Thank you, Dr. Appelbaum. I will be participating in a clinical trial followed by a transplant. I am in good hands with Fred Hutch in Seattle ❤

thanks for the lecture. Very clear and illustrative

My cousin was diagnosed with AML in 2019, she did chemo for about 6months and went into remission for about a year and then had a relapse after which i did a bone marrow transplant for her in 2021.she went into remission again for about 18months after which she had a relapse again. She underwent another round of chemo and i was told to give her another boost of stem cells after which she went into remission again for about a year but now she has had another relapse we are really distraught and actually dont know thw next step to take

So scared, my sister lives alone and her AML has relapsed and is on blood support . I have been her caregiver, taking her to appointments, and appointments in contact with her few times a day. She knows the chemo stopped working, but neither of us know what to expect. Maybe it’s for the best for her, but the unknown worries me with her being alone. We just don’t know anything about this disease.

is Yale top ?notch in aml treatment can a grand child 's cord blood be a match

I am getting a bone marrow transplant the end of November for my aml. I will admit I am scared

@annaserrao8948

Жыл бұрын

Don't be u will be fine

@alankraj9139

Жыл бұрын

Any problem u faced

@alankraj9139

Жыл бұрын

This disease is cured completely yes ya no

@annaserrao8948

Жыл бұрын

@@alankraj9139 my dad had a bone marrow over a year ago and his aml keeps coming back. He gets top ups of bone marrow cells but doc said looks like aml is getting smarter.

@stevedunahugh2203

Жыл бұрын

@@alankraj9139 day 60 (post transplant) doing really good, Drs are very happy with where I am at recovery wise

Is there any new treatments that are working and if you know that radiation can cause leukaemia why do you do it and do you tell your patient before

You mentioned patients who have AML with TP53 do best in an academic center. My nephew was diagnosed at Emory Hospital. After beginning chemotherapy the AML cells were undetected. He was sent home and to the Payton Anderson Cancer Center in our community for treatment. His doctor at Emory is working closely with his doctor at Payton Anderson. About a week after coming home he developed a headache and fever. Tests were done and it did not look good. He was given 6 months to 1 year to live. He is 51. His fever after peeking at 106 is now down to under 100. Still has the headache. Doctors are testing to find the source of the infection that is the cause of this relapse. We are wondering if my nephew should go to MD ANDERSON in Houston TX? Or should he feel confident that he is receiving the very best treatment out there? My nephew is not ready to accept the prediction 6 months to a year. How long should he wait before applying to MD ANDERSON or like facilities? Hard decisions! Jason is at Navicent hospital here in our community. It is a teaching hospital connected with Mercer School of Medicine. I am sorry this is so long.

@user-sp8oy9be4i

4 ай бұрын

Hope all is well. Living in Houston and I’m waiting for a stem cell transplant. We went through the ER at MDA on 1/1/24 and were accepted. Diagnosed with AML, December 29, 2023.. We were out of network, currently moving to Methodist Hospital for the transplant procedure. Very scary!

@marcysikes

4 ай бұрын

@@user-sp8oy9be4i prayers for you! I hope all goes well! My nephew Jason is considering stopping chemo and opting for better quality of life versus longevity. Still praying for a miracle! The TP53 makes a huge difference. Not very encouraging. 🙏🏻🙏🏻🙏🏻

@user-sp8oy9be4i

4 ай бұрын

Dr Abbas is our Dr - I would definitely call MDA and speak with someone. The person we spoke with when we 1st called listened to what we told them, we sent my reports to them from our Dr, they guided us on what we needed to do, he checked with the chief of staff, called us back and we checked in through the ER. It never hurts to make a call. We just found out Monday, the stem cell transplant is a much more intense chemo treatment than the 1st chemo I completed on 2/6/24. I’m not sure I want to do it now myself. It was rough. I just turned 57. My daughter is 16 and will be a senior next year. My husband said, you don’t want to see your daughter graduate? 😢

I'm 45 minutes into this video so far and it's been about AML. No mention of Covid 19 or Monkey pox yet

@BMTinfonet

Жыл бұрын

Very sorry about the error. The title has been changed. You can hear an update on Covid, "COVID-19 and Monkeypox: What Transplant and CAR T-cell Recipients Need to Know" in our Nov. webinar. Please register for it here: www.bmtinfonet.org/event/covid-19-and-monkeypox-what-transplant-and-car-t-cell-recipients-need-know