One of a Kind Jacob (The First Known Person with his Condition)
Jacob is the first known person to live with his specific mutated gene. His family has no way of predicting what the future holds, so they simply celebrate each day with Jacob.
This interview was filmed in 2019. Check in on Jacob today at / life_with_a_superhero
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Пікірлер: 183
Well, whatever his diagnosis, it's given him a gorgeous head of hair! And that sweet laugh! He understands more than he can express.
@aidanbain3494
2 жыл бұрын
agreed
@aidanbain3494
2 жыл бұрын
He looks just like a normal child in my eyes
@TheKatarinaGiselle
Жыл бұрын
I tried to like this multiple times!
@Bitserg
Жыл бұрын
Овно
@Bitserg
Жыл бұрын
@@TheKatarinaGiselle овно
omg his giggle is adorable!!!!
@dante6990
3 жыл бұрын
Ikr
@icryinwalmart
2 жыл бұрын
It is! This video made my day because of his adorable laugh!
@terridemaio2926
2 жыл бұрын
Yes He's precious
@sallyjanecampos5241
2 жыл бұрын
He's to cute bless his lil heart
@mylittlestuffie8591
2 жыл бұрын
ikr
Her words knocked me out! Every parent should think this way. Jacob is a special boy with an extra special mom 😍
Jacob singing Twinkle Twinkle melted my heart what a beautiful boy inside and outside . Mom and son are very lucky to have each other
Gotta admire Chris for pushing through all the awkward moments when he wasn't sure what the songs were or what to say to Jacob. I feel like I act that way far too much. Way to go, man!
@margiebramlett7696
Жыл бұрын
He is fantastic with the children. He knows how to deal each one
A mother's love is the strongest force on the planet! ♥️
I love his hair 😁❤ Such a cute little boy :3 And yeah, music is the language we can all understand ❤
@abzd6535
3 жыл бұрын
@Gabriel Bianchi are you implying deaf people can’t enjoy music? Look up Nico DiMarco. He’s a DJ and he’s deaf. He and many other deaf people can enjoy it via the vibrations it emits through big speakers and stuff. Actually, Nico’s brother Nyle is also deaf and he won America’s Next Top Model and then went on Dancing with the Stars which he ALSO won, despite not being able to hear the songs he and his partner danced to. He could FEEL them through the floor.
Oh my goodness you are cute, Jacob. God sure knew what he was doing when he chose Jacob's mom. He knew Jacob needed someone who was patient & kind & would love him unconditionally. This really warmed my heart.
@sallyjanecampos5241
2 жыл бұрын
Mother and son look so happy
Jacob is so adorable! His giggles are too cute! And the way he hummed the song warned my heart :).
He sang that scale down perfectly in tune- music is evidently an important part his life and music therapy would have a huge impact.
@blake4604
Жыл бұрын
@Eric Huckaby you know that music therapy doesn’t equate to being a professional musician, a high class performer or a too composer, right?
@blake4604
Жыл бұрын
*top
For a 3 year old, his perception is amazing! He can obviously understand people to a huge extent, he’s Super smart
Aww he’s adorable! He deserves so much joy
@christinamurphy6938
2 жыл бұрын
He does.. he gives joy!
I like hearing from Mom that Jacob is going to write his own story....because he is the one and only...and so loved for himself.
Wonderful patient Mommy doing her best for her little son. Music is the universal medicine. Every moment is a Blessing. Let's all be kind...
This guy’s love for music has me thinking he’ll be a great musician with time. I can see him being an awesome pianist, or really any instrument. His mom is doing a great job realizing his interest in music, she should continue developing that skill of his into something amazing!
I watched this on the fourth of July, last year. A really wholesome video that needs more attention, glad comments are back!
His laugh is the cutest thing ever, he’s absolutely adorable!
What a great mom
This channel is a blessing ❤️
He’s oh so special! Mom is certainly so strong & loving. “He’s gonna write his own story.” Beautiful words. I hope the very best for this family.💙♥️
This man has such a good heart
An absolute beautiful mother, with her beautiful little boy! You both really touched not just my heart ❤ but also my soul. You both are such beautiful souls. To the mother: I hope the best for your precious little boy, with the cutest darn giggle! He is already very blessed, by just having you for his Mama! You both are in my prayers and thoughts. Cheers!
He’s so blessed to have the mother he has ❤️ they’re blessed with one another
Minus the condition. He reminds me of my own cousin Jacob at that age. He's precious and I Love his laughter. I love how well Chris's connects with these special children. It's very inspiring.
Thank you for sharing your precious son with us! He’s adorable and the mom is awesome too!! Love , love Jacob!!❤️❤️
You can see the love in the mom's eyes. Gosh this is so cute.
What a beautiful mom she is. Such depth of feeling and acceptance. Every child should have a mom like you.
@sallyjanecampos5241
2 жыл бұрын
Yes may God bless his mother,Jacob is awesome lil boy
Jacob is a wonderful boy with a lovely mom and I hope he lives a lovely happy life!!!
I hope that his family and therapists work on teaching him keep his mouth closed. That will help with controlling drooling and make chewing and swallowing easier. It seems like he will be able to speak one day, too, fingers and toes all crossed! A sweety I knew with Angelman's learned to keep her mouth closed which stopped her drooling (she also went on to learn to be self-preserving and was transferred to a group home). Sometimes it can take a long time and abundant patience, but children can learn to meet milestones. It seems like he will do well with music therapy. You go, Jacob!
What a cute kid! So loving, and a cute giggle too. His mom seems great, you can tell there’s so much love there :)
His eyes are just adorable
Hi everyone: It's so nice to see you all again on KZread. I want to meet you all one day. Take care and stay safe.
@nappingwithkitties8069
3 жыл бұрын
Hi Marleen. I'm stuck in bed with a broken back, binge watching sbsk and I've noticed you post this same comment often. I hope you are well today 🤍
@marleenninaka1303
3 жыл бұрын
@@nappingwithkitties8069 Yes I am well thank you. I'm so sorry about your broken back. I hope you feel better and please don't overdo anything. I hope you have someone who can help you. Keep me posted please and thank you.
He already made such a big process in his 3 years. He will surprise his parents much more in the next years♡
This is a wonderful mother to a wonderful boy.
Hi Jacob! Thanks for showing me the things that make you happy! When you were singing, it sounded like Oh McDonald?! You have a nice singing voice. Please tell your Mom she is wonderful Mommy (and YOU are a Wonderful Son!). maz
The song he plays at 5:28 has the melody of a Swedish Christmas carol about Saint Lucia, sung on December 13th. What a cutie of a boy, God bless!
Im in tears hearing him sing 😍😍😍 His smile and giggles are truly a joy to hear because you cant help but to giggle and smile with him ☺☺🙏🙏😍😍😍
Omg he looks like my cousin who has been told they don’t know what she has and doctors are constantly shocked each year she survives.
@brendalg4
3 жыл бұрын
Maybe her parents should contact this lady
@hyde1893
3 жыл бұрын
have they done genetic testing yet? this kid has a gene mutation, your cousin could have a mutation or a bit of genetic scrambling
The boy is sooooooo so lucky to have a loving mom......their bond is so special.......actually every mom and child bond is.....this was so satisfying video❤️
What a cutie! They should name that specific gene mutation after him.
I felt that he would become a very successful musician in the future. God give him long life 💖
Alles erdenklich Liebe und Gute für Dich lieber Jakob🥳
Omg we finally found a flaw in Chris, he hasn't carry a tune in a bucket! Lol. I'm saying that with deep love and appreciation for you Chris my guy, and genuinely with the notion that this is literally the only identifiable flaw that anyone can see.
Beautiful! She is such a loving and supportive mother and he is so sweet, true love! 💖
Awe so very cute infact absolutely precious. Jacob is so amazingly handsome. This little guy will undoubtedly grow up to be an awesome young man. I'm praying for you little cutie pie. Just keep on being amazing .
Can we get an update on him? Beautiful lil boy!
Sensible but hard to hear when mom said touching things like 'quality & not quantity' & 'inchstones vs milestones'... enjoy & savor Jacob every precious moment. Sending love & best wishes to Jacob & all your family.
I love his giggle and his hair ❤️ Jacob a very special sweet handsome boy he is very lucky to have such a extra special loving mother...His mother's loving approach is the best medicine for Jacob...!
He is precious
Imagine having something so rare that they have to make a new term for your condition. Jacob is ✨ FAMOUS ✨
Jedem Tag soll man dankbar sei fuer gesunde Kinder und enkelkinder ,,, ❤️
Jacob definitely hit the mommy jackpot!
What a precious little gem he is!!!
My goodness, what a cutie!
Love to Jacob and mother from Lebanon! Have a happy healthy life !
He is so cute,hope he is doing good.
Beautiful boy. God bless you
he’s adorable. 😫💛 the little giggles, omg.
Oh poor boy 😞 Its terrible that something like this exists. He is lucky to have such a mother who loves him without any requirements. Not everybody could make this.
@pienpien2
2 жыл бұрын
I agree.
Such a cute little boy, his little giggle makes me smile.
Sweet little guy! What a beauty he is!
What a absolutely beautiful little boy! I believe God gives these special babies to parents he knows will joyfully accept and love them for who they are and not the imperfections they may possess.
He’s so adorable ❤️
I can tell he wants to communicate 💙
He so adorable
Thank God for these videos!
He's a darlin so cute.
He's absolutely an amazing little boy God Bless
The reality is this is very sad for the family not knowing the outcome for this little boy.
Thats one sweet awesome soul God Bless him
Jacob is magical ✨💖✨
God Bless your family!
What a lovely happy beautiful little boy
Was für eine tolle Frau und tolle Mutter!!
Such a cutie💕💕💕💕wish her all the happiness with his family 💟 💟 💟 💟
God bless this wonderful family !
Jacob might enjoy "The Worms Crawl in, the Worms Crawl Out..." as a valuable and cherished addition to his repertoire. Cheers!
The laugh is so sweet 😢😊
What a sweet soul
This kid is getting raised on some really good toys he's got a cat keyboard
This is so beautiful ❤️
God bless this little boy
God bless Jacob and his family ❤️🙏
What an AMAZING mother. ❤🎉
Jacob is a survivor. Gangster at heart❤❤
❤
If the family is ok with it, it would be very informative to say what the mutation is or at least what gene it is at. This will inspire people to research it which may lead to treatment or a cure.
@daraghokane4236
Жыл бұрын
No name for it he's the only know person with it
@hershyfishman2929
Жыл бұрын
@@daraghokane4236 His condition has no name, but they did figure out what mutation caused his condition. All genes have names, and the exact mutation can also be specified by indicating the location within the gene and the change in the sequence.
He so awesome!!!
No wonder Jacob is my grandauthers best friend. He is absolutely adorable. Yes, he is extra special
Special boy, he loves to giggle all day
Jacob is going to be a music prodigy, I just know it.
Hi Jacob! I love your laugh. Twinkle is a wonderful song. I wish I could sing it with you. You have a wonderful singing voice!
wonderful mothers. 🌷😘😘
Wow this lil dude is perfectly in tune when he's singing
Viel Kraft und Liebe für ihre gemeinsame Zukunft..
Such a beautiful human sooo cute ❤🤗🥰
Get him a dish with a suction cup on the bottom. No more throwing bowl !
He is such a cutie ❤️🇨🇦
he is great! :)
God bless you, Get well soon, champ ✨💛🎀💛✨