And make lots of happy memories with your loved-ones, so after you’re gone, they have memories of something other than the sad things.

@ianblelloch2594

11 ай бұрын

Debbie, I totally agree. The past is history, the future a mystery but today is a present.

Two and half years of myeloma feel very good and happy ,every day say I CHOOSE TO LIVE .I CHOOSE LIFE AND MY BODY WILL RESPOND. find this very good for mental heath be positive and helpful ,eat organic fruit and veg .Anyone negative do not listen better things to do with your time, look forward ,set up white board put holiday dates birthdays etc .smile.

@ianblelloch2594

9 ай бұрын

Couldn't agree more. Do stuff that you enjoy and that absorbs you - excellent philosophy!

My buddy was diagnosed with multiple myeloma in 2009 and had a stem-cell transplant at Stanford and now is 14 years post procedure. He has to take medication and constantly takes blood tests to determine his kappa-free-light-chains numbers every month or so. He periodically changes his medications because the myeloma finds a way to work around it. He once took Revlimid and it worked wornderfully for about a year, and he had to switch after the kappa numbers creeped up. Systemic or multiple myseloma is a very slow death. My buddy lost four inches of height because his bones were hollowing out and the weight of his body outside the bones was caving in the bones. This was when he did not realize he had it until he had himself diagnosed.

@ianblelloch2594

11 ай бұрын

Thanks for the comment. I was OK with Revlimid as far as I can tell but everybody is different. I wish your buddy well and thanks again for commenting.

I still don't know if I have it, awaiting the blood test results. However I love your wicked sense of humour. I have had cancer before. melanoma in my left eye.

@ianblelloch2594

11 ай бұрын

I hope your tests came back OK. I have one every four months now but I look on it as a reassurance that they are not yet fed up with me!

I have English heritage mostly, notjce alot of english people get mm, diagnosed in nov of last year, good luck to you

@ianblelloch2594

3 жыл бұрын

Barton, I am now in remission and doing well. Best of luck to you!

@bartonhood9313

3 жыл бұрын

@@ianblelloch2594 ian that is awesome, they did a pheresis to take out my white cells this week, just so I can use my own cells for transplant if needed. Thanks man, wishing you a long remission.

@ianblelloch2594

3 жыл бұрын

@@bartonhood9313 I know it well. You are in good hands.

@lucascaruso7275

2 жыл бұрын

would love to know how you both are. i truly hope everything is well and going as best as it could possible be!

@bartonhood9313

2 жыл бұрын

@@lucascaruso7275 hanging in there Lucas, thanks for inquiring, GOD BLESS