♿ New Wheelchair Gadgets & SmartDrive Repair! 🔧 (3/23/18)
LINKS:
Spokes Skins - www.amazon.com/gp/product/B07...
Push Rim Covers - rehadesign.com/products/wheelc...
Wheel Lights - www.amazon.com/gp/product/B07...
Wheelchair Shelf - www.advantagebag.com/collecti...
Pink Band - www.amazon.com/gp/product/B01...
Wheelchair Leash - boldleaddesigns.com/shop/quad...
Wheelchair Gloves - www.amazon.com/gp/product/B00...
NEW TO CHRONICALLY JAQUIE? START HERE!
- All About My Chronic Illnesses - • Video
- All About Harlow - • All About Harlow! 🐶
- All About My Port - • All About My Port! ♌
- All About My Infusions - • All About My Infusions! 💦
- Judd and Jaq Relationship Q&A Vlog - • Valentine's Day Relati...
--- Skip to 7:03 in the Vlog to watch the Relationship Q&A section!
- “New Here” Playlist - • New to Chronically Jaq...
YESTERDAY’S VLOG - • AFOs: Final Adjustment...
MY PATREON PAGE - / chronicallyjaquie
LIKE WHAT YOU SEE?
- VogMask - www.vogmask.com/
--- I wear the mask due to my Angioedema and Immunodeficiency, it filters allergens and germs. Learn more in my “All About My Chronic Illnesses” video!
- Infusion/Feeding Tube Backpack (Use the code “Chronically Jaquie” for 10% off. I had mine professionally tailored by a seamstress to accommodate my feeding tube.) - vibedration.com/
- For more info on raw diets visit Janiece’s Channel - / @therawlife1
- Primary Camera (Canon G7 X Mark II) - shop.usa.canon.com/shop/en/ca...
- Secondary Camera (Canon SX620) - shop.usa.canon.com/shop/en/ca...
- My Editing Software (Filmora) - filmora.wondershare.com/
NEED MORE CHRONIC ILLNESS OR SERVICE DOG INFO?
- Chronic Illness Support Playlist - • Packing For the Hospit...
- Service Dog Support Playlist - • Service Dog Support
- Training Tutorial Playlist - • Training Tutorials
- Feeding Tube Playlist - • Feeding Tube/Gastropar...
- Custom Wheelchair Playlist - • Custom Wheelchair Play...
- Pain Management Playlist - • New Adjustable Bed for...
- Other Helpful Playlists - / @chronicallyjaquie
CONTRIBUTE CLOSED CAPTIONING/TRANSLATIONS!
Help me make my videos more accessible by contributing closed captioning or translations! kzread.info_cs_p...
FOLLOW US!
- My Instagram - / chronically_jaquie
- Harlow's Instagram - / helper_dog_harlow
My Patron Executive Producers: Karen Ratcliff, Elizabeth Smith & Phillip Casey!
Пікірлер: 253
Your wheelchair looks cool, with the colour 👍🫶
I'm so glad you asked Harlow what she thought about your wheelchair. She was hovering and wanted attention,. Sweet puppy. I'm not as big of a fan of pink like you are, but I think the pink and purple on your wheelchair looks AWESOME! I'm glad there are accessories that allow you to have some fun and color.
Loving the personalization you've done to your wheelchair!
I don’t comment on videos I watch very often. I just don’t feel the need to at times because not many youtubers reply to the comments if you take the time to type a comment, so I guess that’s just why I don’t comment. But I have been subscribed for you for a few months... and I absolutely love your videos so much because it shows that your not fake, you don’t sugarcoat things, etc. I’m 16, but I have a shunt in my head because I had hydrocephalus as a baby, which caused me to have Cerebal Palsy. I don’t have it as bad as others, even though I’m 90% independent there are a few things I cannot do. I love to watch your videos because it gives me inspiration that I can do anything! Even though I do understand what it’s like to have a disability and have your “off” days!! I get headaches when the weather changes to fast, I get super nauseous often, etc I still struggle sometimes and want to give up but your one of the vloggers that give me motivation ❤️❤️
@ChronicallyJaquie
6 жыл бұрын
I'm so happy to have your support here! I also try to get back to comments but some days it is tricky. Keep being awesome!
@VulcanOnWheels
6 жыл бұрын
I had hydrocephalus as a baby too. I actually still have a drain behind my left ear.
@savannahmarano4552
6 жыл бұрын
Chronically Jaquie ❤️❤️ I completely understand it is very hard at times!!
@Bananas904
6 жыл бұрын
My shunt is behind my right ear.
@fridab1952
6 жыл бұрын
OfficiallySavannah I had Hydrocephalus as a baby, never got a shunt so doctors still say I have Hydrocephalus! Last time I got super bad headache doctor put a 💉 into my spine to drain out fluid while I was awake!
I absolutely LOVE all of your wheelchair accessories!! ♡
@gordenwood7853
6 жыл бұрын
FunsizedStyle That is a bright wheelchair she'll never get lost in the fog or crowd.
@williamodonovan5490
5 жыл бұрын
Cool wheelchair stuff I,m a wheelchair break-dancer
@marlonwatson3588
2 жыл бұрын
instablaster
Pink spokes !! Made the chair look so different ! Love it
Glad I saw this instead of spray painting.
Your wheelchair is looking pretty snazzy now I love it
I like that you leave your mistakes in. It makes you seem more human!! Hope you feel better.
Miss you Jaquie 💔
I'm in a wheelchair also and I use straws from the dollar store instead of spoke skins. It's just a cheaper way to decorate.
@ameliabediliaa
4 жыл бұрын
Mcz Bows that's super smart!! Might use that
I am in love with ur new wheelchair gadgets Jaquie!! It really adds a pop to ur chair that shows ur personality ☺️
I just got home from a trip to Tampa. I missed this video because it was posted on my birthday and I was out all day on the beach. Just wanted to let you know, you are my inspiration. I have had terrible stomach aches for about a year now. I’ve lost 15-20 pounds from appetite loss and finally told my doctor about it. I never would’ve done it if u hadn’t watched your videos. Thank you ❤️
My wheelchair colors are black and red. My chair is black, and my wheels are SPOX, with red spokes. My push rims are getting scratched and nicked so I was happy you shared links to the rubber push rim covers and I ordered red covers and a red watch band for my push tracker. I haven't received the push rim covers yet, but did receive the watch band and it was super easy to install. Thanks for all the links. '
congrats on 100,000 subscribers!!! so happy that i can say i was here when you only had 1,000. love you!!
You’re so strong! Love you and Harlow! { p.s You have AMAZING new accessories for your wheelchair! }
My gosh, you were very productive even though you weren’t feeling well! Good job, Jacquie.
I’m new to your channel, it breaks my heart to see you hurting, but I also see you’re a fight, I have a transgender daughter whom is in a wheelchair and you are definitely an inspiration. I just want to let you know that you are greatly appreciated and loved by many people, myself included. I will be following you and I will tell my daughter about your channel. May God continue to bless you and your family.
Keep staying strong jaquie. Love your chair so much
Pimp My Ride! LoL It looks FABULOUS!!!
Rip jaquie sleep tight warrior
@Youtube08T
4 жыл бұрын
angels _up_in_heavenxx I’m literally crying rn I miss her videos and her 😢🥺
Your chair looks amaizing. I am praying for you as always and hope you get to feeling better soom.
Thanks for the links to the gadgets. You helped me find stuff I didn't know I wanted. :)
Omg Jaquie you're so inspirational! Keep moving forward! 🤛👍💪
I have chronic pain and have not been able to walk for 4 years. I went to my pain management dr. There finally going to help me. I’m going to get a stimulator and a pain pump. I’m hoping it will let me walk again. My husband pushes me in a manual wheelchair which doesn’t get me much life because I have to depend on him to take me places. I think a power wheelchair would be better so I can go where I want when we go shopping. But there quite expensive. It would be good if my wheelchair could expand to reach the counter where I could help cook. I miss doing things like that. But it’s not easy when you constantly hurt. Just hoping in the next few months I get some quality of life back.
Oohhh by the way love the pink and purple on the wheel chair !!!! 🍇
You could see how much you picked up in this vlog. You are great keep up the amazing work if you can x
Your chair looks so happy and colorful! 💖
I'm a 33 y/o man and my daughters picked me this lovely hot sparkle pink color that I'm now rocking and I really like it lol went with green anodizing on the casters and now looking for pink tires lol also got the smart drive with this chair and love it!
@Todd_G_FPV
3 жыл бұрын
Put blue led lights under mine from the battery operated Christmas lights at Walmart lol
@Thatclimbingirl
Жыл бұрын
She died in 2019
I love you and your dog you are the best KZread I really want to meet you
I love the wheelchair!!! This whole week has been a bad P.O.Ts week for me and I have passed out too many times😭 but your videos cheer me up and remind me that all of us P.O.Tsies fight together!
Love how your chair worked out
Hello from Lithuania 🇱🇹 your wheelchair looks amazing love you ❤️
Thank you for your channel I am a new wheelchair user and I found lots of useful information.
Cool wheelchair
Your wheelchair looks so very cool. Gives me inspiration to decorate my walker. So glad you hopefully got your Smartdrive fixed & the new bracket works a lot better. I really hope the 100k live show is earlier than later, then I will be able to see it. If it’s 2pm there, it’s 3.30am here. I’m usually still awake by then & finally fall asleep between 4-6am.
@ChronicallyJaquie
6 жыл бұрын
I think it's a great idea to personalize our medical tools if it will make us happy! We have not yet determined the start time but the stream will be saved so you may rewatch it (:
@Angie-in1tt
6 жыл бұрын
Chronically Jaquie I agree, it takes away the “metal” look. I also think it changes the way other people look at them & hopefully changes their perception of who is using those tools. That’s good about the live stream.
You're a trooper! I hope your wheelchair works well now 😄
Wow I did not know these accessories existed! That would save me spending lots on fancy wheels. I'm in Europe too so it's good to know I don't necessarily have to order from America which could cost lots in postage and taxes!
Your wheelchair looks awesome. Once again congrats on 100k subscribers. Can't wait for your live stream.
Hey there, thank you so much for being there! I got connected because of your smart drive vlog, and also your service dog Harlow! You go girl, keep it going!
@Ishdue
2 жыл бұрын
She sadly passed away in 2019. Miss her dearly.
The live stream is one of the best bday presents ever
Love your videos!
I really like how your wheelchair looks now! 😁
Wheelchair looks awesome
I love that your dog is trying to sooth your rough spots!!
@Thatclimbingirl
Жыл бұрын
She died in 2019
Love the wheelchair gadgets, the wheels look cool. Great job on the meals for Judd they certainly look tasty
I'M SO EXCITED FOR YOUR LIVESTREAMMMMM AHHHH 😁😍😁🤓
I LOVE your videos sooooo much. I have a rare disease called Friedreichs Ataxia and it isn't easy. But you inspired me to live...And start my own KZread channel. Thank you Jaquie xoxo
I’m so sorry that you had such a rough Friday xxxxx
With Harlow standing behind...Harlow looks about the way you describe the way you feel! Poor babies!
the wheelchair looks really cool!
@ChronicallyJaquie
6 жыл бұрын
Thank you! :D
That chair stuff is so cute! I hope they can fix your SmartDrive!
some lime green would look amazing with both the pink and purple, and black!
I LOVE your wheel chair! Omg I’m jelly!!!!!
I wanted to let you know how much I’ve used your wheelchair videos. My mobility specialist and I even referred to your videos when making my own choices. Unfortunately the VA won’t pay for the smartdrive, but they are getting the twion wheels like you originally had. Thank you fellow zebra, hope you’re doing better.
Jaquie, you are such a strong person. I found your channel a few weeks ago and now I watch your videos every day. Keep up the good work!
I'm starting the process to get a custom wheelchair and I am so excited! I know it'll take a while, but I know it will be well worth the wait! :)
@TORITHEGUMMYBEAR
6 жыл бұрын
I'll have to look into getting wheel covers as well!
@ChronicallyJaquie
6 жыл бұрын
Best of luck to you!
@TORITHEGUMMYBEAR
6 жыл бұрын
Thanks Jaquie!
@ZoshaFaithVlogs
6 жыл бұрын
That is so cool getting a custom wheelchair! Good luck Tori!
@sabrinanicolesanez
5 жыл бұрын
How do u go about getting one? Did ur Insurance cover it? I have Medicare and I think they only cover standard sizes and i need it custom to fit me and my home
I ordered the exact same ones yep we had to sign for the package from Lithuania lol. They are awesome but get grey from grime quickly. So a quick wash helps
Hippo is soooo cute when she's near u and her face is too adorably cute
I have a question, how does Harlow react when he sees that you're not feeling well such as vomiting?
Hope you feel better soon
Ah I just ordered red ones for my chair I’m well excited!!!
You look good on this video hun and your pup is very sweet..
Harlow is so cute! 🐶🐶🐶
pink is the best color!!
If you have trouble with nausea you might consider trying candied ginger. I know it works for motion sickness, and my wife has frequent nausea due to medications she is on and sometimes her anti-nausea meds don't work but ginger does.
Yea for the colour pink. It’s cool those spoke things are so easy to take off and put on, if you get bored with the colour you can swap or mix them up. Putting the grip thing on reminds me of washing my steering wheel cover for my car. Took me like 15 minutes to get it back on. Lol.
Never heard of the honey thing. I’ll have to try it. Thanks!
I love Teal and purple together or Teal and Pink!
nice video, thx for it
Just got watch this on way to Jehovah kindom hall to Atlanta ga watching this can be live I miss this video yesterday I just saw it on my KZread hi to u hope you get feeling better soon keep moving forward hi juqie and jude and pup hardlow I will try to upload a video today
Oh yum those meals look awesome!
Beautiful wheelchair!!! 😍 Of course you need a decked out wheelchair!
Much respect......
looks amazing
Simply love your wheelchair. I was pleased to find out your Smartdrive and tracker is available in my country, Australia. You will like this, the custom built wheelchair which is the T5 Ultra, is called The Jaq, downunder. I don't think that is a coincidence. I have currently got an offer enquiry in for pricing. Unlike the States, it will probably be all on us for the cost, even though we have private health and to date, I have never claimed any assistance for mobility devices. Thank you so much for sharing the information on your chair. Without you, I wouldn't have known it existed.
I don’t know if u can do it with the wheels you have, but have you looked at “natural fit”/“natural fit Lt” rims? These are ergonomic push rims-they are brilliant for us that fatigue, but also most importantly, those of us that have hand issues-it makes it easier to push, cause the rims fit the hand better-more motion from each push! Highly recommended!!!!
Hey, the same thing was happening to my smart drive. Tighten the screw but also check the rubber ring on the inside of the mount. Replacing that fixed the problem :)
I love the wheelchair accessories I am buying everyone of them
I have just found your videos and I found this one enlightening because I have Cerebral palsy and my left hand has a hard time gripping the wheel so I ordered rim covers from a different place though so I am just letting you know that this video was informative to me because of that really but I am now a subscriber to your channel And I find these videos informative and entertaining as well
I dream of having a wheelchair like yours 😍😍it was great
@Thatclimbingirl
Жыл бұрын
She died in 2019
It's just wonderfull, and your food seems really good. :) from France
I love the pink jauquie
Miss her
Jacquie i love your Wheelchair I wish my Wheelchair was pink , but know make my better & add helpful tools to make more helpful & pink Thank you for Teaching us & i like all show us Goodnight Love Prayers God Bless 💪👍🌸💕🐾🙏🙏🙏
@ZoshaFaithVlogs
6 жыл бұрын
It's so cool right?! I wish mine was too!
I've missed you Jackie!!!!I have been in the Hospital for 3 weeks, oddly enough i started to have medical issues.
Fancy wheelchair!!
Jacque have you looked at flex rims. I love mine and it’s not only easier to push but less finger dislocations.
I love the new wheel some covers and group bar cover. They look sooo good and definitely will look awesome after you get the replacement string of lights for the other wheel. Btw that food looks so good. Your coming always makes me hungry which is a rare thing for me lol
This is my favorite thumbnail ever 💘💘💘💘💘
I think it is awesome that Hippo knows when u r having a extra rough day, so can't stand to be any distance from you. I often can tell how u r doing b4 u say anything based on how she is acting with u.
Hi Jacquie, we really appreciate the honesty that your videos provide but if you don't feel well enough to film, please don't push yourself too much or overdo it! By the way, I have my rental chair this weekend (TiLite w/ Smart Drive) and had my home assessment on Friday! My chair will be ocean blue metallic with blue spokes!
Your wheelchair looks so cute! As someone considering a wheelchair for the future, I was wondering why you chose smartdrive on a manual chair instead of a power chair with a joystick? Was it an insurance problem? Sending love and prayers your way while you recover after your G Tube nightmare!
@ChronicallyJaquie
6 жыл бұрын
I wanted to remain as active as possible, so I wanted manual. But could not propel well, so power assist was a great compromise. We also had no vehicle to accommodate the electric WC plus I feel more flexible with travel with a manual. Personal reasons, and everyone is different (:
@honeypotsandstripes6910
6 жыл бұрын
Chronically Jaquie Oh, that makes a lot of sense! I guess I forget to remind myself that everyone is different. My team and I talked about electric chairs because my shoulders so frequently sublux and dislocate but they're expensive. So I guess I got a little caught up in "Well if other people can, why can't i..." but we have to listen to our bodies! I do think that was a good compromise, thanks so much for the very helpful response! I'm so happy your chair works for you! Another tool in the tool belt :D
@TuggerAbbey
6 жыл бұрын
That is what I want because I am too weak to get a power chair out of my car and I cannot accommodate a lift on my Prius. I hope to get one like yours. I have the service dog organization coming for my home check today and I am overdoing it and know I will regret it tomorrow!
@ZoshaFaithVlogs
6 жыл бұрын
I am considering wheelchair too, so I am glad you asked this. Thank you!
@honeypotsandstripes6910
6 жыл бұрын
Yvonne Kass good luck with your home check!!
Ever thought putting a camera on Harlow. Puppy cam 🐶📹🐶
From a curious point of view, have you considered doing gastric drainage/venting via an NG tube and bag. It might help with the 'stomach acid build up/exit swiftly issue' until you get to the point where you are healed enough to the point where you could reconsider whether to redo the gastric button thing or not. Apparently this is something you could do yourself at home without medical intervention (potentially and theoretically!).
2:21 Sounds like a good thing to keep in mind. 4:28 I've never heard of them. 4:37 Nothing new there. :)
The wheelchair shelf looks pretty handy. It looks like it would be a great place for my 9mm protector. I clicked the link but there's nothing there.
I have a wheel chair cause my legs are parilized and it's only blue so thanks to you I can decerate my wheel chair yay I'm going to tell my mom to bye them
Look at AGIAX WAVE! There is a nice wheelchair light!
You mentioned the honey for cutting the acidic taste in your mouth. In that vein I would like to suggest citrus for the nausea. Don't eat it, but I've found that when my nausea is a problem sniffing/smelling citrus helps a lot to curb the dry heaving and general nausea. Really bright smelling citrus works for me (lime doesn't, though). Just cut it into quarters or eigths and leave the skin on. If you opt for lemon or lime, with some pressure roll the whole fruit on ther counter a few times to release the oils. You can do it to oranges and grapefruit, too.
@ChronicallyJaquie
6 жыл бұрын
I actually smell alcohol swabs or lavender! I prefer the lavender obviously lol. We do not have citrus in the home because the texture bothers my SPD a lot... But smelling lavender helps me a tiny bit (: