Living with Lyme…and More, Please Hear Me - (Patient Panel with Q&A) - Lyme Summit 2023

Living with Lyme…and More, Please Hear Me - (Patient Panel with Q&A)
Dan Cummings, Moderator
Ryan Maness, JD, Virgie Townsend, JD, Adam Siegers, MD and Royale Scuderi, Patients at Lyme Summit 2023 hosted by CNY Lyme & Tick-Borne Disease Alliance and SUNY Upstate Global Health Institute.

Пікірлер: 34

  • @smallisbeautiful2808
    @smallisbeautiful28087 ай бұрын

    I know for an absolute FACT that on MANY MANY occasions, some lab workers do NOT take their job seriously and just want the paycheck without having to actually do the testing.

  • @alancooper3473

    @alancooper3473

    7 ай бұрын

    Where?

  • @lynnfarley7859

    @lynnfarley7859

    6 ай бұрын

    My doc wanted me to pulse doxicycline for 2 years. I wont as doxi causes serious depression. I use an herbal protocol.

  • @smallisbeautiful2808

    @smallisbeautiful2808

    5 ай бұрын

    @@alancooper3473 Typically in hospital labs, but it probably happens in other medical labs as well

  • @nancybaumgartner6774

    @nancybaumgartner6774

    5 ай бұрын

    One of my clients is a director at a pathology lab and she says that people would be horrified at the amount of technicians who just sit there poking on their phones and do not care AT ALL about doing their jobs well. She thinks today’s diagnostics are a crap shoot at best .

  • @denesehebert9243
    @denesehebert92438 ай бұрын

    Excellent, realistic, accurate, and informative on so many levels. One of the best presentations on Lyme I have seen.

  • @mundall1271
    @mundall12716 ай бұрын

    Thank you for sharing this!

  • @bettydoughtery3920
    @bettydoughtery39206 ай бұрын

    Helping a friend with her yard, I acquired Lyme. I worked in Pharma, and after complaining about not feeling well, a colleague suggested I get a Lyme test. It came out a false negative. 3 or 4 months later, one of our Pharmaceutical doctors insisted I get retested again (different) lab. It was positive. I month of taking Doxycycline, and I felt like a different person. I did however lose my gallbladder. It was filled with calcified small, Spiro-??? I now take a Lyme tonic to be on the safe side....

  • @Tinyteacher1111

    @Tinyteacher1111

    6 ай бұрын

    Interesting. I lost my gallbladder too! May I ask what your tonic is? I’ve heard Japanese Knotweed, CSA, and Cat’s Claw.

  • @Tinyteacher1111

    @Tinyteacher1111

    6 ай бұрын

    Probably everywhere!

  • @raydavis4446

    @raydavis4446

    6 ай бұрын

    What Lyme tonic?

  • @TheFineLine920

    @TheFineLine920

    Ай бұрын

    Yes… what is Lyme tonic please?

  • @mizzmention8555

    @mizzmention8555

    23 күн бұрын

    So there a link between Lyme and the gallbladder? I have had pain on and off under my right rib for years along with yellow stool, Dr's have never found anything. Just recently l discover Lyme and definitely think l have it 😢

  • @sunspot7570
    @sunspot75708 күн бұрын

    I was bit in summer of 2023 by deer tick that tested positive for lyme bacteria. --I am suffering constantly with dizziness and vertigo, visible muscle and soft-tissue loss, causing weakness and pain. I was as active and healthy as can be before this happened, but am currently housebound for a year. --I'm still looking for proper testing and treatment.

  • @JP-xs5lo
    @JP-xs5lo8 ай бұрын

    The dr has a story like mine anaplasmosis is a beast same with bartonella as a kicker with Lyme it’s been a long time with unbelievable pain my brain is gone dementia symptoms know. Till this day never been publicly diagnosed or treated 8 years.

  • @Tinyteacher1111

    @Tinyteacher1111

    6 ай бұрын

    Can you start to treat yourself? Check out Dr. Rawls who has a protocol, if nothing else!

  • @JP-xs5lo

    @JP-xs5lo

    6 ай бұрын

    Key word was publicly I was and am privately treating out of pocket but good news my mris are coming back remarkable maybe not so good news and the VA just called and they’re diagnosing me with neuro Lyme.it’s impossible to get treated they don’t recognize objective truth they have been brainwashed by university to except there fake/subjective reality for money and a job there souls are owned by money and carrier bending reality for money. time has come and gone 8 years know I’m devastated in every way positive financially physically soul provider to three kids who could have had it and did have it really good know it’s poverty.

  • @JP-xs5lo

    @JP-xs5lo

    6 ай бұрын

    I think bill has Parkinson’s from tbds obviously and is coping with plant medicine we need accurate diagnostics to believe anybody antibiotic’s are natural medicine they do cure infection if caught early I would protect my brain and loved ones from something that is a brain infection that is transmitted I have a responsibility even though drs have betrayed there’s.

  • @JP-xs5lo

    @JP-xs5lo

    6 ай бұрын

    Basically it’s going to be antibiotics that fixes this once and for everybody maybe hydromycin a in combo with ext… maybe Tim haystead at duke will pan out we will have anti microbial treatment that works way better eventually.

  • @jimgreene7415
    @jimgreene7415Ай бұрын

    My wife is 82 yrs old. She has Parkinson's. As well as Lyme. Her doctor was faced with old age problems as well as Parkinson's and Lyme. What is the cause of her problem?? Still working through it all.

  • @kevinfitzgerald7474
    @kevinfitzgerald74746 ай бұрын

    The conventional testing does not work. I got tested properly by holistic drs and found everything I have, and its all etiological. But treatments for the immune system and these disease are very difficult.

  • @lucywang-angelrays613
    @lucywang-angelrays6135 ай бұрын

    Can blood gene test tell if I have Lyme disease or not? I have morgellons 2 years. I had blood gene test which cover 17500 pathogen no speical finding. But fibers in different length in different shape and different color constantly come out of my skin.

  • @esquire9445
    @esquire94455 ай бұрын

    His website doesn’t work

  • @andylyon3867
    @andylyon38678 ай бұрын

    Fasting and not eating processed food especially seed oils, meat instead with plenty of kelp and other healing plants. But mostly fasting no food or water. An don't ever use a doctor.

  • @Tinyteacher1111

    @Tinyteacher1111

    6 ай бұрын

    Has that helped? How long do you go without water?

  • @Tinyteacher1111
    @Tinyteacher11116 ай бұрын

    Great video! Thank you! PLEASE READ THIS BECAUSE: I found a product people could try. I’d also love to help (or be a Guinea pig) in any way I can: PLEASE!! I’m now 69, single (it’s very hard, especially when no one understands Lyme.), and have been sick and in horrific pain for 21 years. I luckily was able to teach high school for 40 years before I had to retire because I was so sick. I have an extensive education, raised two children mostly alone, and now I live in Rochester, MI, an upscale city northeast of Detroit. I’ve been an advocate for several invisible illnesses; breast implant illness (which caused several autoimmune diseases, several major operations within 10 months, hideous infections, sepsis, and a stroke), autoimmune encephalitis, (which my adult son has due to Lyme meningoencephalitis at age 7, which caused him brain damage and disability), mold toxicity (which we both had from different houses), and now Lyme. I have several coinfections of Lyme including a live Babesia Mycroti for which I am being treated, but went through all the malaria symptoms! I realize I’ve had it since I was a child with horrific leg pain, stiff necks, boils, lethargy, malaise, etc. yet, no one considered Lyme back then. I’ve had to change my entire lifestyle and diet as well. I lost almost my own life during an operation. and everyone in my life, SO MUCH MONEY, and I have ADHD, brain and neurological issues, and CPTSD, because of the medical system for lying to women and allowing breast implants which immediately put me in danger of every disease imaginable. (Black box warning now!), dismissing mold toxicity, and chronic Lyme disease. I could be a poster child. BUT: Try: Biotics Research: Ultra Vir-X, a supplement I got online from an integrative health doctor in Michigan, Dr. Brownstein, who has now gotten into Lyme protocols. He’s written books on other things, and is well-known in his field. I was thinking about the viral particles, and tried this. My leg pain that was the worst, has substantially subsided! If you’ve read this far, I you probably have Lyme or know someone who has it. I hope to God you get better! My sincerest wish is to hope that generations to come (including my 8 year-old granddaughter) never have to experience any of these traumatic and life-changing illnesses! Much love…🩷