Hi Maisie was great to see your KZread video And its great to see you now have your Seizure Watch hope it really helps you out my beautiful friend x x x 😘

That's great! Sounds like it will be super helpful!

@mysecretworldofseizures6362

4 жыл бұрын

Deffiently is!!!

I’ve been thinking about getting an Apple Watch i don’t know bout help but maybe to just help me and my neurologist if I have another one. Cause my seizures are anxiety and stress related so before I have a seizure I’ll have like and anxiety attack and then have a seizure it’s honestly really annoying in my opinion but scary too. I’ve been lucky for both of my seizures but I still gotta make sure I’ll be alright you know. Sometimes it’s scary. But I really appreciate you putting out this review on here and hope that you’ve been having less seizures and staying safe. 💜

I have epilepsy, seizures mostly during sleep. But I got this watch to monitor it and keep track. Good luck with Your health and thanks for the video ! :--)

@kazee4536

8 ай бұрын

Can the app send alarms to the emergency contacts without the person pressing any buttons? My dad also has seizures during his sleep so he isn’t able to press anything when he is having a seizure.

wow thanks for sharingg

How's the battery life on your watch been? With SeizAlarm I've found that the watch lasts about 10 hours at most & needs to be charged, with everything else unrelated to health turned off.

Would the the Apple Watch detect my focal seizures because that’s what my doctor diagnosed me with and like that I would like for the watch to record what time and day I had them because I completely forget t after I have my seizures and like that I’m notify One of my family members while they are at work because I’m always alone at home with my dogs that I’m tell them I’m okay that it was just a small few seconds seizure but I’m ok that I’m going to rest on till they get home

Hi, i did't understand what seizure app did you choose because I know that there are a lot out there and i dont know witch one to coose

I'm turning 18 soon and I have had epilepsy since I was nine years old I have Gramma seizure the plan was for me to live with my mom and dad but I just honestly don't want to do that i want my freedom and would love fo get my own place but my family worry's what if I had a seizure I topically have one seizure ever 3 to 4 months there completely random im just looking to see witch bracelet would be the best and if this would possibly allow me to be able to get my own place

Does this track Absent seizures, Grandmal Seizures and Tonic Clonic Seizures? What if your heart rate goes up an your having an anxiety attack not a seizure. 🤦🏽‍♀️ I’m a mom of 4 my son is Type1 diabetic it’s the biggest emotional roller coaster for me. 💜💜💜💜

@meelauramee

2 жыл бұрын

Very good question sad that no one could it answer

@nathans2157

2 жыл бұрын

it cannot track absent seizures, only ones that are movement related

so its only tonic seizure? what exactly does it detect? Movement heartrate? It cannot detect absences?

@jonathanvargas7605

3 жыл бұрын

I do not think it can detect absences. I have temporal lobe epilepsy and for me, it will not work because it is not too intense like a grand mal.

Where did you buy the watch and how much is it as I think this will help me alot when I am in public as I am scared to have one in public again

@mysecretworldofseizures6362

3 жыл бұрын

Its only an apple watch so you can get it from multiple places I got it from argos for £200 hope this helps! :)

Hi!! How Do I get one and is it free?

Hello I want can deaf people wear apple watch.. also I have seizure,

Does it detect if your “going” to have a seizure soon??

@mysecretworldofseizures6362

3 жыл бұрын

It can tell you your heart rate is going up also delects motion so if like myself I twitch and jerk before my seizure it can be very helpful

How do you set this up on Apple Watch??

@mysecretworldofseizures6362

3 жыл бұрын

You just download the “SeizAlarm” app on your phone and fill in your details ... then go on your watch and press start monitor .. really simple xxx

Where can I purchase the watch ? My 5 year old has epilepsy & she mostly gets them during her sleep & I’m looking for something to alert me while I’m a sleep

@mysecretworldofseizures6362

2 жыл бұрын

Hi! You can buy an Apple Watch from pretty much anywhere then just download the seize alarm app

@mariacuevas7525

2 жыл бұрын

@@mysecretworldofseizures6362 thank you so much !!!! Hoping all is well with you ❤️

@LoveBugXOXO

2 жыл бұрын

@@mariacuevas7525 Did you end up getting an IPhone watch for your 5 year old? My 9 year old just had his first seizure while sleeping.

@mariacuevas7525

2 жыл бұрын

@@LoveBugXOXO yes I did !! She hasn’t gotten one so far since I got it for her 🙏🏽 but she wears it only at night , & I also got a baby monitor as well

@LoveBugXOXO

2 жыл бұрын

@@mariacuevas7525 Which version watch did you purchase? I’m thinking I should get a newer one so my 9 year old can run around without having to have the cell phone on him. Do you like the baby monitor? Which one did you get? Thank you so much!

how have you be feeling after 3 years of using that app?

Hi, my name is Jodie. I really liked your video. I wanted to know what is the watch called, ie Brand, that sort of thing. I know what tonic/clonic seizures are like i've had some really bad ones since October. One lasting 45 minutes and another lasting 50 minutes. so I know how bad they can be. Thank you for the info. They have me on Kappra 750mg in the morning and 500mg in the evening and 500mg Lyrica twice a day which keep them in check. Stay well, love from Jodie😀

You never mention Which Apple watch

Hi what app r u using

@mysecretworldofseizures6362

3 жыл бұрын

Seize alarm

Which model the 6? Or ?

@mysecretworldofseizures6362

3 жыл бұрын

It’s only the series 3 but does the job 😊

@mysecretworldofseizures6362

3 жыл бұрын

It’s only the series 3 but does the job 😊

Can i ask wot app it is plz?

@mysecretworldofseizures6362

4 жыл бұрын

It’s called seizealarm

@Samo-73

4 жыл бұрын

MySecretWorldOfSeizures can i ask how much it is 2 access monthly?

@mysecretworldofseizures6362

4 жыл бұрын

Samo Burns hey sorry I forgot to mention that! It's £12 a month!

@Samo-73

4 жыл бұрын

MySecretWorldOfSeizures thx so much. Hope ur ok hon x

What watch is that?

@mysecretworldofseizures6362

2 жыл бұрын

Hi it’s an Apple Watch series 3

@emmaevans6731

2 жыл бұрын

@@mysecretworldofseizures6362 oh wow!! Didn't know you can set it up to be a seizure watch? X