Living with Mollaret’s Meningitis

Ойын-сауық

I wanted to take some time to explain my absence and discuss how it is like living with Mollarets. More information on Mollaret’s Meningitis can be found at www.mollaretsmeningitis.com

Пікірлер: 55

  • @dudewhathappenedtomycountr9099
    @dudewhathappenedtomycountr90995 жыл бұрын

    Thank you for speaking out about Mollaret's (Recurring) Meningitis. The medical community and the public need to learn how devastating this disease is. It mostly strikes people in their 20's, just when their lives should be taking off. It's debilitating for most of them. A lot of sufferers aren't taken seriously. It can take decades for doctors to provide a proper diagnosis. Anyone who believes you have Mollaret's, please check into it on the FaceBook group Recurrent Meningitis Assoc Support Group.

  • @sophielittler5496

    @sophielittler5496

    Жыл бұрын

    It's honestly nice to know there's others out there with this. I've had four episodes now, but it's been almost 8 years since the last.

  • @corinnaturner3320
    @corinnaturner33206 жыл бұрын

    As much as I LOVE, LOVE, LOVE your videos, please don’t apologize for being absent from making them as often as you or others may want/like. Give yourself permission to continue to take care of yourself and enjoy life without apology. You are amazing and we’ll be here for you when you’re ready to make more. Hugs.

  • @natashacarroll6995

    @natashacarroll6995

    6 жыл бұрын

    I'm glad you told him that.You take care of you first.❤

  • @PozLifeOfPatrick

    @PozLifeOfPatrick

    5 жыл бұрын

    I LOVE YALL FOR THIS. I definitely needed the time off and appreciated​ your understanding as I spent the necessary time on me.

  • @chloekohler9368
    @chloekohler936810 ай бұрын

    Thank you for describing Mollaret And remaining so positive

  • @cmsjns
    @cmsjns4 жыл бұрын

    Nice to see a fellow Mollaret’s Meningitis sufferer.

  • @user-kv7rb9jq4q
    @user-kv7rb9jq4q6 жыл бұрын

    Glad to have you back. You are special and I can literally see that from watching just a few of your vids. Hope you don't go again and wishing you nothing but great things in life. Love from London!!!

  • @mayramorales5608
    @mayramorales56086 жыл бұрын

    Love your positivity!! Great videos and it's truly educational. Hope you feel better.

  • @red45ca
    @red45ca6 жыл бұрын

    Nice to see you again ☺ Try not to be so hard on yourself. I understand the depression and migraines, I have them too. Never give up Patrick stay strong and remember to keep a positive attitude.. It will get better, and don't forget your friends and community is here to support you... Sending you a warm hug.😊

  • @eriktarver2087
    @eriktarver20875 жыл бұрын

    Hope your feeling better my friend, thanks for sharing your story keep fighting the good fight!!!

  • @aubreycaraballo8761
    @aubreycaraballo87615 жыл бұрын

    Thank you for the positive feed back

  • @PozLifeOfPatrick

    @PozLifeOfPatrick

    5 жыл бұрын

    no thank you!

  • @SageOfTruth1111
    @SageOfTruth11116 жыл бұрын

    I'm glad to see you back! Looking good ❤️

  • @PozLifeOfPatrick

    @PozLifeOfPatrick

    6 жыл бұрын

    Natassha D thank you love!

  • @jamescobrien

    @jamescobrien

    5 жыл бұрын

    @@PozLifeOfPatrick Colloidal Silver Kills HIV, research that. Look up Colloidal Silver HIV Negative. There are science and government website articles proving it destroys HIV inside the human body. I recommend ACS 200 Extra brand to you. Research it out for yourself and get your friends to help the researching. .5 to 25 nanometer sized silver particles kills over 650 pathogens, including HUB. Post videos of your counts dropping until you are negative along the way. It also kills herpes viruses. Nano science is the key in the aspect of nanotechnology wiping deadly viral, fungi, and bacterial infections. Don't take ionic silver but colloidal silver, there is a huge difference.

  • @moonbeammm9326
    @moonbeammm93265 жыл бұрын

    Hi. watching your videos gave me hope. although it's difficult to live with this disease we'll get through it. No one deserves HIV. Stigma is also a super different thing to face. But then again, we should always be grateful everytime we wake up in the morning because we got a one chance to be with the people that we love. God Bless You

  • @ihaiarongonui8003
    @ihaiarongonui80034 жыл бұрын

    i really do feel for you having sickness surround your life so often , godbless you patrick makes my sicknesses look minor, i understand you fully! dont over do the gym and take it easy

  • @ANREMEL
    @ANREMEL6 жыл бұрын

    Happy to see and hear from you. You look great! It sounds like you have a plan for your health and life which is great! Are you and your husband looking for a home in the United States or the Dominican Republic? Happy Easter!

  • @PozLifeOfPatrick

    @PozLifeOfPatrick

    6 жыл бұрын

    ANREMEL we are looking at the states and DR.

  • @MichaelsOpinion
    @MichaelsOpinion6 жыл бұрын

    I wanna go to DR! 👀 but had you’re at least managing your health ❤️

  • @dai5angel
    @dai5angel6 жыл бұрын

    Hey Patrick, I just wanted to thank you for your videos. They are very inspiring to watch and hear your story. Also, I wanted to know would you be interested in a business opportunity.

  • @Cherslife
    @Cherslife4 жыл бұрын

    you are awesome

  • @elektrikbuzzed8813
    @elektrikbuzzed88135 жыл бұрын

    Is the meningitis related to having hiv in anyway? Since I know that hiv affects your bodys ability to fight off infections.

  • @recurrentmeningitisassocia7476
    @recurrentmeningitisassocia74766 жыл бұрын

    Thanks for mentioning our website in your video, www.mollaretsmeningitis.org. We also have a very active Facebook support group you might want to check out with people that understand. www.Facebook.com/groups/MMSupportGroup Thanks for creating awareness of this disease.

  • @Dacey211
    @Dacey2116 жыл бұрын

    Is that similar to cryptococcal meningitis?

  • @YOUmakemEescream
    @YOUmakemEescream6 жыл бұрын

    does he have social media

  • @julialouk9363
    @julialouk93635 жыл бұрын

    Yeah I had a episode one day I was on stage singing you know cuz I can sing it all and you know my chest started hurting so I went to the doctor and they said I was in the middle of an anxiety attack

  • @julialouk9363
    @julialouk93635 жыл бұрын

    but I was trying to really hold it together cuz I couldn't mess up because I was in the middle of a competition you know what I'm saying

  • @salvation9868
    @salvation98686 жыл бұрын

    Patrick, You are on my prayer list, dear one.

  • @suzydixon4930
    @suzydixon49305 жыл бұрын

    For bad headaches take 800mg Motrin or whatever generic ibuprofen. I guess you can just take four of the 200mg tabs. If you can get it Vicoprofen is great. It’s Vicodin of course but instead of hydrocodone and Tylenol, it’s the hydro and ibuprofen combo which is better for inflammation.

  • @ClutchingPearlz
    @ClutchingPearlz5 жыл бұрын

    How u feeling now? Hope you post more often.

  • @MorganLeeModelxo

    @MorganLeeModelxo

    4 жыл бұрын

    I’m also curious!

  • @lindasingleton3072
    @lindasingleton30726 жыл бұрын

    Is there any way that you could reach out to my friend? She hasn't been diagnosed but she swears she has MM and has been deteriorating mentally and talking suicide. She needs proof that people live successful and beneficial lives with this.

  • @dudewhathappenedtomycountr9099

    @dudewhathappenedtomycountr9099

    5 жыл бұрын

    It's a challenge getting it under control in the early years, but there is life after contracting MM. There's a great Facebook group called Recurrent Meningitis Assoc Support Group. Have her meet us there for support.

  • @Ana2Banana
    @Ana2Banana8 ай бұрын

    Hey.. I'm curious about something. Is your husband hiv negative?

  • @PozLifeOfPatrick

    @PozLifeOfPatrick

    2 ай бұрын

    Hi. We have been married for over 5 years and he is still HIV negative. I am undetectable and he also takes his PrEP.

  • @horusheru8542
    @horusheru85426 жыл бұрын

    kzread.info/dash/bejne/qaxoxs99YdW-ZJM.html Watch this.. Ive tried to help as many people with hiv on KZread but many refuse to listen and save their own life. The disease has taken over their brain and spirit and they choose to listen to the lies of the medical establishment. I'm not speaking as a spectator. I'm speaking as someone who has treated full blown aids successfully in my clients.. If you believe your immune system will "never" be 100% then you are cursing your self with your own tongue.. Stop confessing those words as truth!!! You are what you believe!! Your mouth has power to heal or curse.. Say you will be 100% say you will be cured of hiv.. You are blessed to have been given this information to cure you. God has saw favor to let me reveal this truth to you. You have tried mankind's solutions now try god. Nature has given you the answers. These are the cure god have placed on earth to be a blessing in your life. If you die without trying or listening to what I'm trying to tell you then it will be your own fault.. Be blessed dear!

  • @haylaomar5863
    @haylaomar58635 жыл бұрын

    U r so handsome Fuck HIV u will be ok im praying for u

  • @mrs_c7156
    @mrs_c71566 жыл бұрын

    Wayment?!! Did I hear you correctly? Did you say you got married? Congratulations!!!

  • @tyrellrobinson8853
    @tyrellrobinson88535 жыл бұрын

    I dont personally live with these illnesses however i know Cannabis oil and a vegan plant based diet with some holisticism will cure you from both diseases along with excluding trash food or alcohol. Also I recommend a water fast, for like 5 days to start with because it's scientifically to reset the human immune system and promote growth of new cells, this also shrinks cancer tumers. You also need A lot of fresh ginger tea to start getting all the mucus out you're body. Look up D.R SEBI on KZread. He cured HIV cancer and many others! God bless!. Warning no need for better facial products as you're skin goes flawless. Plus if you want any afro Caribbean vegan hot meal suggestions like stew peas and rice n seasoned cabbage or plantain, seasoned steamed green beans with beans/rice. Go like on potatoes because they cause more mucus for now. ALKALINE DIET🌱

  • @mauriciowilson42
    @mauriciowilson426 жыл бұрын

    Boy u look good thick

  • @PozLifeOfPatrick

    @PozLifeOfPatrick

    5 жыл бұрын

    haha thanks

  • @leejordan6647
    @leejordan66475 жыл бұрын

    You look Puerto Rican 😁😁

  • @mauriciowilson42
    @mauriciowilson426 жыл бұрын

    Really cute guy .. look like you gotta thicker

  • @kahluaqueen
    @kahluaqueen6 жыл бұрын

    Do what you can my friend, being in school, dealing with life etc sometimes ya ain't got no time for the social media, vlogging, blogging, podding etc. You look fine - weight is transient, and you're a guy you got that testosterone, 2 weeks no soda or chips and you'll be down 20lbs lol

  • @PozLifeOfPatrick

    @PozLifeOfPatrick

    6 жыл бұрын

    kahluaqueen that’s the hardest part. I love chips (in my Oprah voice)

  • @kahluaqueen

    @kahluaqueen

    6 жыл бұрын

    lol

  • @horusheru8542
    @horusheru85426 жыл бұрын

    You need to start taking Mms Chlorine Dioxide!! immediately and also oil of oregano... Daily!!! I used this to cure my friend of full blown aids. He started with a high viral count and after a few weeks he was undetectable for hiv virus and without any pharmaceutical drugs.. If you don't listen to this post then you want to keep hiv aids.. Sorry to be so blunt but this is not a joke. If you want help let me know. You don't have to be married to Any disease unless you want to..

  • @horusheru8542
    @horusheru85426 жыл бұрын

    I realize you may not be in a great mental place right now but if you can step out side of the darkness for just a moment and receive this information into your heart and soul and be cured of this disease and be a living testimony in the power of believing you can be cured and then taking the nescessary steps to then be cured you may have an impact on more than just your own life.. Stop feeling bad and sorry for your self and take action to be cured. Don't ask for permission from your doctors or anyone else to be cured. You have been granted permission from god to be cured of all of your ailments. Now take the action you need to take to receive the cures.. This is not a joke.. I pray you take this message seriously..

  • @horusheru8542
    @horusheru85426 жыл бұрын

    Also this eliminates herpes virus.. I'm an herbalist and I can help you.. Once again you dont have to have this disease. However you must be educated if you want to live! I hope you take this seriously..

  • @delitoofinedoe
    @delitoofinedoe5 жыл бұрын

    Talk to damn much..

  • @PozLifeOfPatrick

    @PozLifeOfPatrick

    5 жыл бұрын

    Deli Denisee well thanks for listening 😭

  • @delitoofinedoe

    @delitoofinedoe

    5 жыл бұрын

    😒mm hmmm

  • @PozLifeOfPatrick

    @PozLifeOfPatrick

    5 жыл бұрын

    Deli Denisee 🖐🏽👋🏽🖐🏽

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