ONE YEAR ON TRIKAFTA | TRIKAFTAVERSARY!

Vlog 8.3.20 → It's hard to believe its been a year. We are grateful and speachless!
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Пікірлер: 319

  • @thefreylife
    @thefreylife4 жыл бұрын

    Just. So. Thankful. That’s all I’ve got.

  • @mistermomo2904

    @mistermomo2904

    4 жыл бұрын

    This is such an awesome milestone, I'm so happy for the incredible results!

  • @shonamackay8672

    @shonamackay8672

    4 жыл бұрын

    Just been approved in Scotland today 🙌 so excited 🥳🥳🥳xx

  • @noelariel7233

    @noelariel7233

    4 жыл бұрын

    Congratulations on 1year on Trikafta.

  • @shonamackay8672

    @shonamackay8672

    4 жыл бұрын

    They calling it Kaftrio so used to hearing you say Trikafta going to take a bit of getting used to!🤣

  • @samuelsmum100

    @samuelsmum100

    4 жыл бұрын

    I feel emotional watching Mary get emotional it's truly amazing to see how much your health has improved and that has allowed you to enjoy life more it's a blessing for you both 🙏😁

  • @shonamackay8672
    @shonamackay86724 жыл бұрын

    Trikafta just been approved in Scotland today, so excited!!🥳🥳🥳xx

  • @shonamackay8672

    @shonamackay8672

    4 жыл бұрын

    @@tillyramus thank you so much 💖

  • @rae1957tn

    @rae1957tn

    4 жыл бұрын

    Shona Mackay I pray it helps everyone in Scotland that has CF

  • @anngabriel5455

    @anngabriel5455

    4 жыл бұрын

    That is wonderful news! Many Blessings go out to our Scottish family may all your dreams come true.💜💜💜🙏🙏🙏🙏

  • @shonamackay8672

    @shonamackay8672

    4 жыл бұрын

    @@anngabriel5455 thank you so much 💓 💖

  • @shonamackay8672

    @shonamackay8672

    4 жыл бұрын

    @@rae1957tn thank you so much 💓 💖

  • @carolyngarrison10
    @carolyngarrison104 жыл бұрын

    I remember when you could hardly do a load of laundry. AND, you just went through a 20+ minute vlog, without one cough. It’s truly a miracle.

  • @thefreylife

    @thefreylife

    4 жыл бұрын

    Carolyn isn't it incredible?! Thank you so much for celebrating with us! :)

  • @debbiesanderson9466
    @debbiesanderson94664 жыл бұрын

    You have changed so much.... you had so many hospital admissions and I used to be willing you on to get home. When transplant came up I was seriously worried. You have so much joy in your days - you give hope to so many xoxo

  • @thefreylife

    @thefreylife

    4 жыл бұрын

    Thank you Debbie, we are so grateful that you have bene with us through the hard times & the Trikafta times :)

  • @dleedraws475
    @dleedraws4754 жыл бұрын

    My fiance has been on it since the beginning of the year, and its incredible! She rarely coughs anymore (which is how we used to be able to find her in grocery stores) and her lung function is up to 75%! Aside from her needing her gallbladder taken out (due to a side effect of Trikafta we believe), she hasn't needed a hospital stay due to her CF! 2020 has been so hard for a lot of people, but with her being approved for Trikafta and our wedding this coming October, its been a wonder year for our family. Trikafta is a true wonder... So glad you guys are still going strong! Congratulations 👏

  • @thefreylife

    @thefreylife

    4 жыл бұрын

    D Lee Draws that is such amazing news! I'm SO glad that she is doing so well on Trikafta (apart from the gallbladder surgery)! Thank you for celebrating with us, and know we are cheering you guys on as well! :)

  • @glitterbea
    @glitterbea4 жыл бұрын

    It honestly makes me tear up seeing how this drug has impacted you Mary. You've come so far you're amazing 😊❤

  • @jennkindle

    @jennkindle

    4 жыл бұрын

    Me too. So grateful on her behalf!

  • @thefreylife

    @thefreylife

    4 жыл бұрын

    Thank you Queen Bea!

  • @beckymoran321
    @beckymoran3214 жыл бұрын

    I hope the people that worked on making this drug see this video! So happy for your success on this medication!

  • @jonki1980
    @jonki19804 жыл бұрын

    Birthday month and one full year on Trikafta recap. Can this get anymore emotional? I am so very happy for you Mary, amazing drug for amazing people. Keep smiling!! Vlog recap is simple 🎉1️⃣🎆👋

  • @thefreylife

    @thefreylife

    4 жыл бұрын

    Thank you Jon!

  • @larab440
    @larab4404 жыл бұрын

    I have been around for so long and I have watched as Mary declined and lost so many of the joys she had in her life like horse riding lessons. I remember Peter saying how much coughing he would edit out cause Mary didn't want to hear it and didn't want us to have to hear it. And then I watched how real things got before the move and transplant talks ramped up. Then the joy as the small things became possible and then bigger and bigger! Everyone remember the first time she got to run with Ollie? Or just pulling out the umbrella without Peters help. Congratulations to you Mary!! I am so so excited to see your next victory. Love ya both!!

  • @thefreylife

    @thefreylife

    4 жыл бұрын

    Thank you so much Lara B! We are so grateful that you are on this journey with us through the hard times & through the Trikafta times :) Thank you for those encouraging words friend!

  • @mysuperpack63
    @mysuperpack633 жыл бұрын

    Your voice sounds so much different, less raspy, more powerful! It's amazing! And you look so much stronger and healthier omg

  • @millymcbug
    @millymcbug4 жыл бұрын

    Y'alls hearts are so sweet, genuine, and reflective of God's love, hope, and peace. You encourage me to pursue God more and more in my daily life♡♡♡

  • @thefreylife

    @thefreylife

    4 жыл бұрын

    Thank you Milly for those kind words & for sharing that, we are so honored to be God's hands and feet, and so grateful for the opportunities to encourage you towards Him 💕

  • @amybailey2812
    @amybailey28124 жыл бұрын

    Happy first trikafta anniversary Mary and Peter! Wishing you many more years of blessings and good health 😊 ps tomorrow will be my first year kidney transplant anniversary. I’m so grateful towards my donor. It’s really life changing! Stay blessed 🙏🏻

  • @brynnejewell1275

    @brynnejewell1275

    4 жыл бұрын

    Congrats on your one year!🤗

  • @amybailey2812

    @amybailey2812

    4 жыл бұрын

    @Brynne Jewell thank you so much 😊

  • @beverlyburris8026
    @beverlyburris80264 жыл бұрын

    Watching the change in your daily life has been joyous for me! I’ve been here a couple of years now -watching the decline and feeling concerned when the transplant week happened. The almost immediate and very noticeable improvements on Tricafta were encouraging and exciting. Watching all that you have done in your new home, the zero hospital stays, and no IV antibiotics, the energy for cooking, working on the house, getting out for walks and all the fun things you and Peter and Ollie and Harry do together blesses me every day. 🙌💕🥰 I pray for you to have years of improvement and extended time to be so actively engaged in daily life. HalleluYah for this blessing❣️❣️

  • @thefreylife

    @thefreylife

    4 жыл бұрын

    Thank you Beverly for celebrating with us & for your continued prayers!

  • @jennieg36
    @jennieg364 жыл бұрын

    I celebrate my Cancerversary...the date my doctors told me that I was considered NED...no evidence of disease. July 13th was my 3rd cancerversary.💗

  • @cynthiahoff1512

    @cynthiahoff1512

    2 жыл бұрын

    Congratulations! July 13th was both my grandmother's and my dad's birthday. Great day for a cancerversary!

  • @naomirg8273
    @naomirg82734 жыл бұрын

    It has been so amazing to see you just bloom over the last year. Prior to Trikafta, I was afraid for you Mary. Praying for you to hold on. 1 year later you are almost a new woman and it is a blessing to see you live and move and have joy.

  • @thefreylife

    @thefreylife

    4 жыл бұрын

    Thank you Naomi!

  • @karenwood9593
    @karenwood95934 жыл бұрын

    So many things in the news are so depressing. It is truly wonderful to share in your good positive news. I started volunteering this morning at Feeding America of Southwest VA and it was a great experience. I almost took a nursing job down your way a few years back. Now I'm retired from home care nursing, and my days are still pretty full but it is great to do the volunteer work. Looking forward to getting my tiny air plants

  • @thefreylife

    @thefreylife

    4 жыл бұрын

    Karen that's so exciting!! & yay we can't wait for your air plants to arrive!

  • @PinkHawk191
    @PinkHawk1914 жыл бұрын

    I started a new asthma medication last year called Fasenra. What a year it has been! Less coughing every day, and needing less breathing treatments. I am so grateful for the Fasenra! It has worked so well for me. It has given me back my quality of life! Congratulations on one on Tricafta!

  • @peachxtaehyung

    @peachxtaehyung

    4 жыл бұрын

    That's awesome!!! Congrats! I haven't heard of this medicine but that's amazing to hear that!

  • @PinkHawk191

    @PinkHawk191

    4 жыл бұрын

    Miranda Stephens Thank you! The medication has been out since I think late 2017 or early 2018. It’s an absolutely amazing medication. It has given me my quality of life back.

  • @hayleymarse2853
    @hayleymarse28534 жыл бұрын

    Congratulations!!! It makes me so happy to see just how much trikafta has helped Mary. I love getting to watch you guys and your contagious positivity

  • @samanthajester3312
    @samanthajester33124 жыл бұрын

    So happy it’s been working! It’s so great to see you be able to do so many things you couldn’t do before!

  • @XravensunsetX
    @XravensunsetX4 жыл бұрын

    I just re-watched the video from last year (after this one of course) and I'm so happy to see you doing so much better a year later..... hopefully it will continue to go up from here!

  • @strawbemmy
    @strawbemmy4 жыл бұрын

    wow no way its been a whole year! gosh mary i am so glad you were here to witness and experience this miracle

  • @thefreylife

    @thefreylife

    4 жыл бұрын

    Thank you hcneydew! :)

  • @Joyce-dd3fm
    @Joyce-dd3fm4 жыл бұрын

    So happy for you Mary! You look wonderful! The two of you are so cute!

  • @moonfichter7899
    @moonfichter78994 жыл бұрын

    Wow a year already! I think we are all rejoicing on ur behalf 🙏🙏

  • @silviabomboi5961
    @silviabomboi59614 жыл бұрын

    Hi guys, thank you so much for telling us your amazing experience! I'm from Italy, and in november 2019 my husband started Trikafta. He was waiting for the lung transplant since three years, and since five years he was on anthibiotic endovenous therapy every day, with no stop. Now he's not on the transplant list anymore, he's no longer on anthibiotic therapy, he doesn't need oxygen and he can walk for km faster everyday, he can run and jump and we can travel and live a normal life finally!! Thank you for giving me hope one year ago when you first started Trikafta! Big hug and have a good life guys!

  • @monicauyeno7368
    @monicauyeno73684 жыл бұрын

    I cried a little watching this because I was so happy that you have had improvement over the year. I could see it in the videos and every day that I watched, it made me so happy. I am so happy for you and other people with cystic fibrosis. I'm happy that it has helped so many people

  • @sandrah2274
    @sandrah22744 жыл бұрын

    So thankful that you found some relief through Trikafta! Love you guys!

  • @maryharte2551
    @maryharte25514 жыл бұрын

    So glad for how good you feel Mary Thank God for those meds Mary and also that you and Peter can enjoy life more now ❤️

  • @UnabashedAsh
    @UnabashedAsh4 жыл бұрын

    Wow, just realized I've been watching y'all for a year and a half. I was so excited to see your results on trikafta, now it's been a year and I'm amazed and very happy for you.

  • @thefreylife

    @thefreylife

    4 жыл бұрын

    Thank you so much Ashely!!

  • @gabigayko1863
    @gabigayko18634 жыл бұрын

    So happy for you Mary! Keep doing what you think you can’t. Love ya guys to bits.

  • @ptszpwr783
    @ptszpwr7834 жыл бұрын

    Just went back and rewatched last years vlog and OMG!I can't believe the change. I renege crying with you and Peter that day in the goes that this would improve your lives in the way you hoped it would.... as I rewatched it today I cried at the fact that almost all your hopes for this med have come true. It's such an amazing thing to see and look back on. Wow!!!

  • @user-vm5ud4xw6n
    @user-vm5ud4xw6n4 жыл бұрын

    “Now to him who is able to do immeasurably more than all we ask or think, according to His power that is at work within us to Him be the glory in the church and in Christ Jesus throughout all generations forever and ever, AMEN.” (Eph. 3:20-21) the reason you couldn’t imagine what the drug could mean to your life is because God is able to do more than we can even dare to dream!! Praise God from whom all blessings flow!

  • @thefreylife

    @thefreylife

    4 жыл бұрын

    C thank you for sharing that! God is so good!!

  • @hannahsandmire3342
    @hannahsandmire33424 жыл бұрын

    Ah yay!! That is SO exciting!! ❤️ I’m so grateful for Trikafta and how it has impacted your life! ❤️

  • @curtisbemis6640
    @curtisbemis66404 жыл бұрын

    Its a beautiful thing to see someone else with c.f getting a shot at life . 🙏🙏🙏 I love your channels

  • @valeriecunningham1574
    @valeriecunningham15744 жыл бұрын

    What a milestone. I can hardly believe it has been a whole year already. You both have such beautiful souls.

  • @tashastubbs-davies3628
    @tashastubbs-davies36284 жыл бұрын

    The past year has been a joy to watch, to see the improvement to your quality of life 💚 i'm so happy for you all!

  • @katib9032
    @katib90324 жыл бұрын

    Happy trikaftaversary! This made me cry. I am overjoyed to see you doing so well! Sitting here in Germany waiting for the approval coming at the end of this month, I can't believe that this miracle is really about to happen. I will never be able to put into words just how grateful I am for this drug. Witnessing the Cf community turn from mourning the loss of people almost on a daily basis to celebrating one another's health improvements is the best thing ever!!!

  • @alexandrak8441
    @alexandrak84414 жыл бұрын

    Congratulations 🥳. It’s so wonderful to see how much it helped you. Continued prayers for both of you.

  • @nancystewart2063
    @nancystewart20633 жыл бұрын

    I've loved watching the transformation you have gone through since you started this medicine.

  • @lauramoore7337
    @lauramoore73374 жыл бұрын

    So grateful for your better health, Mary!

  • @songbird0902
    @songbird09023 жыл бұрын

    I’m so happy for you both. Prayers will continue for many more years of stability. God bless you both.

  • @eej1983able
    @eej1983able4 жыл бұрын

    Congratulations Mary on your 1 year trikaftiversary! I can't believe it's been so long already!

  • @anastasia1522
    @anastasia15223 жыл бұрын

    I hadn't watched a video of yours for months now but I saw this one and wondered how you're doing and ooooh I'm so happy to see how healthier and happier you look! Even your voice sounds different!

  • @julieyates1043
    @julieyates10434 жыл бұрын

    Hi Mary and Peter, I'm so excited for you!! My son is due to start Trikafta in a few weeks, and I can't wait to see the difference its going to make in him. Fingers crossed it will be as effective for him as it has for you xx

  • @christalphelps6186
    @christalphelps61864 жыл бұрын

    Wow! It's been a year already! The amazing improvement and HUGE blessing and rest that God has given everyone who has the ability to be on Trikafta is just incredible. I'm so glad Mary that you have your mornings and less mucus! So amazing, praise God!

  • @MaNdYmUcH23
    @MaNdYmUcH233 жыл бұрын

    So happy to hear the good news Mary. Been watching for forever and to see the change in you wow can't wait to see what is to come in the future take care Guys

  • @ajrwyb1217
    @ajrwyb12174 жыл бұрын

    Im so happy this drug has worked so well for you. I have always loved your optimism. Your channel brings me such hope when life is hard.

  • @Mojohjohjoh
    @Mojohjohjoh3 жыл бұрын

    You aren't a KZread channel that I regularly watch but I do watch a video every now and then and the last time was probably a year ago I guess because just the clarity in your voice from your lungs being clear is incredible and I wish you well in the future!

  • @mirimiriela480
    @mirimiriela4804 жыл бұрын

    Congratulations!! I'm sorry there have been side effects, but I'm grateful the effects are so powerful. I found your channel when Trikafta was approved and I searched youtube to see if anyone had experiences with it. I'm glad I ended up here!

  • @thefreylife

    @thefreylife

    4 жыл бұрын

    thank you mirimiriela480! We're so grateful you are here and love that you found our channel through Trikafta! :)

  • @emilywilliams3277
    @emilywilliams32774 жыл бұрын

    Mary i am so happy that this medication has been able to help you. I love watching your videos and seeing you laugh and smile and enjoy life without coughing so much like you have done in the past. You and your husband are such an inspiration to watch. You both taught me that even though there is negative things that happen in life that there is always something to be thankful for. Thank you both for that lesson. I will keep you in my prayers and pray that this medication can continue to help you and that your body will not reject it, i makes me happy to see that you are doing better.

  • @AutumnFalls89
    @AutumnFalls894 жыл бұрын

    It's been awesome watching your journey with Trikafta. I'm so glad that you're life has improved with this medication. Thanks for sharing your journey.

  • @maddieadams75
    @maddieadams754 жыл бұрын

    I’m incredibly happy how well Trikafta has worked for you. I followed about a year be for Trikafta, regardless you both are beautiful people inside and out. ❤️

  • @lindseyjellison5471
    @lindseyjellison54714 жыл бұрын

    I'm so happy for you! I have seen how drastically this medication has improved your health and how it has changed both of your lives.

  • @annharper8462
    @annharper84624 жыл бұрын

    Happy Trikaftaversary! I started watching when I was looking for a video about percussion airway clearance. You starting on Vertex inspired me to go ahead on a new medicine that I’d been thinking about but afraid to try. My life has also changed - way less coughing, peak flow is up to where it had never been before, lung function numbers are all “in the black” and no more moon face from so much prednisone! I’ll have my Fasenraversary in November. Thank you for your encouragement and example! Sooo happy for you!

  • @GidgetSwim72
    @GidgetSwim724 жыл бұрын

    I am tearing up watching this even from the beginning because you look so good, Mary! I am so happy for you.

  • @jessie92123
    @jessie921234 жыл бұрын

    Congratulations 🎉 thank you for bringing us along on this journey. This is also totally separate but your podcast and daily videos have helped me find my way back to God. Thank you 💜

  • @thefreylife

    @thefreylife

    4 жыл бұрын

    Thank you for celebrating with us jessie, we are so glad you're on this journey with us! & thank you for sharing that, we are so glad to hear you have been enjoying the podcasts and that they have been encouraging you and that you have been growing in your relationship with the Lord - how exciting!! Thanks again jessie, we are so glad you're here :)

  • @b.wooten4505
    @b.wooten45054 жыл бұрын

    Congratulations and no hospital stays!!!! You are amazing and trikafka can!!! The fatigue is odd but you are doing soooo much more than most non CF people! Watching you daily sometimes I forget you even have CF! Hugs and prayers !

  • @siovonperez3296
    @siovonperez32964 жыл бұрын

    I watched some old blogs the other day and to see how it use to be and the struggles and to watch now and see the drastic difference I was almost in tears, I'm beyond happy for you God is so good. Happy Tricafta anniversary 😇🎊🎉🎊🎉

  • @brenna3743
    @brenna37434 жыл бұрын

    This has been truly an amazing year watching what this med has done for you guys! As I write this I’m crying cause I’m so happy! Keep up the good fight. God is so good. I love you guys wishing many more years of respite! 💟🤗😀

  • @nicolejroby
    @nicolejroby4 жыл бұрын

    Blessings to you both. I’m very thankful to hear this testimony, it’s absolutely beautiful 💕 Thank you God for your faithfulness 🙌🏾

  • @samgodkin4736
    @samgodkin47363 жыл бұрын

    Just being able to see you fully laugh without coughing. Is wonderful.

  • @hollyosgerby1901
    @hollyosgerby19014 жыл бұрын

    TRIKAFTAVERSARY..... An anniversary absolutely deserving to be celebrated with joy and thankfulness! It has been quite the journey for the both of you. Your daily vlogs have given us the opportunity to witness the amazing “ turn around” in Mary’s health. Such a privilege to be able to pray for you as well. This is an exciting month for both of you and, I can certainly tell, an emotional one as well. PARTY ON!!! 🤗❤️❤️🙏🏼😘🐕🐱

  • @Femmebutstillathem
    @Femmebutstillathem3 жыл бұрын

    I am so glad it came in time for you but sad for all the people like Claire that it came to late for. But it makes me so happy to imagine how many people like you this will help.

  • @cherylrhone3407
    @cherylrhone34074 жыл бұрын

    Congratulations Mary!! To God be all the glory!! It is so wonderful seeing you moving around like you do now. Hallelujah!! 🙏🏻🙏🏻🙏🏻❤️❤️❤️

  • @MetalMouth6963
    @MetalMouth69634 жыл бұрын

    Its been so crazy to watch how much better you've gotten in the last year

  • @knowledge8920
    @knowledge89204 жыл бұрын

    So happy for y'all, I teared up a bit. Love you guys ❤️

  • @lydiaw9435
    @lydiaw94354 жыл бұрын

    I’ve been watching you guys for about 11/2 years and Mary just looks and sounds so much healthier since starting this drug. So happy for you both

  • @juliannebutt5917
    @juliannebutt59174 жыл бұрын

    I had to go back and watch all of the old videos to remind myself how far you two have come! It brings me to tears to know y’all went on a walk. I love watching God work in the smallest ways and to see people appreciate His love.

  • @marilucouch6429
    @marilucouch64294 жыл бұрын

    Thankful for the research that has enabled Mary to renew her lease on life. Your stories are uplifting and everyone is cheering for you

  • @lizzyjones8418
    @lizzyjones84183 жыл бұрын

    I watch you guys sometimes but I haven’t in a while, and the difference in Mary is amazing! So happy for you both!!

  • @imogenoliver
    @imogenoliver4 жыл бұрын

    I remember watching the August 2nd video hoping that you would make it to a week or a month on trikafta, knowing what cf can be like as my uncle has cf. Then you got to a week and a month and now a year and I couldn't be more glad. I can tell you're doing so much better and I can't wait to see what else trikafta can do for the both of you. My hope is that in a year's time we can have a 2nd trikaftaversary and maybe even a 3rd and a 4th. Love you guys and I look forward to seeing what else trikafta has install for you 🥰.

  • @Jamie_Winsh
    @Jamie_Winsh4 жыл бұрын

    It's one of the best things when there's something that greatly benefits you. In my experience knowing and experiencing the benefits makes you happier in general as well

  • @josymarie4327
    @josymarie43274 жыл бұрын

    That's amazing. Congrats! I'm just getting emotional along with you, even though I did not watch you one year ago. But you bring comfort and joy and motivation. There was no way losing Mary back than. We need her and Peter. I am on Xolair which is life changing to me. It's been five months now and I love and hate it at the same time. My asthma has improved a lot, but the side effects are killing me after injection day, but anyways, modern medicine is amazing, it's just my body which sucks.

  • @pamelamiller3480
    @pamelamiller34804 жыл бұрын

    Wow has it really been a year! Went by very fast. Kudos to the scientists, researchers, pharmacists, doctors who made this happen. They are heroes. I am overwhelmed by their work that makes life better for you

  • @cbush3569
    @cbush35694 жыл бұрын

    I have watched & loved your journey before & after Trikafta. Praising God that Mary has been able to really enjoy the daily joys she so dearly loves💕 Continued prayers for future health🙏💕You two are such a blessing!

  • @marinatotduricic2087
    @marinatotduricic20874 жыл бұрын

    I wish you many many years of quality breaths Mary, you are such a nice and down to earth person, just love you both ❤️

  • @thefreylife

    @thefreylife

    4 жыл бұрын

    Thank you so much Marina! :)

  • @kherb999
    @kherb9994 жыл бұрын

    So thankful for you and the change the medication has made for you. I am celebrating my 6 month feeding tube anniversary and now recovering from malnutrition...finally. God is good.

  • @standingforjesus
    @standingforjesus4 жыл бұрын

    I really like your hair like that Peter. Congrats Mary on all your victories!

  • @sassylou54321
    @sassylou543214 жыл бұрын

    I cant believe it is a year already. God bless to you both. x

  • @TuggerAbbey
    @TuggerAbbey4 жыл бұрын

    Congratulations! How exciting!

  • @julielumsden5184
    @julielumsden51844 жыл бұрын

    A positive, encouraging and heart warming video, Be Blessed you two

  • @christytubbs3266
    @christytubbs32664 жыл бұрын

    I’m so happy for you Mary!! God Bless!!!

  • @toshomni9478
    @toshomni94784 жыл бұрын

    For most of us 2020 has been a truly horrible year but channels like yours remind us that good things are still happening. Happy Trikaftaversary! The plural is pancreases or pancreata,

  • @thefreylife

    @thefreylife

    4 жыл бұрын

    Thank you Tosh Omni!

  • @Pslams61
    @Pslams614 жыл бұрын

    I'm sitting at work, watching heart monitors and I'm crying! I'm so happy for you! I absolutely love being on this journey with you guys!!! To see the progress trikafta has helped you make is beyond incredible! My best friend started trikafta as well when it became FDA approved and the progress she's made is so crazy! And she's 19 weeks pregnant! Thank you guys for sharing your journey and thank you to the researchers who developed trikafta!

  • @benjaminfreyman4273
    @benjaminfreyman42734 жыл бұрын

    A great day for you and so nice that the plus of these meds are empowering you. Wish it had come sooner for so many 👍

  • @cindygroff9587
    @cindygroff95874 жыл бұрын

    So very happy for you Mary!! 💕

  • @Kitto44
    @Kitto444 жыл бұрын

    *Cries happy tears* 😭😃 Happy 1st Trikaftaversary! Thank God for the research which enabled this fantastic drug to help you and so many others. I'm so very happy for you both 💓 💗

  • @pamelaruth6909
    @pamelaruth69094 жыл бұрын

    God bless y'all on your one year anniversary and wish you many many more. I can't believe the difference in Mary over the many years I have watched. I am so very happy for you and all the other CF patients out there who are able to take this wonderful drug. Have a great day and tfs. Take care........stay safe............

  • @mistycgrimm1
    @mistycgrimm14 жыл бұрын

    We are thankful too! Just love you guys!

  • @tabeatabse7333
    @tabeatabse73334 жыл бұрын

    Wow! I am so happy for you and all the other patients who take those drugs and it works for them. It´s amazing how much your health improved. And I just went back to the video from last year after I have been watching this one and the thing that surprised me: your voice is soo much clearer now. I am also speechless and thankfull about what medicine can do. I love the spirit of you two. Enjoying life - the little things and the big things!

  • @BNHAalltheway
    @BNHAalltheway4 жыл бұрын

    Praise God Trikafta has helped You so much You can see that it's helped and how great You feel now compaired to the past God is so good Happy Trikaftaversary and Happy Birthday Mary so glad You have Peter to go on this journey with God Bless

  • @wolfsrule100
    @wolfsrule1004 жыл бұрын

    Congratulations on one year! Can’t believe it’s been that long.

  • @sophiepalmer-doran344
    @sophiepalmer-doran3444 жыл бұрын

    hello Mary Peter Harry and Olie happy TRIKAFTAVERSARY! i have watched you since 2017 and subscribed that year i am so glad to see mary doing so well

  • @thefreylife

    @thefreylife

    4 жыл бұрын

    Thank you so much Sophie!! :)

  • @TheUSNcorps21
    @TheUSNcorps21 Жыл бұрын

    My 6 yo daughter starts trikafta this week. Very hopeful for her, and continued good health for you

  • @annacooper1299
    @annacooper12994 жыл бұрын

    I remember a year ago and the months following being so excited for you because you were show improvement!!! It also filled me with hope because if a drug can be discovered to addressed your genetic mutation maybe there is hope that something can be found to help the genetic mutation that causes my Ehlers Danlos Syndrome. I am excited to see what you will all do in the future

  • @lorileewalters2018
    @lorileewalters20184 жыл бұрын

    Happy First Trikafta Anniversary, you look so beautiful and I am so glad to see you living life and doing things that you’ve not been able to do!! You’re amazing Mary and Peter you’re an amazing husband. Y’all are so blessed to be together and have the amazing love you have for one another, you show what a marriage should be. I love you both and Ollie and Harry. Love, hugs and prayers to y’all from Indiana🐾😷🙏🥰♥️❣️❣️❣️❣️❣️❣️❣️❣️❣️❣️

  • @thefreylife

    @thefreylife

    4 жыл бұрын

    Thank you Lori! :)

  • @marilan8154
    @marilan81544 жыл бұрын

    THANKS be to our God!!! I can’t believe it’s already been a year! I am so grateful that Trikafta has made such an improvement in your health. You two are some of the most faithful and inspiring people I know and that is such a gift to me. I will continue to keep you in my prayers. Thanks for sharing your lives with us!

  • @audreyharlow5285

    @audreyharlow5285

    4 жыл бұрын

    And thank you to the amazing doctors and researchers who found out the amazing combination that is Trifecta.. Without them this would not be happening

  • @thefreylife

    @thefreylife

    4 жыл бұрын

    Thank you Mari! We are so grateful that you are here with us, celebrating with us, and for your continued prayers! Thank you friend!

  • @lindacondray7918
    @lindacondray79184 жыл бұрын

    2019 Transplant looming..... 2020 transplant indefinitely delayed! It’s been amazing to watch the transformation over this year with you two. So happy for both of you! I was a pediatric RN at St Louis Children’s Hospital in the 1980s. Back then CF sufferers life expectancy was early to mid 20s and a great struggle at that. It’s been so gratifying to see how much more full and long lived the CF community has been able to experience and enjoy in those passing years. Now to watch the strides of these genetic based drugs and how much they can help many of you. Truly a blessing!

  • @kkmills5934
    @kkmills59344 жыл бұрын

    We celebrate with you! So very thankful for this gift for you..

  • @Hallz18
    @Hallz184 жыл бұрын

    Happy 1 year anniversary on Trikafta! God is good!

  • @GamingNinja1998
    @GamingNinja19984 жыл бұрын

    ONE YEAR!!! dam, im starting it next month here in the uk, cant wait !!!

  • @thefreylife

    @thefreylife

    4 жыл бұрын

    Ryan that is SO exciting & such great news!!