Life With An Invisible Illness

Today I show you a day in my life, dealing with chronic fatigue syndrome and fibromyalgia. I show you some of what I'm eating, some ways I'm using essential oils, and I talk about the common phrase spoonies hear: "you don't look sick".
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Пікірлер: 163

  • @laurentoren
    @laurentoren6 жыл бұрын

    Saying “you don’t look sick” or “everyone is tired” or “everyone gets anxious” is sooo discouraging! I really hope people become more aware of other people’s “invisible illnesses”.

  • @CrystalMouse1
    @CrystalMouse16 жыл бұрын

    Same, girl. CFS, Chronic Myofascial Pain Syndrome, Fibromyalgia, Interstitial Cystitis, Costochondritis, Dysmenorrhea, PTSD, Eating disorders, Restless leg Syndrome, IBS, and who knows what else. Just talking is exhausting. Fixing my hair is exhausting. I can’t stand in the shower. I sit in a Tupperware bin underneath the shower so I don’t get dizzy and fall. Remember that Jesus made the disabled according to the speech from the burning bush “Who made man’s mouth? Who made the deaf, the mute, the seeing and the blind? Did not I?...” So we may have weakness, but his strength is made perfect in weakness.

  • @FightingMECFS
    @FightingMECFS6 жыл бұрын

    To see someone so much younger than me struggling with this too has me in tears. I just found your videos and I cant thank you enough for sharing your journey, im sure im not the only one who feels less alone because of seeing this. ♥️

  • @tinagonzalez_williams_lenz6281
    @tinagonzalez_williams_lenz62816 жыл бұрын

    This is my daily life. I feel like I'm sleeping my life away

  • @heatherhartman6474
    @heatherhartman64744 жыл бұрын

    I find it the worse when people around you still have doubts... IT'S HAPPENING!!! TO ME!!!!😭

  • @rebeckyjohnson1
    @rebeckyjohnson15 жыл бұрын

    I battle EBV! I’m proud of you helping others while you are suffering. I’m ashamed to say I did feel sorry for myself a lot. You are an amazing encourager. Keep on keeping on!!!

  • @moonflower9566
    @moonflower95665 жыл бұрын

    A couple days ago, I got diagnosed with fibromyalgia & I'm also legally blind. You gave me such a spark in my soul after I stumbled on your video! TY! I am a new subscriber now! OH MY! your food looks amazing! God bless! ♡

  • @shellycagle3100
    @shellycagle31003 жыл бұрын

    I’m going through all your videos. It’s oddly comforting to see someone struggling exactly like I do. Sorry. I pray for your healing but thank you for bringing this comfort to me to actually see that I’m not alone.

  • @krewbowers3469
    @krewbowers34696 жыл бұрын

    Great vlog! I so appreciate seeing your struggles...just makes me some how feel I’m not alone. I have Rheumatoid Arthritis. Having an autoimmune disease can be very lonely. It’s hard for others to understand the illness...I didn’t understand before. Also, your vlogs bring me such hope. I’ve been fighting RA for over 11 years...one treatment I was on lead to melanoma...thankfully I’m cured from that and no longer taking medications that suppress my immune system. I will keep fighting to be symptom free. Praying for you as well!

  • @AshleyRodriguez-mu9nu
    @AshleyRodriguez-mu9nu6 жыл бұрын

    Thank you for sharing Mandy! I just found your videos and they are so encouraging. I am in the "fight" (because we know that's the best way to describe it) for health and wholeness as well. Some days are just unnerving but I promise myself healthy days are near! Praying for your journey. I've been clinging to "Healing is the children's bread 🍞" 😊

  • @jennifercope8527
    @jennifercope85276 жыл бұрын

    You are just a breath of fresh air! I watched the entire video. I couldn't stop watching it!

  • @SarahEsmaeWolfe
    @SarahEsmaeWolfe6 жыл бұрын

    Hi Mandy, I have been watching your videos for a while and I love your channel! I have Hashimoto's Disease and have been experiencing flare ups recently. I think one of the harder things about having a chronic illness is sometimes I go through long stretches where I feel great and then I crash again. It's really frustrating to think I'm getting better and then start having symptoms again and seeing other people with my same illness get better when I'm still sick. You are such an encouragement. From one spoonie to another, I wish you the best on your journey to healing.

  • @greencarina
    @greencarina6 жыл бұрын

    You are awesome. Love to see a young girl like you talking so authentically about her struggles and disease, using this social platform to bring awareness. I am believing with you for a symptom-free life!!

  • @tracievaughn5883
    @tracievaughn58836 жыл бұрын

    Praying for you daily, Mandy! You are such an inspiration!

  • @spicybiscuit88
    @spicybiscuit886 жыл бұрын

    Cool video! Feeling pretty disheartened atm about ever improving my health so thank you for the encouragement. 💖 xx

  • @dizzyowl76
    @dizzyowl766 жыл бұрын

    You are so right about becoming more aware and empathetic of others through chronic illness. Now I realize we don't know each other's struggles and we need to be more compassionate towards each other. I have been a Trigeminal neuralgia warrior for three years now and many of the side effects of my medications mimic those of CFS. Your videos have been so encouraging and has inspired me to strengthen my relationship with Christ. Thank you for Sharing your difficult journey💕💕💕💕💕🦉

  • @haleymccarthy3311
    @haleymccarthy33116 жыл бұрын

    I am so glad I found your channel! I have been suffering from CFS, Fibro and Endometriosis for the past 2.5 years and your channel gives me hope, lets me know I am not alone and learning more and more!

  • @aprilgrace8277
    @aprilgrace82776 жыл бұрын

    I just have to say I've been so encouraged by your videos! I've been watching different ones that catch my eye since I heard about you on the Messy Table Podcast that I tried out for the first time that week you were on! Amazing! I'm so grateful God led me to your channel. I have CFS and it's not easy. God bless you in your recovery! You're an inspiration! 😊

  • @Webbgurl2000
    @Webbgurl20005 жыл бұрын

    Thank You 🙏, My Sister. As someone with Chronic Illness, I appreciate you.

  • @family-peace-love
    @family-peace-love6 жыл бұрын

    I absolutely love your positive attitude its amazing . Thank you xx