I loved it! Started in 2018, I’m unfortunately having to come off it because it’s working a little too well and I can’t fight off infections anymore 😢. Best of luck fellow warrior!

@kickingmsass1532

3 ай бұрын

Best luck with your new medication!!

Got my first ocrevus yesterday.. same experience.. 🎉

@kickingmsass1532

2 ай бұрын

Hey good luck with everything!

Good to see ya and the family

@kickingmsass1532

Жыл бұрын

Hey brother! Hope all is well

My bod tells me it's best to just not poke the bear.😯

Glad you're okay. And your baby girl's adorable!!!

@kickingmsass1532

Жыл бұрын

Thank you!

This was so cool to see!

@crippledcannabiscowboy8925

Жыл бұрын

Didn't grow another head hahaha

I'm sure you get tons of questions - so first off thank you so much for putting all this out there. Back in November '22 I started having weird sensations in my feet. Got the MRI and lumbar - spots in my occipital lobe and frontal, with some potential plaque in my spine. December got the diagnosis of MS. Did a 3-day run of Solu-Medrol to knock it down, and then started up 3x weekly Copaxone. Just curious - why the switch? Was Copaxone not reducing your relapses? Feel free to message me directly. Either way - here's to hoping a cure comes soon - and to keep kicking MS's @$$ in the mean time!

@nightops4ever

Жыл бұрын

@@kickingmsass1532 Thanks for the heads-up. I was told to alternate legs and track using the tracker app. I've hit the muscle at least twice - switched the depth to much shallower and now have minimal reactions (slight swelling, mild rash that subsides within minutes). Hitting the muscle shouldn't negate the spot - but you might run risk of muscle damage if you repeatedly hit it. Either way, just was curious. Thanks for the heads up about the community! I joined up with the community at Mayo as well just to create some connections. You might be aware of it - but PicnicHealth is creating an MS Cohort to help people share experiences and to see if there can be a broader study done about therapies, diets, and find any patterns in slowly/stopping MS progression. Take care, and God bless.

I’m on copaxone and have been for months now no side affects except I notice I bruise a lot easier than I used to. Hope your well from the UK.

@kickingmsass1532

11 ай бұрын

That’s awesome! I’m glad it’s working for you! Keep fighting

Good to see you in good spirits. Your daughter is adorable!.. wanted to know, why did you stop your injections and from what you stated in the video, hadn't been on anything at all? Were you trying the no medication route? Stay strong 💪

@kickingmsass1532

Жыл бұрын

Thank you my daughter is the best! This is my fifth medication that I’ve tried and I wasn’t on anything for a year because I felt I had to try to see how I would feel. I got off the shots because I was having bad reactions to them like hitting the muscle and lumps under skin. I think I may have made a video about that also at some point lol. Let me know if you have anything else!

@vorikbaches

Жыл бұрын

Hopefully this infusion is the winner for you. I take the daily glatopa injections and yes I get the lumps too, but thats the most and they go away after 3 days. My Dr seems to be happy with this therapy since I didnt have any new lesions between MRI's. The only thing I'm struggling with is my energy levels but im not sure if thats from the meds, MS or life. Lol. Ill visit that when I see him again. Maybe ill try no meds eventually and see what happens. Take care yourself and your beautiful family 🤞🏻and thank you for your videos.

@kickingmsass1532

Жыл бұрын

@@vorikbaches I hope it continues to work for you and yeah energy is difficult but a good diet can help a little with it also

Did your neurologist say anything about where your b cell percentage is? Mine has hit 3% and I guess it's time to do something. That treatment is on the list along with one other. I tried to nerd it out and found that the human body resides between 10 and 20% b cell count. My neurologist said if it goes past three it could lead to a progression

@kickingmsass1532

Жыл бұрын

I haven’t been to the nuro since my first infusion, I go back in a couple weeks but I’ll let you know what he says

Why were you on glatiramer then off?

@kickingmsass1532

Жыл бұрын

I hit the muscle multiple times and I got rashes and lumps near the injection site.

How are you doing on ocrevus? Best wishes. ❤

@kickingmsass1532

7 ай бұрын

I’ve actually been off all meds for about a year now. I go for my MRIs next month and if I have no progression I will stay off meds again

@martinschultz2631

7 ай бұрын

@@kickingmsass1532 why did you chose to stay off meds? Especially ocrevus?

@kickingmsass1532

7 ай бұрын

@@martinschultz2631 I didn’t mind Ocrevus but my MRI came back with little to no progression last time so my doctor wanted to see how I would do without medication until the next MRI and I stayed on a good diet and exercise routine.

@gebuikersnaam

2 ай бұрын

@@kickingmsass1532 uhmm thats not good advice from your doctor... i work out, healthy diet and cold showers daily and i feel really good. But ocrevus gives a 80% reduction on attacjs chance bonus. So easy choice for doing both. Greetings from the Netherlands

@kickingmsass1532

2 ай бұрын

@@gebuikersnaam I appreciate your opinion and im glad everything is working well for you but I have a great MS specialist and things are going very well for me.

Are you prior military? Did you receive Anthrax “vaccines”?

@kickingmsass1532

6 ай бұрын

No Anthrax Vaccine and I’m not prior military