克蕾兒‧汪倫 - 與疾病共舞 / TEDxLaJolla Claire Wineland It's Just a Disease

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當我們經歷人生的暴風雨時,也許我們的重心不是在等待它過去,而是學習與它共舞。
克蕾兒‧汪倫一出生便患有「囊狀纖維化症」,它是一種基因性疾病,會導致身體產生過多的黏液分泌和積聚,特別是在肺部。年紀輕輕的她已經過二十幾次手術,有時一入院便是幾星期之久。但這並不是她最特別的地方。克蕾兒是一位歌唱家、藝術家、作曲家和天生的喜劇演員。她綻放出超齡的愛心和智慧,被人稱為「小佛陀」、「人際橋樑」和「真正的老靈魂」。她寫過一本暢銷書,並曾接受各大媒體的專訪,包括新聞內幕、奧茲醫生秀、CNN、ABC新聞、時人雜誌等等。她創辦的「克蕾兒基金會」專門幫助「囊狀纖維化症」的家庭獲得財務和情神上的支援。
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When we experience a thunderstorm in our life, maybe we shouldn't focus on waiting for it to pass...but on learning how to dance with it.
Claire was born with cystic fibrosis or “CF”, a genetic disease that causes excessive mucus secretions and collection, especially in the lungs. In her short life, Claire has undergone dozens of surgeries and has spent weeks at a time in the hospital. This is not, however, what characterizes her. Claire is a singer, an artist, a composer, and a natural-born comedian. She radiates with a warmth and wisdom beyond her years. She has been called a “little Buddha” a “bridge among people”, and a “true old soul.” In addition to having written the bestseller “Every Breath I Take, Surviving and Thriving with Cystic Fibrosis,” Claire has been featured on the media, including The Inside Edition, Dr. Oz Show, CNN, Huffington Post, ABC News, Cosmopolitan Magazine, People Magazine, Ladies’ Home Journal and many more. She is the founder of Claire’s Place Foundation that is dedicated to providing emotional and financial support to families living with cystic fibrosis.
視頻來源 / Video source:
• TEDxLaJolla - Claire W...
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Claire's Place Foundation
clairesplacefoundation.org/
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