A little baking soda in lots of water has helped prevent acute muscle stiffness/spasms for me, too! (Patient/host with HyperKPP mentioned this at around 45:03?)

Thanks for enlightening us on different forms of PP and medications available for their treatment. For me change in pH for treatment looks interesting. In Ayurveda, people with arthritis and paralytic disorders are advised to modify their diet (ex. Curries) by reducing salt and acidic fruits like tamarind, tomatoes and cut solanaceous vegetables etc. which actually helps in reducing severity. Dichlorphenamide tablets not available in countries like India and it goes difficult to try on PP.

@PeriodicParalysisAssociation

Жыл бұрын

PH balance is an important part of controlling symptoms and diet can be a huge help in controlling it. Thank you for sharing.

Thank you so much for this video!! I needed the updated information on the daily amount of safe limits of potassium intake for hypokpp. 200 meq’s is much more than I remember Dr Jacob Levitt saying in his report. A couple questions:: 1- I’m not finding that post on the PH levels you were talking about? Can you please lead me to it? 2- Also, I’ve been waiting to hear about the Periodic Paralysis Documentary!! Where is it??? Has it come out yet? So excited to see it!!!!

@PeriodicParalysisAssociation

Жыл бұрын

Cherrice, Here is the link to the PH balance page information on our webiste. periodicparalysis.org/ph-levels/ The documentary was only released to registered PPA members due to us submitting it to film festivals. If you are already a PPA member, you would have received an email at the end of the year or beginning of this year with a link and a password. It will be released to the public and non-members later this year. As of now we do not have a date.

@cherriceann11

Жыл бұрын

@PeriodicParalysis thank you! I found the email and watched the documentary just now.

I can't take a beta blocker because it makes my glucose go sky high for some reason. Diabetic but it's beta blockers twice now took my glucose from 77 to 475 P in nearly put me in a coma. That has helped me and that I have you know you know long problems pneumonia to also be sharing sometimes I have to take albuterol. But it does make my heart sodium bicarbonate or spirit now I have to be careful when I take it I gotta take something it takes a large amount of it every single day or anything like that but when I'm having really bad days of carbs snacks I had to figure out on my own I have a sodium bicarbonate for something with protein and sugar c

@PeriodicParalysisAssociation

8 ай бұрын

Thank you for the question, but we cannot give out medical or medication advice. If you go to our "Ask The Experts" page and submit a question there we would be more than happy to help you. periodicparalysis.org/ask-the-experts-disclaimer/

How can I chat ? please guide me,I take thermotabs when I sweat a lot,the tablets are Buffered salt supplement and even though potassium triggers my myotonia, I can balance by the use of potassium glutamate!

@PeriodicParalysisAssociation

Жыл бұрын

Leroy, You can submit all medical questions to the link below. periodicparalysis.org/ask-the-experts-disclaimer/ They will be happy to answer your questions.

I have had beckers myotonia congenita all my life and I’m 60 and know other family members have the condition and my siblings had a 23 % chance of being carriers of the faulty chromosome cnl1 it’s inherited by autosomal recessive,it’s a myotonia, there are three myotonias the other two are inherited by being recessive and dominant inherited, I need my mitochondria to make more atp so I can have energy, I only need myostatin inhibitor, or follistatin from a neurologist so I can stop eating fertilized quail eggs, so please get the fda to approve these two drugs 🎉check out the blue Belgium cattle that are hulk with muscle from a muscle mutation.they move freely unlike the fainting goats.

@PeriodicParalysisAssociation

Жыл бұрын

Thank you for sharing your story.