Doctors who tell you it's all in your head before you actually get diagnosed should be fired for malpractice. I am SO sick of being shrugged off so they can say they saw a patient and put in the least amount of time and effort.

@tammylayfield6288

2 жыл бұрын

chemtrails!!

@AckunaFritatta

2 жыл бұрын

So frustrating and sad

@erichred2858

2 жыл бұрын

Technically, all illness can stem from thought itself. You can worry or think you have something so much, your body produces it. Placebo effect... Negative and positive.

@erichred2858

2 жыл бұрын

@@tammylayfield6288 jabs? I have strong evidence chem traiIs have been happening before human flight. Going back thousands of years. They are in bible! Deuteronomy 28:24 The LORD shall make the rain of thy land powder and dust: from heaven shall it come down upon thee, until thou be destroyed. Amos 4:7 And also I have withholden the rain from you, when there were yet three months to the harvest: and I caused it to rain upon one city, and caused it not to rain upon another city: one piece was rained upon, and the piece whereupon it rained not withered.

@NinmahMa

2 жыл бұрын

@@erichred2858 oh Eric, you are a superstar. I think you are right on top of the target.

I'm in the U.S.. My 29yo daughter died in january. She had all of these symptoms, no diagnosis and was treated like she didn't matter. Boston University is studying her brain now. It's so frustrating that doctors don't bother to listen to patients

@SunshineSurfsup1

2 жыл бұрын

My heart feels for you ❤️

@myyoutubechannel3161

Жыл бұрын

My condolences to your family. May God be with you and your loved ones 🙏

@Monk-eee

Жыл бұрын

wow ........ I'm so sorry this really hurts to read, I can't imagine your struggle just for some answers....

@bunnyboonot4u

4 ай бұрын

My heart goes out to to you, the pain of losing someone is heartbreaking enough 💔

@turtleanton6539

3 ай бұрын

Indeed

"I don't panic." If it was her child I think she would. How sad for these people and their families.

@CappyMoon369

2 жыл бұрын

@WVWoman the criminals running this country of CanaaDay(nites) could care less about their kids much less ours

@ParsianTV

2 жыл бұрын

I am sorry but her job is not to panic, her job is to stay objective. Any person in that position should be objective and follow evidence.

@dannycasey8261

2 жыл бұрын

@@ParsianTV I'm sorry you feel that way in your heart.

@dannycasey8261

2 жыл бұрын

@@ParsianTV She was so much less than panicked. She seemed unconcerned to me.

@LS-ys8nr

2 жыл бұрын

You should learn to read between the lines when it comes to the media. The way the interviewer worded that question and the way that clip was edited is manipulative. Just because she doesn’t panic doesn’t mean she’s unconcerned. Panicking, in most situations, only makes things worse.

You see this is what ""they"" do.. They picked out one of the people who is suffering with similar symptoms and they discredit the ''whole'' group all because one person was diagnosed with something different!! Does anyone NOT see this???

@jazzeeeecrock

2 жыл бұрын

You can't trust the government OR the media as they are whole. It's unfortunate.

@julielea8344

2 жыл бұрын

That Dr was lying, did you see her blink rate go up like crazy? Same with the politician. And she said "Anxiety can bring on these symptoms"....that is BLATANTLY untrue, it's normal to be anxious under the circumstances, & it doesn't affect the way you walk, that is neurological, my X husband died of MS last month, & I have suffered from neurological issues & been told it was anxiety. The lady above said her son was diagnosed with Autism & her husband began hallicinating, & it was parasites. That man Luke said he felt something crawling under his skin, I read about a parasite that does that & causes neurological issues & kills you....I think that's what these people have, there is more than one parasite that affects the brain.

@memaw197

2 жыл бұрын

Yes

@emm8357

2 жыл бұрын

‘They’? Who are ‘they’? If you’ve got a valid theory, don’t cloak it in mysterious language that’s hard to take seriously.

@davida.o.w.lothringenvonwi7820

2 жыл бұрын

the doctor laying big time,,, I'm a doctor i see exactly what happening/// a disgrace

When will people wake up and realize the gov doesn't have your best interests at heart?

@ShomieNZ8223

2 жыл бұрын

Main stream media puppets ..too lazy to research

@ronehouse4317

2 жыл бұрын

Right they not asking about the covid shot or flu shots at all

@catherinegrace2366

2 жыл бұрын

Right? Good cripes

@a.walters123

2 жыл бұрын

The government can’t have our best interests at heart because it has NO heart 😒

@Myeyesareopen8

2 жыл бұрын

As MJ said " they don't care about us"

The government of New Brunswick is choosing business and boosterism over the public good. This is very concerning...and depressing.

@Jeremiah13tears

2 жыл бұрын

You stole my thunder.

@susandevoe6002

2 жыл бұрын

I'll bet it's environmental, like some issues going on re plastics, etc., OR something being passed to ppl from insects, like malaria & lime disease. The interesting thing is the number of patients keep growing & growing -- or are more ppl just being properly diagnosed in the last 2-3 yrs??? Lotsa questions. The gov't. is horrible, and the bureaucrats seem v. smug, to be downplaying this disease, when they should be getting on top of it as much as possible, especially bec it seems to be spreading. Also, a pox on cheap bureaucrats & their assinine decisions, generally, for OTHER ppl, & esp. those so obviously seriously ill, & dying. We don't need another gov't. committee; we need to see some real action here, especially to support this neuro dr. who is identifying the patients & who at least seems to be really trying to help ppl. Some ego may be involved with this dr., to be the discoverer of some new neuro disease, but I think that is in a back seat re this particular neuro dr. -- he seems genuine. And they need to make sure this disease doesn't spread across the whole country, for some reason, esp. after all the awfulness of Covid for all of us. Also, it may not hv shown up elsewhere in Canada YET. And I really feel for the girl who can't skate anymore -- and she's so young!! She was really very good, & obviously so enjoyed the sport.

@rps1689

2 жыл бұрын

Same old same old NB.

@ronehouse4317

2 жыл бұрын

Them pushing their agenda... why didn't this guy once ask about covid??? Or the vax status... i think he is trying to bury the real cause bere

@FunnyFille

2 жыл бұрын

@@susandevoe6002 Some neurologists in NB believe it’s caused by high manganese levels in the water. The symptoms fit.

It absolutely amazes me that the first I've heard of this illness has come from watching this video. The medical system should be throwing everything they've got into research and developing treatments instead of seemingly attempting to cover it up.

@lynn6799

2 жыл бұрын

With the paranoia around covid, you would think this would be a major headline. Yet I'm seeing comments about similar outbreaks in other areas. And this video is the first I've heard of any of this. It's disturbing to know that no one who should be trying to investigate this isn't interested and isn't trying to find what is causing it. There's bound to be something in the food, water, air... something that builds up in your system until it flips a switch. Hard to believe that it would be a genetic disorder.

@wandarask8444

2 жыл бұрын

It's all really sad who knows what is going into our water food, clothing, cleaning products and out side our homes it's all plastic clothing, cups, plates, bed sheets, they call it polyester. ,, even our food is wrapped in plastic. I just hope all the people heal swiftly. Bless you all. Love Australia.

@moonraker7381

2 жыл бұрын

With very few suffering for this and no answers to give just yet, putting out some public health warning would only cause unnecessary panic. Especially in the middle of a pandemic.

@petersieben8560

2 жыл бұрын

Maybe if you know that higgs is a puppet of his former and now employer the j.d.irving family, who owns the media and the political as well as economical scene here in n.b., you understand why .... Ups, i forgot to mention that all taxpayers in n.b. pay for the excessive overuse of chemicals like glyphosate and neonikotinoids, sprayed by those irvings .....

@Tara........

2 жыл бұрын

@@petersieben8560 I had no idea about any of that.

As someone in public health, I always think about bacteria in environment with neurotoxicity esp. as some are found in fish and can’t be killed by cooking or freezing or another toxin that can build up in the body or affect ppl w/ sensitivity or predilection to certain types of illnesses. I remind everyone to be their own biggest advocate and never stop asking questions/getting explanations…if a doctor or psych tells you nothing is wrong go to another and another

@rps1689

2 жыл бұрын

Good luck with that in NB; access to primary healthcare is bad here.

@yvettebrand2034

2 жыл бұрын

I wonder if this will blow up in the next cpl years?😳

@jaderavenwolf6137

2 жыл бұрын

as a doctor ret. i have to agree

@NoriaMarieBeauTeyMafia

2 жыл бұрын

@@jaderavenwolf6137 Have you ever heard about putting your body in a homeostasis state. When my son was diagnosed with autism at the age 6yr and intellectual behavior. On days his behavior will be outrageous and that trigger me to stop and slap myself to check my mom skills fully. What was I lacking for my child to misbehaved to the extreme...when he's normally calm and settled. So I went thru everything in a microbiology sense of mind on anything that can affect my child's behavior. Intake and outake, water, diet, exercise, sleep,social and emotional health, oral hygiene, physical health, and spiritual health. Most of the time was deficiency of vegetables and fish omega 369, fiber, probiotic...totally flip my child into calm and settled child again. He has a history of a gastrointestinal issue of excessive stool even when given stool softener. So the Sam thing occurred with my husband who has a gastrointestinal problem of Gerd and history of h pylori. And recently had a mental health problem where he started hallucinations. I flipped that homeostasis therapy into gear to decrease his symptoms. And I found to realize it's parasites. My good friend Woodward TV just touched on this subject: #watch 👀 kzread.info/dash/bejne/aWp_lMOGXbzReJM.html

@julielea8344

2 жыл бұрын

@@NoriaMarieBeauTeyMafia I was thinking parasite with the neurological symptoms, & the brain affected leading to death, & Luke said he felt something crawling under his skin, this can be a neurological symptom, but it's rare, it's much more likely to be a parasite. The Dr who dx him was lying, she didn't want to look bad on TV. Anxiety does NOT cause neurological symptoms such as what he was experiencing, & her blink rate went through the roof, like the politician, indicating they were both lying. Much Love

Private investigation doctors to trace metals in the water, chemicals in the air, certain compounds on food these people consumed prior to the symptoms starts. Maybe testing their hair samples would bring a common contaminant that caused it. They must have something in common.

@TrudiTrahanupchanOKRA

2 жыл бұрын

My first attack was 1947 - 80 and still fighting. I was lucky in that I got help from Americans when no one in Canada cared. Hundreds of thousands of victims in Canada coast to coast are all being treated the same but they remain "invisible" because media refused to publish their stories.

@davewoode3209

2 жыл бұрын

my thoughts exactly, i wonder if anyone is looking at this like a detective would. commonalities,

@Larindarr

2 жыл бұрын

even genetic predispositions, blood type etc.

@judithdonnelly8824

2 жыл бұрын

@@Larindarr Exactly!!

@complimentary_voucher

2 жыл бұрын

They actually DONT have to have anything in common. Their symptoms aren't especially related or even that similar. If you poke into neurological conditions, you'll find that out, but most people know next to nothing about them. Not denigrating these people or denying what they feel, but there's literally nothing here to link them, at all.

Shame on the government and the crooked doctors!

To all the families effectived by this unknown illness. Know that the country supports you in finding whatever solace, closure or answers you need, as to why this happened.

I suffered a hemorrhagic stroke and until the brain scan showed it, I was largely ignored by all. I realized the studies of the brain are basically unknown.

@rajs7876

2 жыл бұрын

They think by 2100 we might know 1% of what the brain does. Top neuroscientist in the US.

@Flaubert

2 жыл бұрын

I hope you are doing fine

@kimhendersonfowler2918

2 жыл бұрын

@@Flaubert I 🙏 pray I get better. Seems like they need to research outside New Brunswick tho.

@christopherstimpson6540

2 жыл бұрын

@@Flaubert Doing much better now. Thanks for asking.

There is an alarming uptick in the number of people dealing with autoimmune diseases and neurological illnesses. I have 3 daughters all in their 40s and so many of their friends snd acquaintances in that age group are riddled with these types of diseases, that’s why I’ve noticed. A generation of people.

@larrygrecko921

2 жыл бұрын

I think it’s the chemical companies... the ones who got away with all that toxic pollution from the factories in the 1980’s etc. That Teflon is terrible, and the forever chemicals. It’s horrible.

@pinlight97

2 жыл бұрын

(Raises hand)-> agreed! I grew up downwind from an incinerator, not too far from lands contaminated after WWII with radioactive remnants, very polluted lake water, etc. In Toronto area. Yes, have an autoimmune condition. Even more ground-level pollutants now with traffic, etc. Add onto that lesser thought considerations such as sleep deprivation from noise/light pollution, residual toxins in food plastics….there are lots of possibilities.

@astrobouncer487

2 жыл бұрын

I agree look up the documentary dark waters it is scary.

@wandarask8444

2 жыл бұрын

@@larrygrecko921 So true about Teflon There's so much plastic in our homes cups plates, clothing, bed sheets towels even our food is wrapped in plastic. Let alone all the chemicals we use inside our homes The list goes on and on I do hope The people heal swiftly. Love Australia xxx

@frenchonion4595

2 жыл бұрын

@@larrygrecko921 It's most likely the pesticides put on food. Bee's display hive disorder from pesticides probably does the same thing to human's just takes longer

I feel for her! Living in the U.S. and having similar problems here they just diagnose you with “Fibromyalgia” as a passive excuse lol

@Kuulei265

2 жыл бұрын

Fibromyalgia is a “junk” diagnosis. Really it is. It is an excuse to get you out of THEIR office into “Pain Management.” Pain Management can only give you Neurontin or some other Gabapentin based medication. They DO NOT work over a long period of time. So, GO to a Rheumatoidologist. After 14 YEARS of thinking I had Fibromyalgia, and it got worse, believe me, the Rhematoidologist told me I DID NOT have FIbromyalgia. Now I just have “Chronic Pain Syndrome.” Believe me when my nerves BURN it’s ALL over my body. They link it to the Shingles I had.

@marcus3060

2 жыл бұрын

@@Kuulei265 feel you on that defo just a guess but do you live in UK as this is what is offered to me

@Kuulei265

2 жыл бұрын

@@marcus3060 No I live in the USA. I just cannot understand WHY my nerves are burning like this. Sometimes just the breeze from the wind can trigger it. Clothes touching me on my back. It’s awful believe me. Only Prayer has helped.

@marcus3060

2 жыл бұрын

@@Kuulei265 shame sound so like my aunt we both live in scotland shes had shingles 3x lupus and fibromyalgia sure a few more diagnoses. I pray all the time and will for you if thats ok

@NatashaOB

2 жыл бұрын

@@Kuulei265 sounds awful and painful. I am in a situation as well in Canada with horrible symptoms and no answers It’s awful. Prayers to you

Don’t play politics with human life Transparency is the only answer Stop the political bs Don’t shut out scientists that could provide answers

This story reminds me a lot of the illness at Chesapeake Bay where a bacteria was connected to brain illness from animal waste runoff into the bay. This was 20 years ago but sounds very similar.

@albertawheat6832

Жыл бұрын

Or something people are eating from the store, deemed safe...

@lisaharrison5274

11 ай бұрын

I saw that story not to long ago and I agree with your thoughts on this story sounding so alike.✌️✌️😊

@JennyEkberg

8 ай бұрын

Thanks for this comment. I did not know about those cases. I am very interested because I work with microbial infections of the CNS, particularly seemingly "silent" ones which cause symptoms over a long time. Some of these can enter the brain via nerves from the nose. I also know what it is like to have a "mystery illness" - i am very happy that I finally got a diagnosis at age 44 last year (in my case an autoimmune disease, ankylosing spondylitis).

my niece is suffering something weird like this she has been seeing a neurologist 2 years now but they cant figure out what is causing her symptoms she lives in Moncton, she was randomly passing out she complains of fog brain, she recently had a stroke and they still don't know what's wrong with her. very concerned now that i have watched this.

@abelis644

2 жыл бұрын

I'm so sorry, poor girl! Take good care of yourself and be safe. Isabelle Victoria British Columbia

@epizzle9232

2 жыл бұрын

Please reach out to this dr and tell them about what’s going on

@MonaLisa-lu8zi

2 жыл бұрын

Mostly since C-19. 🤔

@velvetwilliamson8858

2 жыл бұрын

Did she ever have a flu shot? They've been putting all kinds of things in them for years. Mercury (they changed the name to thimeresol so you wouldn't know mercury is in there) being a big one which affects the brain.

@carolyngaletti2415

2 жыл бұрын

For the woman in Moncton I think it's More Than likely it's Blue Algae and the Irresponsible way Man has Treated Our Planet. And unfortunately More people will get sick. I'm sorry for your niece and Prayers you're Way. It's absolutely not Okay to Stop the Scientist.GOD BLESS AND YOUR NIECE AND THE PEOPLE IF NEW BRUNSWICK AND AROUND THE WORLD WHIM MAY BE SUFFERING FROM THIS BLUE ALGAE CAUSED BY ENVIRONMENTAL IRRESPONSIBILITY.

Don't forget that Agent Orange was used in New Brunswick to get rid of Bud worms. ( I miss my home Province.)

@GimmeOo-mox

2 жыл бұрын

Agent Orange was a derivative of the Tuskegee experiments. They knew they couldn't keep testing without drawing attention so they relabeled it and sold it to Canada and then sat back and watched.

@fionamcgrath8982

2 жыл бұрын

There is a treatment for agent orange. A man I worked with had been exposed while in the Australian Army working in a unit attached to US special forces in the Vietnam war. He was sent to a great doctor who tried for years many different things until one day he tried something that made it go away and it never returned. Not one symptom since.

@judithdonnelly8824

2 жыл бұрын

@@fionamcgrath8982 So?? Why even bother saying it if you won't bother to either to say what it is or say where a person can find it!!

@blessed7fold583

2 жыл бұрын

Sounds right to me!! I know two men, both veterans in USA, both victims of Agent Orange in Vietnam. One has 3rd stage Parkinson's Disease, the other has Prostate Cancer and had 5x heart bypass surgery.

@jeremyjames2643

2 жыл бұрын

@@blessed7fold583 mom is Vietnamese alot of neurological diseases popped up after the war due to agent orange I myself have epilepsy I hear it’s common there

The medical community doesn't like to appear to not understand what's going on.

@tammylayfield6288

2 жыл бұрын

theyre getting paid not to!!

@cathietonkin5577

2 жыл бұрын

They get pad by the government ‘not’ to tell! Just my opinion!

She's not alarmed because it's not her mother her father her daughter.

@kathieoray2990

2 жыл бұрын

She reminded me of the Mayor in the original Jaws movie when the Police Chief told him he had to close the beaches because of the deaths of swimmers from shark attacks. His response was classic "We rely on tourism here, we can't be seen as though we have a shark problem". Nope, nothing to see here folks, sweep, sweep, sweep. Nope, no problem at all. 🙄

@gerikelly

2 жыл бұрын

or herself.

I had the same symptoms and was never diagnosed with anything but depression and anxiety and I suffered through high school and all my 20s and my life was ruined but I slowly got better on my late 20s and am just getting back on my feet. It's horrible when nobody knows what's going on and there are no answers and they think you're lying or being lazy or just not trying hard enough. This made me lose faith in the American Medical System... Still till this day my mother says it's time to move on not to think of the past but it's not that easy when you struggled for most of your life with barely any support or compassion 😭

@igardening1493

2 жыл бұрын

God Bless you Golden Child I am so sorry you suffered all those years. You are a stronger person and maybe you can help others get through their pain and find hope. Think about writing a book it's therapeutic. I wish you well. Keep on keeping on. You need to keep draining those painful memories by talking about it. When you feel it's time go somewhere alone and tell your story into a voice activated recorder. Like writing a diary but verbalize. When you feel like crying Go ahead tears are God's way of healing the soul. Jesus Loves You.

@KatieB33

2 жыл бұрын

I wonder if you had Lyme disease caused from ticks. People in Australia have had symptoms of it but the government won’t acknowledge it unless you’ve been overseas. We also have Ross river virus caused by mosquitoes that has caused lethargy for years even though it’s only supposed to last months. So many possibilities. 😞

@stevie-ray2020

2 жыл бұрын

As I been through a similar situation (still unwell decades later), I can really relate to your extreme frustration of not being heard, & of grieving for what sort of life you could've had. Just know that there are people reading your words hear your pain! 😢

@dreamsofturtles1828

2 жыл бұрын

I hear you, Golden Child. I was plagued with fatigue but kept pushing through because they said there was nothing wrong with me. I pushed until i crashed completey. have come to believe the US medical establishment is good for SOME things, but in the area of chronic mystery diseases we must look after ourselves. If they don't know what it is, they tell you you are depressed. Better with nutrition, exercise, time outdoors, emotional processing, positive thinking- it all helps. i will never stop looking to get fully well and i send you my best wishes.

@normatible9795

2 жыл бұрын

Im from the Philippines and have those symptoms too for years and I still have them today. Doctors said I have anxiety and depression and I took those meds but I still have symptoms of near fainting, dizziness, in a haze, headache, vertigo ,body aches, I just have to live with it for many years. No doctor diagnosed me for anything except anxiety

I have Multiple Sclerosis. It took five years for a diagnosis. I was happy to finally know what is wrong even though there is no cure. I had many of the symptoms they describe. I know that it is not quite the same but I have experienced the pain and fear of the unknown and people telling me I was crazy and not sick.

Finally. This is alarming and no one talks about this.

@complimentary_voucher

2 жыл бұрын

But... lots of people are talking about it. And as someone interested in epidemiology for a long time, I've yet to see anything in either this reporting or the other sources I've read that lays out a compelling case for 'clusterhood' or basically ANY etiology that makes biological sense. My prediction: cyanobacteria or similar environmental agent for some, non-exotic unrelated neurological disorders for most, and psychosomatic presentations for the rest. This is not the first time this phenomenon has happened and there's a lot of very good reasons why many experts are skeptical. Not everything is some sinister cover up. You just have to have an open mind.

@DannyD-lr5yg

2 жыл бұрын

@@complimentary_voucher As long as it’s not a prion or prion-like disease! 🙃🥴 I know they said it’s not CJD, but imagine for a moment CWD has jumped to humans like it has to macaque monkey and bank voles, or like mad cow disease did to humans… would our CJD testing even reveal that?

With all the secrecy to me it means the defense department is involved. They probably already know exactly what it is. Our governments are not our friends.

@DWreck958

2 жыл бұрын

Likely a waste by product...

@cathietonkin5577

2 жыл бұрын

Exactly!

@MsVanorak

2 жыл бұрын

human experimentation?

@FunnyFille

2 жыл бұрын

The secrecy to me means Irving is involved. The premier works for Irving and the citizens of the province pay for it dearly.

@DWreck958

2 жыл бұрын

@@FunnyFille that makes alot of sense... 😳

Seeing the son hug his dad after all those months 💔

@DWreck958

2 жыл бұрын

I wish i couldve hugged my grandmother one last time while she died in isolation... Didnt even have covid...

@rjchavers9267

2 жыл бұрын

@@DWreck958 I'm so sorry 💔

Well maybe it’s time they started looking in town records not current environment today. And what do they all share in common from their past. They share a hospital. Maybe the same camping spot. Medication. Drugs. Favourite meal. Industrial chemical. Home cleaner. Could be anything I’d be digging already with the rest of them. It’s neuro, so it’s toxic whatever it is.

@eldy938

2 жыл бұрын

Agreed, may I add "follow the money" because most of the time someone, somewhere, knows something...and with money one can make someone somewhere "spill the beans."

@kforest2745

2 жыл бұрын

@@eldy938 well that’s surprising as I’ve always stocked up on beans

@fionagregory9376

2 жыл бұрын

@@kforest2745 I love beans

@kforest2745

2 жыл бұрын

@@fionagregory9376 yup and sardines

@bonniehocking7694

2 жыл бұрын

It’s probably the beans. Try farting. I’m sorry, I know this is not funny but we need to laugh too right?

Wow, how can this _not_ be a Prion? It's the only thing that ticks all the boxes, and that's absolutely terrifying.

@telemachus7732

2 жыл бұрын

Sounds like best prevention is to avoid certain meats, from questionable sources.

@kathleen1685

2 жыл бұрын

That is not the only way to acquire a prion.

@Larindarr

2 жыл бұрын

@@kathleen1685 that is terrifying

@CappyMoon369

2 жыл бұрын

@@kathleen1685 as some of us who research have learned this past year 🤬

@cyl742

2 жыл бұрын

Deer in the US have something similar generally called Wasting Disease. It is a Prion and some call it Zombie Deer Disease. A hunter friend says it is in every state in the US. There must be several kinds of this sort of disease and New Brunswick has one. I hope they find out what causes it.

A year ago, my dad was managing an emergency team of PSW’s for a COVID outbreak in a nursing home up north. Now, he’s been continuously shaking in his wheelchair, along with almost all of these symptoms. Everything has happened at such an accelerated rate, getting worse before we could have a chance to process what’s happening. Dr. Kalia taking on my dad as a client has been the most hopeful news I’ve heard in a long time.

@myyoutubechannel3161

Жыл бұрын

Hope your father can recover I will pray for him 🙏 so covid started making him get the shakes.

Dorothy Sheppard replied to me about my husband who moved here to Australia from Canada…. She told us to see our doctor 😂 as if we haven’t been seeing doctors and getting tests for nearly a year 🤦‍♀️ he’s in a wheelchair most the time and is even losing his vision now…… no diagnosis. The more they hide the harder it will be to get one…… but we keep in contact with our neurologist here in Australia and are so so grateful to Steve for the Facebook group 🙌

@abelis644

2 жыл бұрын

I'm so sorry... I wish you and your family all the best. This thing needs to be diagnosed!!! Wth!!! Air, water, soil, foods, soaps, paints, etc etc etc... I mean absolutely EVERYTHING should be tested for viruses, bacteria, prions etc Anything the victims have in common should be investigated, anything from similar favourite foods, hobbies, their jobs or volunteer activities, etc Any place they all may have visited, lakes/rivers/beaches they may have swam in, animals they may have touched, farms they may have visited etc. There is an answer, it must be discovered! Anyway sorry if I'm going on, it's 6 am and I haven't slept much, (I have chronic pain) lol... Take good care of yourself! Isabelle Victoria British Columbia

@icreesmom

2 жыл бұрын

Have they checked for IIH? Pressure in the brain and spinal column from too much cerebral fluid. Has to be found through a spinal tap. My niece has it.

I got a disease, that's very rare, under the Reagan administration in 1982. I live in Nebraska. A doctor saved my life at that time, but it has not been easy. Another doctor back in the early 2000's said that I had been hit in the head too many times. After hearing this I started to remember all the significant blows to the head I had in my past. Clear back when I was around 4 years old and up. Nobody knows what caused it for a fact. Drove truck for a while. 85 to 93. The best years of my life, especially when I started hauling freight 48 states and Canada. Found some "QUACK," doctors in my time! Have been on Social Security since 1995. A lot of people like to talk their gossip, spreading rumors that I just do not want to work. I went from making over 30,000 dollars a year to receiving a four digit check. This is not where I saw my future going. Still look big, but that comes from taking prednisone for over 11 years straight. Still mow my own lawn and such, but I am a senior now and it has become harder every year that passes. My heart goes out to these people. Best thing to say is never give up. Look for the good in life everywhere and anywhere you can! It's not over until it's over. You have families that love you! Stand beside you and actually care about you. Don't know what else I can say? A lot of people look at me and think I faked being sick. These people will never, ever know anything beyond what they see with their own two eyes. Do not like it but I will not wish for,"these people," to get sick just so they know what it is like. Covid has not made life any easier for anyone. Think about where it originated and when will it happen again? Dan from Nebraska 🇺🇸❤

@lydiaj7492

2 жыл бұрын

Love and comfort to you, Dan.. sounds like you've lived a full and adventurous life, as well as the struggles 💓

@telemachus7732

2 жыл бұрын

I suggest you look at carnitine and other supplements

@-...Patricia...-

2 жыл бұрын

Addison's primary or secondary. Emergency rooms don't test for it and half of the endocrinologists focus only on diabetes and overlook the obvious symptoms. Good health to you!

@mpalmer7800

2 жыл бұрын

I get exactly what you are saying and going through keep your spirits up..

@devinisdead4061

2 жыл бұрын

I live in The Midlands in England. In the late 1980s I had a friend that went away to university in Nebraska. I would think that university is still there. He would say that they have a football team there and blokes would simply be mad on the game days. It was easy for my mate to assimilate because we have similar traditions with our football (soccer) clubs here in England.

I appreciated the time and research put into this piece and will recommend it to friends. Job well done.

Revealing! My husband was recently diagnosed with atypical parkinism. They couldn’t find anything that they had seen before. Your program now has me wondering.

@ronehouse4317

2 жыл бұрын

Did ur man take their deadly shot??? They are lying saying this vax safe when its killimg ppl off like flies

@valerieleach1084

2 жыл бұрын

@@ronehouse4317 he started with symptoms two years prior to Covid but yes we are vaccinated

@tammylayfield6288

2 жыл бұрын

@@valerieleach1084 chemtrails

@FunnyFille

2 жыл бұрын

Have they tested his manganese levels? Some neuros in NB believe this is caused my manganese in the water. Manganese poisoning fits the symptoms

@noemimajer9360

2 жыл бұрын

One word. Prions.

Kat Lanteigne: any time a scientist cannot speak freely, that's troubling. Seems to be a lot of that these days

@hopeodyssey

2 жыл бұрын

Controlled by Corporations, ( Monsanta, is a prime example) blame the morally bankrupt lobyists, they are the real Devils!

@cathietonkin5577

2 жыл бұрын

Exactly!!!!

@NajSinghs

2 жыл бұрын

💯😔😡

The minister of health was as transparent as glass......all her answers were screaming "cover up". This is so very sad.

@lbanderson40

2 жыл бұрын

I hope she is clear that we all hope she or if she ever has a loved one GETS THIS TODAY. We all know THEN all her answers will be different!

April 2019 … SK. Our family came down with what we called a very weird sickness. Everyone was really sick and it manifested differently in everybody. One of my children complained of tingly legs. I dismissed it as she was a bit out of it. Almost a week later I finally get sick after taking care of everyone. Went numb from feet to ears. Many symptoms of GBS. Went in a few times to docs where they diagnosed me as “psychosomatic.” So I went to the chiro as I was out of options. He indicated he didn’t want to touch me as I was the 6th or 7th person that came in with same symptoms. He felt bad because he told the first guy that he has MS symptoms. Felt bad that people had these symptoms but happy that it was confirmation that it all wasn’t in my head. Today I still have muscle weakness, stumbling, and numbness in legs and feet. Definitely neurological. Zero help from the medical community. Heart goes out to these people.

@monopinion8799

2 жыл бұрын

Beware because you we diagnose with the bed h the label « psychosomatic response » in your medical chart it will be always be diagnosed for the mental issue before the actual chief complaint that you went in for. Still so much stigmatisation against individual with mental illnesses.

@TD-ln2tg

2 жыл бұрын

Can you tell more about when you got sick?

@journeythruwords4619

2 жыл бұрын

@@monopinion8799 I understand that. I’ve lost any sort of confidence I have for the medical community at this point in life. Not only my experience, but family members as well.

@journeythruwords4619

2 жыл бұрын

@@TD-ln2tg I don’t have the exact date but still have my calendar from then. I can look up and give you the exact week in April 2019 that my family was sick.

@julielea8344

2 жыл бұрын

@@journeythruwords4619 Look at the comment above about the woman whose son had behavior changes & husband was sick as well, it was a parasite, I read about it because I am a psychologist, there is more than one parasite that causes neurological symptoms, sometimes GI problems, if it gets to the brain in can cause confusion, & eventual death. Much Love to you & yours

The way you ask the question how can people be so healthy and then gone in a few months - having lost my mom to brain cancer - she was here 100% one day and gone in a few weeks - after a few days she no longer recognized her own son.

@corrinnacorrinna5572

2 жыл бұрын

😪

@melissasaint3283

2 жыл бұрын

Oh, Freddy, Im so sorry!

@myyoutubechannel3161

Жыл бұрын

My condolences to your family. May God be with you 🙏

@michealburnam

Жыл бұрын

Same with my dad, gliboblastoma took two months.

Sending everyone who is suffering with this Love Prayers and when you breath in remember we are one and as you breath out you are free from anything attacking your body 🙏💛 it’s awful 😞 heartbreaking for the patients and their families 💔

I seem to remember UK's CJD outbreak was traced back to molybdenum in a river in Lincolnshire rather than beef. There was a documentary which I couldn't find to reference.

@abelis644

2 жыл бұрын

That is weird because CJD is caused by a prion which is a protein. I'll have to look up what you are saying. Cheers.

@AnthonyMonaghan

2 жыл бұрын

CJD was traced to the Ovine brain disease Scrapie. Scrapie is a disease that was transferred to beef cattle when rendered sheep protein, including brain matter infected with the disease was used as a cheap cattle feed. The disease in cattle emerged as BSE, this was then transferred to humans either by open wound contact with infected beef or by ingesting infected/diseased beef. The disease showed up in humans as CJD.

@DannyD-lr5yg

2 жыл бұрын

@@AnthonyMonaghan Worth noting what humans got from cows with BSE was actually vCJD, or variant CJD - it actually is a different disease with a slightly different presentation than the more prevalent type, sporadic CJD.

@AnthonyMonaghan

2 жыл бұрын

@@DannyD-lr5yg Thanks

@marybrasile9608

2 жыл бұрын

Chronic Wasting Disease (CWD) related to CJD has been detected in deer and elk in North America. Transmissible to other animals but can be present in infected meat. I wonder if the autopsy looked at the presence of prions.

People are sick like this everywhere. This community is just small enough that the doctors know everyone and take them seriously. Most of the time the doctor doesn’t know you and just tells themselves it’s something in the patients head. I’m interested to see what happens because it’s more common than they want to admit.

@lemr88

2 жыл бұрын

Except that its all over the province not in one town/city, so your statement is careless and false

@youtubernaz1scensoredbythe201

2 жыл бұрын

5 g is frying brains...

@freeradical8440

2 жыл бұрын

they can't explain what they have, they want to use the 'anxiety' excuse.

This was very interesting to listen to. For the young lady, I’m curious to see if neurologists ruled out the condition POTS. My son was finally diagnosed with this condition a few years ago at the age of 18. This doesn’t go hand in hand with all her symptoms but each case is different. We knew of its existence due to the fact that we have Ehlers Danlos syndrome in our family and POTS is a common comorbidity. Trying to get a diagnosis in SK was impossible so he ended up seeing a specialist in Edmonton. I hope that this poor young woman can find a correct diagnosis soon with an outcome that isn’t so bleak. To be 20 and not knowing if you have a fatal condition would be awful to live with. Wishing all of these Canadians all the best.

@Cardboardbox2472

2 жыл бұрын

I have pots… and Eds and here I am!

@Beelzebubby91

2 жыл бұрын

Gabrielle says the condition was ruled out and she doesn’t fit the symptoms. I also have POTS and HEDS and I’m around the same age! I had no idea what it was until I did some research online as a teenager and brought it to my doctors attention. I probably saw the same doctor your son did. Has he improved since then? I’ve found all the right doctors but I’m still struggling a lot with the fatigue.

@Beelzebubby91

2 жыл бұрын

@Janitor Queen POTS(Postural Orthostatic Tachycardia Syndrome) is a syndrome that messes up your autonomic system in your body. The autonomic system is responsible for our body doing things like breathing, managing blood pressure, heart rate, respiration, digestion, etc. Things our body should do automatically without us needing to think about it. “Dysautonomia” is another name for a group of conditions that include POTS, that are similar. There’s different kinds, some that are caused by the adrenal glands or mitochondrial disorders. In people who have POTS, mostly women between the ages of 13-50, when we stand up, our heart rate sky rockets because it is trying to increase blood flow to our head. In a healthy person the body regulates your blood pressure and heart rate when you go from lying or sitting to standing. Some of us get really low blood pressure when this happens and pass out. Severe fatigue and slow digestion is an issue, being out of breath, etc. We also get “brain fog,” which is what happens when you don’t get enough blood flow to the brain. It feels like when you can’t remember where you put your car keys but with everything. It’s hard to find words to talk, hard to remember, hard to concentrate. It’s a horrible, horrible condition. You aren’t born with it and it is very rare to grow out of it. It develops usually after you get sick, around puberty or it just kinda slowly shows up. Mine started out very slowly and then I was sick for about two weeks years ago and I never recovered the stamina I had. It ruined my entire life. A lot of us used to be very active in sports and now we can’t do much. We take extra salt to increase our blood pressure. Here is a link if you want to read up on it: my.clevelandclinic.org/health/diseases/16560-postural-orthostatic-tachycardia-syndrome-pots

@susanapollo284

2 жыл бұрын

Chinese secret wipon

@TheKayannh

2 жыл бұрын

Two mins in and I’m wondering about the young lady and POTS too. I also have EDS alongside.

I pray you all finally get an answer, and if it is through the environment each and everyone of you sue your government for gross ignorance as they should be looking constantly for a link. Prayers are with you all x

@tubester4567

2 жыл бұрын

Pretty sure you cant sue for gross ignorance.

How frightening. My worst fear is to suddenly get health issues. Keep in mind this issue started pre-covid guys.

@sarahstauffer4874

2 жыл бұрын

People aren't dying from covid, as much as we're dying from undiagnosed and untreated serious illnesses. And now it's going to get worse.. They'll label someone as "a covid related death" when truly they died waiting for healthcare. It's OUTRAGEOUS.. Put them in a room with a covid patient and BOOM, they've created a covid "related" death.. Canadians are dying from undiagnosed and untreated illnesses. A lot of us are waiting for answers. Praying that someday I find a dr who will help..

@abelis644

2 жыл бұрын

@@sarahstauffer4874 Stop making crap up AGAIN!!! WTF is wrong with you??? Shame on you. Yes, patients ARE dying from Covid, they are suffocating to death. Go volunteer on a Covid ward and find out... For fck sake...

@deborahwhit118

2 жыл бұрын

@@abelis644 wtf is wrong with u

@jennifermiller1932

2 жыл бұрын

The government have been vaccinated people for over a hundred years.

@calebmiller1875

2 жыл бұрын

@@sarahstauffer4874 Can't say anything on KZread questioning the narrative these days without being attacked. It's sad. I wonder if these people were all given the vaccine that were supposed to forget was experimental?

The health minister makes it sound like the inconclusive report is a positive thing. 🤔 You should feel good to know we haven’t identified a known risk. Canadians should feel good to know we have no clue why this is happening. Seems if there is no conclusion, their work is done. Nothing to see here.

I went though the whole nonsense about fibromyalgia. First, of course, it was dismissed as psychological. It’s now considered neurological, but that took decades. I felt to enraged by the govt announcement this illness in Canada is “potential”…keep fighting…

@5d512

2 жыл бұрын

Same. Five years of steady decline. I recently got Lyme and within three doses of doxy I had more energy than I had in years and no more pain. My fascia is still glued together but I'm hoping corrections to that will now hold. Five more days of doxy left. I hope the positive changes hold. I had a negative lyme test years ago. Not unusual it seems. I hope you are doing okay.

@frederikac.5153

2 жыл бұрын

Same. I have Fibromyalgia and severe Chronic Fatigue. I think it has to do with a viral illness that I had as a teenager. I don't think that Fibromyalgia is a "junk diagnosis", but we need to know more about the cause of these severe and life altering symptoms. There are many patients like me, around the world.

@sharonkaczorowski8690

2 жыл бұрын

I’ve had fibro, based on symptoms, since I was 12 and drowned, someone in saw me in the bottom if the pool and managed to bring me back. I’ve had so many Lyme tests, I’ve lost count…all negative. At 50 I caught bacterial meningitis, which triggered a flood of autoimmune syndromes, plus a another Nuero disorder which impacts my heart. Not fatal, but exhausting. It has a great name POTS, lol. Keeping my fingers crossed your Lyme will be cured! I’ve kept up with all the research on fibro…definitely neurological. Possibly results from an injury to the brain’s pain center. It’s much more than pain…also the body’s ability to interpret heat and cold is abnormal. Like others with fibro I’ve talked to, I am overwhelmed by too much stimuli…from crowds to all the colors in the grocery store. Have no to,stance fir stress, good or bad. Chronic fatigue sucks.

@kp7032

2 жыл бұрын

Fibromyalgia is now being considered as possibly an autoimmune disease where the body attacks itself. As a fibromyalgia sufferer that already has one autoimmune disease, it wouldn’t surprise me.

@sharonkaczorowski8690

2 жыл бұрын

Actually most the research shows it to be neurological…possibly caused by injury to brain’s pain center. It impacts more than pain…all kinds of sensation…cold & heat for example. I can’t deal with too much sensory input either.

God bless the Doctor! "I'm here to give them hope.....meaningful hope." Nowadays, in the U.S. treatment of patients reminds me of a factory, in out, pay the bill, next patient, in out, pay the bill, and so it goes. I've been fortunate to find doctors who take their time and truly care about their patients, yet there are so many who don't have such medical providers. I don't feel it's as much the fault of the doctors, as the system.

@judyannstreich7499

2 жыл бұрын

Cool doc quoting Leonard Cohen.

@marys3127

2 жыл бұрын

@@hartplanet356 - ideally, both

@barbikinkin

2 жыл бұрын

You think Canada is different?

@SarahSoLovelyXo

2 жыл бұрын

Uhh yea.. the doctors in America see patients who have illnesses but they also get a bunch of ppl coming in with ridiculous complaints that probably didn’t need a doctor or a mom with munchausen by proxy, etc. You have no idea what it’s like for doctors.

@vickimeyers2672

2 жыл бұрын

@@SarahSoLovelyXo having worked in both hospitals and a doctor's office, I saw both the good and the bad, as far as patients, and doctors, as well. What so many people do not realize is that when they're in the exam room with the doctor, they're the doctor's employer, and have every right to "fire" that doctor or LNP. I've even gone so far as to schedule an interview with a new doctor, to find out if that doctor is going to treat me with respect and consideration, before I schedule an appointment and become a patient.

These poor people have all the symptoms of Lyme disease! Speaking as one who has been physically disabled by Late stage Lyme, dizziness, fatigue, body and joint pain, brain fog, good and bad days, are par for the course. Coincidentally I just saw a documentary about the northern migration of Lyme disease into Canada. Blood tests are useless if the disease was left untreated for more than 5 yrs. Only a PCR of the CSF was able to diagnose the Lyme initially, 6 months into the year and half of daily IV infusion of Rocephin, the blood test showed positive for Lyme, as well as Babesia, Ehrlichiosis, and Bartonella. Sixteen years later still struggling to hold onto the hope that there will be a fix, using a Rife machine right now and getting some positive results.

@WendyS8A

2 жыл бұрын

I have Lyme and I'm watching thinking the same thing💚

@violetgypsie

2 жыл бұрын

My first thought was Lyme disease.

@CrankyBubushka

2 жыл бұрын

Hi. I thought the same thought. Lyme would make sense.

@deaconsmom2000

2 жыл бұрын

What makes you think that you have an idea that hasn't been explored by anyone in the Canadian health system?

@stevie-ray2020

2 жыл бұрын

The health authorities here in Australia deny that Lyme disease exist here because the blood-tests come up negative to the parasites that are prevalent in ticks in other countries, & that's also the reason there's no government funding for research! However, independent research seems to indicate that the parasites carried by ticks are numerous because the environment & the animals they come in contact with vary immensely. The scientists investigating tick parasites insist that further research needs to be funded to genetically identify all of the possibly thousands across the planet!

I had exactly the same symptoms since I was 15 years young. No diagnose for many many years. Diagnosed with Multiple Sclerosis finally when there was aMRI scan. Now with this diagnose Iam a miracle to neurologists. After being sick with these symptoms for so long I am doing great and no meds. Which is weird because MS only gets worse over the years. This video makes me wonder... 🤔🤔🤔

@sm-kv9eu

2 жыл бұрын

There is a new medication in the US for MS. It’s given by IV, then 2x per year. It actually reduced the sizes of the lesions.

@31michelle64

2 жыл бұрын

There are more than one type of MS. Sounds like it could be relapsing/remitting MS... some people have one attack, and never have another period of decline. MS is a very complex disease

@freeradical8440

2 жыл бұрын

remission

@kaym9882

2 жыл бұрын

Fyi, MS does not always get worse over time, in fact, many times individuals are stable once the disease is under control. I have MS and was undiagnosed for over 15 years.

It is frustrating that this cluster of people have the same symptoms and the government is not doing anything to help. I feel for all of them and hope that Doctors find a diagnostic and cure.

I've been dealing with an undiagnosed condition for 8 miserable years. I just want to know what it is and at this point I would be happy for someone to say I have cancer. The pain is too much

@americanjedi5952

2 жыл бұрын

Fibromyalgia? That's another mystery affliction - autoimmune they said. It took 8-9 years of my life and left. The nonstop, not for a second, pain was maybe 7-8. Now I wonder of it could have maybe been cast out. Tried everything else.

@americanjedi5952

2 жыл бұрын

Best wishes. 🙏

@marcus3060

2 жыл бұрын

I'm in bed right now like most days for past 2 and a half years same symptoms as these people I've had 2 diagnosis crhons and fibromyalgia after stomach resection i was told I don't have crhons disease. But my life isn't any better now ive been told to manage it. In all honesty manage I can't but I do survive. I hope and pray for everyone that suffers

@e_i_e_i_bro

2 жыл бұрын

What are the symptoms?

@marcus3060

2 жыл бұрын

@@e_i_e_i_bro are you a doctor? That can help Cause if not I'm in to much pain to list.

The lack of research into the cause of these people's illnesses is astounding. The vague & shallow word salad / non-answers provided by an apathetic Gov't official were shameful at best. re Luke: How is ..."Likely related to both the concussion...and his anxiety"... an actual diagnosis???

@chloecamp8714

2 жыл бұрын

It's the unfortunate result of limited funds. It takes money to study & treat, the funding will always go to the most rampant illness. & of course answers will be vague. Every official has to be very careful be of lawsuits & words being taken out of context. Bc of the ppl who believe they're entitled to everything they want, regardless of how the world works, reality & what is actually possible.

@dickdavidson3616

2 жыл бұрын

Agree with you. However Luke received a very positive and definitive response from the neurologist……he will certainly benefit from the healing power of placebo !

@dontoews6754

2 жыл бұрын

sometimes the brain need nutrients not pills, livonlabs products liposomal products easily pass thru the BBB

Hope that the diagnosis of multiple sclerosis has not been missed! Also Lyme disease is a difficult condition to diagnose and is treatable.

@ericg7183

2 жыл бұрын

I've got MS. It's really easy to determine if they have MS. Run a series of MRIs of the brain and spinal column, then immediately another series with contrast. Any lesions will show with contrast. If the state requires the old fashioned means of confirming MS, then follow up with a cerebral spinal fluid extraction and analysis. While many of the symptoms some of these folks are presenting are also shared with MS, I'm pretty sure it isn't. Besides, MS doesn't happen as an outbreak.

@carolesmith4864

2 жыл бұрын

@@ericg7183 Six years ago, my husband was stricken with a sudden illness that paralyzed him from the waist down. They gave him high doses of steroids to stop the spread if it, while they ruled out diseases. It was spreading to his chest, and they said if he had not come to the emergency room when he collapsed at work, he would not have made it. They had to do a spinal tap to rule out MS, which was frightening. It turned out to be Transverse Myelitis, which his neurologist suspected was due to the flu vaccine. He was told no more vaccines, yet here we are being told by the political doctors that it is not an excuse to not get the covid jab. They are not going to pay for his permanent care if he gets TM again, so who are they we should listen to them? It was a long long road to recovery for him and a second bout of it might not have such a positive outcome.

That government lady is not nice. The least she could do is have some empathy for these sick people. I am not a fan of her. She seems so cold and uncaring. If she was in that situation, she would feel very differently. Dear Lady, you make me sad.

@rps1689

2 жыл бұрын

What do you expect? Typical NB.

@kp4636

2 жыл бұрын

@@rps1689 I don’t know anything about NB, but I am sad for the people who live there if that is how their leaders feel and act toward their constituents. Don’t they work FOR the PEOPLE? Are they voted in by the people? Just curious.

My completely healthy husband died suddenly of cardiac arrest. After an autopsy and forensic pathology report no one can tell me why he died. I understand that frustration and anger when something is going on and medical professionals can’t tell you what it is. It’s fairly common unfortunately.

@TheNOISENOISEZETLAND

2 жыл бұрын

I know it doesn’t change anything and I am very sorry for your loss but look up Long QT syndrome and into his family’s history if possible all the best

@warriorsofloveandlightwith2440

2 жыл бұрын

Did he change up anything 6 months before this happened ?? Like foods medications anything along those term?

@warriorsofloveandlightwith2440

2 жыл бұрын

Also sending my condolences 🙏

@rajs7876

2 жыл бұрын

Condolences. A lot of young men are dying of heart attacks. Some theorize it is covidbut government here is not doing thorough autopsies or tests

@griffinharvey3910

2 жыл бұрын

@@rajs7876 Yes, this is horrific. All these people with myocarditis, strokes, heart attacks - the common denominator is that they've been double jabbed... The athletes have been mandated in order to be on the team. :-( kzread.info/dash/bejne/hJyqzLqeiaiwnrg.html

l always look forward to new shows . l heard about this over a year ago . l live in maine so this is pretty close to home . this is a huge puzzle . l hope they find out what is happening .

Effects from Concussions are long lasting, CTE reflects that. Affects mood, anxiety frustration balance, relearning basic skills is important

@godlessfornicater

2 жыл бұрын

I had a concussion over two years ago... Still affects my capacities. A LOT.

this is literally my biggest fear. having a neurological disease, let alone an unkown one 😰

@TheWendable

2 жыл бұрын

OMG someone who knows how to use the word 'literally' correctly. How refreshing 🤗

@januszkurahenowski2860

2 жыл бұрын

@@TheWendable Is it really? It's not used incorrectly but the sentence would work without "literally", you don't assume she is figuratively afraid of a neurological disease. It doesn't signify anything in the sentence, just make it seems like this is the sort of person to add "literally" to every sentence as a habit, not because it should be there.

@Dellaa2222

2 жыл бұрын

@@januszkurahenowski2860 i used the word for emphasis

I have dealt with NB before, friend had a mystery skin illness. I went to the google to find the answers, had to not only send the medical journals to the doctors but also find the specialists who studies that disease. Best for the group of ill people to do their own research, including testing environmental factors in each person's home, as well as doing complete blood work by private labs in the states, testing for every infectious disease and vitamin and mineral levels and to hire private researchers/physicians. No need to involve the province at all.

Looking forward to a follow-up on this! Also, god bless Dr. Morrero!

Thanks for this documentary & real stories of these brave people who will help each other thru a terrifying unknown disease. This will be in my heart always. From south Florida USA to a beautiful Canada with people I would have loved to meet. Stay strong you are so very special. 🥀

As someone who has suffered from chronic fatigue/ME for 25 years..and been told I'm lazy, its in my head, I'm a malingerer etc...I WISH doctors would realise there are illnesses that don't fit in side the square...and very few people enjoy being debilitated.

So sad, as mother Earth gets sick, so does all her inhabitants

Journaling and longitudinal studies are needed for every patient affected. Patient advocacy should permeate everywhere in the health care system. Everyone should be working collectively in this group project.

@wandakowalski7063

2 жыл бұрын

What is a longitude study?

@emeral311

2 жыл бұрын

@@wandakowalski7063 it's when scientists or researchers follow test subjects for a very long time. Basically, if everyone journalled it would help doctors with the research. I can't believe no one has thought about using the young woman's videos as data points. And what about seeing into their Samsung / Apple / Google Fit health Apps to monitor heartrate and other things. Very strange.

Perhaps the Health Minister needs to have this Disease in her immediate family to open her eyes to Honesty. 💥 Blessings to those Patients, God Bless You to bring Healing✨🙏🏻💕

DEMAND ACCOUNTABILITY NOW. PEOPLE BACK THESE PEOPLE UP. MAKE THE CALLS CONSISTANTLY UNTIL THEY STEP UP !

This reminds me so much of my problems in the US getting help for Ehlers Danlos Syndrome, Fibro, yada yada. Doctors refuse to believe and insurance companies won't pay. SSDI doesn't recognize it and, in many cases, it's completely debilitating. I hope there is strength in the families dealing with this horrible situation to advocate for their loved ones and others to get the help they need.

@kbellmurray

2 жыл бұрын

EDS and fibro is treated terribly in Canada too ❤️

@ITSONLYMEWATCHING

2 жыл бұрын

I have Ehlers Danlos too. And you are so right about it. It took me 8 doctors to finally get a diagnosis and relief .

@deborahwhit118

2 жыл бұрын

Lie..ssdi does recognize

@suzanneneal-garner7936

2 жыл бұрын

You hit the nail on the head! If the insurance company says it doesn’t exist then it doesn’t exist. Doctors are controlled by the Insurance companies who contract with the Government.

@joypratte

2 жыл бұрын

@@deborahwhit118 -- I'm not lying. It's very difficult to get SSDI for EDS. I know people who have tried for years.

Something tick borne? Given the place and the symptoms, it seems likely, similar to babesiosis, Lyme, Powassan, alpha gal? My sister’s entire family have alpha gal. They have to very careful of their diet. Also check out a human version of CWD, found in deer, elk, and moose. There’s a neurological disease in Hawaii with snails as a vector. I think they need to center research on an animal or insect vector.

@andrewwotherspoona5722

2 жыл бұрын

I agree.

@melissasaint3283

2 жыл бұрын

Was also thinking Tick-vectored disease, come to the comments to see if anyone else was on the same page!

@DannyD-lr5yg

2 жыл бұрын

Edit: wrote this before I saw the part of your comment mentioning CWD lol. I’m just hoping it isn’t a new prion disease. I know they said it’s not Creutzfeldt-Jakob, but I imagine if chronic wasting disease (in cervids such as deer/elk, blazing through the US for the past several decades; like mad cow disease but significantly more contagious) spread to humans, it’d look something like this.

@carolesmith4864

2 жыл бұрын

@@DannyD-lr5yg Creutzfeldt-Jacob was the first thing I thought of when they first started describing this illness. Maybe this is some similar disease.

@CharKn

2 жыл бұрын

They don't believe in Lyme disease in Canada. It's ridiculous.

Thank you to one brave doctor 💙

My heart goes out to these folks, i know how frustrating it is trying to get proper care for known issues, cannot imagine the stress of not knowing. Gabrielle seems like a fighter, hope they get some good news soon

Can't give the man a diagnosis for 2 years but one weekend in Toronto gives him an answer? No. Sorry, but no. They've decided it was from a previous concussion and anxiety? Well, if that were true my son would have what he has x2! He's had 4 concussions. I don't believe her diagnosis at all. I think she was just looking for an answer - found an easy one - and wrote it down as definitive.

it sounds like a prion desease. Symptoms of prion diseases include: Rapidly developing dementia. Difficulty walking and changes in gait. Hallucinations. Muscle stiffness. Confusion. Fatigue. Difficulty speaking.

@DannyD-lr5yg

2 жыл бұрын

That’s what I’m worried about. Maybe chronic wasting disease finally made its jump from cervids to humans.. :/

@poppyaustin4828

2 жыл бұрын

But where did the wasting disease, which is Prions cone from?

@apenguicitis4395

2 жыл бұрын

They checked for prion diseases like CJD and they did not find anything there. I'm thinking maybe it is environmental, and there may be a coverup of some kind, or maybe it's something they haven't detected, but my money is on a neurotoxin. Could be something in the water supply, algae, heavy metals, maritime life.

@DannyD-lr5yg

2 жыл бұрын

@@apenguicitis4395 It’s not CJD or any _know_ prion disease. If it were a _novel_ prion disease or even a novel prion-like disease, they may not know specifically what to look for to rule it out. As for “prion-like” diseases: Alzheimer’s, ALS/Lou Gehrig’s, MS, and even diabetes seem to all be “prion-like” due to the heavy involvement of misfolded proteins, and other behaviors similar to prion diseases. However, because the misfolded proteins in these diseases aren’t the PrP protein, none of them are considered prion diseases, and this would not be found if looking specifically for a prion disease. Tl;dr this could still be a brand new prion OR prion-like disease

@DannyD-lr5yg

2 жыл бұрын

@@poppyaustin4828 The origin of prion diseases is unclear, but they’ve been around for a long time. However, they were only identified in the last several decades - so we’re still learning. Prion diseases are, at their most basic: diseases where a specific protein, called the prion protein, becomes misfolded and basically “tricks” other prion proteins into also misfolding. It’s kinda like how cancer cells kinda “convince” nearby, normal cells to also mutate and become cancerous - and the growing “crowd” of misshapen cells is what we call a tumor. With prions, though, the misfolded versions (because normal prion proteins are normal, helpful, and almost every person has them) stick to each other and basically “clog up” the cellular pipes. It’s like if a bunch of hair goes down your shower drain; at first, one or two hairs isn’t a big deal. But eventually, too many hairs go down and now it’s clogged. Unfortunately, unlike with shower drains, we have no way currently to “unclog” prions in the brain. Chronic wasting disease is just the name given to the specific version of prion disease that affects cervids: deer, elk, moose. This may sound like humans cannot be affected, but we’ve seen in past that isn’t always true. “Mad cow disease” - hit the UK hard in the 1990s - is a cow version of prion disease. It became a concern because it adapted to humans (from us eating the infected beef) people began catching it. So, some people are worried the same thing could happen with chronic wasting disease. Even if most people don’t eat deer, CWD is unique from mad cow disease because CWD lives in the outside environment much much longer. For example, an infected deer may go to the bathroom on some grass before they even have symptoms; then, months later, a healthy deer might eat that grass, and get sick.

The minister has been told to dismiss a link to protect tourism. Being alarmed or concerned is differant from panicking.

It’s the manganese in the well water in NB. Not sure why the NB government won’t let their neurologists speak out.

I totally get what she was saying, that she was so "Happy" to hear that something was wrong with her... because I got sick in the late 1980s, & no one would believe me. Even when I was Hospitalized due to extreme pain the nurses would say, "You are faking it! You look too healthy to be sick! You just want attention!" Even saying that I just wanted drugs!!! This hurt sooo much because I hated to even take aspirin or ibuprofen for cramps or a head ache - I didn't even drink alcohol - I was clean, but I was very very sick, weak, shaky, dizzy, throwing up bowel, losing weight, abdominal pain!!! It took me nearly dying before they found out what was wrong with me, & I was so excited that there was a name for what I was going through!!! It validated me! So, yeah, it feels good to learn you're not crazy & you have a name of an illness to blame (or finally just a doctor believed me).... ❣

What about black mold? The air conditioner in my old SUV was full of it. Every time I turned the vent on it would blow on my face. I had vertigo, brain fog, tiredness, and other symptoms. It took years to get better. Mold can cause lots of neuro symptoms.

These people should be ashamed of themselves. They are complicit in these “clusters” of disease process of a neurological origin/ manifestation. How can they wake up and look at themselves in the mirror. They say unknown but are UNWILLING to fully investigate. I wonder will it be alarming when it’s her son/daughter/Hubby/ Mom and or Dad!! Shame, shame shame!! Mercy and grace upon these families; may they be found in the grace of GOD when man’s hand have failed!!

Thank you to this neurologist who is taking this very seriously and is giving them hope .You are the embodiment of what a doctor should be ,compassionate , understanding and offering hope .Hope is huge when all others prefer to ignore what is happening .Some of these people are now dead .This should take priority !

My husband's brother in law and diagnosed as having Parkinson's and it took a long time to be diagnosed as having Supranucular Palsy. As a RN I had never heard of it and this was Saskatchewan about 30 years ago. He was a farmer. It could be something new or something in their food or in the water...

@user-dn9vd9xg9p

2 жыл бұрын

Get a 2nd opinion. Sometimes when diagnosed with these very rare diseases, is it possible that the physician that diagnosed the patient worked at a facility that survives on research grants? Make sure the patient tested wasnt charged to a grant to justify the grant research..

@sunshinem3958

2 жыл бұрын

Besides me having MS, my older sister and brother this past year have been diag with Parkinson they are really advance with the Parkinson balance, thinking, speech, etc.

These people MUST keep pushing to find an answer no matter how many doctors it takes ! !

Wonderful report. I will continue to look for more information on this topic. Thank you.

same thing happened before I was told I had fibromyalgia. the doctor who was treating me said he didn't believe my diagnosis was a true disease. I felt violated. I really hope there are some answers soon for all of these people.

my take away from the minister of health is: you are not being transparent!!! Pretty sad yr shutting science down.. Politics first! Stop yr political BS putting yr political position/s before lifes is disgusting actually!!

Love this scientist sending him strength prayers and love 🙏💛🙏💛

I was shocked by the apathy and dismissive comments made by the minister of health. This is poor leadership

Good bless you all. Sorry for your suffering. Good things may come. Love. Brook

This makes me want to scream!!

@Harbalz

2 жыл бұрын

😱

Praying for everyone who is suffering with this , to the Canadian government this is unbelievable 🚩🚩🚩🚩🚩🚩🚩🚩🚩🚩🚩🚩🚩

@debbiep99

2 жыл бұрын

Why is it the Canadian government? It would be the provincial government

@dandesrochers363

2 жыл бұрын

@@debbiep99 all government is it ok to point fingers while people die.

If i was one of the sick in that town / area, the first thing i woukd do is MOVE AWAY FROM THERE.

But with that said ... I was sick for over a year in 2018 and couldn’t get anyone to take me seriously. I was hospitalized for 4 days after a CT scan and still doctors acted like they had no idea why I was sick so I feel for anyone dealing with illness without a diagnosis. Luckily making changes to my diet changed my circumstances but prayers to anyone sick without explanation.

If it's not contagious it's environmental

So sad and scary. I hope they find out what is causing it, and find a way to cure it. I really hope this has a good outcome.

Poor man thinking he couldn't hug his dad. He just had to DO it. Which could have helped his dad, too. It's well known humans need touch.

I stumbled across this as someone that lives in New Brunswick

People saying it’s Lyme or me/cfs or Lupus etc Do you really think all the top docs are just going to somehow miss a diagnose like that?

@violetgypsie

2 жыл бұрын

Doctors misdiagnosis is not a rare bird.

@marcus3060

2 жыл бұрын

Yes have done to me

@Johnnoway

2 жыл бұрын

Yes they did with my daughter for 6 years! Over 20 Dr and brain surgery!

@amandasnider2644

2 жыл бұрын

I hypothesize that those who are genuinely suffering from an unknown illness are possibly suffering from LYME DISEASE because it's incredibly hard to diagnose (especially in Canada I've heard) and I've seen documentaries and reports of massive surges of tick populations in the area due to climate change. Many people don't even realize they've been bitten by a tick, even within the last few years so the symptoms of Lyme disease really does seem to come out of nowhere without an obvious cause. My Uncle and cousin both recently were diagnosed with Lyme disease after suffering for a few years and both of them don't recall ever being bitten by a tick. Lyme disease is tricky to diagnose because A) people often don't recall ever being bitten B) it manifests in very similar symptoms to other health issues that are more common C) the testing methods are hit or miss and are imperfect D) symptoms are different from person to person E) most doctors don't think to test for it F) we still don't know a lot about it. There could be something legitimate going on with a small cluster of people but I imagine the large majority of people's symptoms are caused by stress and depression and these reports are causing a bit of mass hysteria. It is really amazing how depression and anxiety can manifest in physical pain and odd symptoms. It doesn't make their struggle any less real due to being caused by mental illnesses. The pandemic has isolated people and it's stressing everyone out. The important thing is to not be insulted if a doctor suggests the symptoms could be caused by anxiety or depression, just because there's not a physical cause doesn't make the symptoms not real, it's just important to know the cause so you can properly treat it. I have Fibromyalgia as well as anxiety and depression and once I started treating my depression and anxiety properly with medication, my physical pain and IBS digestion issues improved greatly. Your diagnosis does not need to be something unique or special for you to feel validated in your symptoms. Sometimes we don't accept the simple diagnoses because we don't want to believe it's all in our heads because that makes us feel like we brought it on ourselves.

@nomdeplume2213

2 жыл бұрын

Yes, it takes on average 30-50 dr appts and 5-10 years to get diagnosed with MS, lyme and pretty much every autoimmune disease.

Aww Gabriel praying for you darling right now sending you Love and strength 💛🙏💛🙏💛🙏💛🙏💛

Psychosomatic ? There is no word more infuriating to someone who is suffering

Why aren’t these experts working together on this? US and Canada.

For 11 years our great NB doctors can’t diagnosis what i have also.

In other words, the doctor has been silenced by the government, its vile.

This is such a great program, I enjoy 5th E! Glad you're here! I am chiming in from the southern US.

They would never admit that anything nefarious is going on!