My Multiple Sclerosis Story - 2 Years Later
#multiplesclerosis #msstory #update
As a follow-up to my MS story video published in August 2015, here is an update on how my symptoms are today. I've now had MS for 4 years.
To learn more about Multiple Sclerosis, stay connected with "Life of Seb". LIKE, COMMENT, and SHARE. Don't forget to hit the SUBSCRIBE button and the BELL 🔔 so that you never miss any updates. Thanks for watching :)
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📺 Watch My Other Videos:
★ 5 reasons why you should join an MS community
• 5 reasons why you shou...
★ MS Yoga: Twists and stretches for spinal fluidity
• MS Yoga: Twists and st...
★ MS and I: Am I following the Coimbra protocol?
• MS and I: Am I followi...
★ Workout threshold with MS
• Workout threshold with MS
★ MS Yoga: Ease your MS symptoms - Pamper Your Neck
• MS Yoga: Ease your MS ...
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What is Multiple Sclerosis ❓
Multiple sclerosis (MS) is a potentially disabling disease of the brain and spinal cord (central nervous system). In MS, the immune system attacks the protective sheath (myelin) that covers nerve fibers and causes communication problems between your brain and the rest of your body. Eventually, the disease can cause permanent damage or deterioration of the nerves. Signs and symptoms of MS vary widely and depend on the amount of nerve damage and which nerves are affected. Some people with severe MS may lose the ability to walk independently or at all, while others may experience long periods of remission without any new symptoms. There's no cure for multiple sclerosis. However, treatments can help speed recovery from attacks, modify the course of the disease, and manage symptoms.
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#LifeofSeb #multiplesclerosis #ms #livingwithms #mssymptoms #msdiagnosis #msawareness #msfighter #multiplesclerosisawareness #invisibleillness #autoimmunedisease #thisisms #multiplesclerosisfighter #multiplesclerosiswarrior #mswarriors #mscommunity #multiplesclerosissociety #mslife
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⚠️ DISCLAIMER:
My channel is in no way supposed to provide medical advice or guidance and I do not claim any medical knowledge of Multiple Sclerosis. I merely discuss MS-related topics from a patient's point of view. If you have a serious medical condition, please consult your medical practitioner immediately. By using this channel you do so at your own risk. "Life of Seb" KZread channel accepts no liability in part or in full for any damages or injury caused by the use of any content provided.
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Пікірлер: 246
Sweetheart! I'm also an MS Warrior. I was diagnosed 16 years ago and I know it can be very hard at times but stay optimistic and keep doing yoga and meditate! xox
@tabitha1017
6 жыл бұрын
JanetLiberto are you still walking? I was diagnosed 3 months ago
@JanetLiberto
6 жыл бұрын
Tabitha Glover I am still walking. I use a cane. How I wish I could tell you that I have no issues but that's not the case....
@tabitha1017
6 жыл бұрын
JanetLiberto how long were you able to walk before a cane was needed? What’s your name? I will pray for you
@JanetLiberto
6 жыл бұрын
Tabitha Glover I walked without a cane for I guess 12 years. There were a series of stressful events that led to the change in walking. What is your current physical situation? My name is Janet...
@tabitha1017
6 жыл бұрын
JanetLiberto I just got diagnosed 3 months ago. After my first attack. I’m recovering and about 90 percent bk to my normal self. So I am walking . I am keeping faith that I will walk for a nother 20 years. Please understand hunnie God can do anything. And I will pray that you will no longer need a Cain . You just have to have faith ok.
I am so happy to see you’re doing well. I’ve had MS for 27 years and I have never lost my positive mindset. I could not live any other way. It’s this strength that keeps me going on the bad days along with my faith in God. I may have MS, but MS does not have me! 🙏🏽💃🏻
@karinmagnusongheddar6476
4 жыл бұрын
Cynthia Dee Thank you. I agree. I refuse to stop feeling optimistic.
@crystalnator
4 жыл бұрын
Cynthia Dee wow u inspired me. U r so wonderful. Thank you
@isaacguerrero6169
4 жыл бұрын
@@karinmagnusongheddar6476 theirs people on my program m.s. is reversing 1st month on program
@desiderata333
4 жыл бұрын
Karin Magnuson I am sooo glad! Stay strong. 🙏🏽💚💞
@desiderata333
4 жыл бұрын
Crystalnactor thank you so much. You’re very kind. Be well and stay safe!🙏🏽💞
In the process of being diagnosed. Thank you for your videos.
Great video buddy. Keep on fighting. We're all part of a club that we never wanted to be in. ☹️
thank you for sharing your story. your honesty, your voice is so comforting. i greatly appreciate your video.
Thanks so much for sharing! I try to tread lightly on the internet out of fear that I'll read something I don't want to hear, but it's so nice to hear positive stories, even if the journey has not been perfect. Thank you again!
Thank you for sharing your story. I was diagnosed 30 years ago. I can completely relate to everything you've said. Well done. Always optimistic and see the joy of the journey. Thank you
Good luck to you seb . Keep being positive
I am trying everyday to be like you. Let's stay positive together, MS warrior!
@richarddavis2107
4 жыл бұрын
Scrubbini why are you not positive? Remember you live with MS that is not who you are you are a person with dreams keep on following those dreams some you will achieve some not, just in life without MS, as Seb said keep optimistic.
@PoojaKumari-il3oy
4 жыл бұрын
Yeah bring it on
@Scrubbini
4 жыл бұрын
@@richarddavis2107 did I say I wasn't positive?
Thank you Seb, I’m suffering real bad tonight and you put a big bright smile on my sad pain filled face.
God bless you always sweetheart! 🙏🏻🌸 yes, stay optimistic!! Please keep fighting...your story is very inspiring and touching! 🖤
Your story gives me hope and comfort. Many, many thanks for sharing......
Thank you for sharing your story. It’s really comforting to others that have the same conditions.
Thank you for your story - it’s truly inspiring. I was diagnosed with RRMS in January 2016. I’m optimistic. I deal with MS one day at a time - there is no other way. I want to go on living as best I can for as long as I can. MS is different for every one who has it. Be optimistic - and let’s hope that the medications for MS continue to get better & better. Be safe - be happy - stay real.
Thanks for the update - Fantastic yoga move!
This is beautiful! Hats off to your optimism and fight against Multiple Sclerosis :)
wow a heckler from a longterm MS'er. Optimism, enjoying life till the last breath, is what keeps you doing things, if you have a few or a lot of years. You are a great inspiration, and I suspect he was and is fighting to get his back.
Thank you for sharing your update. It is always great to hear positive updates on MS warriors. Keep that optimism and kick MS to the curb. You got this! I now have secondary MS . Take Care of yourself!!
thanks for this, stay positive ! you are an inspiration
i cried watching this thank you so positive man !
You're doing well and doing the right thing to talk about it. I struggle to talk publicly as I don't want people to see me as weak. Keep strong
Very beautiful and inspiring video! Was recently diagnosed with MS and had to stop my medication for RA. Now I await treatment for both conditions! So tired of awaiting the start of my new medications, whatever they may be! I needed to see this video tonight!!!!
Keep up the good work! We all have to approach life on our own terms.
Thank you for posting this. Hope you have lots of good days. :)
Ni imaginas lo mucho que me relaja escucharte y todo lo que me transmites☺Gracias por compartirlo con nosotros. Me alegro de verte tan bien Seb😊😘
Your story touch my heart. I will continue to pray for u and your family every day... God bless u ...thank u for inspiring others.
Thank you Seb for sharing your story. You are more courageous than most.
Stay positive! You’ve got this!!😊
really really inspiring .... thank you .... i feel brave enough to go check out my symptoms now
Hey Seb, thanks for this. Very inspiring!
Thanks for your video, helps me feel positive about my future with MS
Thank you for your calm and warm voice, God Bless You
That's great congrats, I got my diagnostic last week , with Multiple sclerosis, kind terrifying but at the same time trying to find strength to not giving up. videos like yours make a difference motivation for a better life. Thanks
You are incredibly inspiring & positive!
@BMax-no9mg
6 жыл бұрын
Jill Hansen I’m also a KZreadr who has Multiple Sclerosis. My channel is new & I would love if you would subscribe & follow my journey. I use humor as a therapy tool & it’s my hope to touch the lives of other who share the same struggles as me!
@jh1123
6 жыл бұрын
Ok. I will be sure to follow you...
@BMax-no9mg
6 жыл бұрын
Jill Hansen thank you so much!
Dude, it's nice to hear this follow-up, even if some of the nerve problems have been getting worse. I've also been following up on "my MS story," which seems like a healthy process. As always, you have my support. So hang in there
@BMax-no9mg
6 жыл бұрын
metaspencer I’m also a KZreadr who has Multiple Sclerosis. My channel is new & I would love if you would subscribe & follow my journey. I use humor as a therapy tool & it’s my hope to touch the lives of other who share the same struggles as me!
I really feel for you. But your optimism and beautiful spirit is inspiring. Don't let your illness define you. Sending you positive and healing vibes😁
Thanks for sharing (again)! I am also an MS warrior.. will not let this thing win! Keep up the spirit my friend! Bless you.
@rockymountainrocker5630
5 жыл бұрын
Our minds are so powerful for either good or bad... Optimism is the ONLY way! "It's not what happens to us that defines us.. it's how we deal with it that defines us." Love ya brother!
inspirational, handsome and thankyou for sharing your life story up to now
Ciao, I am the wonan that took Tysabri and the JC an almost took the best of me and was living in the States. I was making videos on You Tube too and I am from Italy originally and now I am back here. I believe in your words and how being positive is very important which was easier for me when I was back in the States. I was making videos in both languages and loved to touch many subjects like you do, now 22 years after the MS diagnose and after surviving the PML I show that we are stronger than we thought and I hoped I was able to share this feeling with others. Thank you for sharing your story and I wish you the very best. Lots if hugs, Angela :)
Thank you so much for your inspiring video I needed to hear your positivity.. I am educating myself as well.. in the process of getting into a neurologist to be tested.. I am losing function of my legs, bladder and bowels and I am now having tingling and numbness in my arms, hands and the right side of my face.. in lieu of those symptoms I do have problems in the L1 to L5 of the spine.. I can only pray for a diagnosis sooner than later bc things are happening fast.. Thank you again for your powerful inspiring message today.
@BMax-no9mg
6 жыл бұрын
Christine V I’m also a KZreadr who has Multiple Sclerosis. My channel is new & I would love if you would subscribe & follow my journey. I use humor as a therapy tool & it’s my hope to touch the lives of other who share the same struggles as me!
Thx for all your videos. I know this is not easy but I’m learning a lot. I truly appreciate you telling us your continuing journey.
@LifeofSebMS
4 жыл бұрын
Thanks for the kind words!
God bless you. I was recently diagnosed back in May 2017 and have been taking gilenya as well. I appreciate your optimism; that definitely is keeping me going everyday. Thank you for your story. ❤
@BMax-no9mg
6 жыл бұрын
krista munger I’m also a KZreadr who has Multiple Sclerosis. My channel is new & I would love if you would subscribe & follow my journey. I use humor as a therapy tool & it’s my hope to touch the lives of other who share the same struggles as me!
Thank you for sharing again.
It's great you're doing well. Ya for me, i had a relapse with double vision last summer (2018), in the last month or so, it has improved. My bladder issues are about me trying to let it out. I have never had the problem where I couldn't hold it in, but it's trying to let it go. I need to relax and it's hard if there's tons of noise and stress around me. I often constipated. I try to eat a lot of fruits and vegetables and drink a lot of water to help me pass. Now I have been in the weight room trying to put some mass on my skinny ass for the last year. My strength has improved. Var stark!
We all have some kind of health problem, but like you say "never give up " keep on smiling and hoping. You are a beautiful person. Stay strong.
Hey Seb. Great video! You are a natural instructor and you speak with knowledge and passion. I'm a year post HSCT (@Northwestern in Chicago) and improving every day. All traces of MS are gone. (I can relate to the the hand numbness/pain) Yoga has been an amazing part of my recovery. If you ever want to chat about HSCT lmk.
Thanks for your courage. it can keep you strong .
Thank you so much for sharing your story and for encouraging others. I recently came across the Wahls protocol. I haven't started it yet, but it was created by a doctor who was diagnosed herself with ms. She has a video on KZread that's quite interesting. Her MS symptoms have greatly improved. Just thought I'd share. I wish all the best and much happiness despite the many challenges you face
It does make me feel better that there are people that make this video, I'm 21 right now, and I got it when I was 10 years, at that age, you don't know what it really is, and I still haven't looked up anything becuase I really don't wanna know what can happen, I don't have it bad at all, but it can still do an impact, but thank you for making tbis video
Be brave sir and think positive. God bless
I think it's great to be optimistic! I am optimistic every day despite the MS!
You are sooooo strong and bold !!! ❤️❤️❤️
Thank you for sharing your story. I am scheduled for the spinal tap and 2nd MRI in 5 days. The symptoms that you described are very similar to my own. I have been trying to find out what's wrong for about a year now. Hopefully I will have some answers soon. I am up late surfing the web for information and I am really glad I got to watch your videos. I have hope.
@jazzlall3971
2 жыл бұрын
How did you get on?
I am starting Gilenya in the following days since the Tecfidera I am taking isn't doing a very good job for me. I am a little scared of the Gilenya tbh but this has to be done and I'm optimistic! I am meeting my neuro tomorrow to book my first pill observation, the box is sitting right here beside me as I'm typing this lol. Thank you for your videos Seb 😊
Hi was recently diagnosed with MS - was diagnosed with epilepsy a year ago ... than to find out the lesions were causing the Epilepsy all along - waiting for treatments since the holidays- your story is very optimistic which is all I am remaining for now - life is already a struggle at times thanks for the inspirational message!!
@sugoijade9379
5 ай бұрын
how are you doing now?
God bless you brave heart
thank you seb :) your video did cheer me up and gave me more hope
@LifeofSebMS
Жыл бұрын
Stay strong 🧡💪🏻
Just found your story...very similar to mine!!! Hope to hear more from you!
@isabilas
6 жыл бұрын
And I became a yoga teacher!
Your looking awesome!!
Love ur videos.
Never change!
Thank you, I cried and laughed. Optimism, humor, and love is so imprtant. When your friends only allow you to use plastic wine "glasses" is just funny. Well Wishes.
Yes yes yes. It is true. The mind is powerful. Stay positive. Worry and stress is poison. It will only make things worse. Stay optimistic.
I was diagnosed 2 years ago as well though my first relapse was mid 2014. I felt compelled to comment because I too have found that the worsened, most prominent symptom for me also is numbness in the fingers of my left hand and the toes of my left foot. I do aerobics for 20 minutes on the weekdays and I notice for the first time in the past months that the feeling becomes quite strong even on days where it isn't hot. I don't notice it as much when I'm walking or doing other things. I haven't had any new symptoms either and I consider myself grateful for this. I read the blogpost you mentioned as well and I find that his view is in general rather dark. Those kind of thoughts remind me that it is better to surround myself with positive thoughts even if I am headed to a similar progression, far better to focus on where I am at this moment. I also read the blogpost you mentioned and I find his opinions in general to be dark and negative. Whether I am where he's at in 10 years or not, I would rather surround myself with positivity in the meantime and to focus on my own journey. xx
@BMax-no9mg
6 жыл бұрын
Nyssa I’m also a KZreadr who has Multiple Sclerosis. My channel is new & I would love if you would subscribe & follow my journey. I use humor as a therapy tool & it’s my hope to touch the lives of other who share the same struggles as me!
You are a very charming and handsome man, Seb. I wish you continued and steadily improving good health. Remember, you are not your body. The body is a place holder for your spirit for a set amount of time. I hope you are, also, surrounded by good friends who will watch over you. Peace and good wishes, brother.
Keep pushing yourself
you are so strong and a truly Human inspiration and warrior , you have a beautiful body and soul, I'm sending all my positive vibes.PD: you are very handsome too.
@TalhaKhan-ml2gj
4 жыл бұрын
I wanto contact you
Ur voice is very calming. I like listening to you.
@LifeofSebMS
2 жыл бұрын
Thank you! 🧡🙏🏻
Got ms early in mai this year, thank u for the video
@LifeofSebMS
2 жыл бұрын
Stay strong! 💪🏻
Seb, I think you’re a beautiful person inside and out .How old are you?Where are you from. I also have MS.I just started taking Tecfidera..I been getting flushing from it.Sometimes I feel down but your video made me feel better that I’m not alone.
wow you give me optimism because I realized that I worried much about trivial things and that I wasn't taking the time to appreciate the good fortune of having friends/family and myself in relatively good health As for the liver and alcohol, i'd like to relate my story of how less than a glass of wine is enough to give me a headache and nausea (like a hangover i assume), but within about an hour. This is due acetaldehyde dehydrogenase deficiency, a functional lack of the enzyme needed to detoxify one of alcohol's toxic by-products: acetaldehyde. So there are some things that your liver will still be better at doing, and defending against alcohol is one of them, well relatively speaking compared to me anyway All the best
Awesome! Thanks for the attitude you have. Keep that optimism. It's wonderful! You make excellent points.
I'm too a Ms Warrior..I am happy to see that beautiful hindi Tattoo on your arms..your story is encouraging...All The Best😊
Because I have had MS undiagnosed for more than 50 years even though I knew I had it by my symptoms I have just lived my life and got on with it. Putting MS to the back of who I am. Had four children when all the advice was don’t. They are all range from 57 to 65 in age and have had no problems with MS. Vanity prevented me from taking medicines so I just put up with what MS throws my way. I know you are probably thinking OK for you but Seb M S is just a part of the whole lovely you. We make adjustments we have to but that’s OK too. So love your videos and wish you a,long life. ❤️
@LifeofSebMS
Жыл бұрын
Thank you for sharing your thoughts and journey, dear Jane 🙏🏻🧡
Thank you Seb! It´s nice to hear your calm tone of voice and tranquility! God bless you! Did you heard about Coimbra Protocol, with high doses of vit d? It works very well for MS and other autoimmune deseases. please serach for this. in fb there are few groups about the protocol that can help you know more, and lot´s of youtube videos too with Dr Cícero Coimbra, a neurologist that created this amazing protocol. All the best! Susana
I've had MS NOW FOR COMING ON 23 Years and I'm in roughly the same boat as u Seb concerning MS symptoms apart from the walking side of things as my right leg seems to be getting alot worse as in I can't seem to be able to move it where and when I want to I also have dropfoot on my right leg Which constantly makes me trip, I'm also taking gilenya now for the past 6 years and I'm having no problems with taking it I.E. no side effects, how I see it is you just have to get on the correct meds suited for your body so it's totally trial and error but you will get there in the end so stay strong Web and stay safe ✌️ peace ✌️ 🇬🇧🇬🇧🇬🇧
@LifeofSebMS
2 жыл бұрын
You’re so right! 🙏🏻🧡
hi I am Deepa Nagesh from India I live In India I really love your videos and I am following your videos and you are such a positive person I like that keep it up your positive energy and being A Hindu I like your tattoo that's full of positive energy and ahimsa means no violence so it symbolise that you are so so so energetic and positive thinking person so keep it up keep smiling have a great health and happiness
you r amazing!
Hello SEB! MRI showed 2 lesions in my brain and I will most likely be diagnosed with MS in january. About that double vision. U could get prism glasses, which I got. Extremely helpful
@panthersprung5161
3 жыл бұрын
how did it go if i may ask?
Stay positive mate! It's proven scientifically the power of positive thought
Thinking of you. ❤️
Have you read Bruce Lee's - Wisdom for daily living - think you would enjoy it - one of my favourite quotes are: 'Greatness is in the act of trying - in great attempts it is glorious even to fail' To be discouraged is to be defeated' 'Optimism is the faith that leads to success' 'Faith and belief is wasted if not acted on' Thanks again for your positive video going in for Lemtrada treatment next week and your positive attitude is a breath of fresh air
We all supporting each other spritely I guess ... I am an MS , I recently was told I Am with ms , I suffered since 2011 and didn't know what's going with me , today in 2018 finally I knew why I went through all that pain when I didn't know nothing about , till the doctor said its serious U have MS. It's a shock yet I am still digesting it perhaps I was told to try ozone therapy
You are so handsome and your personal strength shines through
Hi there, I am sure that you have gotten this question before but I have to ask.....have you changed medications since your first videos to help with MS lesions? Or have you found that the medication you have used works? I've been told that my medication isn't working well enough and I need to try something harder. Thanks for your videos, they make it seem a little less intense.
You are so adorable Seb! Such a pleasure to watch. I want to take you in my arms and cuddle you.I think I have MS as an aftermath to concussion and have been going through hell. Your lovely video is very inspiring at t time when this is needed. Thanks! Jim Mayhew
Looking GR8 = Yoga clean food meditation and fresh air help me to cope = Keep teaching
You can listen to him all day. How i wish there will be a definite treatment for MS.
@laurenvillegas6103
3 жыл бұрын
Me more. Sometimes I rather have it be fibromyalgia or even epilepsy like my husband.
We’re still here, alive and kicking!
@BMax-no9mg
6 жыл бұрын
Hey Eli Fraser! I’m also a KZreadr who has Multiple Sclerosis. My channel is new & I would love if you would subscribe & follow my journey. I use humor as a therapy tool & it’s my hope to touch the lives of other who share the same struggles as me!
@elifraser2783
6 жыл бұрын
Bullsh*t with Britt Thanks! I subscribed 😊
@BMax-no9mg
6 жыл бұрын
Eli Fraser thank you so much!!
i lost the only man that i called, “father”, ( my stepdad ) due to MS 😢. i just wish i had more time with him to let him know how i felt about him. I Your Strength 💪🏻 Gives Me Strength … keep going sweetie. You Are Loved. ♥️
@LifeofSebMS
2 жыл бұрын
Thank you 💪🏻😘
My wife was just diagnosed with PPMS December 2017. We have two young children and she is rapidly declining. Hopefully treatments will slow this down a bit. Thanks for sharing your story!
@KaylaD1116
6 жыл бұрын
27Zangle - Would you mind if I connected with you and/or your wife? (Instagram or Facebook, maybe?) If not, I completely understand. I have RRMS but it shows no signs of slowing, no matter what medicine I'm on. Hoping maybe we could share ideas that might benefit each other.
@27Zangle
6 жыл бұрын
Yes. My wife said she is willing to correspond via email or maybe Facebook message. Obviously no personal information should be shared publicly.
@KaylaD1116
6 жыл бұрын
Just sent you a private message, (and potentially a duplicate), through KZread with my email address.
@27Zangle
6 жыл бұрын
Nothing has come through.
@KaylaD1116
6 жыл бұрын
27Zangle I jumped ship from the KZread messages. I messaged you via Google Hangouts
Were you not tested for PML, before beginning the Gilenya? I can't take it, because I came up positive for JCV.
Hi am a new fan from morocco , i want to asck you about diet do you think diet can help us to improuv our quality of life, and how about hsct i hear it can help a lot
@LifeofSebMS
2 жыл бұрын
Diet can definitely help you with your energy levels, as for hsct it is supposed to be very effective but I’m too scared of it…
Did you start the protocol? I know you talked about it. I have been taking Copaxone for 6 months and had a set back. Will have to change the medicine. Thats why im asking
What’s good homie, don’t give up on this journey, we got this, wish you the best
Ms, we got it
I was dx with Sciatica a few weeks ago and all my symptoms now are scaring me I have a limp on my right side, both legs and feet have that tingling sensation, including hands and my back. I woke up yesterday and my eyes were so blurry. I wear glasses! I wake up every hour, or sooner, but I'm a side sleeper and both hips can't stand the pressure......I have severe charlie horse cramps that start from my feet all the way up to my thighs. Auto immune disorders runs in my family, my son has plaque psoriasis. I made an appointment with my primary Doctor........ I was dx with Breast Cancer two years ago.......I'm 56 years old and scared......
@BMax-no9mg
6 жыл бұрын
keke catty I’m also a KZreadr who has Multiple Sclerosis. My channel is new & I would love if you would subscribe & follow my journey. I use humor as a therapy tool & it’s my hope to touch the lives of other who share the same struggles as me!
@willcortez5
4 жыл бұрын
Sorry to hear, but it sounds like you've been through a lot in the past. And I think a great attitude and optimistic outlook steered u through that. U are strong and you can get through this. God bless u and ur family
I have a ms story to, from 5 years old and i am 20 years old 😊
😍😍😍thank you
@LifeofSebMS
2 жыл бұрын
😘
What about coimbra protocol??? With high doses of Vit D3?? You should try it. Greetings, M