I've had Lyme disease for 38 years. It took 27 years to get diagnosed. Mayo clinic said it was Fibromyalgia in 1993. Lyme disease destroyed my jaw joints. I've had 3 major jaw surgeries and one was a total jaw joint and mandible replacement. I've had very little help for my symptoms. I was bitten in 1986 and had the bull's eye rash.

Im 66 yrs, old now and I pulled a tick out of my head when I was 10 yrs., old in 1964. The tick was big almost the size of a dime and was this ugly grayish color with a black stripe down the middle of it. Shortly after I got a fever and and a stiff neck it actually happened twice but since then for years Ive had CFS and hypothyroidism now have arthritis so bad and its almost impossible to get an appointment with a rheumatologist or infectious disease doctor. My doctor has tested me twice now for lyme and it comes back once equivocal and the second negative. I know its Lyme disease and cannot get anyone to treat me for it. So, thank you for this video but, after so long I don't know if this test will prove I'm right but, Im still going to ask for it!

@gregromer9441

2 жыл бұрын

Hi Barbie 👋 I hope my comment didn't sound as a form of privacy invasion your comment tells of a wonderful woman with a beautiful heart which led me to comment I don't normally write in the comment section but I think you deserve this complement. If you don’t mind can we be friends? you can text me your mail so i can message you. Thanks God bless you….

@gerardog2663

2 жыл бұрын

I really hope they diagnose and treat you correctly. It's very hard to have an illness for many years without any doctor diagnosing it correctly, and therefore not being able to cure it. I hope you get cured. I wish you the best.

I would like discussion on if someone is not treated right away because they did not have symptoms, how successful is antibiotic treatment in eradicating the bacteria from the human system? We also need to evaluate how successful treatment is and if bacterial growth persists and when it gets reactivated.

@lipanj7

2 жыл бұрын

VERY COMPLICATED. IF YOU HAVE SYMPTOMS NOW YOU MUST GET TREATED. THE BACTERIA IS VERY TRICKY. PLUS EVERYONE'S IMMUNE SYSTEM IS DIFFERENT. YES IT DOES PERSIST WHEN REACTIVATED. MUST GET TREATMENT WHEN IT GETS REACTIVATED. I WOULD THINK WHEN ONE HAS NO SYMPTOMS IT MAY BE DORMANT (SLEEPING. ) THEN LATER IT WOULD REACTIVATE. IT IS A VERY SNEAKY EVIL DISEASE.

@marcc.e.wagner8789

2 жыл бұрын

@@lipanj7 We need to have better testing to determine if there is persistence or not of Lyme's bacteria. Surrogate markers such as C-Reactive Protein are not enough to determine success or failure. I believe this is the frustration that everyone who has been infected by a tick experiences. NIAID needs to fund more research to improve outcomes.

@Josue-xd5ru

Жыл бұрын

Is it possible for Covid to trigger the Lyme bacteria that has been dormant in one's system?

@marcc.e.wagner8789

Жыл бұрын

@@Josue-xd5ru I have not seen literature to support that as a possibility. The problem is the lack of good testing. Antibodies for Borrelia Burgdorferi can remain for more than 25 years. Polymerase Chain Reaction or PCR only works if you can draw fluid from a joint and actually test it for positivity.

Can ZeusLyme work on a test for very old or latent infections please?

I need help and can’t get it anywhere , Long Island born

@lelamoore7178

2 жыл бұрын

ive had this for 18 years and still am being denied health care. Get in contact with the gla (Global lymes alliance) this ignorance must end . God bless.

@johnkalpooner08

2 жыл бұрын

@@lelamoore7178 Yes it’s brutal Get bounced MS, FND , Lyme Nobody agrees , treatments denied

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