Very helpful session. Appreciate this information, presentation.

Hi. I'm new here. I just got diagnosed 4 weeks ago. I cant watch this entire video right now even though I'm sure its very informative and I am grateful for that. However all of this information is extremely overwhelming. I do plan on finishing this video hopefully soon I do want to be informed, but it seems like everything I'm learning is only bad news train. I don't know how much more bad news I can take. I wish there was some good news, I know being informed is good but also it's this whole thing is scary I'm so terrified. I just need to take a break from this I'm extremely overwhelmed but I would just love to know what the good news is. I'm 15 minutes in this video and I haven't heard anyone mention free ice cream for life yet or anything else that sounds remotely positive about this incredibly scary thing.

I know that I have been bimoldal but no MD looked at my valvular area until I was 52. I had almost always annual Gyn exams from age 21 on. I am now 75 and a month ago had a wide valvular excision. The result was P 53. I was told that the only continuing treatment is examination. Please note I have done this in. LS clinic at Beth Isreal Clinic Boston MA since 2000. They did not notice the area of concern. I had to point it out to them after they examined me then they took a biopsy and it took from May until October to have the wide surgical excision. Next follow up in May 2025. I can’t find good experienced risk assessment. Can you recommend someone other than BIDMC. I had hives from colbestrol cream. Ointment was ok but now given halobetasol propionate ointment. I have never had the symptoms improve.

I was diagnosed with Vulval LS in 2019. It has been well controlled with steroid ointments for the past few years.