I just found your channel and wanted to thank you for all of the information around CFS / ME. My illness started last year and it’s been difficult finding manageable tips. Thank you 🥹

I'm so proud of you for putting yourself in such a vulnerable position to talk about your symptoms and your mental health! (not to mention the editing is STUNNING)

@ElinorBrown

4 жыл бұрын

Thank you so much !! means so much to me that you like the stuff I'm making !! love you so much !!

I understand you. I am on second year of nursing school and I got very ill since October last year. Then again in February, I got super ill again and because of corona, the house doctor cannot send me to the hospital to be checked by the specialist. Then in early this month, just before my exams, I need to go to the hospital to be checked. I was so tired and had pains everywhere. Just everytime I am scheduled to have exams, I always need to go see the specialist. I thought I flunked all my exams. I was in no state or form to take it. A day before my last exam, I was diagnosed with fibromyalgia, me/cfs and depression. But I passed my exams thankfully. Just keep hanging in there... there is always bright light at the end of the tunnel.

@ElinorBrown

4 жыл бұрын

I'm sorry you had to go through all that difficulty but I'm so glad you are seeing some positive change now and have the reward of passing your exams !! Keeping going is the most important thing, that's how you get to a place where you can really LIVE your life again !!

I like come back and rewatch this when I'm having a crash/flare up because it helps me feel less alone I think, but this time while rewatching through this again it really stuck out to me that you were told to do Graded Exercise Therapy makes your bad year make so much more sense in a bad way. I've been spending the past while reading through the articles that have come out in the past few years discussing why GET worsens a lot of ME patients health and the studies supporting GET for ME are deeply flawed or highly misleading. I'm glad things have been changing the past few years but it really is so awful how the PACE trial and generally doctors not listening to ME patients has led to so much more pain and harm to people with ME. I'm glad several big agencies and national organizations have been changing guidelines to match the research showing GET is not the best treatment for lots of ME patients. Of course, I don't know everything that could've effected your health at the time. I definitely know how you feel in regards to poor health contributing to loneliness. Missing out on doing things with people you care about is one of the harder things about chronic illness, in my opinion... Thank you for sharing your experience. It's nice to hear from other chronically ill people.

@ElinorBrown

2 жыл бұрын

I'm happy I can help a little! Yes, Graded exercise Therapy definitely made me a lot worse and impacted my mental health because it was so difficult for me! You're right loneliness is a big deal in mental health as well!!

I loved this video but please replace the music. My god. I felt like I was being put on hold to speak someone about life insurance.