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Meet Addy, Cystic Fibrosis Patient

/ chrichmond
While Addy was discovering her love for architecture... Dr. H. Joel Schmidt was discovering ways to make sure cystic fibrosis never keeps her from being a kid.
It's a fact. Kids are curious little creatures. At Children's Hospital of Richmond at VCU, so are our doctors. It's that curiosity that led Dr. Schmidt and his team to discover a new therapy to treat Addy's cystic fibrosis. And it's seeing her playing, laughing and building princess forts that keep our entire staff dedicated to discovering the best care for kids.

Пікірлер: 63

  • @t.maryyy8037
    @t.maryyy80373 жыл бұрын

    Lost my friend to this disease yesterday morning..... I want to start fundraiser dedicated to the people who are fighting this disease. ❤️

  • @shauntayecooper9489

    @shauntayecooper9489

    Жыл бұрын

    I am sorry for your loss

  • @abbieprice3430
    @abbieprice34304 жыл бұрын

    I wish we could’ve heard Addy speak during this interview as well! Also I wish they could a segment where her sister spoke out about what it like having a sibling with cystic fibrosis!

  • @judystewart356
    @judystewart3562 жыл бұрын

    I lost my nephew from CF ..he was 35 years old ..we were SO Blessed to have him that long.

  • @summerdelaney5529
    @summerdelaney55294 жыл бұрын

    Who else has Cystic fibrosis like me? And Addy u are amazing and so brave :)

  • @Zahra-ky6rb

    @Zahra-ky6rb

    3 жыл бұрын

    I have, hope you're doing well

  • @BellaThePomeranian

    @BellaThePomeranian

    3 жыл бұрын

    I have cf

  • @isabellb8853

    @isabellb8853

    3 жыл бұрын

    I do!!

  • @kesha5248

    @kesha5248

    3 жыл бұрын

    i have and its really hard :(

  • @dttsf8966

    @dttsf8966

    3 жыл бұрын

    My uncle died from it

  • @jennamichelle2001
    @jennamichelle2001 Жыл бұрын

    I’m very happy to hear that this clinical trial is helping her!

  • @zoey.stone7811
    @zoey.stone7811 Жыл бұрын

    my little cousin, Lilliana, 8 has cystic fibrosis and a few months ago she got her feeding tube out, I’m so proud of her. She won’t be able to donate blood or have kids. She most likely wont make it to 22. A meal of pills she has to take, and treatments two times a day. Sometimes she so happy I forget she has cf.

  • @abigailhurstfield9421
    @abigailhurstfield94214 жыл бұрын

    I have this and I hope she keeps breathing and has no problem fighting this

  • @ashleykevin380
    @ashleykevin3808 жыл бұрын

    I wish someone would find my best friend a cure I really wished he could live a normal life as well

  • @user-ob3sg2wt3v
    @user-ob3sg2wt3v8 ай бұрын

    I wanted to say this, I was born with cystic fibrosis, my name is Adey, and she is a sweet girl! Hopefully she started tricafta. I have a question does she go to the children’s hospital in Houston.

  • @erikagarcia-oj7zn
    @erikagarcia-oj7zn6 жыл бұрын

    My baby Victoria died of this cf😭😭😭😭😭😭

  • @plastiqueedwards2722

    @plastiqueedwards2722

    5 жыл бұрын

    So sorry to hear that 😭 Keep spirit sweetheart! Dont be sad ❣

  • @oofo5982

    @oofo5982

    5 жыл бұрын

    Omg i am gonna pray for u and ur family 😢

  • @charley953

    @charley953

    4 жыл бұрын

    God bless you poor soul. Just know that even though I do not know you I am prying for you. 🙏

  • @sonia15702

    @sonia15702

    Жыл бұрын

    I feel for you so much, having known families with CF

  • @theartempress6100
    @theartempress61002 жыл бұрын

    my friend has cystic fibrosis and i hope by the time he reaches the average lifespan scintests come up with a cure

  • @catlover1873
    @catlover187310 жыл бұрын

    i am 13 and i also have cf it is hard you have to take a lot of meds and your in the hospital a lot

  • @taniabernal8087

    @taniabernal8087

    3 жыл бұрын

    I’m sorry

  • @gamerqueen5720
    @gamerqueen57207 жыл бұрын

    hi im Elizabeth and i have Cystic fibrosis and the parents of Addy i believe they are working on a cure

  • @aprilbequette2606
    @aprilbequette26068 жыл бұрын

    I have to do treatments

  • @victoriak2358
    @victoriak23584 жыл бұрын

    I have CF, you got a semi cure. Ya better plan on sharing that!!!

  • @chaoticghost_x

    @chaoticghost_x

    3 жыл бұрын

    I have CF too I got diagnosed at he age 7

  • @emilylittlewood3229
    @emilylittlewood322910 жыл бұрын

    CF is absolutely genetic. I know the brother of the RESEARCHER who found the cf gene on the human genome map. whysoseriousmister you should probably do a little more research yourself.

  • @dazzle_slimez8144
    @dazzle_slimez81445 жыл бұрын

    I have cystic fibrosis

  • @diyazaveri3958

    @diyazaveri3958

    4 жыл бұрын

    God bless you!

  • @summerdelaney5529

    @summerdelaney5529

    4 жыл бұрын

    Same here

  • @emmaquiring2791
    @emmaquiring27915 ай бұрын

    1:21 When Will My Life Begin? from Tangled

  • @muhammadhanifkhan
    @muhammadhanifkhan26 күн бұрын

    Great dear You are doing a great job you are just like my real sister Please study Holy Quran and accept Islam you will get success in both worlds

  • @oofo5982
    @oofo59825 жыл бұрын

    My sis has cf she got it at birth

  • @ElleKathleen123
    @ElleKathleen12311 жыл бұрын

    So you're using one source against thousands? You need to realise that just because you hear one thing doesn't make everyone else wrong. It probably just makes you wrong. Know because you speak.