Just recently diagnosed, I've been experiencing multiple symptoms. It has been a very confusing time. This was useful, ty

Thanks for sharing this very important information that builds awareness of this disease and resources to help.

I have Neuro-Sarcoidosis and was treated at the University of Maryland Medical Hospital . They helped me a greatly to suppress and walk again. I had sarcoidosis in my spinal cord and loss my ability to walk.🙏😢

THANK YOU FOR SHARING!! IT TOOK ME 3 YEARS TO GET DIAGNOSED BACK IN 07..

Now they do say that at least 40% of those who suffer sarcoidosis can suffer with small fiber neuropathy

Hello I have sarcoidosis pulmonary and cardio no one in my family had sarcoidosis mother or father had it I'm the only one who developed the disease I think I have neurosarcoidosis because when I cough real hard I lose Consciousness and filling of my hands and I eyesight disappear for a little min my doctor order me a CT scan and I don't know the test results

Thanks Julia, I'm glad you thought the show was educational .

i have neurosarcoidosis and i have realet bad headahkes and flareups vomerting i would love to go on you treatmant and try it please

@dorotheamcguire285

4 жыл бұрын

Rory, so sorry to hear about your flare ups. I wish continued blessings to you and your family. Take one day at a time and stay positive. This is how I truly live my life! Thanks for watching and more to come in 2020 so stay tuned!

How do you determine that your sarcoid that you have in your lymph glands is sarcoid in the brain when you have pins & needles everywhere & hardship with your arms & legs getting weak & how to know it's ms not sarcoid there in the brain

I thought it was really informative. I have this diagnosis and only can find information about lung involvement. I just couldn't hear the doctor to well. Hope this can be uploaded with a louder sound quality? Thank you for sharing.

@boowonder888

6 жыл бұрын

Do you take Prednison? If you do know it will make you fat. Indirectly. I t will give you an appetite.That will give you diabetes type 2.They will give you insulin, which makes you also gain weight. You must try to avoid that with a normal or less than normal diet.

@formyjurnee

6 жыл бұрын

boowonder888 Not sure what your reply is directed to?

@boowonder888

6 жыл бұрын

formyjumee, I did reply to somebody specific but my advise is valid for anybody with neurosarcoidoses. Prednison and insulin feed off each other and that will make you overweight. The longer you are overweight, the higher the risk of a stroke. Dont let it come to that, you must take care of your weight!

@formyjurnee

6 жыл бұрын

boowonder888 I wish you the best if you are struggling with predinsone. When you replyed to my comment there was no connection to what I said....I now see you were just making your own comment to public. Be well.

@marywoods2918

Жыл бұрын

My brother was diagnosed with necrotizing neurosarcoidosis after a brain biopsy. Seizures started in 2016 and he was diagnosed in 2022. Hydrocephalus as well.

The male speaker voice was to low. Bearly hear him

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