Living with PMDD | Laura's Mental Health Story | Mind

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Hi, my name’s Laura and I suffer from PMDD and that stands for Premenstrual Dysphoric Disorder, which is a cyclical mood disorder caused by a sensitivity to your hormone fluctuations between ovulation and your period. So generally that’s about two weeks a month that people suffer from it.
Symptoms are basically, imagine PMS but on steroids to the point where it’s just completely unmanageable. So instead of being irritable people are crawling in their skin. Instead of being depressed you’re chronically depressed and can’t get out of bed. Anxiety is through the roof. Rage, anger for some people. There’s also some physical side effects that some people get. Not everyone suffers from those but they can be more extreme. My physical side effects tend to come more from the anxiety, so palpitations and dizziness, weakness. And fatigue is a big one and I sleep a lot just as I’m coming up to my time of the month.
So for me my PMDD - I think - started at around 17 when I went on the contraceptive pill. And it was a pretty instant reaction. From that day forward basically I had panic attacks and bouts of depression for the next 20 years. I had bad reactions to most contraceptive pills and the Mirena coil also made quite a lot of my hair fall out. I was chronically depressed and suicidal for about 18 months.
In my twenties I think I was losing about two days a month. It was pretty horrible but it was bearable. Then as I came into my thirties it just became more chronic, to the point where I was losing three days going into this depression, about five or six days really unable to cope or manage, just completely overwhelmed, and then about three days to recover from it. And all this time I was being told “It’s just PMS” so I thought it was just me being weak - which is a really common story. Most GPs haven’t heard of PMDD.
A lightbulb moment came when I read about PMDD online and I joined a peer support group - UK PMDD support - which I now run. I got a referral to a specialist and 18 months down the line I’m not responding to anything so I’m just about to have a hysterectomy in the next couple of months.
So my advice would be if you think you suffer from PMDD; join a Facebook support group. If you just type PMDD in the search bar there’s loads of tips. There’s loads of groups for absolutely everyone. Download a tracker, a period tracker and start tracking your symptoms daily to see if you notice that change in yourself in between ovulation and around your period. It doesn’t always stop on that day, for some people it runs over.
Do get in contact if I can help. Thank you. Bye!

Пікірлер: 31

  • @just1desi
    @just1desi4 жыл бұрын

    Going through this now. Period is coming soon. I’m so irritable. Literally crying for no reason. Little things people do bother me majorly. I keep wanting to start fights I’m offended by everything, texts, brief comments on phone calls. I’m having imaginary arguments in my head with people because I know not to confront them because I know I’m not thinking straight right now. I’ve been anxious last couple days. Feeling ridiculous dread even though those days have objectively gone pretty well. Suffering from insomnia all week. Appetite missing, most days won’t eat until the afternoon. Short attention span. Little tasks seem insurmountable. God I just want to bleed and be done with this.

  • @trishcook8691

    @trishcook8691

    4 жыл бұрын

    just1desi I’m just realizing that I may have PMDD. I feel ALL of this! Crying for no reason, overwhelmed, sad, depressed anxious, irritable, headaches!! It scares me cause I’m already medicated for anxiety and depression and I just feel hopeless.....

  • @lin_is_a_bird
    @lin_is_a_bird3 жыл бұрын

    I go through this every month and tell my husband he should leave me. I am such a fun good person when I’m not going through this BS.

  • @randomthingsasmr4063
    @randomthingsasmr40634 жыл бұрын

    It must get worse as I get older I have always had these problems but now that I am getting older it seems like it never ends.

  • @TheChgz
    @TheChgz5 жыл бұрын

    I always wondered what was wrong with me. Every period I get, I turn into a different person. My boyfriend who has put up with it for 8 years said he has feared for his life when I get into my "moods". The slightest thing can turn me into this evil destructive thing when normally I'm a very calm and happy person. I can't help myself! Thankfully my boyfriend is very understanding and knows to keep an eye out for that one week a month where I could rip his head off for next to nothing. It's sometimes best if I just curl up in bed for a few days until I stop feeling like the whole world is out to get me. But I'm very glad I know I'm not alone. I don't feel so bad for the way I can act now, knowing it isn't just me.

  • @penelopeeatsyourbrain4510

    @penelopeeatsyourbrain4510

    4 жыл бұрын

    A different person. Definitely. That has been said about me as well. It's awful my friend

  • @penelopeeatsyourbrain4510
    @penelopeeatsyourbrain45104 жыл бұрын

    Thank you Laura! This is almost exactly how I feel, and of course everyone's symptoms tend to be slightly different but if you have PMDD, you just KNOW it. The worst part for me has probably been the lack of empathy and understanding from other women! I know, females have more empathy, know what it's like etc, right? Wrong! When I explain this to men, the reaction has almost exclusively been one of understanding, or rather, since they don't know what it's like, a willingness to understand and generally, empathy as well. After all, they don't have it so they probably feel that they don't have a right to question, diminish or criticize. But neither do most women, since they don't have it either! In fact, not all women even have regular PMS, let alone PMDD that only affects a very small fraction (and you probably know this, just throwing these facts out to the general population so that uneducated people who read this can learn). Anyway, thank you for spreading the word and getting involved in this. I hope we can cure this someday, that the public is educated and informed about this, and until that we all can find as much relief as possible. Take care!

  • @mrsingh2409
    @mrsingh24096 жыл бұрын

    Thank you so much this was so inciteful and made me feel normal as I could really relate to what you’re saying

  • @viciouscyclemakingpmddvisi2207

    @viciouscyclemakingpmddvisi2207

    5 жыл бұрын

    Very welcome - do shout if we can help. YOu are not alone x

  • @relentless12345678
    @relentless123456783 жыл бұрын

    I 100 % have pmdd... Can't get a doctor to help.. I've been on contraception and depo and it just made it worse... If I don't bleed it gets worse... Anyway my paranoia and self hate is getting worse I've never been able to have a normal relationship coz the guy thinks I'm nuts and does a runner 🏃 basically it has destroyed my life.. I also have cfs fibro and none epileptic seizure... If anyone here can recommend a doctor NHS or private I would be grateful

  • @teresapare238
    @teresapare2384 жыл бұрын

    Thank you for sharing

  • @sylviabadshamiah321
    @sylviabadshamiah3215 жыл бұрын

    Hi Thank you. My friend has this condition. She has had a hysterectomy and is still struggling with severe pmdd symptoms. I want to be able to understand this better.

  • @marilynbahoura
    @marilynbahoura4 жыл бұрын

    Thank you

  • @rachaelkwhite
    @rachaelkwhite5 жыл бұрын

    Thank you so much for sharing. Xox

  • @VLoveCrystals
    @VLoveCrystals3 жыл бұрын

    thank you so much! xoxoxoxo

  • @emmawelsh5336
    @emmawelsh53366 жыл бұрын

    It's interesting what you said about how pmdd started when you started to use the pill. That was the same for me which may just be a coincidence but I sometimes wonder if pmdd could be caused by talking the pill. I wonder if this is why Drs won't aknowlege pmdd because it would mean looking into whether or not putting synthetic hormones into the body could cause a problem in the brain resulting in pmdd symptoms. Something that disproves this theory is that some women take the pill and have no I'll effects. I know I can't guess at causes but it has crossed my mind and I have a fear of taking the pill now.

  • @viciouscyclemakingpmddvisi2207

    @viciouscyclemakingpmddvisi2207

    6 жыл бұрын

    Hiya - Laura here (from the vid) - we are all so different. The Pill is used as a treatment for PMDD so it works for some but sends some of us the other way! There is so much building evidence now about the pill and mental health....it's really quite scary how many young ones are pumped full of this stuff from a young age!

  • @Blobsterisation

    @Blobsterisation

    6 жыл бұрын

    I'm convinced it causes it. I didn't have it before the age of 15, started many different pills, then got pmdd in my 20s. No one else in my family has it and no one else in my family ever took the pill. God I hate it

  • @SeaStarTea

    @SeaStarTea

    5 жыл бұрын

    @@Blobsterisation I've never been on the pill but I suspect I might have this. It's confusing because I've read in some places that the pill helps some of the symptoms! I honestly think it's different for every woman; we all have specific sensitivities to specific types of hormones and whatnot.

  • @tlfsunshine16

    @tlfsunshine16

    5 жыл бұрын

    Mine started after being on the pill as well.

  • @just1desi

    @just1desi

    4 жыл бұрын

    I’ve never been on the pill but I had a couple depo shots but stopped because I’m one of the Bleed incessantly never ending period persons on depo. My PMDD started couple years after.

  • @nicoleperez3067
    @nicoleperez30674 жыл бұрын

    What type of dr. Should i see?

  • @angelahamilton1980
    @angelahamilton19805 жыл бұрын

    I can’t take the combined pill (history of stroke in family) and been told same for implant etc so I’ve been left with nothing really. Told too young for a hysterectomy too (38) all I take is paracetamol and multivitamins x

  • @MindMentalHealthCharity

    @MindMentalHealthCharity

    5 жыл бұрын

    Hi Angela, I'm sorry to hear that. Have you tried having a look at our web page about PMDD? There's info about other treatment options and self care tips too. bit.ly/2LsZLtQ Take care, Cora at Mind

  • @viciouscyclemakingpmddvisi2207

    @viciouscyclemakingpmddvisi2207

    5 жыл бұрын

    I was 38 when having my surgery - it is very young however if you cannot take oestrogen as you would need that for bone protection etc x

  • @deathparadepdx

    @deathparadepdx

    4 жыл бұрын

    Vicious Cycle: Making PMDD Visible how is your PMDD now that you’ve had that surgery?

  • @Blobsterisation
    @Blobsterisation6 жыл бұрын

    I was told a hysterectomy wouldn't help - that I'd simply get the menopause and the same symptoms as before

  • @viciouscyclemakingpmddvisi2207

    @viciouscyclemakingpmddvisi2207

    5 жыл бұрын

    They are incorrect - Hysterectomy WITH bilateral oophorectomy (ovaries out as well) is recommended as the last line of treatment in the RCOG greentop guidelines and also the NAPS UK treatment guidelines. You would be in surgical menopause so it needs to be managed with HRT and your levels will be stable... x

  • @viciouscyclemakingpmddvisi2207

    @viciouscyclemakingpmddvisi2207

    5 жыл бұрын

    For PMDD, a bilateral oopharectomy (ovaries out!) is what is needed - many have a hysterectomy too if they cannot tolerate the progesterone add-back that would need to be taken if you use oestrogen HRT. If you are on Facebook I would recommend checking out the PMDD, Hysterectomy and life after group - it's end of the road stuff though when everything else has failed x

  • @lauramurphy3558

    @lauramurphy3558

    5 жыл бұрын

    That is incorrect. THBO (total hysterectomy with both ovaries removed) is the last line in treatment for PMDD and has high success rates. Please contact www.iapmd.org/peer-support who will be able to provide you with literature etc. x

  • @nicolarenshaw6460

    @nicolarenshaw6460

    5 жыл бұрын

    @@lauramurphy3558 thank you. I sent a message to the support team asking for advice. I really appreciate your sharing your experiences in order to help others. 🙏