My Story of Sjogren's Symptoms, Part One: dryness
My Story of Sjogren's Symptoms, Part One, dryness
#sjogren's #chronicillness #autoimmunedisease #lupus #chronicfatigue #depression #fibromialgia #migraines #RA #CFS #MS #scleroderma #chrone'sdisease #IBS
My Sjogren's Story
• Living With Autoimmune...
Welcome. This is #1 in a series about my Sjogren's symptoms. I've made this video to share about how Sjogren's can be debilitating & disabling.
Individuals not afflicted by disease often can not comprehend how another person who looks good can have debilitating pain, fatigue or need the use of a wheel chair.
Indeed before I began having symptoms that limited my abilities I too could not fathom a healthy looking person actually being at the same time too sick to be active as desired at any time.
I hope to educate others who do not have chronic illness, may or may not know or live with someone who does about the reality of invisible diseases. I also hope to encourage others living with invisable diseases that they are not alone in it!
This series will continue for 3 to 6 videos because Autoimmune diseases are comples, Symptoms can be many & overlap a lot of other diseases and or complications.
This and further videos in the series will be captioned in the future as I'm currently working to learn how to make it happen.
Thank you for watching. I hope it's helpful to you.
Пікірлер: 14
Very well said Vickie I appreciate the calm way you explain it 😊
@livingwithsjogrensdisease1550
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🙏💜💙🩵
Great video! Looking forward to part 2!
@livingwithsjogrensdisease1550
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😊
Since Sjorgen autoimmune came after a bout with tartive dyskinesia. The only thing I can rely on is Miracle mouth. But having my teeth rot, it hurts so much
@livingwithsjogrensdisease1550
Жыл бұрын
It's such an awful reality of Sjogren's. I went through many painful infections, procedures, mouth sores. I feel your pain. ❤️🩹
Thanks for sharing 💕
@livingwithsjogrensdisease1550
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😊
i know people don't mean to be insensitive, but that's just how it comes off when they say "just" dry eye. It's painful and you can't see! when i was a mail carrier, one of my coworkers had what i now suspect was sjogrens. She ran an auxiliary route, so it was only supposed to take about 2-4 hours. Her dry eyes were impacting her to the point that she would sometimes be taking 6-7 hours and not get back until the same time as me (90+ mile route) because of how debilitating the dry eyes were. She saw doctors for prescription drops, but they didn't do much for relief. Our routes were dirt roads in the mountains, and it got increasingly difficult for her to complete the route with how dusty it would get in the hot summers. She would also find it hard to breathe and the dry mouth was affecting her dental health. Around the time i left the post office, she was supposed to start seeing a rheumatologist, but i never got an update on the happened to her. i think she eventually ended up leaving the position. She had been there a long time 🥺
@livingwithsjogrensdisease1550
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Sounds like her dry eyes caused a lot of difficulty for her. Your ability to see what she was going through & that you still remember her is like your kind & compassionate heart shining in a sometimes dark world. I hope you get to find her someday. ❤️
@livingwithsjogrensdisease1550
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Also thank you for being a mail carrier!
I have sjogruns and it’s a battle every day I have dry eyes dry mouth 👄 and body aches almost every day I hate sjogruns 😢
@livingwithsjogrensdisease1550
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💜💙🩵
@livingwithsjogrensdisease1550
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It's definately a battle!