more referring to your feeding tube since I know your port needs to be covered)

@ChronicallyJaquie

7 жыл бұрын

I can't have baths, they overheat me due to POTS

Will you have to have your feeding tube go for 24 hours a day for a few years or whatever? Or is it just until your body is where it is supposed to be calorie and health wise?

@ChronicallyJaquie

7 жыл бұрын

As of right now it is permanent.

Actually you can eat raw eggs there are a lot of recipes with raw eggs, you can always wash your eggs first as the majority of the site of salmonella is on it rather than in it. Check with your nutritionist for what you can be exposed to for your health needs. Here is a healthier version of oreo Jan. can make if she is up to it, you can substitute your sugars and dairy products as needed to make it the best cookie version for you all without the poison, every calorie counts 0;) Lots of prayers hope you had the best wedding day today, may God bless you both and don't forget to contact your pastor, remember your Church family loves you too and this is a great way to celebrate. Blessings!

Do Janice and Orion have a youtube channel?

OK weird question, but is that an Autism puzzle piece blanket at 6:07?

I'm contemplating getting a vogmask, but they look really uncomfortable, are they comfy for you? I have a weak immune system, and there are a ton of er visits, and other doctor's appointments that keep happening, and with all of my other medical issues, I really can't afford to be sick.

@MissaLVT

7 жыл бұрын

shayparty, not sure about the comfort factor but according to their website they do NOT protect against germs only against allergens.

@shaymacgregor8775

7 жыл бұрын

MissaLVT In Jaquie's bio it says she uses it to help filter both. But I also could use the filter for allergens as well.

@MissaLVT

7 жыл бұрын

shayparty I understand that but according to the Vog Mask website it says it does NOT filter germs. I'm going to go by what the manufacturer says it can and can't do.

@lucy714

7 жыл бұрын

MissaLVT: Can I ask where you saw this on the website? Not saying you're wrong or anything! Just considering getting a vogmask and want to check on this, but I couldn't find this on their website.

@MissaLVT

7 жыл бұрын

Lucy Schagen, of course ☺ Click on "about" and look under "functional description". There you will find a place that says "Certain limitations apply to the use of the Vogmask product". Go to the 3rd dot down and it says "Does not eliminate the risk of illness, disease or infection.". The 5th dot down says "This product does not guarantee protection from illness or any harmful substance.". Under FAQ it says "Vogmask is NOT classified as Masks to prevent disease.". It also doesn't filter exhalation of wearer. I even contacted the company to double check. The website address is www.vogmask.com And their contact email is contact@vogmask.com

love you

3:50 Is Janiece saying she's fat? She doesn't look fat to me. 8:28 I heard about it from a friend in Virtual Ability in Second Life.

@jroostah

6 жыл бұрын

Vulcan Viper I think she was saying it as a joke cuz jaquie catches her eating a lot on the vlog.

Aawww I'm formally trained as a chef too.

the eggs are most likely okay if they came from a supermarket

What does your friend have in terms of illness?

@allfortheebchildren6561

7 жыл бұрын

Megan Smithers I know she has narcolepsy but I don't know if she has anything else.

@ChronicallyJaquie

7 жыл бұрын

You can follow her at @Outrageously_Helpful_Orion, she gives as much info as she wants to there (:

oh also since tramadol is an opioid it causes constipation.

Fat shaming!! 😂😂😂 im gonna use that

happy wedding day (I'm not sure if that is what you are supposed to say)

I was thinking AHH how can she beat with stuff going inside of her, then I remembered I do that sense i have type 1 diabetes. 😶

raw flour is more dangerous than raw eggs 😉

I didn't know Janice used to be healthy, how, why?

Both you girls are obviously great friends. That's wonderful! We're all looking forward to the wedding. Just a side note from GMA (Grandma-fan). Your friend has a great sense of humor and her other half seems to be a great guy. However; I know we all believe in our freedom of speech and sign language. But, I was wondering (please don't shoot the messenger). Just wondering if she might consider not using her sign language and her colorful way of speaking. You and Judd have put a lot of time and energy (God Bless you both) into the blogging and video taping to educate the public what it is truly like for people that are chronically ill behind their personal lives. You are touching bases with adults, men, women and possibly children and educators. Maybe she could tone it down a bit. If it's part of an illness and her way of expression then maybe we could be made to understand that. Because I do believe there is that kind of illness where they can't control it. With much love and admiration to you and to all of you, I thank you for sharing your lives with us. Hugs from GMA ❣️❤️❣️ to everyone. Getting so excited, I wish the day would hurry and get here. Lol

I love you, but a raw diet for dogs can be dangerous! Make sure you are feeding him okay food, because dogs can also get salmonella and it is brutal.

@ChronicallyJaquie

7 жыл бұрын

I would not give it to Harlow if it wasn't good for her, you can learn more in my "All About Harlow" video (:

@Unknown-gd5om

6 жыл бұрын

Raw feeding isn't dangerous actually do research on it

I don't mean to seem rude, and if this comes across as such please delete. Why does your friend always seem so bored? Could it just be bad timing? (I also apologize for not knowing how to spell her name)

@ChronicallyJaquie

7 жыл бұрын

Lol she has a RBF (resting bitch face), that is just how she is!

@TheRawLife1

7 жыл бұрын

KittyIvie I'm just always not feeling good that's the chronic life

Your friend cusses to much and flips the camera off to much

@ChronicallyJaquie

7 жыл бұрын

If you don't like her, you do not have to watch her. I love Janiece just the way she is (:

@TheRawLife1

7 жыл бұрын

71kamera don't watch my beautiful face then🤳

@71kamera

7 жыл бұрын

Janiece & Orion message wasn't to you !!!!

@TheRawLife1

7 жыл бұрын

71kamera don't watch if your going to complain

@71kamera

7 жыл бұрын

Janiece & Orion I'm not complaining! It's a joy to watch her channel and to watch a channel where there is no cussing. Like I said the message wasn't for you so stop replying!!

You are a great vlogger! Look forward to them every day. Have a beautiful wedding!

Jaquie, you made so many jokes in this vlog! You made me laugh.