Hi, I just started a Discord for AIS individuals and allies. Here you can connect with others, ask questions or just hang out. discord.gg/MhHUpqj5wn

@dr.starbright143

9 ай бұрын

Not working

I’m 64. I’ve only recently learned of this and similar conditions. I don’t understand why we are not taught or even made aware that people are born with an intersex condition. I’ve looked into intersex over the past few months and I am blown away that it as taken 64 years of living to learn about this. This is a natural state in human development. Shameful education system. Beautiful people. God bless all of you who have the courage to speak about your personal experiences. Thank you.

@jojorumbles8749

Ай бұрын

It may surprise you that it's an obscure topic even among the medical community. When I moved to another state, I had to teach my new doctor what intersex is.

@davidwitkopii291

Ай бұрын

In the same boat but 33. Very eye opening. I'm glad I found more people to love.

I do not see why anyone would have a problem with an Intersex person? You are unique, beautiful and smart. You video was very enlightening. Thanks!

@Sambivalent

3 жыл бұрын

Thank you for you nice comment R B :)

@thameralharthy1938

Жыл бұрын

Because infertility is present.

@zoch9797

Жыл бұрын

@@thameralharthy1938 DING DING DING DING

Knowledge is power. Thanks for adding to our knowledge.

Your video is a compassionate effort for those with AIS and for those who want to be informed and supportive. Thank you.

So brave Sara

You are lovely Sara... I love your confidence and willingness to share your story to help others with their journey or to understand.

you are so calm, brave and grounded. All the best for your future!

Thank you for sharing your story with a smile and great confidence! It's a breath of fresh air!. Also, you explain your situation very well!

Sara, what a beautiful gesture on your part, Your personal life, many other dont have the courage to be taking the time to inform us of something so important, this what I call utilizing the internet to a great piece of information!!! THANK YOU !! Today I learn something...

@Sambivalent

2 жыл бұрын

Thank you for your kind words Tony! It helps me as much as you guys to get to talk about these things 😊

Thank you for sharing Sara! I am in medical school and your story helps me to understand this condition and hopefully will help me if I every encounter a patient with this condition.

@Sambivalent

3 жыл бұрын

You're welcome! I want to make a more in-depth video so look out for that soon!

Happy you've talked about this, I had no idea about any of it but now I do and understand it a bit better. As always you're awesome! Thanks for sharing.

@Sambivalent

4 жыл бұрын

I understand it can be difficult to grasp it during a stream because you might only hear bits and pieces of the whole story. That's why I wanted to make this video ❤️

@lotustheowl9919

4 жыл бұрын

I was pretty much gonna write the same so I will just join in this comment! Thanks Sara! Keep owning :))

@alhasnaaahmed2521

3 жыл бұрын

@@Sambivalent Hi sara Iam AIS like you blease give me your email to contact with you

I’ve always wondered about all the things you addressed in this video but you answered a lot of my questions! I learned a lot of new things. :) thanks for sharing your experiences!

You have talked about it on stream Sara but this video is really great and help us understand

I'm so glad you are sharing your story online❤️❤️❤️

@Sambivalent

4 жыл бұрын

Me too! It took too long 😂

Well said, Sara! I also hope the unnecessary surgeries are stopped as soon as possible; your body has amazing traits that I am very jealous of. Infertility wouldn't be an issue for me and if anything, it simplifies life considerably. Like you hinted, the future is brining options to infertile people of all kinds... Thank you so much for your story - have a great life!

Thank you for sharing this! Very interesting to learn something about AIS. I am curious about your next videos :)

So educational. Thank you for making this video. I think it may help many others

Great video on the subject. I learnt some new things! Looking forward to seeing more from you 😁

Thank you for sharing your story and teaching us about Adrogen insensitivity syndrome 😀😃

Sara, good for you.you are strong and brave ! Your message will be a flicker of hope for someone else Out in KZread land. I learned a lot and I thank you for your courage.

@Sambivalent

3 жыл бұрын

I'm glad you learned something new. Thank you for your comment 💕

Watching your video I had one thought going through my brain, "Oh look! Someone like me!" The big difference is that you are so young and I am so old. And I grew up in a time when these kinds of things were kept very quiet. Very hush hush especially if you were to grow up in a religious family like I was. Many years ago, I founded and ran a transgender support group for eleven years before I retired, even though I knew that doing so would cause people to improperly categorize me into that community. I never minded that because I knew who and what I am. Like you, I have no body hair, no body odor, gonads that were removed because they were supposedly "precancerous"....... Today, I identify as an Asexual, Demisexual, Androgyne. I am the "other" sex/gender. :-)

@Sambivalent

3 жыл бұрын

My great aunt had a similar experience to you! Thank you for your comment and nice to meet you

@jessejames3489

3 жыл бұрын

I am also an old intersex woman. When I asked questions, nobody knew what was wrong with me, I was just told that some people are different, and I was one of those.

@oliviamartini9700

2 жыл бұрын

No body odor?!? How does that work?

@aoeulhs

2 жыл бұрын

@@oliviamartini9700 I don't know, but it's true. They don't need deodorant -- or cosmetics or hair products for that matter. It's proof of God's passion for irony that some of the most attractive women around are genetically male.

@margotfitsch1443

2 ай бұрын

@@oliviamartini9700 It is the male hormone, androgen, that starts up at puberty and causes body hair, body odor, and exocrine sweat gland activity. And this happens to XX girls at puberty too because their bodies do respond to androgen.

Thank you very much for this informative message. Don't worry you are fine just the way you are. Don't ever change what makes you, you !. Take care.....all the best 👍

I’m also intersex! I have PAIS but have a typical female phenotype. I’m also tall at 6’0” so I feel you! You’re so pretty btw! Glad to see another intersex female talking about this topic:)

@Sambivalent

2 жыл бұрын

Thank you 💛💜 And happy belated intersex awareness day!

@zipporahdebrah8800

Жыл бұрын

❤

paleLove oh sheeeets, wrong platform paleLUL proud of ya Sara, always got your back

You have found positive awareness. And that is so wonderful. Truly lovely person.

Thanks for sharing. You have great courage and great you are helping others as well. Wish you all the best.

Knowledge is definitely power. Thank you for sharing your story.

Thanks for the sharing and the education 💗 you a champ gurl!

@Sambivalent

4 жыл бұрын

Thanks Felicia glad I could teach you something new 💗

I'm here after the Olympics controversy and I think alot of people are very ignorant on this topic . It's great you Shared your story .

Hi! Thanks for making this video, it’s been so interesting and informative! :)

@Sambivalent

2 жыл бұрын

I'm happy you found it informative!

Great that you can share your story. I hope you go from strength to strength.

@Sambivalent

2 ай бұрын

I'm graduating medical school in a month🥺

Wooow I have now seen this for the 3th time ! its soI nteresting sarah! :D

Never heard of this syndrome. Thanks for the education.

Thanks for sharing this story. My daughter has been diagnosed at 13 years old and it's been really scary for us.

@Sambivalent

2 жыл бұрын

You're welcome! It'a blessing in many ways🌸

@Cheesedream

Жыл бұрын

You’re not alone. About 1/4 to 1/2 a million people on the planet

Thank you for sharing! You are amazing!

Thank you for bravely sharing your story! This was very educational and I'm thankful I had the opportunity to watch. 👍

@Sambivalent

2 жыл бұрын

No, thank you for watching it!

Thank you for sharing your story.

I am currently undergoing surgery for the removal of my internal underdeveloped testes for AIS. I also have true hermaphrodite which mean I have both female and male part. I was supposed have been born a female, I am genetically female. I have never met another intersex girl other than the PCP I used to have at UCLA who had intersex experience; we would very close before her departure. I am having mixed of emotions of scare, anxiety and it is so not easy but I do have some supportive people. Thank you for sharing the video!

@botlhalenxumalo280

6 сағат бұрын

Maybe you should put the surgery on hold for now. Pray about it until you feel at peace about going ahead.

Thank You for sharing / educating me ...

Good job darling i am so proud of you ❤️

Thanks for sharing! I hope this helps a confused person, who stumbles on this!

@Sambivalent

4 жыл бұрын

I hope it will be helpful too ❤️

I would have thought the no body hair by 11 or 12 would have been a clue that something wasn't quite right. Glad you finally got diagnosed. Glad to hear you became a doctor yourself. You will become well known in this field.

Thank you very much for this video.

Thank you. for sharing your life story. I too have another intersex type body development. Mine is related to early fetal gestation during the first few weeks if development. Years ago it was also suggested that I may have a mild form of AIS but that is minor compared to other Intersex issues. I had surgery as a ten year old child. Im not sure what was doe during those first surgeries. As an adult I did develop cancer that was also related to the intersex.

Thank you for sharing your story

I am a medical student learning about this topic and hearing your story helped me understand it better! Thankyou 🤍🤍

Thanks for sharing your story. You tube really allows for us to learn so much. You are a beautiful woman.

@Sambivalent

2 жыл бұрын

Thank you !

I learned something new, that people AIS did not have body hair. I had assumed that body hair resembled that of people with XY genes. Thank you for your good explanation.

You are perfect just as you are.

Thank you for sharing your personal life. It is very educational and open doors for understanding that historically were closed because of antiquated social norms.

@Sambivalent

8 ай бұрын

Hello i'm glad my video broadened your horizons😊

Thank goodness, we can now talk about these topics. I grew up in a world where no one existed between neck and knees. Women could not tell daughters about periods. I was told I would have a visitor every month and that I would have to put on a pad. This was the day the first day of my first period. Speaking openly like this would have had my mother thinking you should be shut in an institution because you are too sex aware and being hysterically silly. There are still people around who can not come to terms with anything between neck and knees. Even the way I have put this shows how outside normal my attitude to the body has been drastically biased. Fortunately now young people are able to see normal is very different from my young days.

Welcome to family! 💜💛

I just came across your video. I am an older woman, and I am also intersex, like you, I have no body hair, but still have all my hair on my head, and I also have no body oder, my sweat does have no smell, and I never had a pimple in my face ever. But I am not AIS. I don't know exactly what I have, the closest is the De la Chapelle Syndrom with no SRY gene (which made my body develop more towards female), and I have hypogonadism, which means, my body makes no testosterone and no estrogen either, and that caused me to grow to 6' 1" (I have a girlfriend, she has CAIS, and is 6' 5" tall). And my height is my problem, De la Chapelle Persons are relatively short, and I am way to tall for this. But living in the US as an older person, nobody will pay for any more detailed testing if the condition will not cause health problems. Oh, by the way, I am also a medical person (PhD Biomedical sciences), and I am my own biggest research project, I am still discovering more genetic mutations, with my body. You are lucky to be living in a country that takes care of citizens who do not fall into a general scheme. and adoption is a wonderful thing, I adopted my daughter, who is now adult, but she is still the sunshine of my life! Good luck for your life and future!

@Sambivalent

3 жыл бұрын

"and I am my own biggest research project" I love this quote! I defenitely look forward to learning more about my own genes. I have a small marker chromosome so i'm technically 44 Xy + mar. Thank you for your comment Jesse and all the best to your girlfriend and daughter ❤️

Thank you for sharing.

Nice video Paleolite 🙂🙂🙂

@Sambivalent

4 жыл бұрын

Thanks! 😄

Congratulations on your video. I love Sweden and Swedish people and have been there many times, starting in 1967!

@Sambivalent

2 ай бұрын

I'm actually Finnish but i speak swedish as my mother tongue (Finnish too of course)!

Thank you for sharing your story. I’m mom to a beautiful 18 month old baby, her name is Helena and she has xy chromosomes as well. We found out a few months ago and yes, it is a learning process, but we’re doing very well. She is a happy and a healthy baby 🤍

@Sambivalent

3 жыл бұрын

I'm happy for you😊

@MayIPleaseAskYou

2 жыл бұрын

Celeste may I please ask, were you told that your Baby was male XY TY 👩🏻‍💻

@CelesteGuerrero

2 жыл бұрын

@@MayIPleaseAskYouhi! Sure, I noticed somenthing was "different" after she turned one , so we saw an endo who made some lab test. We found out she has had high levels of testosterone which caused those differences. And we also found out about her chromosomes. :)

i love this girl

you sure weren't short changed in the looks dept...you are gorgeous

Thanks!

Hi Sarah thank you for sharing your story; I’m also have complete AIS. I just found out on 2020 like if COVID wasn’t enough las year 😅. Anyway, I hope you’re doing well !

@Sambivalent

3 жыл бұрын

Hi Mary! Oh nooo, but glad to have you join the intersex fam! We just got hit with stricter restrictions here but i'm getting the second dose of the vaccine today so that's nice.

@zipporahdebrah8800

Жыл бұрын

You're funny ❤

Thanks Sara..for sharing your story..as i have my baby girl of 5 years & she is also diagnosed with CAIS..pls Tell me all the things regarding this i m from India

I hope to see more videos from you !

@Sambivalent

4 жыл бұрын

Thank you Gabby❤️

Thank you for posting. I do hope you make more videos. My one suggestion would be to not have background music. It distracts from your important message.

@Sambivalent

4 жыл бұрын

Thank you for your comment. It turned out a bit louder than I had hoped for but I like music.

I too was born with a intersex condition. It has caused me a lifetime of pain. In addition I had many surgeries and even stage three cancer because of it.

@Sambivalent

3 жыл бұрын

I'm sorry Hannah. For a long time I thought my condition hadn't caused me any pain but slowly I'm realizing there is a lot to deal with even if it's not cancer.

@hannahmich7342

3 жыл бұрын

@@Sambivalent Take comfort in that you know who and what you are as a human being. In many ways I think I’ve been blessed having been born this way. Clearly I don’t have AIS like you yet my male body has both female and male aspects that reside within one being. I prefer the female side the older I become. Hopefully I’m done with surgeries and cancer stuff. I did marry and with great difficulty we did manage two children before my cancer and surgeries happened. I’ve never been happier after the treatments reduced my male side even more. I’ve been lucky to have a wife who accepts me as both female or male, she just likes me for who I am. So what more can I ask for from life?

Nice to know from you about Inter sex individual from a real person like you.

This is really interesting, thank you for sharing ❤ If it’s not too much to ask or to invasive, do you have the complete form of the androgen insensitivity syndrome or the partial form? If I understand correctly, it can be a spectrum right?

@Sambivalent

3 ай бұрын

I have the complete form and yes you are right it can have a range of expressions!

Thank you for sharing your experience. I have learned something new. And happy 2021 Pride Month! Date Stamp: 09june21

@Sambivalent

3 жыл бұрын

Happy pride I'm glad you learned something new :)

Nice video

vegetarians body odors are nice, i think they are pheromone level. not as strong as perfumes but you can detect them if you put your mind to find the silent odors. and they are really good.

Hi sara, i also have the same condition, now iam struggling with that, can you please help me...

this is so cool

Do you mind if I ask what estrogen pill you're taking? I have CAIS and take 2 mg of estradiol per day but I'm worried I have the wrong prescription. Thank you for making this video, please make more :)

@Sambivalent

3 жыл бұрын

I'm on 4 mg of an estradiol valerate pill called Progynon. I had my dosage increased gradually from 2 mg to 4 mg this year and I feel much better. I will make a video about it soon! Please consult with your gynaecologist or endocrinologist and let them know about your concerns.

@AHfhjfjd317

3 жыл бұрын

@@Sambivalent thank you for answering. I look forward to your video and your answer made me want to schedule another appointment with my gynecologist. Final question (sorry lol) but what problems did you have with the 2 mg estradiol?

@Sambivalent

3 жыл бұрын

@@AHfhjfjd317 Low energy, depression, night sweats, lubrication during sex.

Thank you ♥️🇨🇦🌎

I have also this...why It causes overweight & what can I do!? Can you explain? Even after dieting I again gain weight!

I have a question that I can’t seem to find online but - even though you hadn’t started you period by age 15, did you at least have normal breast development or was that also delayed? And - were you always tall for your age or did that height only happen once puberty kicked in and breasts began developing? *Asking because I have a 14 year old daughter who also hasn’t started her period, doesn’t have body odor, has no body hair, doesn’t have any signs of breast development, and isn’t tall for her age (she’s slightly shorter than average). I’m wondering if it could be CAIS but also don’t know if she is mentally/emotionally ready to hear that from a doctor.

@margotfitsch1443

2 ай бұрын

I would think it is time to have her tested for XX or XY chromosomes, and then you can go on and find out if she has CAIS.

There’s is a whole episode on AIS in House MD.

@Sambivalent

2 ай бұрын

I know it's called Skin Deep i've watched it!

you are so beautifyl . Lots of love to you . :)

I can’t believe by 2012 doctors were still recommending removal of the gonads. It’s so frustrating. If your gonads were intact you wouldn’t need HRT, right? Cause your gonads we’re making androgens but then your body was converting them to estrogens?

@Sambivalent

3 жыл бұрын

I was on 1 mg of Estrogen so I would probably have needed HRT but the surgery had major affects on my mental health and energy levels and my HRT levels weren't adjusted afterwards which I'm bummed about.

Interesting, informative video! Just curious: what is the difference between Androgen Insensitivity Syndrome and Complete Androgen Insensitivity Syndrome?

@Sambivalent

8 ай бұрын

Androgen insensitivity syndrome has two forms either partial (PAIS) or complete (CAIS). In partial form you are to some degree sensitive to androgens.

@folgore1

8 ай бұрын

@@Sambivalent Thanks for the quick reply! I should've been more clear. I meant how are women with PAIS physically different from women with CAIS? I have seen some vids by women with CAIS. Their stories are identical to yours in that they only discovered their condition when a doctor had to investigate why they had not yet had a period. Or is the distinction something that is discovered only through genetic testing with no physical differences being apparent.

What is with your libido, if you are resistant for testosteron.

I have all of these symptômes i think that i have it too im 26 ididnt remove the gonads and i didnt take any pils is that okay

@Sambivalent

3 жыл бұрын

You need to see a doctor to confirm a diagnosis. If you don't take HRT you might have issues with bone density and osteoporosis later on.

@hopesmile

3 жыл бұрын

@@Sambivalent but i didnt have the sergery they might turn to cancer is that true

So, how does one test for AIS anyway? I had some sex hormone and neurotransmitter blood tests performed some years ago, and they showed extremely low levels. I'm supposedly male? I've had therapists tell me I am several times before. :-/ I don't identify as male. In fact, the thought is outright painful. i only began questioning my hormonal levels as I started to feel the need to transition in my early 20s. Haven't yet, but soon. I'm extremely tall too with wide hips, started puberty at 8, and got a genderless voice and barely any body hair. My questions regarding Intersex stuff tend to just bounce off the people I ask, even the supposed experts - including the private doc I went to for the hormone tests, and the MTF doctor. I'm mainly just interested about my precise diagnosis (it's pretty safe to guess it is in the IS spectrum) due to those potential health hazards. I'm being left alone with these question here in Finland. Can't blame the docs and such, AIS is a pretty rare condition. If I even have it??? I'm mainly just self-educating here, making guesses like an angry weatherman. Frustrating AF!

@Sambivalent

3 жыл бұрын

Hello fellow Finn :) They test it by doing a Karyotype. If you express male characteristics (which I assume since you were assigned male at birth) you would need to have the partial form of AIS because if you had the complete form of AIS you would present externally feminine at birth.

@anindianhomosapien7189

3 жыл бұрын

@@Sambivalent Hi, I heard that people with AIS have testis but no uterus. Is it true?

@Sambivalent

3 жыл бұрын

@@anindianhomosapien7189 It's true!

You're such a pretty woman!!

@Sambivalent

2 жыл бұрын

Thank you queen 🥺👉👈

I have Partitial AIS with low sex drive but I get testosterone I also have autism

Tell Matt Walesh , your story is inspiring .

@Sambivalent

2 жыл бұрын

I had to look up who he is haha

@Nourr1992

2 жыл бұрын

@@Sambivalent He is insisting that women have only xx chromosomes lol .

@zoch9797

Жыл бұрын

@@Nourr1992 Technically via chromosomes/biology, yes. He's not wrong. He is also specifically focusing on transgenders/transitioners, not born-intersex people. However, she was clearly only responding to estrogen since fetal-hood, and has distinctly female phenotypes. Perhaps a new social definition is required. Not that a-woman-is-someone-who-identifies-as-a-woman crap (which technically means "a woman is someone who identifies as [someone who identifies as [[someone who identifies as [[[someone who identifies as]]]..." ad infinitum) How about instead, "a woman/female is a human who has naturally occuring vagina and breast tissue". Accounts for lack of uterus via nature/surgery, does not restrict to XX only, allows for those with testes, and does not conflate transitioners with real intersex people. That would include our wonderful youtuber here.

Hi, you are beautiful and brave. Where can we find you on other social platform? I have PAIS as well.

@Sambivalent

3 жыл бұрын

Hello, there are links to my socials on my KZread channel page and in the video description.

You never know people looking at feet because some guys will look at your feet because feet are pretty to them .

@Rebmetpes4

3 жыл бұрын

Feet are nice though😍😍😍😍😍😁😁

I thought androgen insensitivity syndrome meant that the Male foetus did not have the receptors to respond to Male hormone. I didn't think the foetus responded to oestrogen as the person in the video stated.. .The foetus has no female sexual characteristics so cannot develop as female but lack of response to Male hormone means their body parts look female or ambiguous.

Can you repost this with louder audio?

@Sambivalent

Жыл бұрын

Hello! I'm planning on filming an updated video "AIS in depth". I can't upload it again sadly.

Hi there - what happens if you do not take HRT?

@Sambivalent

3 жыл бұрын

Hi Jimmi! I've been without my medication for sometimes a week at a time and usually it is too short of a time to notice any difference. I sometimes I get ache in my lower abdominal area (where my gonads used to be) and low energy levels.

@JimmiAlli

3 жыл бұрын

@@Sambivalent thanks Sarah. Take care.

Im sorry to say this, but I find this so interesting I have to ask: do you know other people with this condition? If so, do they all identify as women or consider themselves female?

@Sambivalent

2 күн бұрын

Hello! I have a great aunt with the same condition. I also know other AIS individuals through support groups of which some identify as men and some as women :)

what a coinsidence hhhhhhhh my name sara and i'm also AIS

no pressure to answer if you don't want to... do you have health problems like depression, fatigue, low muscle tone, etc due to not having the testosterone?

@Sambivalent

2 күн бұрын

Here's a video where I talk about mental health: kzread.info/dash/bejne/ZYR6saqSYqe8mNI.html I haven't noticed any issues with muscle tone.

@luckystar6871

2 күн бұрын

@@Sambivalent thank you for the response!!

You're beautiful, you should be a model. However you said you were a doctor, thats a much better career.

How do males test for xxy condition?

@Sambivalent

8 ай бұрын

Karyotyping i would imagine

I'm intersex But I have a desire to live as a male of my true kind, and I am in Syria, and there are not even psychological consultations here How can we communicate Can you help?

I 💘 You

Sorry, AIS is not dominant. is recessive x-linked