Thanks for sharing your story. I got diagnosed with AML about 6 months ago and was in hospital most of that time. I’m now home in “recovery/remission” but it’s still hard. It was really good to listen to someone else who has been through this so thank you

@RajuDas-qm9yk

3 жыл бұрын

Hi Nina hopefully you are doing good. Is there any possible by which I can get in touch with you. My sister is also suffering from AML. It would be really great if I could get your prespective and the protocol that you went through 🙏

@slyth3rinprincess

2 жыл бұрын

Prayers 🙏🙏

bless you. so much love your way. such a beautiful & strong person . stay strong girly 🎗

Yes! The Bone Marrow Biopsy is like TORTURE!! I have had many, but on one I couldn’t have ANY type of pain meds, because I had liver failure from the chemo. This was the worst pain I’ve ever felt. I’m sorry you had to go through that, but it’s comforting to hear others stories.

@janicebrocke8528

3 жыл бұрын

WITH TODAY'S MEDICINE THERE IS NO REASON FOR THAT?? GENERAL ANESTHETIC IS THE ONLY WAY TO GO??

@slyth3rinprincess

2 жыл бұрын

how many times does a blood cancer patient have to undergo it? I've had one roughly 6 years ago which confirmed my CML case

Thank you for sharing your story. Sometimes you never how much you touch the lives of others by just simply stating the real. I commend you for your perseverance and having the heart to share with others. Continue to take care of yourself. And know that there are people out here who are praying for you as you navigate through this journey. -- Much Love you, Momi Fatimah

Thanks for sharing your leukemia diagnosis. We are praying and very much concerned on how things are going. Update if you are able to...take care

I have had 2 Bone Marrows, did not hurt a bit.. but my dr. Does these every week. Please don’t scare people, this biopsy could save your life!

@slyth3rinprincess

2 жыл бұрын

Is it possible for a need of another bone marrow biopsy? Even for CML cases?

@jmnightingale9055

Жыл бұрын

I am an AML patient, with the MECOM mutation, and I've had 11 of those biopsies. Of the 11, two were quite painful, 3 were a little painful (about like getting a tooth drilled at the dentist), 3 I felt a little bit, and 3 I didn't really feel at all. So, maybe she is hypersensitive to pain or was just really unlucky with her first one.

I got it a kid and got sedated (I was lucky to at least be sedated...) But to this day I'm TERRIFIED of 1. Needles and 2. Small spaces and so just imagining getting one awake makes me legit shake

Thank you for sharing your story! You are very brave to share this with everyone. I am also a nurse and nursing student so it is helpful to hear about Leukemia from a patient's point of view. Bless you and your family...

@slyth3rinprincess

2 жыл бұрын

I've been diagnosed since 2016.. also went through bone marrow biopsy that year which confirmed it

My sister had leukemia too and was there to hold her hand during the bone biopsy and I see how painful it was and saw what they do to get that marrow. So I'm sorry for your pain and pray for a full recovery for you

@slyth3rinprincess

2 жыл бұрын

what type of leukemia did she have? prayers for her.

@rosieduarte8992

2 жыл бұрын

@@slyth3rinprincess It's been a few years now and she is OK, I can't remember what type it was but I know that it was a highly curable one She still needs to take a chemo pill To make sure it doesn't come back, I'm pretty sure its glevic that she has to take

@slyth3rinprincess

2 жыл бұрын

@@rosieduarte8992 the same treatment I am taking right now.. and that's good to hear that she's doing fine

@anonymous-oc2il

2 жыл бұрын

@@slyth3rinprincess u ok now?

@slyth3rinprincess

2 жыл бұрын

@@anonymous-oc2il still fighting it

hope your ok. i also have ALL leukemia and am also having chemotherapy treatment such as strelroids and i also have a round face. just know we are getting better. 🙂

@eviondabilali8148

5 жыл бұрын

Me too hope we get better 🙏

@itsemrewhat2922

2 жыл бұрын

hey i have also leukemia. how you doing? Hope you're ok

@slyth3rinprincess

2 жыл бұрын

@@itsemrewhat2922 what type of leukemia were you diagnosed with?

@itsemrewhat2922

2 жыл бұрын

@@slyth3rinprincess aml t(8:21) they say

@slyth3rinprincess

2 жыл бұрын

@@itsemrewhat2922 that's sad to hear. Prayers for you🙏🙏

I would never let them do a bone marrow w/o being put to sleep!!

Not sure who did your bone marrow biopsy but if they do it right it shouldn’t be painful. I’ve had three of them and the only thing I felt was a pinch in my back when he gave me a Shot to numb the area. My advice to you is Try a different doctor

Hope you're doing better

Hi I'm only just watching this now. I'd love to know how you're doing?

Prayers for you my friend.

I really hope that you’re ok and doing well.

How are you..My daughter had aml and bone marrow transplant which was unsuccessful. She passed away August 23 2018. Prayers for you. Please give us an update.

@samuraibshd

5 жыл бұрын

Darlene Klonk I’m sorry. I am Katy’s fiancé. Katy relapsed back in July 2018. She passed away Aug 24th.

@flowerlm47

5 жыл бұрын

samuraibshd Oh, no! So sorry to hear this news! I’m just now finding her videos. So sorry for your loss. May she Rest In Peace.❤️

@AjaySensei

5 жыл бұрын

Hi Darlene I'm so sorry I've seen your comments on a lot of videos. Did the AML relapse or was it complications from the BMT? How long after the BMT was it until she passed away. Again I'm so sorry for your loss

@slyth3rinprincess

2 жыл бұрын

oh my :(

Who in the world would dislike this video!

Hi how are you doing now? Sorry to hear that you had that.

Hope you are well. I’ve been having some leukemia signs :( keep us updated

@lxfj2128

4 жыл бұрын

Rachel Zehnder how’d it go

@veraivakic

2 жыл бұрын

may i ask if you got the diagnose?

RIP dear 💔💔💔❤️❤️❤️

Stay strong may GOD heal you of this disease 🙏

Stay strong girl!

@baabysface

6 жыл бұрын

Thanks!! :)

Hope your keeping well dear !

Hope u survived.... no updates or nothing from you on here..... 😢

How are you now

Thank you

How are you now Angel

Hi I’m having these symptoms of having a fever but I’ve had it for multiple months I smoke and I’m 16 I’m really skinny lazy feel out of breath most of the time I’m terrified to check this out any thing I should now before panicking?

@p-h-a-n-t-o-m

4 жыл бұрын

stop smoking? most likely it but of course you could go see a doctor just in case

How are u feeling I hope u feeling better

I hope you have found peace, on earth or after. You looked great babe. If we were in together, I'd have been chasing you if only to distract you.

You aren’t doing blood cancer patients a good thing by the way you talk about bone marrow biopsies. I had them twice and it as a really weird feeling but not a terribly painful feeling. But maybe I’ve experienced a lot of pan in my life. The key to dealing with pain is you know why the pain is there and feeling it ‘s under control.

Stay strong 💪

Rest in peace

Same

I am the boss of my body!!

@davidazinger5639

3 жыл бұрын

God is the boss of everyone's body. If everyone was the boss of their body there would be no doctors, no hospitals, etc. ...these things exist because God is the boss, and he put you there.

i feel like throwing up for no reason...0.0 wish I was at the doc lol. how r u now? btw Ibruprofen maybe for bone biopsy? They don't sedate kids either. I heard it's quick so at least that's a good thing...

@pokermel

6 жыл бұрын

LMAO ibuprofen would not touch the pain of a bone marrow biopsy... you're kidding right? I had a BMB and it does hurt like hell. The fact that all people aren't anesthetized for it is downright medieval. Mine lasted for about a minute which doesn't sound like a long time but when you're in extreme pain it's a very long time.

@shereehardin5783

5 жыл бұрын

You know im gonna overdose on ibuprofin if i have to get this😑

@pokermel

5 жыл бұрын

@@shereehardin5783 I'm sorry. I didn't say it to scare you. I am on a message board for blood cancers and if it helps you any there are quite a few patients that report the pain is not that bad. I think part of it has to deal with your pain tolerance and the other part is the skill of your doctor. My doctor had to dig around. Hopefully you will never need a BMB.

@shereehardin5783

5 жыл бұрын

I've heard they are really painful so I was wondering if any sort of pill could help out. The second part I wrote was me joking around because of what you said about ibuprofen lol. I hope I never have this. I assume you are ok? Right now I'm getting colon-like tests more than bone ones.

@pokermel

5 жыл бұрын

@@shereehardin5783 I'm doing ok. My cancer is a chronic one so I've had it forever. It's not as serious as AML. Although it can turn into AML one day. I can't imagine any pill that would help the pain. I hope you are doing ok with your tests.