I was diagnosed last year with lupus and now new rheumy is saying UCTD. I have very similar symptoms as you. I ended up not having a good reaction to plaquenil, so now taking azathioprine and naproxen and those help me. Changing my diet has helped me a lot too! Thank you for sharing this. This journey has not been easy, so it’s comforting to know I’m not the only one going through this ❤️

Thank you for this. I think I have UCTD and I need to go to the rhematologist and get diagnosed. I actually wake up a lot during the night sometimes due to my symptoms.

I'm in the same boat. I've been tested for so many autoimmune diseases but all have been negative. It's frustrating because I have all these symptoms. My joint pain and hair loss is the worst. I can't tolerate cold temperatures. My ANA was speckled and high. Thanks for sharing your experience.

@mymellolife7468

2 жыл бұрын

I'm sorry you're going through that 😔 I understand the frustrations. I hope you are able to get some answers! Do they have you on medication to help the symptoms that you have? Or are you using natural remedies to help with the joint pain?

@juanitabryant9065

2 жыл бұрын

@@mymellolife7468 I'm trying supplements at this time such as Tumeric and MSM. Thankfully, the pain has decreased on these supplements. I still have pain but at least it's tolerable.

@mariammoustafa9233

2 жыл бұрын

I have the exact same symptoms that have been bothering me for about 9 years and finally yesterday I was diagnosed with UCTD

Get a thorough gut mapping from Diagnostic Solutions. The gut can be the Genesis if autoimmune processes (gut and brain communicate). Leaky gut can trigger autoimmune processes, like with joint pain. Zonulin will show leaky gut. GERD can also be a link in this chain. 1/3 or irritable bowel patients experience arthritis symptoms. Blood work won't show this. People with bowel issues typically have leaky gut. Good/bad bacteria balance can cause chronic low grade inflammation like with a deficit of Fermicutes. Stress influences gut. Again the test will show everything about your gut, including bacterial overgrowths (like staph), leaky gut, viruses, parasites, worms, levels of good/bad bacteria. It cost me 400 dollars but told me things a colonoscopy with a stomach biopsy could not. Dr. Gundry is big on this... He has systematic lupus that can come/go on command depending on what he eats, he preaches about leaky gut. The concept is that food or bacteria leak through, the body puts a "tag" on the food and anything that looks like it. Human tissue looks like it, and the antibodies settle into joints. I have citrobactor and staph overgrowths with a leaky gut and all of these can cause autoimmune responses. To kill the overgrowths: garlic, oregano, probiotic, raw honey, a good sleep, no bread, swimming, stretching. My finger spots, gut pain, and fragile joint pain has been seeing a big improvement for the first time despite getting worse for 5 years. Covid typically destroys the gut biome!

** big hugs **

~*hugs*~

Am diagnosed with connective tissue and am in a lot of pain I feel depressed ..doctor recommended me hydroxychloroquine its been a week since I dont see any effect in pain? How long before I see results..plz make more videos as it gave me some hope.

@mymellolife7468

3 жыл бұрын

It seems like the hydroxychloroquin kicks in a little different for everyone. But generally it does take weeks or months to really notice a difference. What works for me, if it is a possibility, I use a cbd cream sometimes to help with the pain. My doctor had also put me on a nsaid called neproxen. Did your doctor mention anything about a pain med? I'm sorry your in so much pain. If your on Facebook there is a group with people that have connective tissue diseases that may also be good to have other people to talk to. I hope things get better for you. ❤

Thanks you brought me hope. How long it took to feel better on hydroxychloroquine?

@mymellolife7468

3 жыл бұрын

I started feeling better after a couple months. The fatigue got so much better. The pain in my fingers was gone. I still have some symptoms but not to the extent that I did before I started taking it

@celesteadelle

2 жыл бұрын

I relate with you a lot .

Have you experienced the hydroxychloroquine to stop working? I was on it for a year and am no longer feeling any relief to my symptoms like I had before…

@mymellolife7468

2 жыл бұрын

I've only ever had a problem when I stop taking it like I'm supposed to. My biggest issues have been with my anti inflamatories more than my hydroxychloroquin. Have you talked to your provider about different options? I know sometimes with some medicine your body gets used to it and it may not be as effective. That could possibly be a case but it'd be best to bring it up to your doctor!

Your ANA, CRP,ESR and Rheumatoid factor are normal?

@mymellolife7468

3 жыл бұрын

So my initial ANA came back positive, my CRP was normal, and my SED rate was high

Hey, I hv just been diagnosed after 5 years of suffering

@mymellolife7468

3 жыл бұрын

I'm sorry 😞 but that's good you finally have some answers. Are you on any medication? Do you feel any relief from your suffering if you are on medication?

@devinakanoujia564

3 жыл бұрын

@@mymellolife7468 I met my doctor yesterday and my blood reports came back positive for IgG4-RD. My levels are alarmingly high. Dr. hasn't started the treatment. I m also considering alternate medicine. It's depressing.

@mymellolife7468

2 жыл бұрын

I know it's hard and I'm sorry you're going through this. Has your doctor started your treatments or have you found something that has helped you?

Did you try collagen? Results?

@mymellolife7468

2 жыл бұрын

I've actually never tried collagen!