One of a Kind Jacob (The First Known Person with his Condition)

Jacob is the first known person to live with his specific mutated gene. His family has no way of predicting what the future holds, so they simply celebrate each day with Jacob.
This interview was filmed in 2019. Check in on Jacob today at / life_with_a_superhero
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Пікірлер: 183

  • @diane9247
    @diane92473 жыл бұрын

    Well, whatever his diagnosis, it's given him a gorgeous head of hair! And that sweet laugh! He understands more than he can express.

  • @aidanbain3494

    @aidanbain3494

    2 жыл бұрын

    agreed

  • @aidanbain3494

    @aidanbain3494

    2 жыл бұрын

    He looks just like a normal child in my eyes

  • @TheKatarinaGiselle

    @TheKatarinaGiselle

    Жыл бұрын

    I tried to like this multiple times!

  • @Bitserg

    @Bitserg

    Жыл бұрын

    Овно

  • @Bitserg

    @Bitserg

    Жыл бұрын

    @@TheKatarinaGiselle овно

  • @sabrinanicole3927
    @sabrinanicole39273 жыл бұрын

    omg his giggle is adorable!!!!

  • @dante6990

    @dante6990

    3 жыл бұрын

    Ikr

  • @icryinwalmart

    @icryinwalmart

    2 жыл бұрын

    It is! This video made my day because of his adorable laugh!

  • @terridemaio2926

    @terridemaio2926

    2 жыл бұрын

    Yes He's precious

  • @sallyjanecampos5241

    @sallyjanecampos5241

    2 жыл бұрын

    He's to cute bless his lil heart

  • @mylittlestuffie8591

    @mylittlestuffie8591

    2 жыл бұрын

    ikr

  • @camilasilveiraporto1845
    @camilasilveiraporto18453 жыл бұрын

    Her words knocked me out! Every parent should think this way. Jacob is a special boy with an extra special mom 😍

  • @amandagiannini3503
    @amandagiannini35032 жыл бұрын

    Jacob singing Twinkle Twinkle melted my heart what a beautiful boy inside and outside . Mom and son are very lucky to have each other

  • @CT-6210
    @CT-6210 Жыл бұрын

    Gotta admire Chris for pushing through all the awkward moments when he wasn't sure what the songs were or what to say to Jacob. I feel like I act that way far too much. Way to go, man!

  • @margiebramlett7696

    @margiebramlett7696

    Жыл бұрын

    He is fantastic with the children. He knows how to deal each one

  • @notwhoweare1311
    @notwhoweare13113 жыл бұрын

    A mother's love is the strongest force on the planet! ♥️

  • @alexturner1309
    @alexturner13093 жыл бұрын

    I love his hair 😁❤ Such a cute little boy :3 And yeah, music is the language we can all understand ❤

  • @abzd6535

    @abzd6535

    3 жыл бұрын

    @Gabriel Bianchi are you implying deaf people can’t enjoy music? Look up Nico DiMarco. He’s a DJ and he’s deaf. He and many other deaf people can enjoy it via the vibrations it emits through big speakers and stuff. Actually, Nico’s brother Nyle is also deaf and he won America’s Next Top Model and then went on Dancing with the Stars which he ALSO won, despite not being able to hear the songs he and his partner danced to. He could FEEL them through the floor.

  • @memyself7956
    @memyself79562 жыл бұрын

    Oh my goodness you are cute, Jacob. God sure knew what he was doing when he chose Jacob's mom. He knew Jacob needed someone who was patient & kind & would love him unconditionally. This really warmed my heart.

  • @sallyjanecampos5241

    @sallyjanecampos5241

    2 жыл бұрын

    Mother and son look so happy

  • @serenatsukino5252
    @serenatsukino52523 жыл бұрын

    Jacob is so adorable! His giggles are too cute! And the way he hummed the song warned my heart :).

  • @blake4604
    @blake46042 жыл бұрын

    He sang that scale down perfectly in tune- music is evidently an important part his life and music therapy would have a huge impact.

  • @blake4604

    @blake4604

    Жыл бұрын

    @Eric Huckaby you know that music therapy doesn’t equate to being a professional musician, a high class performer or a too composer, right?

  • @blake4604

    @blake4604

    Жыл бұрын

    *top

  • @neckbackcripplinganxietyattack
    @neckbackcripplinganxietyattack2 жыл бұрын

    For a 3 year old, his perception is amazing! He can obviously understand people to a huge extent, he’s Super smart

  • @paigesugarbutts3865
    @paigesugarbutts38653 жыл бұрын

    Aww he’s adorable! He deserves so much joy

  • @christinamurphy6938

    @christinamurphy6938

    2 жыл бұрын

    He does.. he gives joy!

  • @jinnyfoldoe5860
    @jinnyfoldoe58603 жыл бұрын

    I like hearing from Mom that Jacob is going to write his own story....because he is the one and only...and so loved for himself.

  • @elisabethgelb7347
    @elisabethgelb73473 жыл бұрын

    Wonderful patient Mommy doing her best for her little son. Music is the universal medicine. Every moment is a Blessing. Let's all be kind...

  • @potatobird52
    @potatobird522 жыл бұрын

    This guy’s love for music has me thinking he’ll be a great musician with time. I can see him being an awesome pianist, or really any instrument. His mom is doing a great job realizing his interest in music, she should continue developing that skill of his into something amazing!

  • @takeinventory7837
    @takeinventory78373 жыл бұрын

    I watched this on the fourth of July, last year. A really wholesome video that needs more attention, glad comments are back!

  • @Me11112
    @Me111122 жыл бұрын

    His laugh is the cutest thing ever, he’s absolutely adorable!

  • @cody6172
    @cody61723 жыл бұрын

    What a great mom

  • @rocketpower420
    @rocketpower4202 жыл бұрын

    This channel is a blessing ❤️

  • @mom2babygkaterad946
    @mom2babygkaterad9462 жыл бұрын

    He’s oh so special! Mom is certainly so strong & loving. “He’s gonna write his own story.” Beautiful words. I hope the very best for this family.💙♥️

  • @ceegee5724
    @ceegee57242 жыл бұрын

    This man has such a good heart

  • @kimikae4170
    @kimikae41702 жыл бұрын

    An absolute beautiful mother, with her beautiful little boy! You both really touched not just my heart ❤ but also my soul. You both are such beautiful souls. To the mother: I hope the best for your precious little boy, with the cutest darn giggle! He is already very blessed, by just having you for his Mama! You both are in my prayers and thoughts. Cheers!

  • @coaciajohnson803
    @coaciajohnson8033 жыл бұрын

    He’s so blessed to have the mother he has ❤️ they’re blessed with one another

  • @melindamorrison1
    @melindamorrison13 жыл бұрын

    Minus the condition. He reminds me of my own cousin Jacob at that age. He's precious and I Love his laughter. I love how well Chris's connects with these special children. It's very inspiring.

  • @christinamurphy6938
    @christinamurphy69382 жыл бұрын

    Thank you for sharing your precious son with us! He’s adorable and the mom is awesome too!! Love , love Jacob!!❤️❤️

  • @spaceypuppy6738
    @spaceypuppy67382 жыл бұрын

    You can see the love in the mom's eyes. Gosh this is so cute.

  • @terryrafferty7559
    @terryrafferty75592 жыл бұрын

    What a beautiful mom she is. Such depth of feeling and acceptance. Every child should have a mom like you.

  • @sallyjanecampos5241

    @sallyjanecampos5241

    2 жыл бұрын

    Yes may God bless his mother,Jacob is awesome lil boy

  • @seatherny_y
    @seatherny_y Жыл бұрын

    Jacob is a wonderful boy with a lovely mom and I hope he lives a lovely happy life!!!

  • @MossyMozart
    @MossyMozart2 жыл бұрын

    I hope that his family and therapists work on teaching him keep his mouth closed. That will help with controlling drooling and make chewing and swallowing easier. It seems like he will be able to speak one day, too, fingers and toes all crossed! A sweety I knew with Angelman's learned to keep her mouth closed which stopped her drooling (she also went on to learn to be self-preserving and was transferred to a group home). Sometimes it can take a long time and abundant patience, but children can learn to meet milestones. It seems like he will do well with music therapy. You go, Jacob!

  • @hw5064
    @hw50643 жыл бұрын

    What a cute kid! So loving, and a cute giggle too. His mom seems great, you can tell there’s so much love there :)

  • @actuallyanantichrist1062
    @actuallyanantichrist10623 жыл бұрын

    His eyes are just adorable

  • @marleenninaka1303
    @marleenninaka13033 жыл бұрын

    Hi everyone: It's so nice to see you all again on KZread. I want to meet you all one day. Take care and stay safe.

  • @nappingwithkitties8069

    @nappingwithkitties8069

    3 жыл бұрын

    Hi Marleen. I'm stuck in bed with a broken back, binge watching sbsk and I've noticed you post this same comment often. I hope you are well today 🤍

  • @marleenninaka1303

    @marleenninaka1303

    3 жыл бұрын

    @@nappingwithkitties8069 Yes I am well thank you. I'm so sorry about your broken back. I hope you feel better and please don't overdo anything. I hope you have someone who can help you. Keep me posted please and thank you.

  • @ThereIsNoGod.
    @ThereIsNoGod.2 жыл бұрын

    He already made such a big process in his 3 years. He will surprise his parents much more in the next years♡

  • @lindalowe337
    @lindalowe3373 жыл бұрын

    This is a wonderful mother to a wonderful boy.

  • @maz5148
    @maz51483 жыл бұрын

    Hi Jacob! Thanks for showing me the things that make you happy! When you were singing, it sounded like Oh McDonald?! You have a nice singing voice. Please tell your Mom she is wonderful Mommy (and YOU are a Wonderful Son!). maz

  • @melindaengstrom8910
    @melindaengstrom89102 жыл бұрын

    The song he plays at 5:28 has the melody of a Swedish Christmas carol about Saint Lucia, sung on December 13th. What a cutie of a boy, God bless!

  • @tonyawilliams9337
    @tonyawilliams93372 жыл бұрын

    Im in tears hearing him sing 😍😍😍 His smile and giggles are truly a joy to hear because you cant help but to giggle and smile with him ☺☺🙏🙏😍😍😍

  • @Fruityflootloops
    @Fruityflootloops3 жыл бұрын

    Omg he looks like my cousin who has been told they don’t know what she has and doctors are constantly shocked each year she survives.

  • @brendalg4

    @brendalg4

    3 жыл бұрын

    Maybe her parents should contact this lady

  • @hyde1893

    @hyde1893

    3 жыл бұрын

    have they done genetic testing yet? this kid has a gene mutation, your cousin could have a mutation or a bit of genetic scrambling

  • @futuredoctor751
    @futuredoctor7512 жыл бұрын

    The boy is sooooooo so lucky to have a loving mom......their bond is so special.......actually every mom and child bond is.....this was so satisfying video❤️

  • @juniperwildflowers
    @juniperwildflowers Жыл бұрын

    What a cutie! They should name that specific gene mutation after him.

  • @nefrnyx_chan
    @nefrnyx_chan2 жыл бұрын

    I felt that he would become a very successful musician in the future. God give him long life 💖

  • @irenematschke4478
    @irenematschke44783 жыл бұрын

    Alles erdenklich Liebe und Gute für Dich lieber Jakob🥳

  • @voluptuousvince6522
    @voluptuousvince65222 жыл бұрын

    Omg we finally found a flaw in Chris, he hasn't carry a tune in a bucket! Lol. I'm saying that with deep love and appreciation for you Chris my guy, and genuinely with the notion that this is literally the only identifiable flaw that anyone can see.

  • @jocelyn3081
    @jocelyn3081 Жыл бұрын

    Beautiful! She is such a loving and supportive mother and he is so sweet, true love! 💖

  • @keyoshaswaw5956
    @keyoshaswaw59563 жыл бұрын

    Awe so very cute infact absolutely precious. Jacob is so amazingly handsome. This little guy will undoubtedly grow up to be an awesome young man. I'm praying for you little cutie pie. Just keep on being amazing .

  • @tammyfromillinois5990
    @tammyfromillinois5990 Жыл бұрын

    Can we get an update on him? Beautiful lil boy!

  • @mamawfrancy
    @mamawfrancy2 жыл бұрын

    Sensible but hard to hear when mom said touching things like 'quality & not quantity' & 'inchstones vs milestones'... enjoy & savor Jacob every precious moment. Sending love & best wishes to Jacob & all your family.

  • @Kontes_HANIMm
    @Kontes_HANIMm2 жыл бұрын

    I love his giggle and his hair ❤️ Jacob a very special sweet handsome boy he is very lucky to have such a extra special loving mother...His mother's loving approach is the best medicine for Jacob...!

  • @momof2momof2
    @momof2momof23 жыл бұрын

    He is precious

  • @cheylovesgod
    @cheylovesgod Жыл бұрын

    Imagine having something so rare that they have to make a new term for your condition. Jacob is ✨ FAMOUS ✨

  • @giselaklein2878
    @giselaklein28782 жыл бұрын

    Jedem Tag soll man dankbar sei fuer gesunde Kinder und enkelkinder ,,, ❤️

  • @dog1331
    @dog13313 жыл бұрын

    Jacob definitely hit the mommy jackpot!

  • @MelissaModsMetal
    @MelissaModsMetal2 жыл бұрын

    What a precious little gem he is!!!

  • @absolutelyridiculous6743
    @absolutelyridiculous6743 Жыл бұрын

    My goodness, what a cutie!

  • @yumilumi1436
    @yumilumi14365 ай бұрын

    Love to Jacob and mother from Lebanon! Have a happy healthy life !

  • @folks7355
    @folks73553 жыл бұрын

    He is so cute,hope he is doing good.

  • @ginawoodard7505
    @ginawoodard75053 жыл бұрын

    Beautiful boy. God bless you

  • @n.1480
    @n.14802 жыл бұрын

    he’s adorable. 😫💛 the little giggles, omg.

  • @tinas.8959
    @tinas.89592 жыл бұрын

    Oh poor boy 😞 Its terrible that something like this exists. He is lucky to have such a mother who loves him without any requirements. Not everybody could make this.

  • @pienpien2

    @pienpien2

    2 жыл бұрын

    I agree.

  • @leafry101
    @leafry1012 жыл бұрын

    Such a cute little boy, his little giggle makes me smile.

  • @elizzievb
    @elizzievb3 жыл бұрын

    Sweet little guy! What a beauty he is!

  • @DAVEJJR
    @DAVEJJR2 жыл бұрын

    What a absolutely beautiful little boy! I believe God gives these special babies to parents he knows will joyfully accept and love them for who they are and not the imperfections they may possess.

  • @eleonorlight2073
    @eleonorlight20733 жыл бұрын

    He’s so adorable ❤️

  • @buzzlebee123
    @buzzlebee1232 жыл бұрын

    I can tell he wants to communicate 💙

  • @alexandriamcconnell6581
    @alexandriamcconnell65813 жыл бұрын

    He so adorable

  • @TerriW1203
    @TerriW12032 жыл бұрын

    Thank God for these videos!

  • @janiceyoung7273
    @janiceyoung7273 Жыл бұрын

    He's a darlin so cute.

  • @rosesippel2932
    @rosesippel29322 жыл бұрын

    He's absolutely an amazing little boy God Bless

  • @juliemiles4127
    @juliemiles41272 жыл бұрын

    The reality is this is very sad for the family not knowing the outcome for this little boy.

  • @carolinemcintosh9438
    @carolinemcintosh94382 жыл бұрын

    Thats one sweet awesome soul God Bless him

  • @daniellepleasesavethehuman3958
    @daniellepleasesavethehuman39582 жыл бұрын

    Jacob is magical ✨💖✨

  • @debykalush9199
    @debykalush91992 жыл бұрын

    God Bless your family!

  • @Billtaylor1961
    @Billtaylor19612 ай бұрын

    What a lovely happy beautiful little boy

  • @birgitwt6143
    @birgitwt61432 жыл бұрын

    Was für eine tolle Frau und tolle Mutter!!

  • @bellejourneelibre47
    @bellejourneelibre47 Жыл бұрын

    Such a cutie💕💕💕💕wish her all the happiness with his family 💟 💟 💟 💟

  • @JojoJojo-qr5ye
    @JojoJojo-qr5ye2 жыл бұрын

    God bless this wonderful family !

  • @LectronCircuits
    @LectronCircuits2 жыл бұрын

    Jacob might enjoy "The Worms Crawl in, the Worms Crawl Out..." as a valuable and cherished addition to his repertoire. Cheers!

  • @Xorri_Star
    @Xorri_Star Жыл бұрын

    The laugh is so sweet 😢😊

  • @ravenentrekin7377
    @ravenentrekin73772 жыл бұрын

    What a sweet soul

  • @frankiebruns8556
    @frankiebruns8556 Жыл бұрын

    This kid is getting raised on some really good toys he's got a cat keyboard

  • @nikkispy1885
    @nikkispy18853 жыл бұрын

    This is so beautiful ❤️

  • @RomayPM
    @RomayPM2 жыл бұрын

    God bless this little boy

  • @artie2668
    @artie26682 жыл бұрын

    God bless Jacob and his family ❤️🙏

  • @19th-Nervous-Breakdown
    @19th-Nervous-Breakdown2 ай бұрын

    What an AMAZING mother. ❤🎉

  • @lilboychoi
    @lilboychoi5 ай бұрын

    Jacob is a survivor. Gangster at heart❤❤

  • @user-iw1qc2ui2w
    @user-iw1qc2ui2w3 жыл бұрын

  • @hershyfishman2929
    @hershyfishman2929 Жыл бұрын

    If the family is ok with it, it would be very informative to say what the mutation is or at least what gene it is at. This will inspire people to research it which may lead to treatment or a cure.

  • @daraghokane4236

    @daraghokane4236

    Жыл бұрын

    No name for it he's the only know person with it

  • @hershyfishman2929

    @hershyfishman2929

    Жыл бұрын

    @@daraghokane4236 His condition has no name, but they did figure out what mutation caused his condition. All genes have names, and the exact mutation can also be specified by indicating the location within the gene and the change in the sequence.

  • @soniag4961
    @soniag49612 ай бұрын

    He so awesome!!!

  • @cherylbrowning3488
    @cherylbrowning3488Ай бұрын

    No wonder Jacob is my grandauthers best friend. He is absolutely adorable. Yes, he is extra special

  • @hybriddude007
    @hybriddude0072 жыл бұрын

    Special boy, he loves to giggle all day

  • @BaconBandage
    @BaconBandage2 жыл бұрын

    Jacob is going to be a music prodigy, I just know it.

  • @betha.6279
    @betha.6279 Жыл бұрын

    Hi Jacob! I love your laugh. Twinkle is a wonderful song. I wish I could sing it with you. You have a wonderful singing voice!

  • @mariamary2782
    @mariamary27823 жыл бұрын

    wonderful mothers. 🌷😘😘

  • @blueblaze332
    @blueblaze3322 жыл бұрын

    Wow this lil dude is perfectly in tune when he's singing

  • @sigrunutealtmann9712
    @sigrunutealtmann97122 жыл бұрын

    Viel Kraft und Liebe für ihre gemeinsame Zukunft..

  • @clairebear1808
    @clairebear1808 Жыл бұрын

    Such a beautiful human sooo cute ❤🤗🥰

  • @lindavanocker1841
    @lindavanocker1841 Жыл бұрын

    Get him a dish with a suction cup on the bottom. No more throwing bowl !

  • @juliamcqueen6305
    @juliamcqueen63053 жыл бұрын

    He is such a cutie ❤️🇨🇦

  • @Zapatasurf
    @Zapatasurf Жыл бұрын

    he is great! :)

  • @ms2507
    @ms2507 Жыл бұрын

    God bless you, Get well soon, champ ✨💛🎀💛✨