God bless you.almost 70 now(male) have a bag now, about 1yr. I learn so much from you. Many Thanks!!! You are a delight to watch, Good people 👍😁GODs Hand is with you😇

I have quit jobs for much less of a valid reason. You deserve to make these decisions for your health, both mental and physical.

I'm watching this in November 2020...telehealth, and hundreds of jobs, went viral this year, as you know. I was thinking Maggie had the transition to full time online before it was the cool thing to do. I'm also glad you were able to stay safer while still sharing your skills, knowledge and sunshine. 🌞😁

@LetsTalkIBD

3 жыл бұрын

I was very fortunate to make that decision before all of this craziness! It made the transition much easier!

This reminds me of this time I got fired for my disability and I was strangely happy about it. It can be so much to try to keep up with able bodied people around you at work--so painful.

@Moose185

2 жыл бұрын

It’s exhausting trying to keep up, when no one understands.

You are above and beyond an inspiration for me and so many others. I look to you for advice and strength and it's always there in your posts. You do what you have to for your life to be fulfilled. I'm so glad I found you on your channel. Keep up the great progress. ❤

It's wonderful to hear more about what you do I left a job 2 years ago that I had for 20 years because I was relentlessly bullied. It's been a hard journey, but I have another job now that I love.

That's so great to have those options to work this way. That's so great.

That's awesome!!! Keep it up!! You are on your right path!!! 💜

I'm glad you're happy, you haven't given up, all help out there matters, your making such a difference xx

That must be so amazing to be young going through such a terrifying situation and have your nurse understand exactly what you're dealing with. I'm sure you helped so many people. I'm sure this was a difficult decision but you need to put your health first. Feel better

You’re doing what’s best for you. No explanations needed 💗 Oh, I LOVE the cross you are wearing

Taking care of yourself is your number one job! So glad you are still involved through online services with your medical training and life experiences. It is sooooo hard to accept that health issues are getting in the way of a job we love. I’m super excited to watch your barn project coming together. Best wishes for continued success. 💜🤗💜

I have just found your channel, and you are incredibly inspiring! Thank you for posting!

You have to take care of yourself. You have to do what is best for your life. I went on disability in 2001 and it was the best decision I ever made. I probably would have died I was so sick. I was down to 75 lbs and I’m 5’6”. I stopped eating I was suffering from severe depression, I had severe chronic pain from my surgeries of UC. Unfortunately I wasn’t able to go back to work. I’m just to messed up. So live your best life, it’s the only one you got.

You are so brave and strong. Be blessed.

A very brave decision young lady. Time to look after yourself. Stress is definitely our enemy. God bless you both.....and here’s to the future for you 2.

You are a very strong young lady. I don't have an Ostomy (for that I am truly thankful) but I have just had bowel cancer surgery and was terrified I might end up with one. So I watched some of your videos as prep, incase the worse case scenario happened and I like to think I would have been better prepared if it had. Good luck with your new ventures, you deserve it!

Oh sweet Maggie! I am so happy for you and Zak and your wedding business. Agree...you need something non medical related. With my ileostomy and exhaustion, caring for someone else would be too much. Sending lots and lots of good wishes your way! Tracey

Great to see you again Maggie! I'm happy to see you healing,and feeling better each day! I was looking for the link's to the patient experience program's that you were talking about. I couldn't seem to find the link in the description. Maybe I just missed it. Could you please post the link again here? Thanks beautiful! 💜

Love hearing about your jouney! 💜💙🧡💛

I give you praise for having the energy to do all those jobs! I work within the NHS and i love it but some days are hard with an ostomy and i now have 2 children its hard work but no one understands that unless youve been through it x

I am glad you are happy. Love you

Blessings your a very strong woman God be with you

Maggie, praying for you and Zak!!

I am so proud of you!

Love your videos. There's so informative and educational. You have knack for knowing what people want to learn about you and the specific video topic. I'm a new subscriber and will be spending some time going back through all your old ones.

i didn't know this since i just found you. i got juvenile diabetes almost 40 years ago which has made my life difficult, your positive outlook with everything you've been thru is really helpful. thank you

I had a colleague that has crohns disease and she keeps having to have surgery, so to understand her struggle a little more I decided to watch videos on the subject and read up on it. I found your channel, I watched your video explaining about your problems and since then I've been watching your videos as they pop up :) Thank you for educating me. I really feel like I can understand how my colleague is feeling/has felt and I can talk with her about things in a more reasonable approach. You're an inspirational lady and you are so very strong considering everything you've been through so far. Well done to you and I wish you all the best for the future. I hope your wedding venue takes off loads! :D Much love to you x Keep up the hard work x Charlotte x

@sari-kitty

4 жыл бұрын

I have crohn's and I think it's very sweet and thoughtful of you to look into the disease and gain insight so that you may communicate better with your colleague. Honestly, I've sent the link for Maggie's channel to a couple of my closest friends hoping they would watch and gain a better understanding of thing's. You sound like a great friend!

@LittleEmoGirl18

4 жыл бұрын

@@sari-kitty Thank you! I think it's always good to learn new things :)

@nightowl7592

4 жыл бұрын

@@LittleEmoGirl18 you're a blessing,! I don't know how many times I shared campaigns regarding my physical and mental illnesses ( thyroid disorder ,OCD and PTSD ) not even my family put interest .you are a very kind and thoughtful person

@LittleEmoGirl18

4 жыл бұрын

@@nightowl7592 Thank you. Just makes it easier for me to speak to them about things you see. Don't want to put my foot in it and say something too personal etc

@LittleEmoGirl18

3 жыл бұрын

@Carystus MJB Ah well thank you. I don't work with her anymore unfortunately as I can imagine with this disease it is draining. However we still keep in contact. I have a family member with the same so it's best to learn what you can. You can never know enough ! X However I hope you are well and not suffering too much with things xx

Sorry you have to take a such stress, I am sure you make a wonderful job, but I understand your situation very well, now your work keeps with us who share the same experience, thank you for bee with us all.

Happy for you Maggie that your options regarding jobs have worked out well for you 👍 I can imagine it must have been tough for you leaving a job that you worked hard to achieve but our health must always be our top priority and the work you’re doing now seems to be working out well for you! Love watching your videos.. you have inspired me and helped me in many ways and I thank you 😊💗

Bundles of good luck and happiness to you Maggie you're on the right path I can feel it and you are creative thinking intelligent and wise and very resourceful I love you so much for sharing your story ❤️

Just Love You. You go girl. I need to contact your company. I left my job as well that I loved so much helping others. It has been difficult but when you are sick you can't give 100 percent. I was in the hospital for 14 days with IV antibiotics then a week later admitted again & had emergency surgery. Laporotomy & Colostomy bag. I lost a total of 45 lbs & have been recently released from PT. I had to walk with a walker for a while. You are such an inspiration to me & always wishing you the best.Thank you for your kindness & you being you. ♥️✝️

I just found ur site Maggie. Love it & u & Zac too! I’am a retired Plebotimist & Medical Assistant. Never worked with osteomy bags or the like, but was very much interested in learning about it. Love ur barn plans too. Will keep tuning in for sure! God Bless u two!!

Bug away. I have a friend with Chron's disease. She has been thru a pretty rough time. I have diverticulitis so have somewhat of a clue....but not the same at all. I support your attitude and your friends and family supporting you. God bless!

So happy i found this channel.. 3 weeks ago i had a colostomy surgery. And it's really scary when it very first happens. You gotta change your life style, diet, ext. In my case sitting here worried that i won't be able to get a reversal. The thought of having to deal with this for the rest of my life is terrifying. But it's good to know it can be managed and you can still live a somewhat normal life. Thx for the knowledge.

CHOP is a great hospital! All the nurses I encountered were so amazing.. but yea I know what you mean by the traffic! Philly/NJ traffic is absolutely crazy I've never seen it so bad.

You are one of my inspirational people. Wish you could come to the uk

Thank you, thank you, thank you for posting this! I so love your site and all the help you have given to us all. This post so calmed my fears and opened possibilities for the future! I too am a hospital worker (lab scientist) that runs like a chicken for 12+ hours. I had colorectal cancer and ostomy & other follow up surgeries. Has been hard keeping the fast pace. I'm excited to know there are other possibilities! I do agree with patient experience. Part of me wants to lead a colorectal support group or even ostomy support... can't find any in this giant city in which I live. Much love and appreciation to you Maggie. Thank you for sharing your story! 💓🙏

@dheyes803

4 жыл бұрын

Sue Jacobs Please contact the Crohn’s and Colitis” foundation. It is a national organization with many local support groups where you can find someone who will be more than happy to share their knowledge and experiences with you.

You're a inspiration!

Bug on... thank You for your candor. I for one appreciate it greatly, My ostomy is due to cancer, so there are parts I am clueless on. None the less get the bag, I have got a bag.

This is really good for showing to create balance I'm really into the idea of patient as experts but I totally get that you have to have an escape from your illness/disability. I have health issues/ disabilities and I'm trying to figure this out still.

I'm very proud you were able to make that decision, those decisions are never easy but you have to think about your health and what your limitations are, i'm glad your still able to help patients though, it is a very rewarding job

First of all you are the sweetest and i love you, and you’ve brought me peace through countless dark times 💜 I’m in this position now where I’m considering quitting my job. This was so comforting 💜💜💜

@gracieshepardtothemax1743

4 жыл бұрын

How has your decision been going? I don’t have crohns or colitis, but I have many other medical issues (many bowel resections, failed right kidney transplant, many gynaecological surgeries etc). I had to leave my career for years. I’m now working for myself (I’m a hairstylist) and do quite a bit less. But not working was so hard. I’m having a bad week right now and haven’t left my bed in 4 days. I hope you find peace with your decision and have the support and love of your friends and family!

I am sure you are a very caring nurse. Nursing is a very hard profession. I love your channel. I am glad that you found another job that you are enjoying but hopefully not as demanding.

Your videos are very informative for people who are in the middle of making the decision of whether or not to undergo the proctocolectomy . Once they see the limited options, they can return to your channel for encouragement as to what may lie ahead.

Awesome! Congratulations to you both on your new adventure! I bet the barn will be spectacular! If you do this kind of thing, don’t forget to have the barn blessed...makes for long living marriages. xo

Ps: you’ve already mentioned where you worked long ago, lol. It’s a hard job. I started in the NICU, full time, 12hr shifts. I had to switch to a part time clinic job in research. I’m disabled and it takes so much more energy for me to function normally let alone. I started to have more pain, lost weight, super stressed, not happy... the job I changed to sort of fell in my lap! I loved it, I still got to be a peds nurse, worked in the clinic/office. I could sit more often, no more nights or weekends. Did I miss floor nursing? Absolutely! It’s what I fell in love with! Now I’m not working bc my health declined (sort of overnight it feels like). I miss working, can’t work at anything now sadly. Now I make and sell feeding tube clips (used to keep the tubing out of the way and safe from getting snagged).

YOU DO WHAT IS BEST FOR YOU AND YOUR FUTURE HUSBAND..... CONGRATULATIONS ON YOUR WEDDING COMING UP..... I'VE WATCHED YOUR VIDEOS AND THEY ARE INSPIRING.... MY YOUNGEST SON ALSO HAS CROHNS SINCE HE WAS 12 AND NOW HE IS 34 ....TAKE CARE OF YOURSELF AND KNOW YOU ARE LOVED BY MANY.... ❤MAY GOD BLESS YOU ALWAYS

Maggie it was a brave thing to do, but there are so many more opportunities for you xx

Im RN in surgecal floor I know what u gone throw I think u did the right thing and Im sure u will be happer

Good for you doing what’s right for you!!! Without health your no good to anybody & yourself! The barn venue is so exciting & like you said, you get to use another creative side of yourself! Bravo 👏🏼 to you! Your very positive & you will succeed at anything you do because of all you have gone through! Go 📣Maggie 📣Go! Your a star🤩in my eyes!❤️🇨🇦

you are an east coast girl. i had my daughter at Jefferson cc because of my type 1 and being such a high risk. luckily i did because she was a 28 weeker, in their NICU for 71 days. you are an amazing woman.

Wow! I know you loved working with "your kids". You will be OK, just remember you have to take care of yourself first.

So new but all caught up I got all my info from ur post thank you

I don't mind what you do as long as you stay somehow involved! I only say that bcuz you HAVE a gift! And that gift is helping others understand what's happening! ok sorry that sounded bossy but i meant it well💕☺✌

I get that immersing yourself in what has been your life is emotionally draining, or has a higher emotional component than for someone who didn't go through it. I was a special ed student and now I'm a special education teacher. When I work with students who have the same struggles I've dealt with, I feel it kind of strongly. But at the same time, I have a lot of value in what I do, because I get what my students are going through.

I wish you the Best

I feel for you and the decision to quit your nursing job must have been hard. I have heart failure from the stress and had to quit nursing 3 years ago. I had to forgive myself because I knew I should be looking after people. It’s so hard for me but I’m glad you still have a nursing role you are a great educator. I purposefully deregistered myself to make sure I would not return to it. My role in nursing nearly killed me. People don’t realise how stressful it can be even when u love what you do. I’m happy now but it took a long time to forgive me. ☺️. Nothing is worth your health.

You will be much much happy girl in new job, believe please me, too. You deserve to be happy in your own life. Just please do not stop youtube! Wish you the best, dear!

@LetsTalkIBD

4 жыл бұрын

Thank you!! And have no plans to :D

I never went to college because I couldn’t decide on what I wanted to do. I’m a stay at home mom now and once they are in school full lime I’ll started working. I have EDS and it didn’t start having big changes in my health until 2020. My body is definitely different then when I was 18 when I would have started my education journey if that was my path. I feel like it was for a reason. I can imagine how hard it must be to find something I love and then no longer be able to do it because of health changes. I love how you found a way to make it work for you and have so much success when your plans had to change due to your decline. I hope I find the same success as you when I go back to work! Sorry for the novel 😂

Hey... Missed yooor live!! I understand fully why yoo had to quit ur job... Look after your self chick... Amy.. 💖

You are a very impressive person...and I am never easy to impress. Best of luck to you....you are FANTASTIC

I really enjoy hearing about your journey with Crohn’s disease. I am a Student Enrolled Nurse currently studying Diploma of Nursing in Adelaide, Sth Australia. My younger sister has had Crohn’s for over 20+ years and can relate with what you are going through. Congrats with your engagement and the other interesting projects. I think an Enrolled Nurse is the same as an LPN?

As long as you are happy that is the main thing.

I know that was hard for you glad you have other jobs to fall back on, i had to stop working not by choice the drs said i will never work again i worked since i was 16 i'm 36 now haven't been working 2 1/2 years wish i could go back but it's what's best for me health.

Beautiful first is your health then think about working you do a lot you should not demand more, I love you very much and I want the best for your life and for your husband

Love to you Maggie

omg 11 health. this is a fantastic idea having an ostomy and ostomy. I've often said that people who work with type 1's should have type 1 so they would understand what we are going thru. hugs

Full time work in office has DEFINITELY become more difficult for me since I’ve been diagnosed. My employer continues to insist that we be in office even though the job I do could TOTALLY be done remotely. Remote work has come to the forefront again with more ppl fully realizing it’s potential and advantages. My employer also has failed to reward me financially for my full time service over the course of 10 years. Time for a new job! I think the newer generation will be more diverse in their money making efforts and less in one basket since employers these days seem (to me) to be offering less. Glad you’ve found what works for you!

I live in CA and believe me, the drivers are crazy here too! You have beautiful eyebrows! Part time job???

Amazing woman!

I would love to be able to message you. I am a nurse in Canada and also have bowel and rectal issues. I also can no longer work as a nurse due to my health issues. You are very positive and a great role model

My now ex step mom was an er nurse for 45 years so yes, major stress. I can imagine how hard the decision was because of all the schooling and licensing you had to get. Good move though!

@misscorvette02

3 жыл бұрын

@sky No idea. My dad passed away May 2015 and after a few months she stopped all communication. I'd known her since I was 9 years old, but I guess actions truly do speak louder than words. She's 82 now (I'm 62) and I know that Karma will meet up with her. Also, I'm sure my dad is upset with her too!

Yes it is hard. I worked as a teacher but my immune system could not take it anymore. Then I work In an office in insurance and was up for big promotion, Crohn’s did not allow. Had to go on disability. If I am able to be I want to work online as well.

@Catlady1210

4 жыл бұрын

I have 4 autoimmune diseases and possibly another one . I am 36 been and suffering since I was a little girl and I need to figure out how to get disability to.pull some weight for our household income. Was it difficult to get disability? Or did your doctors help? My mother has type 1 diabetes and her process took 2 years. Hope you are as well as on can be with chronic Illness and b look Blessings 🙏🙏

You did right thing.

Everyday we are short staffed, whether it be nurses or aides. If by chance we arnt they pull staff only to slam us with patients AFTER. I don’t blame you for leaving. Good luck

Hi Maggie! This video reminisced with me beyond belief. I was a pediatric dietitian working in the PICU and had to quit the clinical environment for almost the same exact reasons as you did. Expected to have my total procto-colectomy at the end of this year. I am curious about that company you mentioned at the end of this video...you said you would post the link under the video but im not sure I see it! I would love to know what company it is and get involved as a patient advocate! Thank you for all that you do!!

I was in the ER last night and the staff recognized me 😆. I think I've been there way too many times.

@Talapia03

3 жыл бұрын

@sky hmm. 10 months ago that was for c.diff and norovirus

What do you find helps with bloating? I have tried everything and nothing works.

I'm sure you were the most compassionate nurse. I'm sure you missed!

❤️

Does anyone with the ostomy regret getting it done or its better even with had days??

I'm a little late responding, but am I correct that stress is a considerable contributor to worsening of your IBD? I might be a really good thing that you backed off some of the stress.

3:40 I'm in the UK. My doc advised further surgery might be needed to fix that. Would that be too expensive in the US?

@phoenixtears25

4 жыл бұрын

ColinWatters everything here in the USA is expensive

I don't hear many people talking about the fact that with an illeostomy you still need to run to the restroom. I haven't figured out any kind of rhyme or reason for when I seem to have a "flare-up" of trouble. I could be fine for weeks with just minimal mucus then out of nowhere I feel crampy and need to be near a restroom for a couple or few days bc I have urges to go and sometimes experience boughts of diarrhea. I'm not chronically ill. I have mine bc of complications from birthing my son. Thinking I may need to consider meds for depression bc it's been effecting my mental health.

@LetsTalkIBD

4 жыл бұрын

Yes! So many patients have NO IDEA this still will happen!!

Your adorable!

💞💞💞

I have little gray white areas around the base of my stoma on the red part. Do I need to go back the doctor to have it looked at?

I am going on losing weight gradually. I have IBD. Can u suggest me something which will be safe for my gut so that I can gain weight? Please suggest

I couldn't quite understand if the name of the company is " Loving Health " or something else. Could you please let me know the correct name. I had my large intestine removed and an illeostomy placed in April, 2019 and internal GJ Tubes in June, 2019. Still having major issues and no where to turn.

@LetsTalkIBD

4 жыл бұрын

WEGO Health!

@debbiezehfus842

4 жыл бұрын

@@LetsTalkIBD Thanks so much.💜

@paulmunday9368

4 жыл бұрын

I heard 11 health maybe need to clean my ears out? Lol

Take a less taxing job like part time at a day clinic eg dental surgery or ophthalmology. Med surg is hellish even for healthy people.

🥰🥰🥰🥰🥰🥰

'Ostomy care is draining'. Are you working on your standup routine?

im only saying this because you said you like the jokes....you can truly tell someone you dont give a shit. sorry when i feel awkward i make jokes....sent with love ps i have severe ibs but not nearly at your level and you might say i give a shit too much

Did you apply for disability ?

@LetsTalkIBD

4 жыл бұрын

In the video I explain I am still working full time.

Girl You have found ur nitch I cannot stand the blacked out bars in medical books over the eyes of someone living with a chronic medical condition. Like we are a statistic or number or something. No we are human beings. Keep doing what ur doing

California drivers are CRAZIER FOR SURE. IM FROM THE EAST

Teach me how to make money. My body is killing me. I have hidden the knives and guns, so, this bastard has no choice but to slowly kill me.