Dr. Fleisher, you are an excellent communicator! I'm an RN caring for dementia residents in long term care. I shall search here on KZread for more such instruction from you. Thank you for all your sacrifice, years of study, and clinical experience that made this video possible!

The doctor did a wonderful job speaking on this subject.

This has been 'spot on' for me. I have been married for 65 years and when I think back to various actions of my husband, I think he has had LBD for a long time but manifested itself in the last ten to twelve years. All areas mentioned here are the mirror of him. One learns to care for and live with IT. The one area of sleep disorders especially describes him to a T, other than he also has narcolepsy and so I find letting him sleep it out is the best thing. If I try to wake him or get him up and going...that is not good; he only falls asleep. Dr. Fleisher, thank you for the delivery of a well thought out presentation, it helps immensely.

@skuhlemeyer

2 жыл бұрын

My husband used the went to va we all knew it was deme but we could make the dr say it we took care of him at home exercise baths meds then hospice came in the last 3 months he was 67

@julietaferrario4934

2 жыл бұрын

I cared for my father with dementia from a stroke for over 16 years . I’m 95 % sure he had Lewy body

I wish every doctor could communicate and explain complicated things as well as you do. Thank you!!!!!

I must say you are an extremely good educator. I love your way of explaining and breaking it down. I would have learned a lot more in college if all professors were like you.

@WendyHannan-pt7ez

3 ай бұрын

I agree this is so informative, and so very helpful. Thank you .

I am so glad I found this. My dad passed away from LBD and Parkinson’s. A short time after his passing, my mom was diagnosed with Parkinson’s. Now several years later it almost seems like she is having more LBD symptoms based on what you are presenting and we will talk to her neurologist about it. Either way, thank you. Interested in your thoughts about gut health and the”second brain”. Done a fair amount of reading into this and brain health. Seems like there is something there. Maybe something to help my brain and my young adult children.

@ejojo13

2 жыл бұрын

Have you figure out a NaTuRal ReMeDy that would HeLP ReFeR$e this Condition? Remember, FooD is the ReaL MeDiCiNe 😇 K.i.$.$...KeePiT$imple$?😂¿

thank you for such a thorough presentation. I,m 99% sure it,s what I have. So now I,lol watch your program again, take comprehensive notes while I can and see if I can,t contribute in some way. thank you again. Linda

How to get a Doctor to listen to the changes in my cognitive changes when they just tell me I need a psychologist.

@suewalden9039

2 жыл бұрын

A1

@annalisa14

2 жыл бұрын

Vicki, our entire global system is broken. Doctors are 80% charlatans who only want the luxury doctor trappings. You need to find a neurologist who is one of the 20% of ethical physicians….💜 luck 🍀 and perseverance will get you there! 🍀 🍀🍀🍀 My dad was a doctor, I dated doctors in 1969 when I was 18 and some beyond that era. In 1985 a doctor gave me gonorreah and in 2012 another doctor gave me herpes simplex 2. Doctors are lazy and strive to get away with outrageous behavior. And the male doctors can be dogs, like the rest of male humanity. I sued the 2012 doctor and won enough money to cover all my grocery needs for 7 years !😃😆😅

I have dementia and I'm mad. I love living and dying with a melting brain is horrible.

@dianeberlin5969

2 жыл бұрын

My heart goes out to you Chris. Wish there was something I could say to help you.

@chriskelly4102

2 жыл бұрын

@@dianeberlin5969 you're very sweet. Thank you so much.

@chriskelly4102

2 жыл бұрын

@@dianeberlin5969 you made me smile . Thank you.

@mentalcompassno1

Жыл бұрын

So sorry Chris. Watching my mother go through this...very horrible. Praying for you

@chriskelly4102

Жыл бұрын

@@mentalcompassno1 my heart hurts for you and your mother

I only wish I had had this information before my mother passed away from Lewy Body Dementia & Parkinson’s in July of 2014. Nobody knew or didn’t share helpful information so it goes without saying her life would have been much better if we had known more details about LBD & PD. Now at least I have this info in case it turns out that I have inherited the possibility of getting LBD/PD. Thank you very much for this video.

Dealing with family members currently with these symptoms. Especially the sudden change in behavior and facial expressions. Very good info here 👍

These overlapping symptoms are difficult to parse, and separating them out may suggest an overall problem with slightly different presentation in different patients. So many diseases are on a spectrum! My dad died from Parkinson's disease, but he had no shaking, only internal dysfunction. His mind was as intact as mine.

An excellent, comprehensive explanation. Thank you.

Thank you for posting this helpful video.

Wonderful talk on LBD. My sister died of LBD. One thing I would like to mention here is that at no point should anyone be given Haldol to treat hallucinations if LBD is even remotely suspected. She was given that drug and immediately her symptoms worsened. This was in 2012 and it was all new to us and we had no idea the dangers of that particular drug for those with LBD. However, I did feel that the neurologist should have been aware. She was having frightening hallucinations almost from the very beginning.

@ejojo13

2 жыл бұрын

DRuG$ never CuRe anything...@LL ManMade Di$-eaSe TReaTMeNT oF Symtom$ with PiLL$ is HoPeLe$$ What's a SoLuTioN...ReaL F😇😇D 🍄🍍🍏🐼

@davidhill3040

2 жыл бұрын

My mother was given Haldol for being "agitated" from her advanced LBD. She was almost comatose for 2 days. She was also hyper sensitive to opiate pain killers like Lortab even in small doses. These drugs would cause her visual hallucinations.

@mariaandreaspashi1931

2 жыл бұрын

Betty Mayes you're right Haldol is dangerous, even a couple of drops, this was given to my mum in hospital because they couldn't manage her bed baths, but with this Haldol she lost all her responses, and had vomit aspiration which led to sepsis which led to her death. But they don't care in hospitals about consequences, their convenience is priority to saving life

The other night I hurt my back. I had to take a trazadone. I didn't know it was a antidepressant. I have had these symptoms since I was a teen. I had ebv really bad. Nearly died. I think drug's and alcohol can ruin natural dopamine and even kill it. I have every symptom of lbd. I also realized I can't take antihistamines because they increase my issue's. The antidepressant made the light's come back on after I can't remember how long.

This was SOO HELPFUL!💯 Thank you for valuable info & much needed help for my elderly Aunt!💗

The best vdo on dementia and thank u mam for such a detailed nd comprehensive vdo with simple language thanks again God bless u.

Excellent video and communicated in such a professional way by this lovely lady with a beautiful smoothing voice. Thank you so much for all your years of study and sharing your gift of communicating a difficult subject so well so that laypersons can understand. Thank you from my heart. God Bless you and keep you strong.

Do people with pre-existing depression become even more depressed if they get LBD or PD? Or, do they remain as depressed as they already are? What if they are already taking antidepressants and/or mood stabilizers?

You spoke to so much of my father. Thank you!

Thank you so much for all of the great information presented in such a clear and concise way. Dr. Fleisher, you're a wonderful presenter of this information and a great comfort to myself who was just diagnosed with DLB.

My father was diagnosed with so many different conditions, the last one psp. Due to this, when he died, we had a biopsy done on his brain. They determined that it was in fact LBD, with pre-parkinsons.

Thank you for sharing. This is quite helpful in understanding our mom, who's been struggling with symptoms for years, but cannot get a diagnosis.

Thank you for being sweet while u r explaining this.

This video is illuminating. Thank you. Blessings to you and your family. 🙏

Thank you for creating this video. It is informative and helpful and well presented. Thank you again!

You are a perfect educator! Thank you so much for this presentation.

I can’t help but keep noticing how beautiful you are. I’m listening to you to try and educate myself on what’s going on with my dad 🙁 but seeing you light up the room helps hear this sad information

This is an excellent video! Thank you!

Responding to your call to action. At the time of my car accident, 38 years ago, my major work was senior social worker, but then now with Severe Traumatic Brain Injury. Depression, dementia etc are the next expected processes to possibly happen too my body now. Call to action can be in just that one area of your professional interest, or could be in any other area of social action. In the early years of my activism, 38 years ago, we created various brain injury organizations. Personally my interests moved to ethnic differences in life policies: expectations, individual or social involvements. Call to action can be as an individual person, quietly or obviously. My Hakka heritage (one of the Chinese ethnic groups) tends to be as a puppeteer, working on the superstructures, rather than being the obvious front person. Which ever method of call to action works, direct or indirect, both are needed.

Dr. Fleisher, Your video is fabulous and I found it extremely helpful in understanding some of the progression I was seeing in a loved ones condition. I would love if you could make another video that touches on some additional subjects such as whether you have seen another underlying health condition (i.e. cancer or its medications) lead to the "parkinsonism" symptoms that begin in the brain stem - or if the development of Lewy Bodies and proteins is not something triggered by anything else. Are there any hereditary trends in neurodegenerative diseases? I would also like to know what symptoms tend to present as the lewy bodies migrate from the brain stem to the rest of the brain, and is that painful for the patient (i.e. can they feel the lewy bodies spreading - akin to a bad headache etc.) I would also like more information of end of life quality of life and caregiver tips. Lastly, can you discuss more of the differences with Lewy Body dementia and vascular and frontal lobe dementia...

Thank you, doctor.

Thank you so much for all the information. If possible I would love to ask you a few questions.

Very very very informative video

Excellent, thank you so much!!

This just happened to show up in my feed a year later....excellent job! My brother (we're 11 months apart). I don't get to see him much but this summer I noticed he had a tremor of his left hand. I mentioned my cat from years ago that only he knew. I was mentioning how she was feral and found me 3 days days after moving. He remembered I had her on a pink leash and took her everywhere. Nothing could be further from the truth. I'm still confounded and worried.

I got more information in this video than I did from all the medical staff at the VA. I wish I had found this video earlier. The most I got from the nurse practitioner at the VA clinic was: "You know you're going to die before your husband because of the stress of being a caregiver." She was even wrong on that front also, I'm still here and my husband passed in 2022. I never got a diagnosis from the VA, but all the information in this video points to LBD.

this is wonderful - - thank you!

My dad was diagnosed with Alzheimers. Seemed to be more to it than that, but I'm not a doctor. It was the woman at the local health food store who first suggested Lewy Body after I listed off his symptoms. I started researching LBD and it seemed to be a better fit. Nobody would listen to me. Long story short, my dad and wife moved to another city. Dad very quickly took a turn for the worse and ended up in hospital. The first time a doctor walked into his room, without even examining him, the doctor said LBD. My Dad had a living will. It stated "do not feed me if I cannot feed myself" Very quickly my dad lost the ability to speak or use his hands. He starved to death. It was a terrible thing to bear witness to. I had to keep telling myself that it would be worse to watch a big, strong man turn into a vegetable. I read somewhere - I think it was Mayo or John Hopkins - that Alzheimers medications can kill LBD patients. This may also have contributed to my dad's rapid decline.

@erinstark5450

10 ай бұрын

My mother has probable LBD and it's nearly impossible to get caretakers to listen to the idea that the "normal" meds for dementia are especially problematic for folks with LBD. When my mom's symptoms got so much worse after meds, she was only given more and stronger meds.

Thank you!

Thanks for video keep going 🤠 greeting from Morocco

@zakariazaki7513

2 жыл бұрын

Your welcome from Morocco

Thank you so much for such a clear and easily understandable presentation. This is very helpful as I try to understand my mom’s condition. Well done!

@paulsfavoritelist

Жыл бұрын

Best explanation of LBD symptoms we've heard. Thank you!

My father has recently been diagnosed with lewy body dementia about a month ago. His noticeable symptoms were like noticed by anyone in June or the end of may. He seemed to be fine and his normal self till one day he had passed out on his way to get the mail from the mail box and woke up in the yard (no one was with him at this time but he was fine and we got him checked for stroke signs and all that. From that day on he started to not act right. His memory is there but he's not fully there. He gets stuck in repeated cycles of the same thoughts over and over. He got to a point where he says he was seeing like shadows of people at night and during the day his property and house he said everything looked different and that there was like a glare type of thing or fog in the shy or something like that. All of this seemed to have come out of nowhere. We had to get him into a very nice nursing home that's close to the family because there's no way he can live by himself and I, nor anyone else, is able to live with him so it's just something we had to do. We go to see him everyday. He's absolutely not the same person. I hate it. He used to be just the nicest and most passive person who never really even raised his voice but now he is either non talkative and just out of it or sometimes he's just like aggressive, not like angry or violent but like abrasive like I guess rude for lack of a better word.

You were great! Thank you 🙏 One question I have though - you posed the question is it probable or possible DLB and then only went through the criteria for probable. What’s on the list for possible or what’s the difference? 🤔

I do love your explanation. I am in the process of going for a reassessment. They first diagnosed PD after Dat Scan. I also have loss of Swallowtail Sign on MRI. Didn’t respond much to Levodopa. Dx of MCI before PD. Main issues are attention memory and fatigue, tons of autonomic, I have fallen, etc. Question is, docs are deciding between MSA and LBD. Apparently MSA does present with MCI at the beginning in 47% of people. How do you determine if someone has MSA or LBD? What kind of tests should I expect? Thanks !❤

Thank you. That was a wonderful informative video! 👌👄👌

I can also read this from the computer

My Mom is having auditory hallucinations but not visual. She was diagnosed with Dementia.

@thesamardahab

Жыл бұрын

Yes the anxiety around appointments. She’s worried for a week before. She’ll get up at 4:00 am every morning thinking she’ll miss it.

Please doctor We need treatment approch What is the best for pt with DLBD Is it rivastigmine or donepizel Or memantine ? Can be used together ? Or should be used alone? What about depression? What about psychosis? Please doctor

Possibly due to a metabolic issue, where the mitochondria becomes faulty and fails, creating no normal pathway for oxygen resulting in a secondary route that is less efficient, this causes macrophages to go out of action, cells multiply, Good diet including cruciferous veg can help and remove sugar that feeds the condition. Global study indicate a genetic link, and COBALT study looking at Memantine

thanks you, great talk - these constant airplanes would make me mad 😠

This is still a lot of subjective clinical diagnosis. Some people with PD don't even have tremors or dementia. Basically you have two different doctors finding symptoms of the same disease effecting different parts of the body. This is similar to cancer. The diagnosis needs to simpler than this. This is why so many people are going years without help because doctors are not willing to commit to a diagnosis. The criteria for diagnosis is ridiculous.

I heard that carnivore diet can treat dementia, what about this type of dementia?

❤

May i attend you to the lighttherapy with glasses? @Propeaq can help to sleep better. Regards, Peter

Hi. Just subscribed :-)

8:24

L.

Let me just say this. The only possible way for a person to have the mindset to take their own life is for that individual to be to some degree schizophrenic. This condition may serve as a trigger, but the fact still remains there's a degree of mental illness at work.

@megb9700

2 жыл бұрын

I think you forgot depression. Then there’s those who are facing a long terminal disease who chose for themselves while they still have the agency. No blame or hate ok. Gotta walk in other’s shoes.

@jasonlindsey9946

2 жыл бұрын

@@megb9700 Not if you are a Christian. We don't commit suicide, which is also called dying with dignity. Depression alone, no. Along with schizophrenia ,yes. I don't have to walk in other's shoes because I study people and the mind. So I already know what is what . Just being real.

@taleandclawrock2606

2 жыл бұрын

I think that we should be wary of judging others as schizophrenic because they are suicidal. A person in chronic unrelieved pain and distress, whether physical, emotional or both, if feeling hopeless, unable to see an end to their pain, wanting their painful life to end is pretty logical and reasonable under the circumstances.

@jasonlindsey9946

2 жыл бұрын

@@taleandclawrock2606 The human body and mind aren't programmed that way. I can judge because I have over 30 years of research that proves correct. I respond to certain videos to enlighten others of things that are either not known or hidden from the public. In hopes that those that need help can find it before taking their life.

@jacquelinegeorge5410

Жыл бұрын

So true, at 71I have LBD and have been fighting depression & mental illness since I was 12 years old. At 27 in John Hopkins I was first diagnosed w/Huntington disease and later revised to a neurodegenerative disease. I do believe that the depression had alot to do with the development of the LBD.

I can’t figure out if you’re being tickled under the table.

if have UTI, the frequent trips to the bathroom will be the exercise

I just clicked on the video cause you’re a cutie.. baby girl..

I have LBD, with a bit of Parkinson movement inclusion. Drs like YOU that try to PROMOTE THEIR OWN BELIEFS ABOUT LBD, should be called into question. It saddens me that you state LBD is a component of Lewy Body Dementia.... As I lose memories, valuable family memories, AND EVEN FORGET HOW TO TYPE (lack of key recollection), cooking ingredients, etc..... YOUR CASUAL ANALYSIS THAT IM DEALING WITH A COMPLICATION/SYMPTOM OF PARKINSONS DISEASE, IS LAUGHABLE!!!!!!