I am glad he still has a sense of humor. Prayers for both of you.

Bless you both. I am the caretaker for my 85 year old husband. I’m 82. It is very frustrating, sad and just impossible some days. I pray God gives me the strength to endure. I trust Him completely, but sometimes I feel like giving up. I love you both. May God’s grace be with you🙏❤️

@Truthwinz

7 ай бұрын

May God’s grace be with you as well on your journey with your husband and I pray you will ask for help when you need it ❤🙏

@yvonnekneeshaw2784

7 ай бұрын

Please get help as care giver burn out is very real ❤

@fawnjenkins7266

7 ай бұрын

God bless you and your husband. My mom was my dad's caregiver, too. It was the most noble thing to do and also wore her out. She slept two weeks straight afterwards. He was 88 and she was 84. It was a lot. I sure hope you have a support system. Please ask for help. Prayers for you.❤

@nadinewagstaff9854

7 ай бұрын

Hang in their u poor soul ❤❤

@joycedwyer8778

7 ай бұрын

Leslie , I am in the same boat. In the middle. Don’t know where to go from here. Praying for you guys and everyone out there going through this.

I was caregiver for my Mom for 5-1/2 years with LBD - it darn near broke me mentally and physically, but I promised my Dad before he had passed that I would take good care of Mom and I wanted her to be well cared for and safe. They sure are not exaggerating in the least when they call LBD "the roller-coaster dementia". God bless both of you two!

@Heavyisthecrown

7 ай бұрын

What an amazing daughter you are ❤ I couldn’t imagine how hard that was 😢 I occasionally think what it will be like when the time comes for me to care for my parents. I hope I have your strength! ❤❤

@bettypecoraro8104

7 ай бұрын

My heart❤ hurts for both of you. Have a Blessed holiday season.🎄

@reineobermier2617

7 ай бұрын

IM BEYOND PROUD OF YOU!!! It’s wonderful & heartwarming that you honored your Fathers wishes and I know it had to be extremely hard it’s hard to comprehend what you had to face. My dad had dementia towards the end of his life 2 of my sisters took care of him & 2 brothers lived with him I’m so grateful for them for the care they provided to our father. Our Dad became sick with sepsis & passed away before he went through all the dementia stages although I was terribly heartbroken from loosing my Dad I was grateful he didn’t go through all those terrible stages of the disease. I lived 1400 miles away and it was so hard seeing him loosing more & more of himself and memory with every one of our trips back home & when he’d come down to see us. I can’t thank my sisters that helped our Dad and now they look after my brother who was born mentally slow. It’s wonderful when family can step up and care for their Loved ones. I’ve personally taken care of all forms and stages of Dementia Paticents first when I was in my 20s in a nursing and later with home health. This disease is so very heartbreaking for all involved it’s mentally & physically exhausting and it breaks your heart seeing your Loved one turn into someone you don’t know and then when they no longer recognize family members that’s simply awful. Our parents had 14 children they lost one at birth so they raised 13 children Dad would sometimes get our names mixed even when he was younger but I feel that was probably normal lol. He got worse with that when the dementia set in and then he definitely couldn’t remember all of his grandchildren names but he somehow knew which grandchildren belonged to each of his children. Our dad was getting dangerously close to losing his drivers license and selling his home and then moving to a assisted living facility. I saw him 3 weeks before he passed and I cried really hard after we both waved at each other before we got into our cars to leave a family event. I said to my husband I don’t know if my Dad will be here on earth with us much longer. He died 3 weeks later from sepsis and I was terribly sad of course but at the same time grateful he never had to loose his independence from driving and living in his home. Those 2 things would’ve broken his heart. I’m so sorry you faced the entire loss from lbd it’s so beyond difficult. May God Bless You Today & Always.

Jason still has so much humor and comedic timing. He’s still playing off what you say! He truly makes me laugh out loud each time he’s on with you Leslie. Thank you for sharing❤!

Jason, I can understand why you are overwheled, and want to get away. Life has changed so much and you are such a smart man. Thank you for updating us. Do what feels comforable for you. Leslie you are doing a great job of helping Jason articulate what he is feeling, and being supportive. Glaad you can still get him out in the sunshine and fresh air. I pray for you and your family.

Thank you for taking the time for an update. My husband’s FTD had a strange progression. Things would go downhill, but we would land on a plateau, not a large comfortable spot, but a spot that we thought we could handle. If we were lucky, we would stay in that spot for 2-3 weeks and then, another tumble to the next plateau.I wish you both more plateaus and less tumbles. Also, let me add my respect and love for you both.

The pond in the background is so peaceful and it's a nice place to sit and chat while the video records. You and Jason are in a hard season right now and some days are really difficult. Praying for both of you....

Leslie, you mentioned several times how hard it has been. I found myself wishing you could elaborate on exactly what challenges you the caregiver face each day. Would you consider doing more updates caregiver-to-caregiver with Jason off screen? Thanks so much for sharing this part of your life journey with us.

Thanks for the update. You guys are such special, strong, good people. Stay strong and peaceful.

@janlabbate3277

7 ай бұрын

Still love you guys, update or no update. Blessings to you all!!

Thanks for checking in. So many of us care for you and pray for you, so it's good to see Jason, even briefly. His humor amidst all the challenges is truly amazing.

Thank you for sharing Jason with us.

@kristinam2719

7 ай бұрын

I second that comment. He is charming, nonetheless…..

pause when it feels right, take Jasons hand and remember you still have each other “through sickness and in good health, till death do you part. “ ❤❤❤❤❤❤❤Stay strong! 🙏🏻

Hi Leslie! I know you don't want to throw random meds at J, but when my grandmothers has similar anxiety and "edginess" with their dementia, one was put on Xanax, the other was put on a seizure medication, which both helped the insomnia and the "being scared/overwhelmed" all the time. Much love to both of u. Can't believe it's going on 4 years since I saw ur 1st announcement video with Jason. I know he's declining, but we can all thank Jesus it's a relatively slow pace. Prayers for you and Jason❤

A dear friend of mine passed away this year with FTD at the age of 63. The in between stage was so difficult. Waiting for "the next shoe to drop". I pray for yoy and Jason and as a fellow nurse and caregiver for many family members I am sending you strength and compassion. ❤

He still has his sense of humor which is wonderful! Love you both. Thanks for sharing your journey😍

The “fight or flight” impulse is so strong, especially with the journey you are both on. Please know you are in our prayers. Jeremiah 29:11 🙏🏻🙏🏻🙏🏻

Being a Christian all we can do is pray, pray, pray. God will give you both peace in the midst of the storm. " being in the middle" in any storm is difficult, but as you know Leslie, this too shall pass. I'm praying for you two- though we never met you, I believe I can speak for all your followers- we love you both. Don't forget to take care of yourself ❤❤

@trinawitte8625

7 ай бұрын

It’s not just “all we can do”, it’s EVERYTHING we can do❣️🙏🏼 “The heartfelt and persistent prayer of a righteous man (believer) is able to accomplish much [when put into action and made effective by God-it is dynamic and can have tremendous power].” James 5:16 AMP 📖

@whiskersBOOSTER2

7 ай бұрын

Agree one hundred percent. Sending much love and prayers to you both.❤

@connihudson1578

7 ай бұрын

You can know Jesus loves you,mis for you, knows you. He's with you even when it's soooo hard.❤🙏🙏❣️❣️❣️

@giannellalopez8805

7 ай бұрын

Amen❤

Thank you both for sharing your experiences. My husband is not interested in going places and being in public. I think it’s because he doesn’t want people to see him not being able to do things that he used to do and conversations are not easy. Unfortunately I know others aren’t judging him. He sleeps a good amount. We just take one day at a time. You are not alone. ❤🙏

You two are dears to give us an update. May you and your family have blessings during the holidays,

I just love you two so much! It’s wonderful to continue seeing Jason doing some of the things he likes to do. And that sense of humor…off the chain. 😂

Bless you both for caring enough to put yourself out there to inform and encourage!!!💕julie

Looking at Jason, we would never know he has dementia. His sense of humor is awesome and he has an infectious smile. It was great seeing you Jason…. Prayers are with you always 🙏❤️

I wonder if this could fill the need to travel for Jason. My husband has ALS and we used to take cruises. Now it's no longer feasible so we do Staycations: We watch travel videos of the area, have the cuisine of the area, sometimes dress in what we think is clothing from the area (a Hawaiian shirt when we did "tropical islands" for instance). We general watch several movies having to do with the locale also. It's a lot of fun, no exhaustion from travel, no hotel or cruise fees. Sometimes I do a cartoon like mural on poster board. Anything to give us atmosphere. You could simplify it for Jason, maybe just one evening with a movie, food, themed music and clothing.

@nana73carol46

7 ай бұрын

I was thinking that something along that line could help with the travel bug, be fun, and not be as stressful.

I hope he never loses his sense of humour.

Your videos are so important for people who are in similar situations. I usually catch your videos when I'm on my way home from work. Yes, caregiver here! And I have a especial person with in a similar situation. Can you imagine how wholesome it is to hear from you, guys, at 11pm on the bus after my 8-hour shift? ❤ Thank u ❤

He still has his sense of humor! Hope you are doing well as his caregiver 😊❤

I still love to hear from you two even if nothing exciting is happening. Jason seemed plugged in for your video today. know that’s just a five minute snapshot of your situation. Thanks for keeping us in the loop. I think you are both extraordinary

I love how Jason is still fast with funny comments. 🙏❤️🙏💜🙏

Thank you for the update. Hugs to you all!

I took care of my Mom for 5 years, she had LBD. I don't want to scare you, but you really need to pay attention when he expresses a desire to get away. My Mom walked out of the house, we looked for her for a couple of hours and finally found her, the next day the Sheriff's Dept. sent someone over and they put a GPS tracker on her, it's a free program our County offers, we also installed locks so she couldn't get out. Just something to keep an eye on and at least you can be pro-active if the need arises.

@dawnmitchell11

7 ай бұрын

For anyone caretaking for dementia, a specialist had mentioned using a black mat or rug in front of exterior doors. For some with dementia, the black mat appears as a hole in the floor. If they feel like they cannot navigate safely around/over the hole, they will avoid it. Locks that they cannot undo are better, but it might work as a back up.

@rhondadavis1483

7 ай бұрын

Yes the black mats do help. Nurse mgr for years with Memory Care Unit. We had the mats in front of all the doors. The GPS tracker is an AMAZING idea!!! Kudos to your county to do that! I too wanted to mention to her about the locks and also alarms. When they get to the stage that they are antsy, pacing and wanting to leave, most dementia pts will leave if there’s a way. Esp if they aren’t sleeping at night. Then that means the CG, Lesley in this case, isn’t getting sleep either. I’m praying she is getting enough rest. She likely has alarms, but locks that require a key to lock and unlock the exterior doors would be a great idea. It’s a scary phase.

@DeniseNJ

7 ай бұрын

@@rhondadavis1483 Caregivers, especially those taking care of LBD patients are definitely sleep deprived, I had a baby monitor next to my bed for about 4 years, you don't sleep through the night at all.

@dawnmitchell11

7 ай бұрын

@@rhondadavis1483 my mom (LBD/Parkinson's) was in a terrible broadside crash at 21 that left her with a crushed hip and minor-moderate back injury. She's had many surgeries and lots of pain most of her life. It has become a silver lining in recent years after she was diagnosed with dementia (likely LBD). She has a lot of mobility issues from the pain and joint problems. This has given my dad some peace, but knows it will soon become a burden, once she is unable to toilet/bath on her own.

@barbarapark5432

7 ай бұрын

Be careful with the black mats. We had an issue with residents trying to step over them and falling.

So good to see you Jason. Thank you for the update.

I've missed you two. Thanks for the update. I wish there was a way that life for both of you could be a lot better. It makes me sad to know life has become so challenging. Glad you took some time outside. Getting out in nature can be very healing. ❤❤

Thank you for taking the time to update us. My heart is sad for you two. You are such lovely people. ❤❤

Thank you for the update. I am full time caregiver for my MWFTD and it is a lonely position to be in. I look forward to your updates, reminds me that others out there understand. 💜

Hi Leslie and Jason ! Good to see Jason . I know Jason is frustrated and can’t travel. He always mentions it . I know he has trouble completely understanding why he can’t , i pray God will comfort him . May God bless you both with comfort and peace. You both are loved and in my thoughts and prayers. ❤❤🙏🙏🙏

It is good to see he does have a sense of humor. My husband doesn’t interact with anyone. Spends most all of his day watching TV. Stay blessed and have a wonderful Thanksgiving. 🙏💕🍁🦃

@julybailey2326

7 ай бұрын

My husband too. Same thing. I miss him so much

Thank you for the update. Your love for each other shines through the pain you feel. I pray for strength for you during this most difficult time. ❤

My husband of 52 years fell in the shower a month ago which caused an ambulance ride to the hospital. There were no beds available so he was transported to a hospital an hour away, at midnight! Then, 5 days being tested and evaluated, and sent to a nursing home about 40 miles from home. It’s been a rough go this month. I had Covid two weeks into this and couldn’t visit. It breaks my heart. I do have great support from family and friends. He is very confused and is paranoid and seeing things. I’m visiting about 3 times a week, bringing small treats, playing music on my iPad, reading him articles of interest, etc. friends have visited him, too. I’m in a Parkinson’s support group that meets in person, monthly. It has been a life saver for me. I also go to counseling. This is a long journey. I love the updates on you and Jason. Stay strong! ❤️❤️❤️ Trusting in the Lord.

Praying for you both. May the Lord give you peace.

Love, love, love your channel

Blessings to you Jason and Leslie. I was a working Critical Care/ ER Nurse fo 30 years. My husband Lee was an award winning, very intelligent EE with Hewlett-Packard Packard and Motorola. His first onset of depression was at 12 yo. Only during the winter until he turned 45. At 65 it as so extremely bad is all I can say and he had 74 ECTs over 5 years and then said no more. He ascdoing great, but when COVID HIT and things closed down he become very isolated, got worse and now is extremely isolates. Won’t go get gas which he always happily did. People make him nervous and anxious.sees no one shuffles hrs hand and jaw tremor. No longer drives. Balance is bad. Short term memory is very bad. Cannot do simple chores. I am now the computer whiz which should scare the world! I am still a fighting tenacious advocate for him. He has canceled his neurologist visit 4 SS. I told him the next one he had better be there ( with me taking him and asking all the questions or be dead! He needs treatment and I need to know the proper diagnosis so I can care for him properly, as you well know ,Leslie. Most days you are in limbo and they are difficult. We both get up at 5 am and say happy Friday or whatever it is. Then we quote, this is the day the Lord has made,we WILL rejoice and be glad init.it was very hard to both get up that early but we get up at 5am go to be at 9:30-*10. He sleeps in the afternoon some. I have several chronic conditions and I have constant pain and fatigue. All days are difficult, but we praise and th@nk the Lord each day. Leslie I really relate to you. God bless you both Laura Mack

@carolynturbett4747

6 ай бұрын

Laura, I have chronic pain and fatigue also. I'm 74 and hubby is slipping. Dr just increased his wellbutrin is all. It's so hard to do everything. He falls and has a separated shoulder now. Life changes fast doesn't it? I love Leslie and Jason and pray for us all!

Leslie, my husband, who has dementia, was moody like Jason is exhibiting. He’s now on Wellbutrin & Zoloft, along with Donepezil & Namenda (for the dementia). He’s also undergoing tests (bloodwork & PetScan) to see if he qualifies for the newest drug Liqembi. It was approved by the FDA a few months ago. You may want to ask Jason’s neurologist about it. Good luck ❤

Ty for the update. You two are amazing! The road may be bumpy, but you two travel it so smooth and gracefully.

So sorry Jason you are going through all this. Praying for you and Leslie.

It was nice to see Jason, but never nice to hear of further issues. God bless you both and give you strength. You are in my prayers.

My husband has vascular dementia and some days are better than others for both of us. We are in a very early stage than what you two are dealing with. Prayers and hugs to both of you. Hope you and your family have a Happy Thanksgiving! ❤🙏🍂🦃

I just love the two of you so much! Thank you for sharing this difficult journey, letting us see the signs of Jason’s difficult diagnosis. When my dad was 87, he looked at his oldest grandchild, my daughter, and asked, “What’s her name?” His heart bypasses from 15+ years before had all been stented and now they were closing. He continued to drive and we all prayed if he had an accident, he would not take anyone with him! From his first heart attack to the end, he would not do anything until his daughter, the nurse, arrived: me. The first time I was still in nursing school and knew next to nothing! My siblings and I cared for him in his home on hospice (I am a retired hospice nurse and my sister knew the doctor) for a week. When I arrived, he cried, and asked if I would shave him and cut his fingernails. The next day many friends and family arrived to visit and he entertained them like a king. His five kids and oldest grandchild kept vigil, while we gave him regular doses of pain medicine with a coffee chaser via syringe. Our Lord, angels and loved ones who had died visited him and he laughed and lifted his hands. With his last breath he turned his head to give his favorite daughter one last kiss (they shared a birthday just one day apart each year.) Caregiving is not easy, Leslie, and yours has been much longer and more challenging. Jason is trying so hard, but he has told us he is overwhelmed. I pray that the Lord will take him Home at the perfect time, and that Jason will always know you and that your love for each other continues to soften the distress of this terrible form of dementia. I so love to see Jason, but I also enjoy your Charming Abode videos, too. 💖🙏

Jason still has a sense of humor. God bless you and guide you through this time. Just love each other even when exhausted. I just had yo comment about “hobo stew”. I’m 66 years old so my dad was born in 1928. When I was a little girl he would make chili or beef stew. They were both the best! He always called his stew “hobo stew”. When Jason said that, I thought of that very fond memory of my dad.

Thank you. I have dementia. I just found your tube channel about 2 weeks ago. I cried ugly crying because I knew there was someone else in the world like me. Jadon uses the same words to describe things as I have in my head and to my family. Thank you so much to both of you. I’m sorry either of you had to go through this, but as you know, it’s not for the weak.

He's a sweet guy, i wish people didn't have to get sick, didn't have to suffer. ❤💔❤️

@FearofGodmom

7 ай бұрын

It will be like that in Heaven.💜

Thank you for taking the time to come on and just say "hello" to everyone. Jason wanting to travel and being stuck with that idea doing something he always liked, yet being unable to make that a reality, sounds like a difficult position for you Leslie. Sending hugs and prayers.

I know there are more difficult and exhausting times than there are moments like this, but when Jason's goofy, loveable sense of humor shines through it has to recharge the batteries a bit, but be heartbreaking when it fades. I worked a dementia unit for a couple of years and that was emotionally taxing enough. I have so much respect and admiration for those who take care of their loved one with dementia.

Thank you Jason

Thanks for the update. I'm sure it's completely different from your standpoint, being with him all the time, but at least he's still upright and still has his humor. It's nice to see him outdoors enjoying it with you. God bless you both and keep up the good work ❤

Thank you both for your courage!!! Love and blessings!!! ❤️🥰🙏🏻

Amazing how great a sense of humor Jason has even though he has to deal with very difficult challenges!! I love him so much! Leslie, you are an amazing wife and care-giver! I will continue to pray for you and Jason daily. 🙏❤️🙏

We really do love you both! Listening as you speak from your hearts is a gift in our own caregiving lives. 🎁 And reading the comments of others lifts me up, too. Most of all, knowing you have the love and beauty of your faith and your family close by lifts my heart for you, sweethearts Leslie and Jason! Bless you both. P.S. I laugh at all your goofball humor, Jason. Never stop! 🎉😂❤

Leslie, you are an angel put on this earth❤️

Thank you for the update it's so good to see you... and you are both truly blessed. It's a bit of a roller coaster but I'm so glad to see that Jason has, and uses, his wonderful sense of humor. It helps to keep things light and upbeat when needed and a blessing to be able to share. Sending love hugs and blessings, and especially prayers to you both. ......Linda ❤

Thanks for being considerate and updating us. I'm sorry this is such a struggle right now. Please know that many of us have you both in our thoughts and prayers. So nice you could get outside on such a beautiful day. Before we know it, the snow will be flying.

Praying for you both🙏🏻🙏🏻It's awesome how Jason still has such a wicked sense of humor. It is very easy to see how intelligent and fun of a person you have described before all this transpired!! Just no words except I am praying strength and grace and somehow joy for you two.😢❤🙏🏻🙏🏻🙏🏻

Blessings to you both & your family during this Thanksgiving season. God Bless & prayers.

Jason has such a great sense of humor !!!!! He is such a cutie

💕my mum had early onset dementia bless her lost her this year x and im caring for my fiancee who has stage 4 cancer. Tough times but were still smiling x

Thanks for sharing! Great to see you Jason! Enjoy this limbo phase before it gets more difficult for you both... Thoughts and prayers!

Blessing over you from the Lord God ALMIGHTY . Such an need for these videos. Nice to see him With the bow and arrow🛐✝️❤️✡️💟

Love to see Jason still has his sense of humour ❤❤❤

I don't have dementia (that I know of) but I feel exactly like Jason, from wanting to travel to running away. Life is overwhelming at times. Blessings to both of you ❤

Thank you for this update. I hope things will be peaceful and calm through the end of the year. ❤

I love Jason’s sense of humor!

I’m sitting here just about bawling…. God bless you both. My husband is very much like Jason, in the way he describes things. I mean, the way things are for him is very similar. I’m thankful that you’re sharing your journey, although I wish neither one of us had this particular one. Thank the good Lord above for walking with us.

@victoriagoins5250

7 ай бұрын

❤

The update that you are hanging in, that not much is new, is still a meaningful update. I so appreciate you taking the time for us. I only check notifications for one video video, an that is yours. Keep the good fight.

Thanks for the update! Praying for you both! 🙏

Thank you for the update. Hugs to both of you.

Thank you for the update.

I’m just so blown away by you both. I see the strain on you as a caregiver and I see the change in Jason’s gaze as well as his frustration. I’m grateful you are on this walk together as I can’t imagine anyone going through this without an advocate/loved one. Praying for your strength and acceptance ❤

So good to see the two of you!❤❤

Bless you for your honesty.

I do not doubt that you are doing what’s best for Jason. Only the two of you and your close family know the full extent of his illness and what he is and is not capable of. It just breaks my heart to hear him talk about traveling. If it was possible, I’m sure you’d take off tomorrow! Enjoy the good days and Gods grace for the bad. Blessings!

Thanks for the update. Thinking of you both

Thank you for sharing. As I watch and I listen, I imagine you’ve got an awful lot of good and bad days, couched between days you likely cannot qualify as either or but nonetheless, there’s a wit about Jason that’s still very much a part of his fabric and there’s love, respect and support that’s admiral between you both. I am struck by no matter what Jason forgets or how he feels, he reminds people to like, share and hit that subscribe button - or, like today, shares you getting the house ready for your upcoming holiday reveal. I imagine this is hard and I know we don’t see it all but you both reveal to me that “for better or for worse, in good times and in bad… in sickness and good health” still exists because you both walk in that commitment, everyday! ❤ Happy Holidays! Nancy

Thank you both for sharing your life with us. You both are always in my prayers.

Love you guys. Thank you for sharing your story ❤️

May this holiday season be awesome for you both.

Thank you so much for the update. I think we all like seeing your updates.

Always good to see you both. Prayers and Christmas Blessings

I love to see Jason's sense of humor abides .... I'm so sorry for the trials you are both going through. I do understand the "overwhelming" feelings --- I can't imagine having to deal with all the things you're both dealing with and it would be unusual NOT to feel overwhelmed by things. I wish you both the best ---- just savor the good moments and time together. xxx

Bless you both!❤

Love you guys! Lifting you up in prayer xxxx

Thank you for sharing. It’s not easy❤🙏

Thank you for sharing again Leslie & Jason ❤️x

Love you guys! Hang in there. thank you for sharing with us when you can ❤

Thanks for the update! Hang in there and enjoy your Thanksgiving.

Hi, Leslie and Jason, thanks for sharing with us. Prayers for peace and comfort as you two navigate through life with his disease. Much love and prayers, always! ❤🙏🤗

Thank you so much Jason for your vulnerability, and your honesty in sharing how you are doing. So many people out here really care about what’s going on in your life and are praying for you. Many of us who struggle with other health issues, can really learn from you. I am learning that it’s OK to say… I’m not doing OK right now. Also learning that some days are just that way and it’s OK to not feel like we have to be super productive every day. And excepting that some days are just going to be more of a “rest day “ and that’s part of the journey too. God bless you both. 🦋

Thanks for doing what you do, Leslie.

Thanks so much for the update. So good to see Jason hasn’t lost his sense of humor.

Thank u. Think of u guys often..praying

Thank you for the update, and I so loved hearing the woodpeckers calling throughout your video❤

Thank you for the update. That was a very nice video. I loved the waving good by in the ATV.😊